Epilepsy Sparks Insights artwork

Epilepsy Sparks Insights

170 episodes - English - Latest episode: 3 days ago - ★★★★★ - 5 ratings

Led by Torie Robinson, ”Epilepsy Sparks Insights” is an educational podcast to spark interest in and bridge the gap between epilepsy patients, clinicians, scientists, geneticists – and the world.

Follow on Twitter: @TorieRobinson10 & @EpilepsySparks. Visit www.torierobinson.com & www.epilepsysparks.com.

**NOT FOR CLINICAL OR PATIENT DECISION MAKING**

Medicine Health & Fitness Science Life Sciences torie robinson epilepsy neurology genetics epileptology neuroscience seizures clinical psychiatry mental health
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Episodes

Mistaking Epilepsy For Menopause?! - Jacqueline French

April 18, 2024 00:02 - 10 minutes - 14.3 MB

It's wild: when clinicians mistake an epilepsy (caused by a brain tumour!) for menopause! Or, when a parent doesn't believe that their daughter could have an epilepsy...! Why aren't organisations and governments promoting epilepsy awareness as well as they do stroke and MS?! Tune in to hear all about it from leading epilepsy specialist: Jacqueline French. ------------------------------------------ 🔗 Website & more about Jacqueline: 👇🏻 jacqueline-french-epilepsy-menopause ----------------...

6th Dianalund International Conference on Epilepsy - Overlapping Clinical Phenotypes in Monogenic Epilepsies; Common Molecular Pathways? - Elena Gardella, Rikke Møller, Guido Rubboli

April 17, 2024 11:30 - 8 minutes - 11.7 MB

Hear about the one-of-a-kind 6th Dianalund International Conference on Epilepsy in May 2024 - with lead genetic clinicians and researchers Elena Gardella, Rikke Møller, and Guido Rubboli. ------------------------------------------ 🔗 Website & more about Elena, Rikke, and Guido: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/6th-dianalund-international-conference-epilepsy-genetics-denmark-elena-gardella-rikke-moller-guido-rubboli ----------------------------------------- Don’t...

Car Accidents Caused By Epilepsy! The Human Epilepsy Project - Jacqueline French

April 11, 2024 00:00 - 14 minutes - 19.9 MB

5% of a cohort* had at least 1 car accident (and up to 3) before their epilepsy diagnosis! Hear about the global Human Epilepsy Project by Jacqueline French and learn how seizures can present in so many different ways! *450 people ------------------------------------------ 🔗 Website & more about Jacqueline: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/jacqueline-french-human-epilepsy-project ----------------------------------------- Don’t understand all the terms used? Che...

Do Autism & Intellectual Disability Come With Epilepsy? - Vaishnav Krishnan

April 04, 2024 00:00 - 19 minutes - 27.3 MB

Do Autism & Intellectual Disability Come With Epilepsy? Learn of the Epilepsy, Autism and Intellectual Disability “triad” - studied by clinician scientist, epileptologist: Vaishnav Krishnan. ------------------------------------------ 🔗 Website & more about Vaishnav: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/vaishnav-krishnan-epilepsy-autism-intellectual-disability-triad  ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy...

Huge Seizure Reduction Through DBS (in LGS) - Linda Dalic

March 28, 2024 01:19 - 14 minutes - 20 MB

Learn of the huge reduction in seizures amongst adults with the epilepsy Lennox-Gastaut Syndrome - as the result of DBS! With Linda Dalic. ------------------------------------------ 🔗 Website & more about Linda: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/linda-dalic-stimulating-brain-reduce-seizures-neuromodulation ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossa...

Purple Day Openness! - Cassidy Megan

March 26, 2024 01:00 - 29 minutes - 40.1 MB

Hear about the origins of Purple Day, its purpose, the positivity and how to make a difference! With founder: Cassidy Megan!! We talk about how Purple Day was founded, Cassidy's personal epilepsy diagnosis, school, stigma, the diversities of the epilepsies, SUDEP, varying cultural experiences, media portrayals, credible sources of information, and brilliant clinicians!  ------------------------------------------ 🔗 Website & more about Cassidy: 👇🏻 https://www.torierobinson.com/epilepsy-spa...

