INHERITED HEART CONDITION: Max's story

Max’s life changed forever when he lost his father Chris to cardiomyopathy – inherited heart muscle disease – at the age of just 13. Then Max went on to be diagnosed with the same condition himself at 17. On this episode, Sarah Marsh from the BHF talks with Max about learning to live with the loss of his dad, how he’s come to terms with his own complex heart health journey and the life-changing BHF research that could prove to be a game-changer for people living with genetic cardiomyopathies, and future generations.

Max has shared his story to help us draw attention to our £30m research project CureHeart, which aims to find the first cures for inherited heart muscle conditions. Watch the video here:

https://www.youtube.com/watch?v=D7BO-KfIknw

Max's condition, ARVC (Arrhythmogenic right ventricular cardiomyopathy) is also referred to as ACM (Arrhythmogenic cardiomyopathy). The term ARVC was used more commonly in the past and is still in usage, however research has shown that the condition can affect either the left or right ventricles, or both. Therefore, ACM is the more current term. Also, rarely, ACM might also be called ARVD (Arrhythmogenic right ventricular dysplasia).

You can find more on the condition here:

https://www.bhf.org.uk/informationsupport/conditions/cardiomyopathy/arrhythmogenic-cardiomyopathy

We also have information, resources and support groups to help young people with a heart condition:

https://www.bhf.org.uk/informationsupport/support/children-and-young-people

The British Heart Foundation depends on the generosity of donors to continue carrying out our lifesaving research. If you too would like to donate, you can do so at bhf.org.uk/donate

If you've got any questions or concerns about your heart or circulatory health and want to talk with a cardiac nurse on the BHF’s Heart Helpline, go to our website at bhf.org.uk/hearthelpline and you'll find all the contact options there.

And if you’ve got your own heart story, or have any thoughts on this episode, we'd love to hear from you on email at [email protected]

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