What's The Matter With Me? Podcast
228 episodes - English - Latest episode: 7 days ago - ★★★★★ - 7 ratingsHey everybody my name is John, I’m 45, disabled wheelchair user, husband, parent, community radio DJ, small business owner, podcaster with multiple sclerosis and trigeminal neuralgia. I made the What’s The Matter With Me? podcast to share what I’m going through.
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Episodes
#27: Throwback Episode “Help”
December 26, 2017 20:41 - 14 minutes - 16.7 MBEpisode 27 "New Blog / Throwback Episode 4: Help" As my limitations from multiple sclerosis increase, I've had to get comfortable asking for assistance. Asking for and accepting help is one of the secrets of effective people. Or so I'm told. Winter rolls on. I continue to produce content and work on the site daily. Being with family and experiencing multiple sclerosis or disability can be difficult to manage, and pressure only increases during the holiday. Papa's Got A Brand New Blog I've ...
#26: Throwback Episode 5 “MRI”
December 17, 2017 18:57 - 12 minutes - 14.3 MBSlogging through the holiday with MS and trigeminal neuralgia pain I fell and ripped out the belt loop from my carpenter pants Throwback to the pilot: Episode 5 when I had an MRI reaction and a boil on my butt - gross Mary from Friends NYC @friendsnyc picked out this sweater
#25: Keep Going
December 05, 2017 19:37 - 12 minutes - 14.2 MBI‘ll Never Give Up - Look at my window: I’m alive. I didn't quit doing this thing that is very scary - to share. I have built my disability consciousness and that will continue. I am going to bring new voices to the podcast in 2018. I figured out what I'm going to do about the handicap space at my children's School- get help from the administration. I am going to release the email only episodes to get ready for the New Year. The photograph is of an accessible cutting board I recently began u...
#24: “Hole”
November 23, 2017 05:33 - 8 minutes - 9.32 MBWhat's The Matter With Me? Podcast Episode 24: Hole Recovering from Multiple Sclerosis and moving my small hot sauce business forward "Hole in the wall", A fall story I tripped over myself in my bedroom and punched a hole in the wall. It was klutzy and embarrassing, but at least the wall took the worst of it and I came through okay. I'm in recovery My Nurse Practitioner told me I was in recovery from MS and that changed my perspective. I have been in a defensive stance, and I can begin to ...
#23: Roll With The Punches
November 23, 2017 04:14 - 12 minutes - 14.6 MBEpisode 23 Thank you for tuning in to the What's The Matter With Me? Podcast. In Episode 23 Roll With The Punches I fall asleep at the KFJC meeting, hang in the yard, experience intense Trigeminal neuralgia pain, and read an old song lyric I wrote called "Roll With The Punches." Fatigue I fell asleep at the KFJC weekly station meeting and that was distressing. I woke up and everyone was looking at me. It shook me and later in the evening I fell off the station couch awkwardly. I go to KFJ...
#22: Gallons, Untied Shoes, Commes des garcons/Rei Kawakubo, Surplus Store Shopping
November 09, 2017 01:35 - 10 minutes - 23.7 MBWelcome to What's The Matter With Me? Podcast Episode 22, "Gallons, Untied Shoes, Commes des garcons/Rei Kawakubo, Surplus Store Shopping" In this episode: New hot sauce size -- Disaster: Shoes came untied -- Changes in disability is like wearing Rei Kawakubo/Commes des garcons clothes -- A good time shopping at the surplus store New hot sauce size Hoppin Hot Sauce now comes in gallons, for my foodservice clients. It's so they can re-use bottles. Disaster: Shoes came untied My shoes came unt...
#21: Complicated feelings about Federal Disability, Falling, Nasty Tracksuit
November 03, 2017 03:43 - 10 minutes - 24 MBWelcome to What's The Matter With Me? Episode 21, "Complicated feelings about Federal Disability, Falling, Nasty Tracksuit" In this episode: Qualifying for Federal Disability Pt. II -- Two Falls, One Painful, and The Other With Wine -- Going Shopping and buying a tracksuit with filthy pictures on it that my wife asked me not to wear around her or our children
#20: Disabled dad struggling to build my business and my life
October 25, 2017 21:22 - 8 minutes - 20.1 MBWelcome to What's The Matter With Me? Episode 20, "Disabled dad struggling to build my business and my life" In this episode: I Fell -- Sweating -- Boathouse Hike -- Secretary of State -- Hot Sauce Business -- Disability Hand rails are useful for people with MS and other disabilities. I took this photo outside my dentist's office in Santa Clara, California.
