Latest Constructive Podcast Episodes
Kübra Gümüsay from Germany on language and political discourse
Radio Utopistan - September 27, 2020 16:37 - 1 hourKübra (32) is an author and activist in Hamburg, Germany. She just published her first book, “Language and Being”. On the interdependence of language, perception and the way we treat each other. A broad and ancient topic, but Kübra found a way to talk about it that resonates with many. It’s a bes...
Women With Hemophilia: A Physician’s Perspective
B's in a Pod - September 20, 2020 12:00 - 23 minutes ★★★★★ - 13 ratingsIn this episode, hematologist Dr Robert Sidonio visits with Becky to talk about a topic of mutual interest: women with bleeding disorders. The pair discuss defining different kinds of testing, comprehensive care for women in particular, and much more.
Adventure Education and the Hemophilia Community
B's in a Pod - September 06, 2020 12:00 - 26 minutes ★★★★★ - 13 ratingsPat Torrey from GutMonkey chats with Becky about adventure education, the types of programs available, the lessons he has helped impart on attendees, and what the hemophilia community has taught him in this episode. Becky also contributes the changes that she has seen in the community from the a...
Melinda Janki from Guyana on oil, money and nature
Radio Utopistan - September 04, 2020 08:07 - 26 minutesMelinda (58) is a lawyer and environmental activist in Guyana, South America. The poor country wants to get very very rich – with oil. One of the largest oil discoveries in recent years was made off the coast of Guyana. Melinda says, we are rich already. We are a carbon sink, look at all the natu...
Melinda Janki from Guyana on ExxonMobil, World Bank and climate
Radio Utopistan - September 04, 2020 08:07 - 26 minutesMelinda (58) is a lawyer and environmental activist in Guyana, South America. The poor country wants to get very very rich – with oil. One of the largest oil discoveries in recent years was made off the coast of Guyana. Melinda says, we are rich already. We are a carbon sink, look at all the natu...
Hemophilia in Children and Teens
B's in a Pod - August 23, 2020 12:00 - 29 minutes ★★★★★ - 13 ratingsPediatric hematologist Dr Stacy Croteau chats with Becky about hemophilia care in early childhood, helping caregivers and their children with hemophilia transition to independence, and how pediatric care for hemophilia has evolved and continues to do so.
Mental Health and Hemophilia
B's in a Pod - August 09, 2020 12:00 - 31 minutes ★★★★★ - 13 ratingsBecky chats with former HTC social worker Ed Kuebler about the importance of mental and emotional health. The pair talk about how hemophilia has changed over the years that Ed has been in the community, how care changes as people with hemophilia move through life stages, and what it means to “sh...
Hemophilia and Physical Therapy
B's in a Pod - July 26, 2020 12:00 - 24 minutes ★★★★★ - 13 ratingsPhysical therapist, Bruno Steiner, is Becky’s guest, and he shares his experience and expertise in this episode. Bruno chats about using musculoskeletal ultrasound (MSKUS) and other techniques as part of a physical therapy program for people with hemophilia, and Becky contributes with insights f...
Udo from Berlin on basic income and homelessness
Radio Utopistan - July 19, 2020 09:57 - 26 minutesUdo (30) is a social worker in the streets of Berlin, the capital of one of the richest countries in the world. Nevertheless there are about 10.000 homeless people living on card boards or abandoned mattresses. To reduce poverty the city of Berlin invented a solidarity basic income and Udo’s orga...
The Role of the Social Worker
B's in a Pod - July 12, 2020 12:00 - 27 minutes ★★★★★ - 13 ratingsSocial Worker Kathaleen Schnur visits with Becky to talk about the role she plays at her Hemophilia Treatment Center (HTC). Kathaleen describes the ways social workers can help families with hemophilia navigate many different aspects of life with a bleeding condition.
Pain, Depression, and Hemophilia
B's in a Pod - June 28, 2020 12:00 - 18 minutes ★★★★★ - 13 ratingsPfizer employee Dr. Terry Anderson stops by to talk about her research in hemophilia around pain and depression, and shares some of the findings in the recent studies to which she contributed. Becky and Dr. Anderson discuss the perception and management of pain and the role of caregivers in supp...
Majd Mashharawi from Gaza on business and politics
Radio Utopistan - June 21, 2020 18:49 - 49 minutesMajd Mashharawi (26) is an engineer and founder of two companies in Gaza. A place that is often referred to as the biggest open air prison in the world. But instead of surrendering to her fate, Majd decided to create something under occupation, siege and patriarchy. In headscarf and high heels. ...
Grace Kabera from Congo on fear and democracy
Radio Utopistan - June 07, 2020 19:55 - 53 minutesGrace Kabera (27) is a member of the LUCHA movement in the Democratic Republic of Congo. She is fighting for change. With change she means the end of corruption and violence. And instead creating a real democracy with social justice, clean water, paved roads and free education. With fighting she ...
Maria Toorpakai from Pakistan on Taliban and freedom
Radio Utopistan - May 24, 2020 18:37 - 36 minutesMaria grew up in Taliban headquarter. That’s how she calls the tribal area of Waziristan where she was raised. Today she is a squash player in the international arena and has a foundation to encourage Pakistani girls to also be brave. ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ The Taliba...
Pakistani Maria Toorpakai on Taliban and freedom
Radio Utopistan - May 24, 2020 18:37 - 36 minutesMaria grew up in Taliban headquarter. That’s how she calls the tribal area of Waziristan where she was raised. Today she is a squash player in the international arena and has a foundation to encourage Pakistani girls to also be brave. ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ The Taliba...
