Epilepsy Sparks Insights artwork

Epilepsy Sparks Insights

172 episodes - English - Latest episode: 2 days ago - ★★★★★ - 5 ratings

Led by Torie Robinson, ”Epilepsy Sparks Insights” is an educational podcast to spark interest in and bridge the gap between epilepsy patients, clinicians, scientists, geneticists – and the world.

Follow on Twitter: @TorieRobinson10 & @EpilepsySparks. Visit www.torierobinson.com & www.epilepsysparks.com.

**NOT FOR CLINICAL OR PATIENT DECISION MAKING**

Medicine Health & Fitness Science Life Sciences torie robinson epilepsy neurology genetics epileptology neuroscience seizures clinical psychiatry mental health
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Episodes

Pilots & Seizures, Older People & Epilepsy - Joe Sirven

June 29, 2023 00:00 - 11 minutes - 16.5 MB

Pilots and seizures plus older people with epilepsy - all with epilepsy specialist neurologist & podcast host Joseph Sirven of Mayo Clinic, Florida. This is part 1 of 2. ------------------------------------------ More about Joe: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/joe-sirven-aviation-faa-older-people-independence  ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/...

Sleep Disorders: Common With An Epilepsy - Francesca Furia

June 22, 2023 00:07 - 15 minutes - 21.4 MB

Francesca Furia from the Filadelfia Epilepsy Hospital in Denmark, speaks of her research into sleep disorders amongst people with and families affected by the epilepsies and how to improve sleep quality. ------------------------------------------ More about Francesca: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/francesca-furia-sleep-disorders-epilepsy ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 h...

What Makes A Good Appointment With An Epileptologist? - Álvaro Beltrán Corbellini

June 15, 2023 00:12 - 13 minutes - 18.7 MB

Epileptologist Álvaro Beltrán Corbellini speaks of what he believes can help to make a good appointment and relationship between a clinician and patient, how epilepsy is “many diseases under one word”, sleep, and his new podcast "EpilepsyUpdate"! ------------------------------------------ More about Álvaro: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/alvaro-beltra-corbellini-what-makes-good-appointment-with-an-epileptologist ------------------------------------------ Don’t...

Improving Care & Treatments For People With Epilepsy - Ángel Aledo-Serrano

June 08, 2023 00:52 - 14 minutes - 20.3 MB

Epileptologist & neurologist Ángel Aledo-Serrano speaks of the need to improve prescribing and avoid polypharmacy for people with an epilepsy, the need for further qualitative research into treatment and care, and ways to potentially convince clinicians that epilepsy is far more than seizures alone. This is part 2 of 2. ------------------------------------------ More about Ángel: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/angel-aledo-serrano-improving-asm-prescribing-appoin...

Reassessing The Prescription of Levetiracetam/Keppra for Epilepsy - Ángel Aledo-Serrano

June 01, 2023 00:00 - 15 minutes - 22.1 MB

Epileptologist & neurologist Ángel Aledo-Serrano talks of his recent review and opinion on a former paper regarding the anti-seizure medication Levetiracetam/Keppra, its effectiveness in controlling seizures, but also the importance of precision medicine. This is part 1 of 2. ------------------------------------------ More about Ángel: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/angel-aledo-serrano-reassessing-the-prescription-of-levetiracetam-keppra-for-epilepsy ----------...

Helping Dogs & Humans with Epilepsy 2 - Rodrigo Gutierrez-Quintana, Glasgow Uni, UK

May 25, 2023 00:01 - 16 minutes - 22.7 MB

With veterinary neurologist Rodrigo Gutierrez-Quintana, hear of his research study into helping treat dogs and humans (hopefully!) with refractory epilepsy! This is episode no. 2 of 2. ------------------------------------------ More about Rodrigo: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/rodrigo-gutierrez-quintana-helping-dogs-humans-with-epilepsy ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 h...