Brain, Skull, And Neck Implants For Epilepsy?! - Anna Bochenek

March 21, 2024 01:00 - 15 minutes - 21 MB

Brain, Skull, And Neck Implants For Epilepsy?! What's the epilepsy treatment called VNS? Or DBS? Or RNS?! Learn about these cool neuromodulation treatments that can help to prevent and/or control epileptic seizures (!) with star epileptologist Anna Bochenek. ------------------------------------------ 🔗 Website & more about Anna: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/anna-bochenek-neuromodulation-vns-dbs-rns ----------------------------------------- Don’t understand a...

Epilepsy Caused by Brain Tumours - Kate Connor

March 14, 2024 01:55 - 14 minutes - 19.8 MB

Brain tumours vary greatly and 30% of them cause an epilepsy to develop - hence the name Brain Tumour Related Epilepsy. Hear more for Brain Tumour Awareness Month from cancer neuroscientist: Kate Connor. ------------------------------------------ 🔗 Website & more about Kate: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/kate-connor-epilepsy-brain-tumours-awareness-month ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Spar...

Increasing Neuronal Excitement To Treat An Epilepsy?! - Jean-François Perrier

March 07, 2024 01:00 - 13 minutes - 18.9 MB

Surprising and exciting rare epilepsy (STXBP1) research discoveries that have led to the enhancement of excitatory synapses as a proposed treatment - by Jean-François Perrier of the University of Copenhagen, Denmark. ------------------------------------------ 🔗 Website & more about Jean-François: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/jean-francois-perrier-STXBP1-excitatory-inhibitory-synapses ----------------------------------------- Don’t understand all the terms us...

Seizure Forecasting Using AI - Daniel Goldenholz

February 29, 2024 01:01 - 12 minutes - 17.6 MB

Could we accurately predict epileptic seizures using AI? How accurate do predictions need to be? How cool to use do devices need to be?! Could seizure forecasting reduce injuries, decrease mortality, and improve people’s quality of life? Hear all about it from neurologist: Daniel Goldenholz. ------------------------------------------ 🔗 Website & more about Daniel: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/daniel-goldenholz-seizure-forecasting-artificial-intelligence -----...

AI & Epilepsy: Ethics & Biases - Daniel Goldenholz

February 22, 2024 01:58 - 17 minutes - 24.8 MB

How useful is and can AI be in helping people with an epilepsy? How safe it it? What are the biases to be challenged and the ethics to be followed? Hear answers from Daniel Goldenholz of Harvard Beth Israel Deaconess Medical Center. ------------------------------------------ 🔗 Website & more about Daniel: 👇🏻 www.torierobinson.com/epilepsy-sparks-insights/daniel-goldenholz-ai-safety-ethics-biases ----------------------------------------- Chapters 📖 00:00 Clip & intro 00:59 Meet Daniel ...

Epilepsy Is A Symptom! - Reetta Kälviäinen

February 15, 2024 01:54 - 14 minutes - 20.2 MB

“Epilepsy is not only a disease, epilepsy is a symptom of a brain disease. And brain health is everything, belongs to everybody!” Learn more of from and hear of the exciting, upcoming Kuopio Epilepsy Symposium in March 2024 - with exciting lead neurologist, researcher, and world-changer: Reeta Kälviäinen. ------------------------------------------ 🔗 Website & more about Reetta: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/reetta-kalviainen-genetic-rare-epilepsy-symptom-sympos...

