Let's Talk About Brain Tumours
65 episodes - English - Latest episode: about 1 month ago -Join us as we talk to those who have been diagnosed with a brain tumour, their friends, parents, partners and children as we talk about all things brain tumours. Find out more about how we are working to change the outcomes for those who are diagnosed with this terrible disease.
Please Note: We recognise that everyone's experience's are completely unique and will be different for everyone. The people who come on the podcast are sharing their own personal experiences, these may differ from yours or your loved one.
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Episodes
Episode 12 - Spotlight On Fundraising Events
November 16, 2021 07:00 - 14 minutes - 10.1 MBIn this episode find out more about how the charity raises money for research into brain tumours and treatments as Chandos talks to Sarah Castleman, Events Manager at the charity. Sarah talks about how we had to change the way we had to do events in the wake of the Coronavirus pandemic, the impact of this and what this means for us as a charity and how we do events as we come out of the pandemic. Sarah talks about the importance of these events both in terms of raising money for vital res...
Episode 11 - Caring for a parent - a young persons perspective
November 02, 2021 07:00 - 58 minutes - 40 MBIn this episode we talk to Kaj Mistry who was just 22 when her dad was diagnosed with a brain tumour. Kaj had moved away from the family home and was just starting her life in a new city when she found out about her dads diagnosis. Kaj decided to move back home to help look after him. Kaj shares her experience of what it was like to walk away from her new life to take on a caring role for her dad and how this experience has changed her. If you are a young person aged between 16 - 30 an...
Episode 10 -Spotlight on Volunteering for the Charity
October 19, 2021 06:00 - 11 minutes - 8.2 MBIn this episode Amie Frayne talks about her role as the Volunteer Development Manager and what a vital role volunteers play in just about every aspect of the charity. Amie talks about the types of things volunteers can do at the charity from supporting at events to supporting on our social media channels and much more. You'll also hear from some of our volunteers about their experiences of volunteering at the charity as well as how you can go about finding out more about the volunteering r...
Episode 9 - What's it like to get diagnosed as a child?
October 05, 2021 06:00 - 41 minutes - 28.7 MBIn this episode we hear from Rosie who was diagnosed with a brain tumour when she was just 8 years old. She shares what it was like to be a child going through treatment, how it affected her friendships, going to school and the long term impacts both mentally and physically of having a brain tumour at such a young age. If you would like more information about our Children and Families Service you can go to our website https://www.thebraintumourcharity.org/living-with-a-brain-tumour/get-sup...
Episode 8 - Spotlight on National Eye Health Week
September 21, 2021 06:00 - 14 minutes - 9.71 MBIn this episode Chandos talks to Optical Engagement Manager Lorcan Butler about the importance of eye exams as these appointments can tell you much more about your overall health than just if you need to wear glasses. Lorcan talks you through what happens at a typical appointment, what your optician looks out for and some of the health conditions, including brain tumours that can be detected during these eye exams and also what happens if something is detected when you have an eye exam. ...
Episode 8 - Spotlight on National Eye Health Week
September 21, 2021 06:00 - 12 minutes - 8.87 MBIn this episode Chandos talks to Optical Engagement Manager Lorcan Butler about the importance of eye exams as these appointments can tell you much more about your overall health than just if you need to wear glasses. Lorcan talks you through what happens at a typical appointment, what your optician looks out for and some of the health conditions, including brain tumours that can be detected during these eye exams and also what happens if something is detected when you have an eye exam. ...
Episode 7 - Finding your new 'normal' after a loved ones diagnosis
September 07, 2021 06:00 - 52 minutes - 36.4 MBIn this episode, we talk to Diane Thomas about how a loved one's diagnosis changes life for everyone not just the person with the diagnosis and why creating a new 'normal' is so important. Diane talks about problem-solving and finding creative solutions to keep creating a new 'normal' as things changed. Diane also talks about her experiences of having to deal with her husband's personality changes due to the location of his tumour and the importance of not being afraid to ask for help. Di...
