The Whole Care Network
889 episodes - English - Latest episode: over 2 years ago - ★★★★★ - 2 ratingsEveryone Has A Story, But Not Everyone Gets The Chance To Tell Their Story. On The Whole Care Network, We Believe It Is Through Story Sharing Where Diversity Meets The Road To Combat A Common Cause. On The Whole Care Network, We Feature A Variety of Show Host Who Have A Story To Share, Resources to Provide for Caregivers World-Wide. That's Why On The Whole Care Network, YOU Talk and WE Listen!
Homepage Apple Podcasts Google Podcasts Overcast Castro Pocket Casts RSS feed
Episodes
Jenn Chan - Caregiver Spotlight - (Ep. #76)
September 18, 2019 09:00 - 46 minutes - 42.5 MBIn this caregiver spotlight episode, meet Jenn Chan who literally makes caregiving a party. In this show, Jenn shares how caring for her grandma for a decade inspired her to want to celebrate caregivers and help them be prepared for their caregiving journey. Learn how Jenn as a millennial caregiver coordinated her care with her local family members so she carved out time for her own health and happiness.
Episode 10 - Three Kick Ass Cancer Caregivers
September 12, 2019 02:48 - 1 hour - 116 MBThis episode is a recording of a live program event we held on August 18th, 2019. Our second annual Kick Ass Brunch Buffet. An event in which a panel of three of our members (Mr. Anderson, Mr. Cramer, and Mr. Robertson), all actively caring for their spouse with cancer, is moderated by one of our founders, Mr. Dustin Cesarek who’s also an active cancer caregiver for his spouse. These men were selected for their leadership not only as inspirational caregivers, but also for their leadership on...
PWDP Ep 29: Hurricane Preparedness & Dementia Part III: A Loved One in Facility
September 10, 2019 12:00 - 18 minutes - 17.1 MBWhat if you have a loved one in a facility as a storm is approaching? Listen to Matt and Amy discuss what you need to know before choosing a facility and what to expect as a hurricane threatens. Show Notes: http://bit.ly/29_Hurricane_Prep
Marianne Sciucco - Caregiver Spotlight (Ep #75)
September 04, 2019 09:00 - 54 minutes - 49.8 MBIn this caregiver spotlight episode, meet family caregiver, nurse, and writer Marianne Sciucco. In this episode we talk about the sweet couple that prompted her to write an Alzheimer's love story as well as her personal experiences caring for her mother and mother's husband. We chat about topics include asking for help, coming off hospice to go to rehab, what medicare does and doesn't pay for, and how lunch may just rekindle a romance.
PWDP Ep 28: Hurricane Preparedness & Dementia Series Part II: 9 Tips for Sheltering in Place
August 27, 2019 05:05 - 17 minutes - 16.4 MBDepending on storm conditions, it may be best to stay home, also known as 'sheltering in place.' If you have a loved one living with dementia, you will want to be prepared by listening to my conversation with nurse Amy Avery. Show Notes: http://bit.ly/28_Hurricane_Prep
Working Daughter with Liz O'Donnell
August 26, 2019 23:08 - 25 minutes - 23.2 MBOn this episode of Healing Ties, I have the pleasure of visiting with Liz O'Donnell from Working Daughter. Liz has been a champion for caregivers, especially Working Daughters and in her new book, Working Daughters, Liz provides her readers with timely tips and real life stories to help balance your caregiving day. Listen in and learn how Liz O'Donnell is creating Healing Ties all around us?
Caregiver Spotlight - Beth Scibienski (Ep. #74)
August 21, 2019 09:00 - 59 minutes - 54.8 MBIn this caregiver spotlight episode, meet pastor Beth Scibienski who provided 14 years of care for her husband Pete who had Multiple Sclerosis. In this show, Beth shares a tip the helps her stay present and we also talk about why caregivers often struggle to truly answer the basic question ‘how are you?’. Elizabeth and Beth discuss a few stories from Beth’s memoir and talk about her latest project where she is diving into experiences where people have either spoken to dead people or felt thei...