Injecting MicroRNA To Help Dogs & Humans with Epilepsy - David Henshall, RCSI, ROI

May 18, 2023 00:11 - 14 minutes - 20.2 MB

With human molecular physiologist and neuroscientist David Henshall, hear of a MicroRNA treatment for dogs with epilepsy that shall hopefully benefit them and potentially humans in the future. This is episode 1 of 2. ------------------------------------------ More about David: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/david-henshall-injecting-mirna-helping-dogs-humans-with-epilepsy  ----------------------------------------- Don’t understand all the terms used? Check out ...

The Idea of Epilepsy - Simon Shorvon, UCL, UK

May 11, 2023 00:17 - 9 minutes - 13.3 MB

Hear how societal, cultural, and medical attitudes and approaches to the epilepsies have evolved over the past 160 years, significant changes in research, diagnoses, and treatment methods, and how we need to remember to learn from the past! All from neurologist, emeritus prof. and writer, Simon Shorvon. ------------------------------------------ Simon's book 📖 amazon.co.uk/Idea-Epilepsy-Medical-History-1860-2020/dp/1108842615 ------------------------------------------ More about Simon: ...

The Sacrifices & Benefits Of A Hemispherotomy - Georgia Ramantani

May 04, 2023 00:50 - 14 minutes - 19.7 MB

More about Georgia : 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/georgia-ramantani-sacrifices-benefits-hemispherotomy-brain-surgery-neurosurgery-epilepsy ----------------------------------------- Chapters 📖 00:00 Intro 00:00 Who makes a good candidate for a hemispherotomy 02:34 Physical effects of surgery - the price for stopping seizures 05:03 Example of patient sacrifice & outcome 07:14 How the surgery works 08:17 Why aren’t there still seizures in one half of the brain?! 11:...

Slicing a Brain In Half To Treat Epilepsy - Georgia Ramantani

April 27, 2023 00:00 - 14 minutes - 20.7 MB

----------------------------------------- More about Georgia : 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/georgia-ramantani-slicing-brain-epilepsy-hemispherotomy-neurosurgery ----------------------------------------- Chapters 📖 00:00 Intro 01:00 Whole family included in child's healthcare 01:55 Hemispherectomy vs hemispherotomy  03:22 Candidates, results and benefits 05:16 Success measurement 06:45 Who is a candidate for a hemispherotomy? 07:18 Risks of surgery (mor...

Preventing Unprovoked Seizures After A Stroke - Eugen Trinka

April 20, 2023 00:01 - 15 minutes - 22.1 MB

Learn about epileptogenisis and a study into seizure onset prevention among stroke patients, with Eugen Trinka. ------------------------------------------ More about Eugen: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/eugen-trinka-epileptogenesis-stroke-seizure-onset-prevention-epilepsy  ------------------------------------------ Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary  -----------------------...

Epileptic Seizures Mimicking Anxiety - Vaughan Bell, UCL

April 13, 2023 00:00 - 9 minutes - 14 MB

Epileptic seizures can look or sound like a mental illness such as anxiety - learn from clinical neuropsychologist and academic Vaughan Bell of UCL, UK, who explains why we need to improve the understanding of the epilepsies among psychologists in general. This is part 2 of 2. ------------------------------------------ More about Vaughan: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/vaughan-bell-epileptic-seizures-mimicking-psychological-illnesses ---------------------------...

Epilepsy and Mental Health: What Psychologists Should Know - Vaughan Bell, UCL

April 06, 2023 00:00 - 15 minutes - 21.6 MB

Clinical neuropsychologist and academic Vaughan Bell of UCL, UK, explains why we need to improve the understanding of the epilepsies among psychologists in general. This is part 1 of 2. ------------------------------------------ More about Vaughan: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/vaughan-bell-changing-psychologists-perceptions-epilepsy ------------------------------------------ Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 htt...