International Epilepsy Day!! - Helen Cross

February 12, 2024 01:00 - 10 minutes - 14.3 MB

Hear all about International Epilepsy Day, the needs of those affected by the epilepsies, eradicating stigma, treating and preventing epilepsy, and hope for the future; all with global lead Helen Cross. ------------------------------------------ 🔗 Website & more about Helen: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/helen-cross-international-epilepsy-day ----------------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glo...

The Real Needs of Children With Epilepsy - Kirsten McHale

February 08, 2024 01:00 - 19 minutes - 26.9 MB

For Children's Mental Health Week meet Kirsten McHale who shares the complex needs of many children with an epilepsy, how their needs are not being met (in the UK), and how services must be improved. ------------------------------------------ 🔗 Website & more about Kirsten: 👇🏻 www.torierobinson.com/epilepsy-sparks-insights/kirsten-mchale-real-needs-children-with-epilepsy ----------------------------------------- Children's Mental Health Week: www.childrensmentalhealthweek.org.uk -----...

Why Aren’t More People Having Epilepsy Surgery? - Luke Tomycz

February 01, 2024 01:00 - 16 minutes - 23.2 MB

Why are only a small percentage who’d benefit from epilepsy surgery getting it? Hear from neurosurgeon Luke Tomycz of the Epilepsy Institute of New Jersey. ------------------------------------------ 🔗 Website, transcription, and more about Luke: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/luke-tomycz-why-arent-more-people-having-epilepsy-surgery ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://...

How Do You Measure Epilepsy Surgery Success? Engel Class? - Luke Tomycz

January 25, 2024 01:00 - 14 minutes - 20.1 MB

Hear about ways of measuring epilepsy surgery success, risks, and managing expectations. With neurosurgeon Luke Tomycz. ----------------------------------------- 🔗 Website, transcript, and more about Luke: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/luke-tomycz-epilepsy-surgery-success-measurement-engel-class   ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ---...

The Safety & Efficacy Of Epilepsy Surgery - Luke Tomycz

January 18, 2024 01:00 - 12 minutes - 18.2 MB

Learn about epilepsy surgery and potential benefits and risks - from epilepsy neurosurgeon of the Epilepsy Institute of New Jersey: Luke Tomycz. ------------------------------------------ 🔗 Website, transcription, and more about Luke: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/luke-tomycz-safety-efficacy-epilepsy-surgery ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/...

Brain Tumour-Related Epilepsy - Mark Cunningham

January 11, 2024 01:00 - 15 minutes - 22.1 MB

Brain tumours commonly cause epilepsy. Learn more about research into this and Brain Tumour-Related Epilepsy, today with Mark Cunningham of Trinity College Dublin. ------------------------------------------ 🔗 Website & more about Mark: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/mark-cunningham-brain-tumours-tumors-epilepsy ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.co...

SUDEP Caused By Lack Of Air Hunger? - Brian Dlouhy

January 04, 2024 01:00 - 14 minutes - 20.4 MB

Could the amygdala be responsible for lack of air hunger and SUDEP? Learn about the research from neurosurgeon and researcher Brian Dlouhy. ------------------------------------------ 🔗 Website & more about Brian: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/brian-dloughy-lack-air-hunger-sleep-apnea-amygdala-sudep ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ...

Being An Epilepsy Nurse - Neil Williamson

December 28, 2023 01:00 - 13 minutes - 19.3 MB

Epilepsy Specialist Nurses provide a key part of the care package for people with an epilepsy. Hear of the value of flexibility and going above and beyond required, by Neil Williamson. ------------------------------------------ 🔗 Website & more about Neil: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/neil-williamson-being-an-epilepsy-nurse ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.ep...

A Cancer Drug That Prevents Seizures - Pablo Casillas-Espinosa

December 21, 2023 01:00 - 15 minutes - 21.7 MB

A compound designed to treat prostate cancer appears to be effective in treating temporal lobe epilepsy in rodents - including the cognitive and psychiatric aspects so commonly accompanying seizures! Hear more from Pablo Casillas-Espinosa! ------------------------------------------ 🔗 Website & more about Pablo: 👇🏻 www.torierobinson.com/epilepsy-sparks-insights/pablo-casillas-espinosa-sodium-selenate-temporal-lobe-epilepsy ----------------------------------------- Don’t understand all th...

