U2FP CureCast
118 episodes - English - Latest episode: 11 days ago - ★★★★★ - 8 ratingsUnite 2 Fight Paralysis exists to unite and empower the international spinal cord injury community to cure paralysis through advocacy, education, and support for research. Get Educated and Get Involved.
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Episodes
Lab Rats (Part 2)
February 18, 2022 18:52 - 1 hour - 146 MBJason and Matthew talk with Michael Lane (Researcher at Drexel College of Medicine) and Jake Chalfin (SCI advocate and chair of the PA Spinal Cord Advisory Research Council,) as we continue with part 2 of our series on the experience of SCI community consultants in research labs. This discussion continues our exploration around the exciting and unique nature of this relationship and its impact on the research process. If you missed part 1 with Murray Blackmore and Nancy Nicholas, you can fin...
Epidsode 58: Lab Rats (Part 1)
February 08, 2022 20:08 - 1 hour - 113 MBJason and Matthew interview Dr. Murray Blackmore (Marquette University) and Nancy Nichols (person with lived experience of SCI) about Nancy’s addition to the Blackmore Lab as a consultant. We talk about the relationship that developed, the impact it's had on the Blackmore Lab, and the impact relationships like this could have on the wider research landscape. If you are a scientist or a member of the SCI community who is interested in exploring this kind of relationship, please contact us or ...
Lab Rats (Part 1)
February 08, 2022 20:08 - 1 hour - 113 MBJason and Matthew interview Dr. Murray Blackmore (Marquette University) and Nancy Nichols (person with lived experience of SCI) about Nancy’s addition to the Blackmore Lab as a consultant. We talk about the relationship that developed, the impact it's had on the Blackmore Lab, and the impact relationships like this could have on the wider research landscape. If you are a scientist or a member of the SCI community who is interested in exploring this kind of relationship, please contact us or ...
Episode 56: Barry Komisaruk, PhD
December 09, 2021 21:10 - 1 hour - 144 MBJason and Matthew interview Dr. Barry Komisaruk, Neurophysiologist from the Psychology Department at Rutgers University. Barry has been researching sexuality for over 50 years and is maybe best known for the seminal work: The Science of Orgasm. We talk about the history of his research and discoveries, the historical challenges around sexual function research and ideas for how to further this area of research to benefit folks with SCI. Pay particular attention to the latter half of the podca...
Cure Cast Episode 55: Megan Detloff & Bethany Kondiles of IOSCIRS
July 20, 2021 20:07 - 1 hour - 147 MBJason and Matthew talk with Megan Detloff (SCI researcher at Drexel College of Medicine) and Bethany Kondiles (SCI researcher at ICORD). They talk about the evolution of the International Online SCI Research Seminar (IOSCIRS) in response to the pandemic and as a forum for SCI researchers to stay abreast of one another's work. But they have also begun to discuss the value of the seminar for the lay audience of people living with SCI. We talk through this development and both the challenges and...
CureCast Episode 54 SexCast Follow Up
July 07, 2021 00:01 - 30 minutes - 53.8 MBJason and Matthew have a conversation in response to the last two conversations on sex after SCI. They talk about where the conversation seemed to be going and after some reflection, where it ought to go. Listen in and don’t forget to check out the information about this year’s Annual Science and Advocacy Symposium in Salt Lake City at u2fp.org AND, send a message to [email protected] for comments, suggestions and questions. Bumper music: House Song by SCI artist Freaque, findable on Spotify
CureCast Episode 54: SexCast Follow Up
July 07, 2021 00:01 - 30 minutes - 53.8 MBJason and Matthew have a conversation in response to the last two conversations on sex after SCI. They talk about where the conversation seemed to be going and after some reflection, where it ought to go. Listen in and don’t forget to check out the information about this year’s Annual Science and Advocacy Symposium in Salt Lake City at u2fp.org AND, send a message to [email protected] for comments, suggestions and questions. Bumper music: House Song by SCI artist Freaque, findable on Spotify
CureCast Episode 53: SexCast, part 2
June 21, 2021 16:54 - 1 hour - 146 MBJason and Matthew continue the conversation from episode 52 with SCI community members, Quinn Brett, Kelsey Peterson and Thomas Cloyd. They discuss each guest’s experience with sex after injury, where they got their information and what they’ve learned and continue to learn. This conversation starts to set the stage for our upcoming episodes with SCI researchers focused on sexual function for pleasure. Once again, this is a frank conversation with language and themes to match. We’d love to...
