Latest Alpha1 Podcast Episodes
World of Promise Rare Disease Day with Dr Ala Stanford March 2023
World of Promise - March 14, 2023 15:02 - 27 minutes ★★★★★ - 15 ratingsDr. Ala Stanford has a long list of accomplishments. She is the first black female pediatric surgeon trained entirely in the United States. She is the founder of the Black Doctors COVID-19 Consortium. She opened the Ala Stanford Center for Health Equity in 2021 to offer primary care and behavio...
Celebrating Rare Disease Day with Jodi Taub
World of Promise - February 16, 2023 19:05 - 22 minutes ★★★★★ - 15 ratingsOn Feb. 28, Rare Disease Day recognizes and celebrates the more than 300 million people around the world living with one of more than 7,000 rare diseases. In honor of Rare Disease Day, the World of Promise podcast hosts a special guest this month. Jodi Taub is a therapist based in New York C...
How Project Healing Waters Serves Veterans and Current Military, an interview with David Folkerts
World of Promise - September 20, 2022 13:00 - 26 minutes ★★★★★ - 15 ratingsProject Healing Waters Fly Fishing is a nonprofit organization whose mission is to use the sport of fly-fishing and associated activities as a means of physical and emotional recovery for disabled veterans and wounded, injured and ill military service members. In 2020, some employees at CSL Behr...
World Hemophilia Day and Expanding Access to Therapies for People with Bleeding Disorders
World of Promise - April 13, 2022 13:18 - 18 minutes ★★★★★ - 15 ratingsMegan Adediran, President of the Hemophilia Foundation of Nigeria and Durhane Wong-Rieger, President and CEO of the Canadian Organization for Rare Disorders, join the podcast to talk about the importance of finding new and innovative ways to expand access to life-saving therapies for people livi...
When’s the Right Time to Tell that Special Someone About Your Rare Disease?
World of Promise - February 25, 2022 19:04 - 13 minutes ★★★★★ - 15 ratingsWhen it comes to dating and starting a new romantic relationship, people who live with rare and serious diseases face some unique questions. When is the right time to tell that special person about my condition? And how do you bring the topic up to a potential romantic partner? On a new episo...
Listen: The Future of Flu Vaccines
World of Promise - December 15, 2021 02:15 - 16 minutes ★★★★★ - 15 ratingsOn a new episode of World of Promise, host Anthony Farina is joined by Stefan Merlo, Vice President of Commercial Development at Seqirus, and Roberta Duncan, the vaccine company's Vice President, mRNA Program Lead, to discuss what’s next in terms of flu vaccine technology. They discuss the poten...
The Importance of Pandemic Preparedness
World of Promise - August 16, 2021 21:53 - 15 minutes ★★★★★ - 15 ratingsCOVID-19 has offered the biotech industry many lessons. Among the lessons that stands out to Lorna Meldrum is the importance of being prepared for both seasonal flu and the potential for a pandemic outbreak. Meldrum is Vice President of Commercial Operations, International Markets and Pandemic...
The Safety of Vaccines
World of Promise - June 24, 2021 17:43 - 9 minutes ★★★★★ - 15 ratingsAmidst the development and rollout of COVID-19 vaccines around the globe, conversations around vaccine safety are at an all-time high. On a new episode of the World of Promise podcast, Gregg Sylvester, Chief Medical Officer and Head of Medical Affairs for leading vaccine producer Seqirus, sits...
How Technology is Changing Vaccines
World of Promise - May 27, 2021 20:01 - 15 minutes ★★★★★ - 15 ratingsInnovation was key to creating effective vaccines in the fight against COVID-19. Now, those innovations are being studied for the creation of leading edge influenza vaccines, explains Ethan Settembre, VP, R&D for Seqirus. He talks about how Seqirus is leveraging existing cell and adjuvant techno...
Adapting to Change: World Hemophilia Day 2021
World of Promise - April 07, 2021 23:28 - 20 minutes ★★★★★ - 15 ratingsThe theme for this year’s World Hemophilia Day on April 17 is “Adapting to Change.” The day raises awareness for hemophilia and other bleeding disorders. This episode features Dr. Glenn Pierce, Vice President, Medical, for the World Federation of Hemophilia and Dr. Roshni Kulkarni, professor and...