Seizure Forecasting Using Machine Learning & AI - Ben Brinkmann

December 14, 2023 01:44 - 9 minutes - 13.7 MB

Hear about developments in seizure forecasting (using AI & machine learning), the benefits to people with epilepsy, trust, and managing expectations. With Clinical Support Scientist at the Mayo Clinic: Ben Brinkmann. ------------------------------------------ 🔗 Transcription & more about Ben: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/ben-brinkmann-machine-learning-ai-forecast-prevent-seizures  ----------------------------------------- Don’t understand all the terms used?...

The Latest Ways To Scan Your Brain! - Ben Brinkmann

December 07, 2023 01:00 - 11 minutes - 16.8 MB

Exciting neuroimaging techniques are getting out there to help more and more people become seizure-free. Hear more about the latest from clinical support scientist Ben Brinkmann. ------------------------------------------ 🔗 Website & more about Ben: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/ben-brinkmann-latest-ways-scan-brain-mri-eeg-mag-magnetoencephalography-7tesla-mri ----------------------------------------- Don’t understand all the terms used? Check out the Epilep...

What Are MEG Brain Scans? - Stefan Rampp

November 30, 2023 01:00 - 15 minutes - 21.4 MB

Magnetoencephalographies - or MEGs - are brain scans with a very high sensitivity and are a distinct complement to EEG and MRI scans in preparation for epilepsy surgery. Hear all about them now from the expert in biosignal analysis: Stefan Rampp. ------------------------------------------ 🔗 Website & more about Stefan: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/stefan-rampp-MRI-magnetoencephalography-benefits-epilepsy-neurosurgery ------------------------------------------...

Epilepsy Via Somatic Gene Mutations - Karl Martin Klein

November 23, 2023 01:39 - 15 minutes - 21.3 MB

Hear how somatic gene mutations can lead to an epilepsy and how this is being researched by lead clinician scientist of the University of Calgary: Karl Martin Klein. ----------------------------------------- 🔗 Website & more about Karl Martin: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/karl-martin-klein-epilepsy-via-somatic-gene-mutations ---------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.ep...

Epilepsy: The Israel-Palestine Crisis - Omar Danoun

November 20, 2023 12:07 - 12 minutes - 17.2 MB

Hear how the conflict in Palestine is impacting the thousands people with epilepsy in Palestine - but how support from around the world is making a difference - with our return-guest, epileptologist Omar Danoun د. عمر دنون.. ------------------------------------------ 🔗 Website & more about Omar: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/omar-danoun-epilepsy-israel-palestine-gaza-crisis ----------------------------------------- Don’t understand all the terms used? Check o...

Epilepsy Specialist Pharmacists: The Value - Trudy Thomas

November 16, 2023 01:20 - 13 minutes - 18.7 MB

Epilepsy Specialist Pharmacist Trudy Thomas explains the incredible value of an Epilepsy Specialist Pharmacist, managing “A wonky stool”, and how and why other non-specialist pharmacists should learn more about the epilepsies. ----------------------------------------- 🔗 Website & more about Trudy: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/trudy-thomas-epilepsy-specialist-pharmacists-value ----------------------------------------- Don’t understand all the terms used? Chec...

Epilepsy Awareness Month - Be Involved! - Meriem Bensalem-Owen

November 09, 2023 01:33 - 13 minutes - 18.5 MB

Raising awareness of epilepsy amongst everyone for Epilepsy Awareness Month - through events and just chatting! With epileptologist Meriem Bensalem-Owen. ------------------------------------------ 🔗 Website & more about Meriem: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/meriem-bensalem-owen-epilepsy-awareness-month-being-involved ----------------------------------------- Chapters 📖 00:00 Meet Meriem 02:27 Why focus on the epilepsies? 03:54 Promoting epilepsy awareness ...