#19: Creating music brings peace and calm to struggle and volatility
October 18, 2017 23:27 - 9 minutes - 21.7 MBWelcome to What's The Matter With Me? Episode 19 Wild Fires Wildfires are burning close to my family's home in Santa Rosa. The hill behind the house is Annadel State Park, currently on fire, and the fire department is bivouacked in the otherwise-evacuated neighborhood. Accessible music I've been making music to meditate and feel and comfort my body, accessible music using the computer and MIDI. I am getting used to making "muzak" on the computer, and pushing my own boundaries. Houseguest I ...
#18: Artist Statement
October 11, 2017 23:46 - 11 minutes - 26.9 MBWelcome to the What's The Matter With Me? Podcast, Episode 18 In this episode: Fight/Cook Cycle -- Spare rib recipe -- Artist Statement An artist statement is hard to write -- it requires you to believe in your own importance.
#17: I’m Proud To Be Disabled
October 08, 2017 22:15 - 11 minutes - 26.7 MBWelcome to What's The Matter With Me? Podcast,Episode 17 Nurse Practitioners -- BBQ -- Sunday date blowup -- Cognitive wall -- Foot Wound -- Radio -- I'm proud to be disabled
#16: Electromagnetic sock therapy
September 26, 2017 22:06 - 11 minutes - 26.2 MBWelcome to What's The Matter With Me? Podcast Episode 16 Lamp destruction - Cognitive Exercises - Best American Sportswriting 2015 - Electromagnetic sock sales - The importance of this podcast
#15: In the garden
September 18, 2017 21:45 - 9 minutes - 22.7 MBWelcome to What's the Matter With Me? Podcast Episode 15 I start the episode off with the handicap space for the third episode in row. My garden gives me room to breathe from the grasp of disability -- but I supplement with physical therapy and mindfulness practice. I'm teaching my son to watch birds and he made a correct identification. Handicap space Part 3 -- Falls -- Tomatoes -- Gardening -- Socks -- Disability -- Bird ID
#14: Reunion as a disabled person
September 10, 2017 23:36 - 7 minutes - 16.5 MBHot Sauce On An Oyster, photo by Brook Lane. What's the Matter With Me? Podcast Episode 14: Autistic son I read the NY Times Disability column about an autistic son finding purpose. Hot It was hot: 114F! Fell and hit my head I fell hard and cracked my neck on dining room table. 20th High School Reunion I looked for acceptance at my 20th HS reunion.
#13: Disability in the dog days
September 01, 2017 19:49 - 5 minutes - 12.1 MBI took this picture with my wife at the home of the Japanese Consul General in San Francisco. What's The Matter With Me? Podcast Episode 13 Figs growing in the garden -- Charcot's Triad -- Feedback -- 109 Degrees -- Friends -- Defending the handicap space
#12: Gruesome fall & BBQ burn
August 23, 2017 18:04 - 7 minutes - 16.9 MBThis is a photograph of Hoffee's Auto Body Shop in San José, California on the last day of business before closing. David Li owned the place and was my family's mechanic for over 20 years. Episode 12 Figs -- Gruesome Fall -- Charcot's Triad -- Controlling Emotions -- Burn at the BBQ I've been falling and hurting myself. I need to slow down and be safe. Hurrying makes accidents. At the same time, I need to control my emotions and manage my MS therapy for the sake of my family and my business.
#11: Stone in the ocean
August 09, 2017 20:25 - 7 minutes - 17.2 MBBirthday Party -- Steak -- Cognitive Disability in the Dressing Room -- Fish Oil -- Garlic Season -- The Deaths of Ted and Larry -- Stone in the Ocean
#10 : The Purpose
July 26, 2017 22:27 - 8 minutes - 19.1 MBWhat's The Matter With Me? Podcast Episode 10 Purpose -- Ep. 9 Recap -- John John Sick -- Ballgame Fiasco -- BBQ -- Crying, Pressure -- Rose Trimming
Wedding in Boonville
July 19, 2017 19:32 - 11 minutes - 25.4 MBWe left, we went to a beautiful wedding in Boonville. They had an oyster bar and I ate there with a couple friends. That was a really nice activity. The food was wonderful. The wedding was beautiful. One of the brides wore a leather wedding dress made by Valentino. The wedding had caviar on a runcible spoon and a fine Italian wine at the meal. Begin Transcript What's the Matter With Me? Episode 9, "Wedding In Boonville." Yeah, it's What's the Matter With Me? Episode 9! My name is John. I'...