CureCast Episode 52: The SexCast
May 20, 2021 21:03 - 1 hour - 132 MBEpisode 52 begins our series on Sex, sex and SCI and the research into restoring sexual function. Matthew and Jason start by talking with Kelsey Peterson, Quinn Brett, and Thomas Cloyd about their experiences with sex after injury: their partners, perceptions, feelings and explorations. This is a frank and explicit conversation, so be prepared. We plan to continue the conversation with multiple interviews and guests. So please send us your comments and questions in order to steer our disc...
CureCast Episode 51: Jimmy Anderson
May 12, 2021 17:39 - 1 hour - 110 MBJimmy Anderson is a state representative in the Wisconsin general Assembly who also lives with an SCI. Jason and Matthew talk with Jimmy about his education, injury and how they led him into politics. They also discuss the effort Jimmy is championing to create a $3 million Wisconsin SCI research program. This push for smart SCI research funding is modeled after similar legislation U2FP’s Cure Advocacy Network has helped pass in other states. Jimmy gives an update on the current status of th...
CureCast Episode 50: Sam Maddox and The Headline Patrol
March 30, 2021 18:33 - 1 hour - 117 MBJason and Matthew talk with U2FP's Scientific Advisory Board Director, Sam Maddox about U2FP’s new Headline Patrol and how to read the news about SCI research. Headlines and media coverage of research can often be misleading. Sam talks about his years following and covering the research. He provides a number of suggestions for what to look for, what terms are critical to understand in order to have a better grasp of what the announcement really means for those of us in the SCI community. Y...
Melissa Miller and Jacqueline Roche - CureCast Episode 49
February 26, 2021 22:23 - 1 hour - 115 MBJason and Matthew speak with Dr. Melissa Miller and Jacqueline Roche from the Congressionally Directed Medical Research Program’s SCIRP (Spinal Cord Injury Research Program). SCIRP is a $40 million per year funding program for SCI that is of specific interest because they include people with SCI in the scientific review process. We talk about the program, its funding strategies and most importantly...how much they want to hear from you! So check out the various links below and reach out t...
CureCast Episode 49: Melissa Miller and Jacqueline Roche
February 26, 2021 22:23 - 1 hour - 115 MBJason and Matthew speak with Dr. Melissa Miller and Jacqueline Roche from the Congressionally Directed Medical Research Program’s SCIRP (Spinal Cord Injury Research Program). SCIRP is a $40 million per year funding program for SCI that is of specific interest because they include people with SCI in the scientific review process. We talk about the program, its funding strategies and most importantly...how much they want to hear from you! So check out the various links below and reach out t...
CureCast Epsiode 48: Dr. Richard Toselli - Invivo Therapeutics
December 18, 2020 04:07 - 1 hour - 92.6 MBJason and Matthew talk with Dr. Richard Toselli, the President, CEO and CMO at Invivo Therapeutics. Invivo has developed and is trialing its Neuro Spinal Scaffold for the treatment of Spinal Cord Injury in the acute setting. We talk with Dr. Toselli about its development, current testing and potential future uses and applications. Dr. Richard Toselli (M.D., M.B.A.), serves as InVivo’s President, Chief Executive Officer and Chief Medical Officer, as well as a Director. A board-certified neuro...
CureCast Episode 47: Leon Ford
November 02, 2020 04:45 - 1 hour - 128 MBJason and Matthew speak with Leon Ford about his advocacy and activism in Pittsburgh and across the United States. The conversation weaves in and through the wisdom that Leon has earned through tragedy, pain and self reflection...and its relationship to our work of protest and partnership. --- Leon Ford, a native of Pittsburgh Pennsylvania born on March 16, 1993, has accomplished so much in such a short period of time. The well-known author, International speaker, and 2019 City Council cand...