How Can Sleep Disorders Impact Epilepsy? - Samson Khachatryan

March 30, 2023 00:05 - 10 minutes - 14.2 MB

Hear about research into the correlation between epilepsy and sleep disorders, with a focus on bruxism (teeth grinding) - with Samson Khachatryan. This is part 2 of 2. ------------------------------------------ More about Samson: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/samson-khachatryan-sleep-disorders-bruxism-tooth-grinding-epilepsy ------------------------------------------ Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www....

Politics & War Impacting People With Epilepsy - Samson Khachatryan

March 23, 2023 01:00 - 13 minutes - 18.5 MB

Learn of how politics and war impact populations affected by epilepsy in Armenia - with Samson Khachatryan. This is part 1 of 2. ------------------------------------------ More about Samson  👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/samson-khachatryan-politics-war-impact-people-with-epilepsy ------------------------------------------ Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary  ----------------...

Children’s Epilepsy Camps?! - Maša Malenica

March 16, 2023 01:26 - 16 minutes - 22.7 MB

Peadiatric epileptologist Maša Malenica speaks of her incredible (& replicable!) epilepsy project that empowers patients, families, clinicians, & schools. ------------------------------------------ More about Maša: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/masa-malenica-educating-patients-clinicians ------------------------------------------ Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary -----------...

What are Infantile Epilepsy Syndromes? - Stéphane Auvin

March 09, 2023 01:00 - 12 minutes - 17.7 MB

What Infantile Epilepsy Syndromes are, potential disease-modifying treatments, steroids, and research - all fabulously explained by epileptologist & neuroscientist Stéphane Auvin! ------------------------------------------ More about Stéphane: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/stephane-auvin-what-are-infantile-epilepsy-syndromes ------------------------------------------ Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www....

How Do We Make Medicines Taken In Pregnancy, Safe? - Rebecca Bromley

March 02, 2023 01:20 - 14 minutes - 20.2 MB

Peadiatric neuropsychiatrist & researcher Rebecca Bromley talks about the needs of families regarding positive research and international collaborations in regards to epilepsy medicine safety, aka pharmacovigilance. ------------------------------------------ More about Rebecca: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/rebecca-bromley-pharmacovigilance-sodium-valproate  ------------------------------------------ Don’t understand all the terms used? Check out the Epilepsy...

I Have Epilepsy...Will I Get Dementia? - Alice Lam (Pt 2 of 2)

February 23, 2023 01:12 - 19 minutes - 27.1 MB

Hear about common fears of dementia, other causes for dementia "symptoms", how to minimise dementia risk, and more! From adult neurologist & neuroscientist of MGH & Harvard Medical School, Alice Lam. This is part 2 of 2. ------------------------------------------ More about Alice: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/alice-lam-will-i-get-dementia-epilepsy-alzheimers-risk-minimisation ------------------------------------------ Don’t understand all the terms used? Che...

What’s The Link Between Epilepsy & Dementia? - Alice Lam (Pt 1 of 2)

February 16, 2023 01:09 - 13 minutes - 18.3 MB

Alice Lam: Lam Lab, Massachusetts General Hospital & Harvard Medical School, US  Alice explains the bidirectional relationship between epilepsy and Alzheimer’s Disease. This is part 1 of 2.  ------------------------------------------ More about Alice: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/alice-lam-epilepsy-dementia-epileptiform-activity-alzheimers-disease ------------------------------------------ Don’t understand all the terms used? Check out the Epilepsy Sparks G...

Improving The Sex Life of Someone With An Epilepsy - Oliver Henning

February 09, 2023 01:38 - 13 minutes - 19.5 MB

Oliver and Torie speak of ways to speak about and improve the sex lives of people with an epilepsy (should they need it) - from both the clinician and patient perspectives. ------------------------------------------ More about Oliver: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/oliver-henning-sex-epilepsy-02  ------------------------------------------ Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary  ...