The Unexpected Journey of Caring
August 20, 2019 13:50 - 38 minutes - 35.4 MBOn this episode of Healing Ties, we welcome Zachary White and Donna Thomson, Co-Authors of The Unexpected Journey of Caring: The Transformation from Loved One to Caregiver. Personal transformation is usually an experience we actively seek out—not one that hunts us down. Becoming a caregiver is one transformation that comes at us, requiring us to rethink everything we once knew. Informed by original caregiver research and proven advocacy strategies, The Unexpected Journey of Caring: The Transf...
Aging in Place: Is It Right for You?
August 13, 2019 14:00 - 32 minutes - 29.6 MBSteve Lorberbaum, owner of Assisting Hands Home Care in Montgomery County, MD, shares a wealth of information and advice on how to make aging in place decisions, including the big one -- Is it right for you? For more information on his services, go to www.assistinghands.com/potomac
PWDP Ep 27: Hurricane Preparedness & Dementia Series Part I: 11 Tips for Evacuating
August 13, 2019 05:05 - 18 minutes - 17.3 MBIt's certainly a challenge to evacuate for a hurricane. Imagine having to evacuate with a loved one living with dementia. Find some valuable tips as we interview Amy Avery on the top tips. Show Notes: http://bit.ly/PWDP_27_Hurricane_Prep
Episode 9 - Justin Nicolay
August 11, 2019 12:35 - 1 hour - 147 MBMr. Nicolay was holding his late wife Michelle when she lost her battle with melanoma as their almost 2-year old son played outside the room. A founder of Jack's Caregiver Coalition we catch up with him 5 years later in the summer of his life at 36 years old married to the new love of his life Monica. He unpacks what it's like to suddenly become a child's Dad and Mom, and how Jack's mission was born from helping him cope with the entire experience. We also explore in detail what it was like...
Caregiver Spotlight - Margaret Fitzpatrick (Ep. #73)
August 07, 2019 09:00 - 55 minutes - 50.9 MBIn this caregiver spotlight episode, meet Margaret Fitzpatrick from Chicago who found her experience as a Registered Nurse and Nurse Anesthetist to greatly help her as a family caregiver. She cared for both of her parents as they aged into their 90's and helped care for her ex-husband...after she was remarried. In this show we talk about sharing the care with siblings (Margaret has 15 siblings!), guilt, caregiver burnout, when to call 911, palliative care and the greatest gift you can offer a...
How Your Annual Eye Exam Can Save Your Life!
August 05, 2019 17:33 - 31 minutes - 28.5 MBToday's guest on the "Beyond Driving with Dignity" podcast show is Dr. Alan Mendelsohn, MD and renowned eye surgeon from South Florida. Dr. Mendelsohn explains how your annual eye exam can save your life! Read the show notes at https://www.keepingussafe.org/how-your-annual-eye-exam-can-save-your-life/
Lisa B Capp - Caregiver Spotlight (Ep. #72)
July 24, 2019 09:00 - 50 minutes - 46.4 MBIn this episode, meet Lisa B. Capp who is a Writer, Activist and Dementia Caregiving Survivor. Lisa traveled the world for her job as a business transformation consultant for a Fortune 100 company but helping executives embrace change was much easier than the 18-year personal journey of transformation she and her mom shared when dementia altered their lives. In this episode we talk about grace, working while caregiving, and what we can do to help other caregivers.
Episode 8 - Lindy Yokanovich, Esq.
July 11, 2019 17:20 - 1 hour - 58.6 MBMrs. Yokanovich is the Founder and Executive Director of Cancer Legal Care. A mom to 4 children, she grew up among the strawberry fields and surfers of Southern California and went on to become a lawyer and practice law in San Francisco. That’s where the pro-bono work she did with the AIDS community changed her. Those experiences, coupled with the impact cancer had in her own family, inspired her to dedicate her career to work that she cares about as much as her family. Her vision was an o...