Taking Risks, Overcoming Doubts: Two Top Biotech Leaders Share Their Experiences and Offer Career Advice in Honor of Women's History Month
World of Promise - March 29, 2021 19:52 - 21 minutes ★★★★★ - 15 ratingsIn honor of Women's History Month, this episode features two CSL leaders. Karen Neave, Senior Vice President and Chief Risk Officer, and Antje Michel, General Counsel, share their career journeys, the obstacles they've overcome and offer advice for other women working in biotechnology. During th...
The Case for Career Development: CSL's Chief Human Resources Officer Explains Why the Biotechnology Company Wants Employees to Invest in Themselves
World of Promise - March 03, 2021 20:54 - 7 minutes ★★★★★ - 15 ratingsTo thrive in the fast-moving field of biotechnology, embrace learning and career development, Elizabeth Walker, Executive Vice President and Chief Human Resources Officer for CSL, says on a this episode. As head of human resources for one of the world’s largest biotechnology companies, Walker sa...
The Connection Between Influenza and COVID-19
World of Promise - January 28, 2021 20:10 - 18 minutes ★★★★★ - 15 ratingsIn 2020, COVID-19 dominated the headlines and much of the focus for people who work in biotechnology. While the global pandemic continues, there is hope in the vaccines currently being distributed throughout the world. At the same time, seasonal influenza remains a concern. On a new episode of...
What Does Digital Transformation Mean for Rare Disease Patients?
World of Promise - January 05, 2021 21:11 - 18 minutes ★★★★★ - 15 ratingsFor more than 30 years, Mark Hill has worked in the digital technology space for large, global biotech and pharmaceutical companies. Now, he is Chief Digital Information Officer for CSL, the world’s third largest biotechnology company. On a new episode of the “World of Promise” podcast, Mark sit...
Discussing the Increased Demand for Flu Vaccines in 2020
World of Promise - November 13, 2020 16:08 - 11 minutes ★★★★★ - 15 ratingsOn this episode of "World of Promise," host Anthony Farina interviews Steve Marlow, General Manager of Seqirus, one of the world's leading flu vaccine businesses. Steve also has 20 years of experience in biotech and he talks about the increased demand for flu vaccines during this year's Northern...
Marking International Plasma Awareness Week with CSL Plasma's Willy Pardinas
World of Promise - October 06, 2020 19:52 - 16 minutes ★★★★★ - 15 ratingsThis week is International Plasma Awareness Week, and in honor of the week, Willy Pardinas, General Manager and Vice President of CSL Plasma sits down with “World of Promise” podcast host Anthony Farina to discuss the importance of plasma donation to people around the world living with rare and...
Suffering in Silence: Assessing Rare Disease Awareness and Management in Asia-Pacific - A Conversation with Jesse Quigley Jones of the Economist Intelligence Unit
World of Promise - July 21, 2020 22:00 - 22 minutes ★★★★★ - 15 ratingsAround the globe, one of the biggest challenges rare disease patients face is getting a timely and accurate diagnosis of their condition. A new report by the Economist Intelligence Unit – the research and analysis division of the Economist Group and the world leader in business intelligence ...
Super Bowl MVP Santonio Holmes Discusses His Family's Battle Against Sickle Cell Disease
World of Promise - June 16, 2020 03:25 - 21 minutes - Video ★★★★★ - 15 ratingsSantonio Holmes is remembered for many things by football fans, including his “perfect catch” in Super Bowl XLIII, which earned him that game’s MVP trophy. But after retirement from football, Holmes is still working on building his legacy. He’s doing so through the III & Long Foundation, an o...
Why We Do Clinical Trials
World of Promise - June 02, 2020 20:11 - 9 minutes ★★★★★ - 15 ratingsOn May 20, people who work in biotechnology celebrated Clinical Trials Day, a day that highlights the important role clinical trials play in developing therapies for our patients. This year, as the COVID-19 pandemic continues to impact people around the world, clinical trials are as important...