CureCast Episode 46: Quinn Brett
September 28, 2020 23:24 - 1 hour - 128 MBJason and Matthew interview professional climber and passionate spinal cord injury advocate, Quinn Brett. We talk with Quinn about her career as a climber, the 100 foot fall from the face of El Capitan in Yosemite National Park that dropped her into our SCI community, and how she’s navigating the ascents of advocacy. Let us know what you think of the conversation by emailing us at [email protected]. Enjoy. -- Born in Minnesota, Quinn Brett somehow was drawn to mountain running and climbing. ...
CureCast Episode 45: David Carmel and Dr. Jason Carmel
August 19, 2020 22:47 - 1 hour - 123 MBIn episode 45 Jason and Matthew speak with long time activists and twins, Jason and David Carmel. David was injured over two decades ago while vacationing in Mexico. He has gone on to achieve a successful career in biotech. Jason is a PhD / MD researcher at Columbia University researching activity based therapies and electrical stimulation. Their unique connection as twins weaves in and through the conversation for a unique perspective on their journey, work and activism after SCI. -- David...
Episode 44: Gregoire Courtine
August 07, 2020 04:22 - 35 minutes - 66.8 MBJason and Matthew interview Dr. Gregoire Courtine, the Chief Science Officer of GTX Medical and Professor at the Swiss Federal Institute of Technology. Dr. Courtine has been researching spinal cord stimulation for over 20 years and is hoping to bring that research to clinical relevance with emerging clinical trials with GTX’s LIFT (non-invasive electrical spinal cord stimulation) and GO2 (targeted epidural spinal stimulation). We will continue the conversation in an upcoming Part 2 with Dr. ...
CureCast Episode 43 Bob Yant
July 23, 2020 18:21 - 1 hour - 111 MBJason and Matthew have a conversation with Bob Yant, 39 years into a spinal cord injury and longtime advocate for spinal cord injury research. Bob founded Cure Medical, a catheter company based in California that donates 10% of its net income to medical research. He is also the founder and president of Axonis Therapeutics, a company committed to delivering a therapeutic for the treatment of SCI. BIO: Following a 1981 accident from which Bob became a quadriplegic, Bob has dedicated himself to...
CureCast Episode 42 with Dr. Ethan Perlstein
July 10, 2020 00:02 - 1 hour - 135 MBJason and Matthew interview Dr. Ethan Perlstein, formerly the Chief Science Officer at the Christopher and Dana Reeve Foundation and Founder of Perlara. We talk about Ethan’s work to develop a ‘roadmap to cures for paralysis’, along with his experience, reception and impressions for where the cure movement can and should go next. BIO: Over the course of the last decade, first as a graduate student at Harvard University in the Department of Molecular and Cell Biology with PhD advisor Profess...
CureCast Episode 41: Dr. Susan Harkema
June 26, 2020 04:00 - 1 hour - 180 MBJason and Matthew interview Dr. Susan Harkema, from the University of Louisville. We discuss her long standing research using the strategy of neuromodulation, neuroplasticity and locomotor training to discover and understand the potential for functional recovery after Spinal Cord Injury. For more information about Dr. Harkema and the full complement of her work and research activities, click here: https://louisville.edu/kscirc/basic-research/faculty-1/susan-harkema
CureCast Episode 40: An Interview with Drs. Kelly and Roy Cho on Covid-19 & SCI
June 11, 2020 03:25 - 51 minutes - 98.3 MBJason and Matthew interview Drs. Kelly and Roy Cho to discuss COVID-19, their practical understanding of the virus, developing treatment practices and how that intersects with folks who have impairments as a result of disability in general and SCI specifically. Here are some online resources they provided for more information: - http://www.academyscipro.org/covid-19-resources-for-sci-professionals/ - https://www.aacpdm.org/UserFiles/file/covid-19-disability-briefing.pdf Dr. Kelly Cho is a p...