Epilepsy - Fundraising for Care - Romania - Eugenia Roza

November 02, 2023 01:28 - 11 minutes - 16.4 MB

Learn how funds are generated for the care of children with an epilepsy, fun times, and how it’s crucial to work with the whole family - with peadiatric neurologist and secretary of ILAE YES, Eugenia Roza, Romania. ------------------------------------------ 🔗 Website & more about Eugenia: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/eugenia-roza-epilepsy-fundraising-for-care-romania ----------------------------------------- Don’t understand all the terms used? Check out the...

Biochemistry In Epilepsy Research - Lafora Disease - Matt Gentry

October 26, 2023 00:00 - 13 minutes - 18.8 MB

Biochemist Matt Gentry shares with us his extensive research into the ultra-rare epilepsy Lafora Disease, his motivation from working with families, the brilliant work of the Lafora Disease charity Chelsea’s Hope, and support from both the NIH and the Chan Zuckerberg Initiative. ------------------------------------------ 🔗 Website & more about Matthew Gentry: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/matthew-gentry-biochemistry-epilepsy-research-lafora-disease  ----------...

Saving Lives: SUDEP Action Day - Sammy Ashby

October 19, 2023 00:00 - 19 minutes - 27.5 MB

Learn about SUDEP (Sudden Unexpected Death in Epilepsy), SUDEP Action Day (18th Oct 2023), minimising risks, and saving lives! With Sammy Ashby of SUDEP Action. ------------------------------------------ 🔗 Website & more about Sammy Ashby: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/sammy-ashby-saving-lives-sudep-action-day ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.co...

Nature: A “Treatment” For Epilepsy? - Elisabeth Doran

October 12, 2023 00:00 - 14 minutes - 19.9 MB

Exposure to nature: plants, water noises, and more, are proven to be of distinct benefit to human health. Epileptologist, Elisabeth Doran from St. James’s Hospital in Ireland explains the benefits of exposure to nature for those with an epilepsy. ------------------------------------------ 🔗 Website & more about Elisabeth Doran: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/elisabeth-doran-nature-treatment-for-epilepsy ----------------------------------------- Don’t understan...

Genetic Epilepsy - Lafora Disease - Challenges & Hopes - Berge Minassian

October 05, 2023 00:20 - 12 minutes - 16.9 MB

Hear of the ultra-rare, devastating, terminal epilepsy Lafora Disease and the research taking place to hopefully improve and save the lives of the children affected, with Berge Minassian. ------------------------------------------ 🔗 Website & more about Berge: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/berge-minassian-lafora-disease  ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilep...

Exciting Research Into The Ultra-Rare Epilepsy: Lafora Disease - Jordi Duran

October 03, 2023 00:07 - 13 minutes - 19.4 MB

Hear of the ultra-rare, devastating, terminal epilepsy Lafora Disease and the exciting research taking place to try and improve and save the lives of the children affected. With global lead researcher Jordi Duran. ------------------------------------------ 🔗 Website & more about Jordi: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/jordi-duran-lafora-disease  ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary!...

Ultra-Rare Epilepsy: Lafora Disease - José Serratosa

October 01, 2023 00:00 - 10 minutes - 15.2 MB

Hear of the ultra-rare, devastating, terminal epilepsy Lafora Disease and the research taking place to hopefully improve and save the lives of the children affected. With lead epileptologist and researcher José Serratosa of the Hospital Universitario Fundación Jiménez Díaz, Madrid, Spain. This is the first of 3 of our episodes re the ultra-rare genetic epilepsy: Lafora Disease. ------------------------------------------ 🔗 Website & more about José: 👇🏻 https://www.torierobinson.com/epileps...