Tools to Prevent Caregiver Burnout (Ep. #71)
July 10, 2019 09:00 - 21 minutes - 19.8 MBIn this episode, host Elizabeth Miller shares ten signs of caregiver burnout and provides resources for family caregivers to prevent or reverse burnout.
The Power of Engagement
July 09, 2019 14:00 - 31 minutes - 29.2 MBSara Merwin, MPH, talks about the power of information, communication and engagement in the hospital. She is co-author of The Informed Patient: A Complete Guide to A Hospital Stay.
Mindfulness & Meditation (Ep. #70)
June 26, 2019 09:00 - 29 minutes - 27.4 MBIn this episode, host Elizabeth Miller shares about her struggles with meditation and mindfulness and what has been working to help this become a self-care habit. The benefits of meditation and other helpful resources are shared.
You Need A Drink - NOW!!
June 22, 2019 02:45 - 39 minutes - 10.3 MBWhen is the last time you had a drink? I don’t mean alcohol. When was your last glass of WATER? When was the last time your loved one had some water? You know that you and our loved one need to stay hydrated. It may be difficult to convince your loved one to drink. But it is critical to their health. It can easily lead to health problems that will put your loved one in the hospital. On this podcast, we will talk about how to persuade your loved one to drink water and stay hydrated. There ...
The Vital Role a Healthy Brain Plays in Older Driver Safety
June 21, 2019 17:01 - 19 minutes - 18.2 MBToday’s guest, Vicky Rose, MSW and Memory Disorder Clinic Coordinator for the Tallahassee Memorial Healthcare system explains the vital role a healthy brain plays in older driver safety. Vicky also provides us with actionable steps we can begin taking immediately to help keep our brains healthy as we progress through the natural aging process. For more great information on this episode (including the show notes) please visit https://www.keepingussafe.org/the-vital-role-a-healthy-brain-plays-...
Caregiver Spotlight - Nicole Rochester (Ep. #69)
June 12, 2019 09:00 - 47 minutes - 43.3 MBIn this caregiver spotlight episode, meet Dr. Nicole Rochester who cared for her dad who had several chronic illnesses including diabetes, heart disease and vascular dementia. She witnessed the complicated healthcare system from the other side of the stethoscope. Her dual perspective as a doctor and family caregiver inspired her to want to help aging individuals and caregivers navigate the fragmented healthcare system. In this episode we talk about asking for help, coping with holidays, under...
Love Me, Love My Dog!
June 11, 2019 14:00 - 29 minutes - 27.2 MBDr. Theresa Spinello, a therapist practicing in NY and FL, talks about service, therapy and emotional support dogs, including her special dog Biscuit and the work he does.
Episode 7 - Kyle Woody
June 11, 2019 13:52 - 1 hour - 100 MBMr. Woody is the host of Real Men and leader of Jack’s Caregiver Coalition. In this episode he gets grilled by Charles Wuest, the best man in his wedding who’s known him since their band nerd days in junior high school. Kyle unpacks his personal core values, his personal caregiving story, and the events that inspired him build the team that would go on to make Jack’s a reality. He tells stories about the early years on the mission and how those experiences made our programming what it is no...
Caregiver Spotlight - Dannelle LeBlanc (Ep #68)
May 29, 2019 09:00 - 53 minutes - 49.3 MBIn this caregiver spotlight episode, meet Dannelle LeBlanc who cared for her father-in-law with Parkinson’s disease. In this episode, Dannelle shares about the challenges she overcame when caring for an interracial family member. Her personality shines when she speaks about the importance of perseverance, joy, meditation, and her new gift registry program for family caregivers to recognize and prepare them for their meaningful life-changing journey.
Caregiving Spotlight - Denise Brown (Ep #67 - Part 2 of 2)
May 15, 2019 09:05 - 25 minutes - 23.1 MBIn this caregiver spotlight episode, meet Denise Brown who is a family caregiver for her parents and she has been providing help and resources to other caregivers for over twenty years. In this episode we talk about letting go of expectations, entrepreneurship, collaborating as caregivers, the National Caregiving Conference, and the benefits of becoming a Certified Caregiving Consultant.