CureCast Epsiode 39 ith Dr. Murray Blackmore
May 08, 2020 04:50 - 1 hour - 134 MBCureCast Epsiode 39 ith Dr. Murray Blackmore by Matthew Rodreick & Kate Willette
CureCast Epsiode 39: Dr. Murray Blackmore
May 08, 2020 04:50 - 1 hour - 134 MB"What is the goal here? What are we trying to do?...and to me it still is and has always been to basically restore near normal function to people that have chronic spinal cord injury…that’s what I wanna talk about….what I’ve learned is that I have to start with that. And I have to start with the following sentence, which is: I believe that’s possible and what I wanna do is to be a part of making that happen.” This is an excerpt from Jason and Matthew’s interview with Dr. Murray Blackmore fr...
CureCast Episode 38: An Interview with NervGen Pharma's Paul Brennan & Harold Punnett
April 24, 2020 05:05 - 1 hour - 148 MBJason and Matthew interview Dr. Harold Punnett (co-founder and member of the Board of Directors) and Paul Brennan (President and CEO) from NervGen Pharma. They discuss how Dr. Punnett’s daughter-in-law’s Spinal Cord Injury led to the connection with Dr. Jerry Silver (click the link to hear more about the science from episode 19 with Dr. Jerry Silver) and eventually the founding of the company, their proprietary NVG291 (also known as intracellular sigma peptide or ISP) and their hopes for its ...
The NervGen Story (Episode 38)
April 24, 2020 05:05 - 1 hour - 148 MBJason and Matthew interview Dr. Harold Punnett (co-founder and member of the Board of Directors) and Paul Brennan (President and CEO) from NervGen Pharma. They discuss how Dr. Punnett’s daughter-in-law’s Spinal Cord Injury led to the connection with Dr. Jerry Silver (click the link to hear more about the science from episode 19 with Dr. Jerry Silver) and eventually the founding of the company, their proprietary NVG291 (also known as intracellular sigma peptide or ISP) and their hopes for its ...
CureCast Episode 38 NervGen Pharma
April 24, 2020 05:05 - 1 hour - 148 MBCureCast Episode 38 NervGen Pharma by Matthew Rodreick & Kate Willette
CureCast Epsiode 37: Interview with Drs. Sasha Rabchevsky and Michael Lane
April 10, 2020 22:42 - 1 hour - 123 MBJason and Matthew interview Dr. Sasha Rabchevsky from the University of Kentucky and Dr. Michael Lane from the Drexel College of Medicine. They are both Spinal Cord Injury researchers, and if interested in the specifics of their research you can find earlier podcast interviews with them here. In this interview we talk about how the COVID-19 shutdown has affected the research effort and how researchers and institutions are adapting. We then explore some ideas about what we might see or anticip...
CureCast Epsiode 37: Interview with Dr's Sasha Rabchevsky and Michael Lane
April 10, 2020 22:42 - 1 hour - 123 MBCureCast Epsiode 37: Interview with Dr's Sasha Rabchevsky and Michael Lane by Matthew Rodreick & Kate Willette
Episode 36: Kelsey Peterson on Winning Big Funding from ITVS Open Call for her Documentary
April 03, 2020 03:39 - 1 hour - 137 MBMatthew talks with Kelsey Peterson, the woman behind the documentary film SUBMERGED - formerly titled “The Cure Map”. Matthew and Kelsey talk about her pathway to advocacy and the genesis of the Cure Map project, the recent announcement of being the recipient of the highly competitive ITVS Open Call award, the effects of the COVID-19 troubles and lots more. Follow Kelsey on social media here: https://www.facebook.com/submergeddocumentaryfilm/ https://www.instagram.com/submergedfilm/ https://...