Status Epilepticus: Complexities & Outcomes - Christoph Beier

September 28, 2023 00:00 - 17 minutes - 24.7 MB

Hear of research into complex refractory & super refractory status epilepticus; treatments, outcomes, & how to improve each - with Christoph Beier. ------------------------------------------ 🔗 Website & more about Christoph Beier: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/christoph-beier-status-epilepticus-complexities-outcomes ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsyspa...

Seizure Propagation: Identifying How Seizures Spread - Christina Maher

September 21, 2023 00:17 - 12 minutes - 17.8 MB

Learn of studies on the accurate prediction of seizure propagation and how identifying this for each person with an epilepsy can assist in more effective treatment - e.g. in presurgical workup, and more - all with biomedical engineer and neuroscientist Christina Maher from the University of Sydney. ------------------------------------------ 🔗 Website & more about Christina Maher: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/christina-maher-seizure-propagation-focal-bilateral-...

Focal Epilepsy Onset Later In Life - With Origins In Childhood - Jacob Pellinen

September 14, 2023 00:08 - 13 minutes - 19.2 MB

Signs of focal epilepsy before the seizures start: hear all about it from epileptologist Jacob Pellinen, who shares with us his research and results proving that people can experience things like depression or learning difficulties at school or work before seizure onset. ------------------------------------------ 🔗 Website & more about Jacob: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/jacob-pellinen-focal-epilepsy-onset-later-in-life-origins-childhood ---------------------...

Epilepsy - Part Of An Autoimmune Disorder? - Lucas Gabriel Orellana

September 07, 2023 00:38 - 19 minutes - 27 MB

Did you know that seizures and epilepsy can be part of an autoimmune disorder? E.g. Lupus, Coeliac disease, or Crohn's disease? Hear all about it from neurologist & epilepsy specialist Lucas Gabriel Orellana. ---------------------------------------- 🔗 Website & more about Lucas: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/lucas-gabriel-orellana-epilepsy-systemic-autoimmune-disorders ---------------------------------------- Don’t understand all the terms used? Check out the...

Epilepsy Stigma - Eradicating It In Latin America - Gabriela Reyes Valenzuela

August 31, 2023 00:20 - 14 minutes - 19.8 MB

Stigma is to be challenged through education. Gabriela Reyes Valenzuela, a peadiatric epileptologist from Argentina explains her invaluable training regarding epilepsy provided to influential community leaders. ------------------------------------------ 🔗 Website & more about Gabriela: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/Gabriela-Reyes-Valenzuela-epilepsy-stigma-eradicating-latin-america ----------------------------------------- Don’t understand all the terms used?...

How To Improve Epilepsy Appointments & Improve Quality of Life - Morten Ingvar Lossius

August 24, 2023 00:01 - 13 minutes - 18.6 MB

Epileptologist Morten Ingvar Lossius provides recommendations for people with an epilepsy and their clinicians when it comes to appointments, patient sex lives, easing drug side effects, precision medicine, and how crucial regular appointments are. This is part 2 of 2.  ------------------------------------------ 🔗 Website & more about Morten: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/morten-lossius-improve-epilepsy-neurology-appointments-improve-quality-of-life ----------...

Psychosocial Impacts Of Epilepsy In Adolescents & Adults - Morten Ingvar Lossius

August 17, 2023 00:11 - 12 minutes - 17.1 MB

Epileptologist Morten Ingvar Lossius shares his crucial work in identifying the psychosocial challenges of individuals with an epilepsy and how best to improve their quality of life. Hear about the Beyond Seizures team at EpiCARE, Juvenile Myoclonic Epilepsy symptoms (other than seizures), and key discoveries made regarding risk. This is part 1 of 2. ------------------------------------------ 🔗 Website & more about Morten: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/morten-l...