Caregiving Spotlight - Denise Brown (Ep #67 - Part 1 of 2)
May 15, 2019 09:00 - 25 minutes - 23.4 MBIn this caregiver spotlight episode, meet Denise Brown who is a family caregiver for her parents and she has been providing help and resources to other caregivers for over twenty years. In this episode we talk about letting go of expectations, entrepreneurship, collaborating as caregivers, the National Caregiving Conference, and the benefits of becoming a Certified Caregiving Consultant.
Learn to Be a Normal Eater. It's good for you!
May 14, 2019 14:00 - 32 minutes - 29.9 MBKaren R. Koenig, MEd, LCSW, is a psychotherapist who specializes in eating psychology. She's also an author, blogger and speaker who talks about the many aspects of normal eating. Tune in and learn a lot. More information is on her website: www.karenrkoenig.com.
Be A Better Healthcare Advocate For Your Loved One
May 11, 2019 01:47 - 44 minutes - 12.6 MBAre you ready for your role when you bring your loved one to the doctor (or hospital)? It is hard. The medical staff look to you to be the voice, to answer their questions, and to make the critical decisions. You feel overwhelmed, and feel like you are invading on someone else’s personal issues. But when you are prepared, you can help optimize the care they receive. This is even a formidable task for a physician who is also a caregiver. So, who better to give advice that will help you (and ...
Episode 6 - Alan Christensen
May 10, 2019 02:31 - 1 hour - 106 MBMr. Christensen is a big-time talker whose best man in his wedding wasn’t a man at all. He’s also a technologist whose favorite season is baseball season. As his wife Sara faces a rare cancer called an angiosarcoma he often finds himself more afraid of her medical procedures than she is. And while he also often finds himself flying solo as a caregiver, no one would accuse him of lone-wolfing it. Alan has reached out to his neighbors who responded in kind with food, snow and debris removal...
Caregiver Spotlight - Sherilyn Lee (Ep #66)
May 01, 2019 09:00 - 52 minutes - 48 MBIn this caregiver spotlight episode, meet writer and roller derby referee Sherilyn Lee from LA who became a caregiver 24 hours after attending Burning Man. Sherilyn has cared for her grandparents, her father and her lifelong friend and has provided simultaneous care from different locations. In this episode we discuss relentless advocacy, intentional writing, grief, Hawaiian culture, the importance of play, email overwhelm, and the unexpected gifts from overhearing conversations.
Caregiver Spotlight - Karen Purze (Ep #65)
April 17, 2019 09:00 - 44 minutes - 40.6 MBIn this caregiver spotlight episode, meet Karen Purze from Chicago. She became a family caregiver when her parents had health issues suddenly and simultaneously. In this conversation we discuss being prepared for end of life decisions, letting others help, establishing boundaries, and how our technology careers became a caregiving advantage and disadvantage.
Episode 5 - Dustin Cesarek
April 11, 2019 02:35 - 1 hour - 105 MBMr. Cesarek is a co-founder of Jack’s Caregiver Coalition who fancies himself a trophy husband. He lost his sister to Leukemia when he was 11, his bride was diagnosed with metastatic breast cancer when their daughter was 8 months old, and his mom recently developed endometrial cancer. Recently he completed a 4-year stint as a stay at home dad. Now he’s in law school and actively supports the mission of numerous cancer focused non-profits. He spends his spare time winning cool stuff like th...