Joe Reidy Shares His Alpha Story Over the Decades
Alpha-1-To-One Podcast - May 08, 2020 20:19 - 17 minutes ★★★★★ - 3 ratingsJoe Reidy is a long time volunteer of the Alpha-1 community, he has been involved with the Foundation since it’s inception 25 years ago. Joe became a support group leader in 1994 and has led the NY/NJ Alpha-1 Support Group ever since. His group serves Alphas in the New York metropolitan area, Ne...
Interview with Dr. Robert Sandhaus
Alpha-1-To-One Podcast - April 19, 2020 21:59 - 21 minutes ★★★★★ - 3 ratingsYour source for practical advice and personal experiences for people touched by Alpha-1 Antitrypsin Deficiency.
Updated COVID-19 Guidance & Recommendations
Alpha-1-To-One Podcast - April 19, 2020 21:59 - 21 minutes ★★★★★ - 3 ratingsYour source for practical advice and personal experiences for people touched by Alpha-1 Antitrypsin Deficiency.
Video Tips for Alphas with Richard Lovrich
Alpha-1-To-One Podcast - April 14, 2020 14:56 - 11 minutes - Video ★★★★★ - 3 ratingsRichard Lovrich has compiled a “how to” on online video podcasts. As much of our business, family and social life are taking place online here are a few tips on how Alphas can look and sound best when on social platforms. Whether in a Zoom, Skype, Houseparty, WhatsApp or Facebook Live, we are al...
Celebrating 30-Plus Years of World Hemophilia Day with the World Federation of Hemophilia
World of Promise - April 14, 2020 12:57 - 22 minutes ★★★★★ - 15 ratingsAs the COVID-19 pandemic continues around the world, rare disease patient groups continue to provide support and outreach to their communities. For the World Federation for Hemophilia (WFH), this year is an especially important one to mark World Hemophilia Day on April 17. “Particularly in lig...
Launch of the new Alpha-1 to One Podcast: A Foundation Conversation with Miriam O'Day hosted by Richard Lovrich
Alpha-1-To-One Podcast - April 09, 2020 19:04 - 18 minutes ★★★★★ - 3 ratingsThe first episode of our renewed Alpha-1-to-One podcast series, we have Alpha-1 Foundation President and CEO Miriam O'Day having a timely conversation with Richard Lovrich.
Biotech Security Leader Shares Lessons Learned from COVID-19
World of Promise - March 30, 2020 19:51 - 9 minutes ★★★★★ - 15 ratingsOn this episode of World of Promise, host Anthony Farina talks to Tony Strickland, Head of Enterprise Security at biotech leader CSL Behring, about being on the front lines of company security during the COVID-19 pandemic. Strickland has been working to protect employees and patients from the Co...
Meet a Doctor Who Chased His Own Rare Disease Cure
World of Promise - February 19, 2020 20:00 - 33 minutes ★★★★★ - 15 ratingsTwo days after David Fajgenbaum was diagnosed with Castleman’s Disease, a rare disorder that affects the lymph nodes, he was having his last rites read to him. A former quarterback at Georgetown University who was in medical school at the time of his diagnosis, Fajgenbaum began researching his o...
The "Palpable Passion" of Patient Focus
World of Promise - January 29, 2020 14:30 - 9 minutes ★★★★★ - 15 ratingsPeople who work for biotech leader CSL Behring have a special passion for patient focus, explains the company’s Chief Medical Officer Charmaine Gittleson. “I think that people who work here within CSL – we care. That’s why we’re here,” she said during a recent interview with CSL’s Chief Commun...
Paul McKenzie on Leadership, Innovation and the Future of Biotech
World of Promise - September 24, 2019 13:46 - 15 minutes ★★★★★ - 15 ratingsAs Chief Operating Officer for the world’s fifth largest biotech company, CSL, Paul McKenzie has strong insights on what the future holds for the industry, innovation, and how leaders can best work on behalf of patients around the world. On this episode of "World of Promise," he sits down with h...
Uplifting Athletes: How Football Players Are Tackling Rare Diseases
World of Promise - August 20, 2019 13:45 - 13 minutes ★★★★★ - 15 ratingsIn the United States, football season is about to get underway. But for rare disease researchers, there is no off season. That’s why for Uplifting Athletes, raising awareness and funds in the fight against rare diseases is a year-round endeavor. Since the nonprofit organization consists of a n...
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