Sex and Epilepsy - Oliver Henning

February 02, 2023 01:36 - 13 minutes - 18.5 MB

In anticipation of Valentine's Day(!), epileptologist & psychiatrist Oliver Henning speaks about the common sexual challenges amongst some people with an epilepsy. Last time we checked, the majority of people with epilepsy were, on paper, sexual creatures, but, indeed, many can struggle with their sex lives - at times - a little more than those without epilepsy. Learn more through an open chat with Oliver. This is part 1 of 2. ------------------------------------------ More about Oliver: 👇...

Managing Transition from Paediatric to Adult Care - Abril Marone

January 26, 2023 01:00 - 14 minutes - 20 MB

Adult neurologist Abril Marone speaks of her sensitivity in managing the patient experience from paediatric to adult care, plus speaks of how important it is for patients to be able to speak about sensitive, personal concerns; such as sexuality. ------------------------------------------ More about Abril: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/abril-marone-patient-transition-paediatric-adult-care-sexuality ------------------------------------------ Don’t understand al...

Using Frog Eggs To Research Epilepsy?! - Valentina Galassi Deforie

January 19, 2023 01:50 - 11 minutes - 16.4 MB

Valentina Galassi Deforie, a final year Ph.D. student of the UCL Neurogenetics Lab, speaks of using frog eggs to research the epilepsies and some new mutations discovered - e.g. those of the KCNA6 and NARS1 genes! ------------------------------------------ More about Valentina: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/valentina-galassi-deforie-frog-eggs-research-epilepsy-KCNA6-NARS1 ------------------------------------------ Don’t understand all the terms used? Check ou...

ICTALGroup: Improving Status Epilepticus Outcomes - Stéphane Legriel #02

January 12, 2023 01:49 - 14 minutes - 20.3 MB

Stéphane Legriel tells us about the ICTALGroup - an organisation formed of neurologists around France who share knowledge to improve the care of people experiencing status epilepticus. ------------------------------------------ More about Stéphane: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/stephane-legriel-02  ------------------------------------------ Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary...

What Is Status Epilepticus? - Stéphane Legriel #01

January 05, 2023 01:00 - 13 minutes - 18.5 MB

We hear from Stéphane Legriel: a Critical Care/ICU physician with a passion for helping people with experiencing status epilepticus - an ongoing, very dangerous, epileptic seizure. Stéphane tells us all about different types of status epilepticus and emergency care for people who experience it. ------------------------------------------ More about Stéphane: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/stephane-legriel-01  ------------------------------------------ Don’t und...

Challenging Racial Disparities in Epilepsy Care...plus, Brain Art! - M. Scott Perry #02

December 29, 2022 01:43 - 12 minutes - 17.6 MB

Scott Perry tells us about identifying and challenging racial disparities in epilepsy care, followed by a chat about brain art - an important method of communication when it comes to epilepsy, neuroscience, and more! This is part 2 of 2 with Scott. ------------------------------------------ More about Scott: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/scott-perry-02  ------------------------------------------ Book mentioned: "The Maths of Life & Death" - Kit Yates: https://www.a...

Measuring Effectiveness of Epilepsy Surgery in Children - M. Scott Perry #01

December 22, 2022 01:27 - 12 minutes - 17.5 MB

Scott Perry - Head of neurosciences and pediatric epileptologist at Cook Children’s hospital tells us all about genetic testing re the epilepsies, PERC: the Pediatric Epilepsy Research Consortium, and measuring the effectiveness of epilepsy surgeries in children. This is part 1 of 2 with Scott. ------------------------------------------ More about Scott: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/scott-perry-01  ------------------------------------------ Don’t understand ...

Results Of Epilepsy Research Using Flies! - Richard Baines #02

December 15, 2022 01:00 - 13 minutes - 18.7 MB

Hear of Richard Baines and his team use fruit flies in epilepsy research, the discoveries made, and the next steps for epilepsy research! Also hear more about the incredible Fly Facility at Manchester University!r University! ------------------------------------------ More about Richard: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/richard-baines-02  ------------------------------------------ Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 h...