Episode 35: An Interview with Sam Schmidt, Founder of Conquer Paralysis Now
March 09, 2020 23:42 - 1 hour - 139 MBJason and Matthew interview Conquer Paralysis Now founder, Sam Schmidt. We discuss Sam’s history as a race car driver, his injury, the genesis for the foundation and his recent project Driven, an Activity Based Fitness center in Las Vegas Nevada. Please reach out to us at [email protected]
CureCast Episode 34: A Conversation with Jason Stoffer and Kate Willette
February 22, 2020 20:49 - 54 minutes - 103 MBIn Epsiode 34 of U2FP's CureCast podcast, we introduce Jason Stoffer. We talk with Jason about who he is, where he hails from and how he came to be the new co-host on the podcast. We also talk with Kate Willette, author of Don’t Call It a Miracle: The Movement To Cure Spinal Cord Injury, about her new projects. It's an intimate and wide-ranging conversation that we think you’ll enjoy. You can email us at [email protected] We’d love to hear from you, and you can find out more about us at u2fp.org
CureCast: Episode 34 Conversation with Jason Stoffer and Kate Willette
February 22, 2020 20:49 - 54 minutes - 103 MBCureCast: Episode 34 Conversation with Jason Stoffer and Kate Willette by Matthew Rodreick & Kate Willette
CureCast Episode 34
February 22, 2020 20:33 - 54 minutes - 103 MBCureCast Episode 34 by Matthew Rodreick & Kate Willette
CureCast Episode 33: Interview with Dr. Mohamad Bydon from the Mayo Clinic
January 30, 2020 04:23 - 46 minutes - 88 MBCheck out Episode 33 of CureCast. We (Kate Willette, Jason Stoffer and Matthew Rodreick) talk with Dr. Mohamad Bydon from the Mayo Clinic. You may have seen the Good Morning America piece focused on 'super responder' patient one in the Phase 1 Clinical Trial using Adipose Derived Mesenchymal Stem Cells. We wanted to understand more about the study, how to go beyond the media hype and get an understanding of where Dr. Bydon sees this research going. Take a listen and drop us a note at curecast...
CureCast Episode 32: Interview with Dr. Stephen Strittmater about ReNetX
January 13, 2020 04:37 - 54 minutes - 101 MBKate, Matthew and Jason Stoffer (our new podcast host) have a conversation with Dr. Stephen Strittmatter, The Vincent Coates Professor of Neurology and Professor of Neuroscience at Yale School of Medicine. His discoveries over the last two decades of research led to the founding of ReNetX, who are applying that technology to discover if neurons can regrow in the chronic injury (in humans) by eliminating inhibitory growth factors. We discuss the pre-clinical research, the mechanistic activit...
U2FP CureCast Episode 31: Conversation with EStand trial participants Kathy Allen and Sandra Mulder
June 03, 2019 19:17 - 56 minutes - 90.3 MBMatthew and Kate talk with Kathy Allen and Sandra Mulder, the first two participants in the EStand Trial in Minnesota. Kathy and Sandra (as well as Jered Chinook who participated in the Mayo Clinic’s Epidural Stimulation study) were invited to attend the American Spinal Injury Association Conference in April to share their personal experiences as part of a conversation facilitated by U2FP’s Executive Director, Matthew Rodreick. We thought it would be helpful to hear from them directly on the ...
CureCast Epsiode 30: An Interview with Dr. David Darrow
April 25, 2019 23:17 - 1 hour - 148 MBWe talk with David about the EStand Trial using Epidural Stimulation for spinal cord injury, the trial design, progress, next steps, and its connection the Cure Advocacy Network. The informal title of this episode is ‘The Transformation of Suffering’, which is David’s eloquent and personal description of why he’s doing what he does and what he is hoping to accomplish with the trial and treatment of SCI.
Lyn Jakeman CureCast Episode 29
February 06, 2019 03:04 - 1 hour - 83.5 MBMatthew and Kate have a conversation with Dr. Lyn Jakeman, Director in the Division of Neuroscience at the National Institutes of Health. We spoke with Lyn a week ahead of NIH's SCI 2020: A Decade of Disruption. We discuss what led to the conference, why now and what they hope to accomplish from it. We also talk about why they chose the title, 'Decade of Disruption', and how that informed the planning process. As to the 'disruption' reference, we also discuss endparalysis foundation's open...
CureCast Episode 28: What are we doing? An interview with Dr. David Magnuson and Dr. Karim Fouad
December 28, 2018 22:18 - 1 hour - 134 MBMatthew and Kate talk with Dr. David Magnuson (University of Louisville) and Dr. Karim Fouad (University of Alberta) about how discoveries are translated, funded, published....and what are some of the problems inherent to getting science to work for us. Links discussed: SCI 2020: https://meetings.ninds.nih.gov/Home/Index/21041 and check back for links to follow up on Kentucky's SCI research funding. Here are the links to follow up with Kentucky's battle to retain funding for SCI research: to...