The Increasing Use of Cannabis in Older Drivers
April 09, 2019 15:40 - 27 minutes - 25.6 MBListen in as today's guests on the "Beyond Driving with Dignity" podcast show (Dr. Andrew Whitman and Dr. Cory Perry, both of the University of Virginia Health System), explain the increasing use of cannabis in older drivers, and how its use can impact an individual's safe driving abilities. https://www.keepingussafe.org/the-increasing-use-of-cannabis-in-older-drivers/
Fed Up with Fat Prejudice
April 09, 2019 14:00 - 35 minutes - 32.4 MBPaige O'Mahoney, MD, a health and wellness coach, discusses confronting weight stigma in the medical setting including how it hurts patients and their doctors. More information and resources are on her website: www.deliberatelifewellness.com.
Caregiver Spotlight - Amy Goyer (Ep #64 - Part 2 of 2)
April 03, 2019 09:05 - 20 minutes - 18.4 MBIn this caregiver spotlight episode, meet Amy Goyer who has been a family caregiver her entire adult life. She’s provided care for her grandparents, parents and sister. Amy’s professional career is also related to caregiving. In this episode, we talk about acceptance, government resources for caregivers, keeping our loved one independent, creating joy, the Grateful Dead, and how our personal self-care is not unlike how we care for our cars.
Caregiver Spotlight - Amy Goyer (Ep #64 - Part 1 of 2)
April 03, 2019 09:00 - 24 minutes - 22.5 MBIn this caregiver spotlight episode, meet Amy Goyer who has been a family caregiver her entire adult life. She’s provided care for her grandparents, parents and sister. Amy’s professional career is also related to caregiving. In this episode, we talk about acceptance, government resources for caregivers, keeping our loved one independent, creating joy, the Grateful Dead, and how our personal self-care is not unlike how we care for our cars.
Caregiver Spotlight - Liz O'Donnell (Ep #63 - Part 2 of 2)
March 20, 2019 09:05 - 19 minutes - 18.1 MBIn this caregiver spotlight episode, meet Liz O'Donnell. Liz provided care for both of her parents while juggling a demanding full-time job. An expert on balancing work and family, Liz writes and speaks frequently on these topics. Her passion for working daughters is evident throughout this episode where we talk about integrating all our competing responsibilities and creating time for self-care.
Caregiver Spotlight - Liz O'Donnell (Ep #63 - Part 1 of 2)
March 20, 2019 09:00 - 20 minutes - 18.5 MBIn this caregiver spotlight episode, meet Liz O'Donnell. Liz provided care for both of her parents while juggling a demanding full-time job. An expert on balancing work and family, Liz writes and speaks frequently on these topics. Her passion for working daughters is evident throughout this episode where we talk about integrating all our competing responsibilities and creating time for self-care.
Genetic Counseling: It's A Family Affair
March 12, 2019 14:00 - 32 minutes - 29.9 MBBeth Peshkin, a genetic counselor, talks about counseling, professional and commercial testing, and the many issues people may consider for themselves and their families. She is Professor of Oncology, Director of the Cancer Genetic Counseling Program at Georgetown Lombardi Comprehensive Cancer Center as well as a researcher and teacher of genomics and disability, policy and ethics.
Episode 4 - Rich Anderson
March 11, 2019 15:33 - 1 hour - 134 MBMr. Anderson has been motorcyclist since he was 5 and had a full kitchen in his bedroom by age 10. Now he’s a father, a 210 average score bowler, a primary caregiver for his wife with colorectal cancer, and CEO of a technology company. Hear him unpack how he does it all and us unpack what we learned at our recent “Under the Sheets, Intimacy and Cancer for Couples” workshop at Smitten Kitten in Minneapolis. Guybrators (vibrators for guys) and advanced lube science is just the tip of the inti...
Tips for Older Drivers with Hearing Loss
March 10, 2019 14:40 - 21 minutes - 19.2 MBToday's guest on the "Beyond Driving with Dignity" podcast is Mrs. Jennifer Dahmer of Healthy Hearing. In this episode, Jennifer provides older drivers (and their families) with tips on remaining a safe driver even with hearing loss.