Radio Utopistan
Radio Utopistan - April 21, 2020 11:38 - 3 minutesRadio Utopistan is a podcast and community. We believe in constructive storytelling and a more just future. Therefore we are interconnecting bold ideas and visionary people from around the world. ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ Radio Utopistan is a think-and-do-tank. A toolbox...
Events in the Hemophilia Community
B's in a Pod - August 20, 2019 14:00 - 23 minutes ★★★★★ - 13 ratingsGuest host Matt sits down with Jill, a caregiver, and Paul and Shelby, who have hemophilia B, to talk about events in the hemophilia community. Recorded on site at The Coalition for Hemophilia B Symposium, the group discusses how their involvement in the community has evolved over the years and ...
Using Music as a Creative Outlet
B's in a Pod - August 06, 2019 14:00 - 16 minutes ★★★★★ - 13 ratingsOur usual host, Becky, passes the mic to her daughter Elizabeth, a person with severe hemophilia, to guest host this episode. Elizabeth, who is studying to be a music therapist, chats with Spencer, a musician and teacher who also has severe hemophilia, about how music can make a difference in th...
Going Away to College
B's in a Pod - July 24, 2019 13:59 - 31 minutes ★★★★★ - 13 ratingsMatt, who has appeared on the show in the past to discuss his son’s experiences with hemophilia B, steps in as guest host in this episode to chat with Elizabeth and Josh. Elizabeth is a college senior and Josh is a young adult who has completed his degree. The trio talk about scholarships, infus...
Connections Across Generations
B's in a Pod - July 09, 2019 14:00 - 32 minutes ★★★★★ - 13 ratingsGuest hosts Wayne and Chad, 2 older community members, sit down with Rocky, age 36, to discuss intergenerational connection in the hemophilia B community. The men talk about how things have evolved over the years, whom in the community they admire, and their hopes for future generations.
Relationships and Hemophilia B
B's in a Pod - June 25, 2019 14:00 - 31 minutes ★★★★★ - 13 ratingsRocky and Brittany have been together just over 5 years and are recently married. In this episode, Becky chats with them about navigating a relationship as it relates to Rocky’s hemophilia B. They chat about discussing hemophilia with a potential partner, the impact of being a hemophilia spouse,...
Women With Hemophilia
B's in a Pod - June 11, 2019 14:00 - 40 minutes ★★★★★ - 13 ratingsElizabeth and Kirsten are both women diagnosed with hemophilia B. In this episode, they chat with host Becky about their experiences growing up in a community where females with hemophilia were the minority. They also discuss their triumphs and challenges as women with bleeding disorders and sha...
Hemophilia Hacks: Part 2
B's in a Pod - May 28, 2019 12:00 - 21 minutes ★★★★★ - 13 ratingsThe second installment of “hemophilia hacks,” in which host Becky and Matt, her guest, talk through a list of tips and tricks submitted by members of the hemophilia community that, for some, might possibly make managing hemophilia just a little bit simpler. In this episode, they discuss general ...
Hemophilia Hacks: Part 1
B's in a Pod - May 14, 2019 14:08 - 21 minutes ★★★★★ - 13 ratingsSeason 2’s premiere episode is the first of a 2-part series in which host Becky and her guest, Matt, discuss “hemophilia hacks” that were submitted by members of the hemophilia community. Like “life hacks,” these tips and tricks, for some, might possibly make managing hemophilia just a little bi...
The B2B Advisory Board
B's in a Pod - March 19, 2019 12:00 - 28 minutes ★★★★★ - 13 ratingsHost Becky recounts the history of the Pfizer Hemophilia B2B Advisory Board with its chair, Wayne, and Bridget, who helps to develop the programs. They discuss the resources that the B2B Advisory Board has developed, how the board evolves to address changes, and how the B2B Advisory Board is wor...
Managing Emotions
B's in a Pod - March 05, 2019 13:00 - 26 minutes ★★★★★ - 13 ratingsHost Becky talks with Wayne, who has hemophilia, about some of the emotions he experiences as a result of his condition. Wayne chats about his journey and successes he has experienced in managing his emotions. He also discusses how feeling validated by others in the community can be meaningful.
Dating and Marriage With Hemophilia B
B's in a Pod - February 19, 2019 13:00 - 23 minutes ★★★★★ - 13 ratingsHost Becky chats with Wayne, a 56-year-old man with hemophilia, about his experiences with dating and marriage as they relate to his condition. Wayne discusses his first marriage and how he and his wife learned about his hemophilia together. Wayne discusses his experiences in his second marriage...
Dating and Marriage with Hemophilia B
B's in a Pod - February 19, 2019 13:00 - 23 minutes ★★★★★ - 13 ratingsHost Becky chats with Wayne, a 56-year-old man with hemophilia, about his experiences with dating and marriage as they relate to his condition. Wayne discusses his first marriage and how he and his wife learned about his hemophilia together. Wayne discusses his experiences in his second marriage...
Making the Most out of HTC Visits
B's in a Pod - February 06, 2019 13:00 - 39 minutes ★★★★★ - 13 ratingsHost Becky talks with Melissa, the mother of a son with hemophilia B, about how to optimize time spent during an HTC visit. Melissa details the different specialists who are often available for consultation, how her son’s visits are structured, and how she participates with his care team. Meliss...
ER Visits and Hemophilia
B's in a Pod - January 23, 2019 13:00 - 28 minutes ★★★★★ - 13 ratingsHost Becky talks with Matt, the father of a son with hemophilia B, about his family’s experiences with the emergency room. Matt talks about the importance of being prepared to deal with unexpected emergencies and gives insight on what has helped his family to have more successful ER visits. Beck...
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