#9: Wedding in Boonville
July 19, 2017 19:32 - 11 minutes - 25.4 MBI read a script I wrote. We went to a wedding in Boonville.
#8: Big Week
July 05, 2017 22:43 - 9 minutes - 22.7 MBWhat's The Matter With Me? Podcast, Episode 8: "Big Week" My name is John, I'm 38 years old, husband and father of two, radio DJ, podcaster, small business owner and I have MS (Multiple Sc;erosis). I made this podcast to share what I'm going through. Recap Episode 7: "Bread Moment" It was very hot, and now it's rather pleasant. I've been having a peaceful week with my wife because when it's hot I am grouchy. I also told the story of being afraid of Chad Robertson, my bread hero. I baked bread...
#7: Bread Moment
June 22, 2017 22:05 - 8 minutes - 19.1 MBBread Moment My name is John, I have MS, I'm 38 years old and I started this podcast to share what I'm going through. Recap Episode 6 Episode 6: "Overwhelmed" was short but impactful the way short things can often be. Like Mike Tyson said, “Everybody has a plan, until they get hit in the mouth.” Last episode was basically nothing but a long recap, and then I got distracted telling how I made tomato sauce. I gave up and I just stopped the whole thing after like two and a half minutes. It's ver...
#6: Overwhelmed
June 21, 2017 22:56 - 2 minutes - 5.65 MBOverwhelmed In Episode 6 I get overwhelmed and hang up the headphones in the middle of the episode. On the one hand, it's a pretty terrible episode because of that, but on the other hand, it is good to know that I can feel bad and recover. I certainly don't feel this way anymore. It's hard to slur your words on the mic. Books / Can't do what your parents do A listener wrote in to correct me about some books that I touched on in the last episode and I took this opportunity to set the record st...
#5: Gallows humor
June 06, 2017 19:54 - 5 minutes - 5.98 MBWelcome back to the What's The Matter With Me? Podcast for Episode 5: Gallows Humor In this episode, I have bad reaction to an MRI, suffering fever and headaches for days. I come through it with the help of my wife. Recap Ep. 4 Recap - last episode, I tried to wrap my head around the idea of asking for and receiving help. A listener wrote in to tell me that asking for help increases effectiveness. We talked about the determination to continue despite the demoralizing nature of the therapy ...
Episode 4: 7 Habits
May 24, 2017 19:25 - 6 minutes - 6.97 MBWelcome to Episode 4 of the What's The Matter With Me? Podcast In this episode, I continue to think about how to ask for help with the shower safety changes that I need, do some physical therapy, and finally pick up the phone and ask for help. Recap Ep. 3 Recap - last episode was about asking for help. It was hard to record because I didn't know that's what I needed to do before I began recording. I figured out while I was on talking about it that so many of my great friends and family would...
Asking for Help
May 17, 2017 19:07 - 6 minutes - 7.4 MBWelcome to the What's The Matter With Me? Podcast Episode 3: Asking for Help Recap - last episode we talked about being in control of my emotions. Episode 3 revolves around asking for help to install shower handles so I can get in and out of the shower. The are a lot of complicated feelings that go with that. I need help, but I don’t want to ask, and I especially don't want to ask my Mom for help. Transcript JOHN HOPPIN: Back to Business, episode three. Last episode, we talked about stuff ...
Confusion
May 10, 2017 18:48 - 7 minutes - 8.01 MBWelcome to the What's The Matter With Me? Podcast Episode 2. In this episode, I struggle to control my emotions due to damage in my brain stem. What's The Matter With Me? is a podcast about multiple sclerosios, and many other things. Recap - should I be on disability? My philosophy. I said I can't - in violation of my philosophy, which is that I generally can do things. I can work. This podcast is about trying, and I'm not afraid to try and succeed and achieve. I believe that I can achiev...
Episode 1: Trying
April 28, 2017 18:16 - 6 minutes - 6.93 MBTrying What's The Matter With Me? is a podcast about Multiple Sclerosis and many other things. In this episode, it's the month of Mayhem at KFJC, and I go to in for an Occupational Therapist Visit, where I share about Hot Sauce R&D and my Workforce Vision. Droll It's the month of Mayhem at KFJC, and DJs do special programs all month long. Droll pre-empted my show to do a special about music in odd time signatures. Occupational Therapist Julie I went to Stanford to visit the occupational ther...