Caregiver Spotlight - Donna O'Donnell Figurski (Ep #62 - Part 2 of 2)
March 06, 2019 10:05 - 15 minutes - 14.1 MBIn this caregiver spotlight episode, meet Donna O'Donnell Figurski. In 2005, Donna's life was forever changed when her husband David suffered a dramatic brain injury one morning before they left for work. In this episode we learn how their date nights have evolved, what moving cross country looked like, and about Donna's dream to get her children's books published.
Caregiver Spotlight - Donna O'Donnell Figurski (Ep #62 - Part 1 of 2)
March 06, 2019 10:00 - 29 minutes - 27.1 MBIn this caregiver spotlight episode, meet Donna O'Donnell Figurski. In 2005, Donna's life was forever changed when her husband David suffered a dramatic brain injury one morning before they left for work. In this episode we learn how their date nights have evolved, what moving cross country looked like, and about Donna's dream to get her children's books published.
Theressa Foster: Helping To Make Senior Living Communities Better
March 03, 2019 16:26 - 27 minutes - 25.2 MBOn this episode of Healing Ties, we visit with Senior Housing Consultant Theressa Forster. With 10 years of experience working in senior housing, Theressa's mission is to make senior housing communities operate efficiently, while providing a warm home environment with compassionate care for seniors. Listen in and learn how Theressa compassionate care is creating Healing Ties all around us!
Why Do Older Drivers Crash Into Buildings?
March 01, 2019 15:20 - 41 minutes - 37.8 MBToday's guest on the "Beyond Driving with Dignity" podcast is Mr. Mark Wright, co-founder of the Storefront Safety Council. In today's show, Mr. Wright helps us gain a better understanding of just exactly what storefront crashes are, how big of a problem they are, who is causing them, and what we can do to help prevent such tragedies from occurring in the future.
Caregiver Spotlight - Kerry Hughes (Ep #61)
February 20, 2019 10:00 - 33 minutes - 30.2 MBRare Disease Day is approaching and we are shining the Caregiver Spotlight this week on rare disease advocate Kerry Hughes. Kerry was inspired to start her organization Harmony 4 Hope because she wanted to help families who are impacted by rare diseases after witnessing her friend's experiences.
Advocacy 2.0 - From Caregiver to Case Manager
February 12, 2019 15:00 - 29 minutes - 26.6 MBAdvocacy 2.0 - From caregiver to case manager for your loved one. Sometimes a family member has to become more than an advocate when someone is in the hospital, connecting all the dots and making sure everyone is on the same page. Hospital Warrior Bonnie Friedman talks with Nancy Elisburg who has a PhD in common sense and plenty of tips and experience to share.
Using Technology to Mitigate Wrong-Way Driver Tragedies
February 12, 2019 14:43 - 21 minutes - 19.4 MBToday's guest on the "Beyond Driving with Dignity" podcast show is Cameron Mott. Mr. Mott is a senior research analyst with the Southwest Research Institute (San Antonio, Texas) and will be sharing with us some of the advancements being made in technology to reduce tragedies involving wrong-way drivers.
Episode 3 - Glen Baumgart
February 11, 2019 15:39 - 1 hour - 116 MBMr. Baumgart is a PhD, a father, and an educational psychologist that loves his pick-up truck and his cowboy boots. His mantra is if something needs to be done, do it. Like adding onto his own house, where his first attempt at drywall was so shoddy he decided to cover it up with a bookshelf. Hear about the different roles his caregiving team of Joe, Lee, Dave, Rich, and Kyle play to help him face his bride’s metastatic colon cancer.
Adrienne Provost - Caregiver Spotlight (Ep #60)
February 06, 2019 10:00 - 52 minutes - 48 MBMeet family caregiver Adrienne Provost. Adrienne lives in Chicago and is a mother of three children. Her youngest, Caroline, has a rare genetic disorder called Epidermolysis Bullosa, commonly referred to as ‘EB’. In this episode, we learn more about EB and how this family works together as a team. We also learn about Caroline's Make a Wish event and the rare disease advocacy work that Adrienne does with Harmony 4 Hope.