CureCast Episode 27: Strategies to Cath No More - An interview with Dr. Dennis Bourbeau
August 21, 2018 19:23 - 1 hour - 156 MBMatthew and Kate interview Dr. Dennis Bourbeau from the Cleveland FES Center (http://fescenter.org/about-fes-center/who-we-are/investigators/dennis-bourbeau-phd/) about his strategies and collaborations to restore bladder function using stimulation. We discuss a number of studies he's involved in as preparation for his presentation at Working 2 Walk Science and Advocacy Symposium...and hope to open up the conversation to all there re: Bowel, Bladder, Sexual Function.
An Interview with Dr. Andrei Krossioukov - Spinal Stimulation and Autonomic Function (Episode 26)
August 06, 2018 16:47 - 1 hour - 122 MBA stimulating conversation with Dr. Andrei Krossioukov from the University of British Columbia and Icord. Kate and Matthew talk with him about spinal stimulation to seek recovery of autonomic functions for chronic spinal cord injury: bowel, bladder, seal function, blood pressure regulation.
An Interview with Karim Fouad (Episode 25)
July 19, 2018 17:13 - 1 hour - 68.5 MBDr. Karim Fouad is a Professor of Rehabilitation Medicine at the University of Alberta and Canada Research Chair for Spinal Cord Injury. Kate and Matthew talk with Karim about how he ended up in this field and the more recent research that he has been involved with: the discovery of pericytes and their role in inhibiting blood flow after injury and what might be done about that; the potential for inciting a controlled inflammatory response to open a window for recovery after injury; and Karim...
Nick Jeffrey and Chondroitinase (Episode 22)
July 10, 2018 20:50 - 1 hour - 60.3 MBCheck out this great discussion Kate and Matthew have with Dr. Nicholas Jeffery from Texas A & M. We talked with Dr. Jeffery about the recent clinical trial for paralyzed dogs using chondroitinase along with his future work. After you listen to our interview, go take a look at his presentation from Working 2 Walk 2015.
A Conversation with Dr. Adam Ferguson of UCSF (Episode 21)
July 10, 2018 20:45 - 1 hour - 56.7 MBIf we’re working from a 17th century model of publishing science, then what effect does that have on translating science to clinical relevance? Kate and I had a mind expanding conversation (for laypeople) around this idea with Dr. Adam Ferguson, Professor and Principal Investigator at the Brain and Spinal Injury Center at UCSF. You may have already seen his fascinating presentation at Working 2 Walk this past year, “Big Data Analytics: Bringing Dark Data to Light for Enhancing Discovery and T...
Conversation with Ian Ruder from New Mobility Magazine (Episode 16)
July 10, 2018 20:20 - 53 minutes - 50 MBKate and Matthew interview New Mobility magazine’s Senior Editor Ian Ruder. We discuss his role, the history of the publication and how SCI research fits into the story.
A Conversation with Sam Maddox on SCI Research and Advocacy (Episode 15)
July 10, 2018 20:10 - 1 hour - 58 MBKate and Matthew interview longtime SCI writer, blogger, journalist and advocate Sam Maddox. Sam was a correspondent for Time, Money and People magazine and a former journalism professor at the University of Colorado – Boulder. His latest project is a publication called, First 90 Days to assist people in getting the best information at the time of injury.
A Conversation with Donna Sullivan and Chris Powell about U2FP and Working 2 Walk (Episode 14)
July 10, 2018 20:01 - 59 minutes - 55.6 MBIn this conversation, Matthew and Kate talk with Donna Sullivan, U2FP’s Special Projects Director and Chris Powell, U2FP’s Research Consultant. We discuss their entry into SCI advocacy, what they do at U2FP and the planning for this year’s Working 2 Walk Science and Advocacy Symposium in Miami.
A Conversation with Researchers at the Mayo Clinic (Episode 12)
July 10, 2018 19:59 - 42 minutes - 39.7 MBA conversation with Doctor’s Kendall Lee, Kristin Zhao and Igor Lavrov from the Mayo Clinic in Rochester, MN. They give Kate and Matthew an update on the current Epidural Stimulation replication study, as well as their plans to further develop the strategy.