Using Flies To Research Epilepsy! - Richard Baines #01

December 08, 2022 01:00 - 13 minutes - 19.3 MB

Hear of HOW Richard Baines and his team use fruit flies in epilepsy research, the discoveries made, and the next steps for epilepsy research! Also hear more about the incredible Fly Facility at Manchester University! ------------------------------------------ More about Richard: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/richard-baines-01 ------------------------------------------ Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www...

How To Support Caregivers Of Those With A Developmental & Epileptic Encephalopathy - Eden Robertson

December 01, 2022 00:03 - 12 minutes - 16.9 MB

Post-doc research fellow Eden Robertson from UNSW, Australia, speaks of her GenE Compass project results and how to support caregivers of those with a Developmental & Epileptic Encephalopathy. Eden shares what has already been learnt from the project, the benefits of altruism, and working towards health equity through leaning and working with communities.   ------------------------------------------ More about Eden: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/eden-robertson-...

Why Support Caregivers Of Those With A Developmental and Epileptic Encephalopathy? Eden Robertson

November 24, 2022 00:03 - 11 minutes - 16.6 MB

Behavioural scientist Eden Robertson from UNSW, Australia, shares with us her work into improving the lives of caregivers of children with a Developmental & Epileptic Encephalopathy, with clear messages: the Developmental & Epileptic Encephalopathies awfully impact caregivers, who must be provided with education and support. This is part one of two with Eden. ------------------------------------------ More about Eden: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/eden-robertso...

Climate Change & Epilepsy - Sanjay Sisodiya

November 17, 2022 01:00 - 18 minutes - 25.1 MB

Climate change is real. Awfully real. Hear of the real threats posed by climate change to those with epilepsy and what we can do to help make change and minimise risk. With global lead Prof. Sanjay Sisodiya - Consultant Neurologist at UCL Queen Square Institute of Neurology & Neurosurgery, UK.  ------------------------------------------ More about Sanjay: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/sanjay-m-sisodiya  ------------------------------------------ Don’t underst...

Graphene Tech: Accessing & Recording Brain Activity Where EEG Electrodes Can’t - Rob Wykes

November 10, 2022 01:00 - 10 minutes - 14.6 MB

Hear how graphene technology can access and record abnormal brain activity where EEG electrodes can't! With epilepsy researcher Rob Wykes: from both UCL Hospital for Neurology & Manchester University!    More about Rob: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/rob-wykes ------------------------------------------ Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ---------------------------------------...

How Might The Ketogenic Diet Alter Epileptic Seizures? - Stefanie Prast-Nielsen

November 03, 2022 01:00 - 13 minutes - 18.9 MB

Research Specialist Stefanie Prast-Nielsen soeaks of her clinical study involving fecal samples from a group of children with refractory epilepsy who started the ketogenic diet; investigating their gut microbiota and how it may be related to changes in epileptic seizures. Stefanie also talks about future international collaborations in collections of stool samples for furthering this epilepsy research. This is part 2 of 2. ------------------------------------------ More about Stefanie: 👇🏻 ...

How Are Gut Microbiota & Epilepsy Connected? - Stefanie Prast-Nielsen

October 27, 2022 00:00 - 13 minutes - 19.3 MB

Hear from Research Specialist & PI Stefanie Prast-Nielsen, from the Centre for Translational Microbiome Research at Karolinska Institutet in Stockholm, Sweden, about her epilepsy research into gut microbiota; explaining to us what they are, how they connect with the brain, and the link between them, our poo/feces, and seizures! This is part 1 of 2. ------------------------------------------ More about Stefanie: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/stefanie-prast-niels...