Brain Tissue For Epilepsy Research - Neuropathology! - Katja Kobow

August 10, 2023 00:04 - 21 minutes - 30.3 MB

Molecular Neuropathologist & PI Katja Kobow explains her research into unraveling the intricate interplay between epigenetic alterations and the development of epilepsy, specifically in the context of the adult post-mitotic brain. ------------------------------------------ 🔗 Website & more about Katja: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/katja-kobow-brain-tissue-for-epilepsy-research-neuropathology ----------------------------------------- Don’t understand all the ...

Idiopathic Generalised Epilepsies & People’s Needs - Brad Kamitaki

August 03, 2023 00:17 - 15 minutes - 22 MB

Award winning epileptologist Brad Kamitaki explains his research into and the needs of people affected by refractory Idiopathic Generalised Epilepsies. ------------------------------------------ 🔗 Website & more about Brad: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/brad–kamitaki-refractory-idiopathic-generalised-epilepsies ----------------------------------------- 📲 Join me on social media! - LinkedIn: https://www.linkedin.com/torierobinson - Instagram: https://www.ins...

Cancer Drugs Used For Epilepsy?! - Madeleine Oudin

July 27, 2023 00:17 - 15 minutes - 21.8 MB

Hear of the similarities between neuronal cells in epilepsy and metastatic breast cancer, plus the potential repurposing of drugs. From lead PI, scientist Madeleine Oudin, inspired by daughter Margo (who has the rare genetic epilepsy SCN8A). ------------------------------------------ 🔗 Website & more about Madeleine: 👇🏻 www.torierobinson.com/epilepsy-sparks-insights/madeleine-oudin-drug-repurposing-cancer-epilepsy-genetics ----------------------------------------- Chapters 📖 00:00 Intro 01:1...

Epilepsy On World Brain Day - Tissa Wijeratne

July 20, 2023 00:58 - 19 minutes - 27 MB

For World Brain Day, Tissa Wijeratne explains the importance of brain health and disability and how 50% or 4 Billion of us shall be affected personally by neurological disease. Tissa also speaks of how far we’ve come but how much we still need to do to improve both individuals’ lives and the lives of us as a species. ------------------------------------------ 🔗 My website & more about Tissa: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/Tissa-Wijeratne-Epilepsy-On-World-Brain-...

Epilepsy Hotel - Installing the Sprinklers To Treat The Short Circuit - Yichen Qiu

July 13, 2023 00:22 - 13 minutes - 18.9 MB

Neuroscientist Yichen Qiu of UCL shares with us her exciting research results regarding gene therapy for refractory temporal lobe epilepsy! ----------------------------------------- 🔗 Website & more about Yichen: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/yichen-qiu-epilepsy-hotel-installing-sprinklers-treat-short-circuit ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com...

Epilepsy Stigma in Cuban-American & Latino Communities - Joe Sirven

July 06, 2023 00:00 - 9 minutes - 13.1 MB

Challenging epilepsy stigma in Cuban-American & Latino communities - with epilepsy specialist neurologist & podcast host Joseph Sirven of Mayo Clinic, Florida. This is part 2 of 2. ------------------------------------------ More about Joe: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/joe-sirven-epilepsy-stigma-cuban-american-latino-communities-usa ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https:...

Pilots & Seizures, Older People & Epilepsy - Joe Sirven

June 29, 2023 00:00 - 11 minutes - 16.5 MB

Pilots and seizures plus older people with epilepsy - all with epilepsy specialist neurologist & podcast host Joseph Sirven of Mayo Clinic, Florida. This is part 1 of 2. ------------------------------------------ More about Joe: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/joe-sirven-aviation-faa-older-people-independence  ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/...

Sleep Disorders: Common With An Epilepsy - Francesca Furia

June 22, 2023 00:07 - 15 minutes - 21.4 MB

Francesca Furia from the Filadelfia Epilepsy Hospital in Denmark, speaks of her research into sleep disorders amongst people with and families affected by the epilepsies and how to improve sleep quality. ------------------------------------------ More about Francesca: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/francesca-furia-sleep-disorders-epilepsy ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 h...

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