Episode 6 - Spotlight on The Brain Tumour Charity app BRIAN
August 24, 2021 07:00 - 16 minutes - 11.3 MBIn this Spotlight episode Chandos talks to Fiachra Woodman about BRIAN. BRIAN (the Brain tumouR Information and Analysis Network) is an online app which has been developed by The Brain Tumour Charity to help people cope with a brain tumour diagnosis. BRIAN can help you - and those supporting you – to understand how you are doing and to make better informed decisions. Fiachra talks about some of the ways you or your loved one can use BRIAN such as carrying out challenges in the app, setting...
Episode 6 - Spotlight on The Brain Tumour Charity app BRIAN
August 24, 2021 07:00 - 17 minutes - 12.2 MBIn this Spotlight episode Chandos talks to Fiachra Woodman about BRIAN. BRIAN (the Brain tumouR Information and Analysis Network) is an online app which has been developed by The Brain Tumour Charity to help people cope with a brain tumour diagnosis. BRIAN can help you - and those supporting you – to understand how you are doing and to make better informed decisions. Fiachra talks about some of the ways you or your loved one can use BRIAN such as carrying out challenges in the app, setting...
Episode 5 - Memory with Sunil Reddy
August 10, 2021 08:00 - 40 minutes - 27.9 MBIn this episode, we talk to Sunil Reddy about his diagnosis and the impact this has had on his life. Sunil talks about how his memory has been affected due to his treatment and what this has been like for him both coming to terms with the long term effects of having a brain tumour but also how he is finding ways to cope with these changes. Memory loss is a common side effect of brain tumours with Cam and Chandos also sharing how, like Sunil they have also suffered with memory problems as...
Episode 4 - Spotlight on 10 Ways We Can Help
July 27, 2021 08:00 - 14 minutes - 9.86 MBIn this episode Chandos talks to Eve Kelleher, the Head of Services at the charity about some of the ways our Support Team can help people who have been affected by a brain tumour diagnosis. You can find out more about the 10 ways we can help here https://www.thebraintumourcharity.org/living-with-a-brain-tumour/get-support/ They talk about our online communities, from our Facebook support groups, Health unlocked to our Support Instagram you can find out more about our online communities h...
Episode 3 - Life as a carer with Sara Challis
July 13, 2021 08:00 - 40 minutes - 27.5 MBIn this episode co-host Sara Challis shares her story about what it's like being told the person you love has a brain tumour and how her husbands diagnosis changed her life forever as she took on the role of his carer throughout his illness. Sara talks with honesty about the reality of caring, the toll it takes on carers and things she found helpful. If you or a loved one have been affected by a brain tumour diagnosis our support team are here to help you. You can get in touch by emailing...
Episode 3 - Life as a carer with Sara Challice
July 13, 2021 08:00 - 41 minutes - 28.3 MBIn this episode co-host Sara Challice shares her story about what it's like being told the person you love has a brain tumour and how her husbands diagnosis changed her life forever as she took on the role of his carer throughout his illness. Sara talks with honesty about the reality of caring, the toll it takes on carers and things she found helpful. If you or a loved one have been affected by a brain tumour diagnosis our support team are here to help you. You can get in touch by emailin...
Episode 2 - Spotlight on Best Care Everywhere
June 29, 2021 08:00 - 12 minutes - 8.42 MBIn the first of our Spotlight episodes Chandos talks to Emma Wood the Involvement and Impact Manager at The Brain Tumour Charity about Best Care Everywhere, the charity's new strategy to ensure people get the best treatment and care possible wherever they are in the UK. They discuss why the charity is working on this strategy, how they are doing it and also share what you can do if you want to get involved. To take part in the Improving Care Today Surveys https://www.thebraintumourchar...
Episode 1 - Getting to know your hosts
June 10, 2021 19:00 - 22 minutes - 15.8 MBIn this episode, you'll meet your hosts Sarah who works at The Brain Tumour Charity, and Cam and Chandy who are both living with a brain tumour diagnosis. They'll be sharing their experience of what it's like to be told you have a brain tumour and what it's like to live with a diagnosis. We'll also be telling you a bit more about what the podcast is going to be about and what you can expect from future episodes. Email us at [email protected] or visit our website at http:/...