Genseize: Whole Genome Sequencing For People With Epilepsy - Usha Kini

October 20, 2022 00:00 - 13 minutes - 19.5 MB

This week we chat with Usha Kini: a professor in clinical genetics from Oxford University who tells us about her work on the new, exciting epilepsy genetics pilot project called Genseize. For Genseize they are recruiting individuals and families affected by a primary epilepsy who’d like to potentially find out more about their own condition which may lead to improved treatment, but also improve diagnoses and care for other people - around us now, and in the future. -------------------------...

Minimising Suicidality in People With Epilepsy - Heidi Munger Clary

October 13, 2022 00:16 - 15 minutes - 21.9 MB

Adult neurologist, epilepsy specialist, and researcher Heidi Munger Clary specialises in helping people with epilepsy who experience anxiety and depression and who are at risk of suicidality. Heidi tells us about patient risk identification and prevention, access to help, and tools for clinicians and patients. Which are in great demand!! Only watch/listen to this video if it is safe for you to do so - i.e. it is not a trigger for any awful feelings. If you haven’t listened to episode #01 wi...

Helping Epilepsy Patients With Anxiety & Depression - Heidi Munger Clary

October 06, 2022 00:00 - 15 minutes - 21.2 MB

Anxiety and depression. Each of these mental illnesses are incredibly common as part of epilepsy. In anticipation of World Mental Health Day (10th October), we talk about anxiety and depression as part of epilepsy - with adult epileptologist Heidi Mungar Clary from the Wake Forest University School of Medicine, in North Carolina, US. Heidi tells us about her cool research into the topics  (presented at the ILAE in Geneva) and how we can improve the lives of people affected by epilepsy, depre...

Remote Mental Health Therapy For People With Epilepsy - Milena Gandy

September 29, 2022 00:00 - 14 minutes - 20.2 MB

Learn how the depression and anxiety of people with epilepsy can be addressed in a unique, remote way by clinical psychologist & senior research fellow Milena Gandy - writer of The Wellbeing Neuro Course. ------------------------------------------ 👉🏻 Become a patron for early access to the show: https://www.patreon.com/torierobinson ------------------------------------------ 👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-spring.com ----------------------------------------...

What Is An Epilepsy Specialist Nurse? - Phil Tittensor, UK

September 22, 2022 00:08 - 12 minutes - 17.6 MB

In episode 2 with Phil Tittensor, he shares with us how and why he became an Epilepsy Consultant Nurse and some of his research projects covering risk communication, climate change, and Artificial Intelligence. If you haven’t seen episode #01 with Phil, check it out here: https://epilepsysparksinsights.podbean.com/e/what-is-an-epilepsy-specialist-nurse-phil-tittensor-uk-01 ------------------------------------------ 👉🏻 Support us on Patreon for early access to the show: https://www.patreon...

What Is An Epilepsy Specialist Nurse? - Phil Tittensor, UK #01

September 15, 2022 00:00 - 15 minutes - 21.4 MB

Learn about the value of Epilepsy Specialist Nurses - who often do a whole lot more than their title may imply. This week Phil Tittensor, a consultant nurse for the epilepsies, a lecturer for the Uni of Wolverhampton, and the Chair of the Epilepsy Specialist Nurses Association, UK tells us about the variety of huge responsibilities of Epilepsy Nurses, what services they offer, and why we (patients, families, and neurologists) need them.  ------------------------------------------ 👉🏻 Suppor...

Learning How To Interpret EEGs - Shilpa Reddy

September 08, 2022 00:00 - 14 minutes - 20.5 MB

EEGs are not always easy to interpret! Learn how lead peadiatric epileptologist, Asst. Prof. Shilpa Reddy from the Children’s Hospital at Vanderbilt, Tennessee, US trains other clinicians when it comes to EEGs, epilepsy diagnoses, encouraging questions, and reaching out to the public!  ------------------------------------------ 👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson ------------------------------------------ 👉🏻 T-shirts, mugs, noteboo...

