INHERITED HEART CONDITION: Mya's story

Mya's life was changed forever when she discovered she had a heart condition at just 18. On this episode, Molly Tresadern from the BHF talks with her about what it's like as a teenager with a heart condition, and how Mya has stayed positive in the face of her diagnosis.  

Mya's condition, ARVC (Arrhythmogenic right ventricular cardiomyopathy) is also referred to as ACM (Arrhythmogenic cardiomyopathy). The term ARVC was used more commonly in the past and is still in usage, however research has shown that the condition can affect either the left or right ventricles, or both. Therefore, ACM is the more current term. Also, rarely, ACM might also be called ARVD (Arrhythmogenic right ventricular dysplasia).

More on the condition here:

https://www.bhf.org.uk/informationsupport/conditions/cardiomyopathy/arrhythmogenic-cardiomyopathy

We also have information, resources and support groups to help young people with a heart condition:

https://www.bhf.org.uk/informationsupport/support/children-and-young-people

The British Heart Foundation depends on the generosity of donors to continue carrying out our lifesaving research. If you too would like to donate, you can do so at bhf.org.uk/donate

If you've got any questions or concerns about your heart or circulatory health and want to talk with a cardiac nurse on the BHF’s Heart Helpline, go to our website at bhf.org.uk/hearthelpline and you'll find all the contact options there.

And if you’ve got your own heart story, or have any thoughts on this episode, we'd love to hear from you on email at [email protected]

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