Having a Baby When You Have Epilepsy - Kim Morley

September 01, 2022 00:07 - 20 minutes - 28.1 MB

Advanced midwifery practitioner Kim Morley specialises in helping people with epilepsy who want to have children. Kim explains how she has and does positively influence the lives of people affected by epilepsy when it comes to having children (or not!). ------------------------------------------ 👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson ------------------------------------------ 👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creat...

Translational Medicine: Patient-orientated Epilepsy Research - Allan Bayat

August 25, 2022 00:56 - 13 minutes - 18.9 MB

Peadiatric neurologist Allan Bayat from the Danish Epilepsy Center speaks of his Ph.D. in genetic epilepsies, his passion for translational medicine for the children and families affected, and future studies into the impact of modified treatments on comorbidities. ------------------------------------------ 👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson ------------------------------------------ 👉🏻 T-shirts, mugs, notebooks: https://epilepsy-s...

Next Steps: Gene Therapy for Dravet Syndrome - A Rare Epilepsy – Moran Rubinstein & Eric Kremer #02

August 18, 2022 10:23 - 15 minutes - 22.3 MB

Talking to scientists Moran Rubinstein from Tel Aviv University in Israel and Eric Krema from Universite de Montpellier in France who together work on a project into gene therapy for the rare genetic epilepsy Dravet Syndrome. They speak of their research, its exciting outcomes, and the positive impact that this could have on treatments for patients! If you haven't yet seen the first in this set of two episodes then check it out! ------------------------------------------ 👉🏻 T-shirts: https:/...

Gene Therapy for Dravet Syndrome - A Rare Epilepsy – Moran Rubinstein & Eric Kremer #01

August 11, 2022 00:00 - 14 minutes - 20.6 MB

Talking to scientists Moran Rubinstein from Tel Aviv University in Israel and Eric Krema from Universite de Montpellier in France who together work on a project into gene therapy for the rare genetic epilepsy Dravet Syndrome. They speak of their research, its exciting outcomes, and the positive impact that this could have on treatments for patients! --- More about Moran & Eric:  https://www.torierobinson.com/epilepsy-sparks-insights/moran-rubinstein-eric-kremer-01 --- Glossary: There ...

The Future For EEG & Epilepsy Surgery – Luca De Palma 2 of 2

August 04, 2022 00:07 - 11 minutes - 16 MB

Peadiatric neurophysiologist from Bambino Gesù Children Hospital, Rome, Luca De Palma, explains to us his pre-surgical evaluation of children being considered for epilepsy surgery, the potential risks and benefits of having surgery, and the benefits of having surgery earlier in life. --- More about Luca:  https://www.torierobinson.com/epilepsy-sparks-insights/luca-de-silva-01 --- Glossary: There are many terms used in this recording which you can find in the Epilepsy Sparks Glossary: h...

Epilepsy Surgery in Children: Pre-surgical Evaluations - Luca De Palma 1 of 2

July 28, 2022 04:00 - 13 minutes - 19.2 MB

Peadiatric neurologist & epilepsy surgery specialist from Bambino Gesù Children Hospital, Rome, Luca De Palma, explains to us his pre-surgical evaluation of children being considered for epilepsy surgery, the potential risks and benefits of having surgery, and the benefits of having surgery earlier in life. --- More about Luca:  https://www.torierobinson.com/epilepsy-sparks-insights/luca-de-silva-01 --- Glossary: There are many terms used in this recording which you can find in the Epi...

Epilepsy Surgery in Children: Pre-surgical Evaluations - Luca De Palma

July 28, 2022 04:00 - 13 minutes - 19.2 MB

Peadiatric neurologist & epilepsy surgery specialist from Bambino Gesù Children Hospital, Rome, Luca De Palma, explains to us his pre-surgical evaluation of children being considered for epilepsy surgery, the potential risks and benefits of having surgery, and the benefits of having surgery earlier in life. --- More about Luca:  https://www.torierobinson.com/epilepsy-sparks-insights/luca-de-silva-01 --- Glossary: There are many terms used in this recording which you can find in the Epi...

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