Epilepsy Sparks Insights
184 episodes - English - Latest episode: about 13 hours ago - ★★★★★ - 6 ratingsLed by Torie Robinson, ”Epilepsy Sparks Insights” is an educational podcast to spark interest in and bridge the gap between epilepsy patients, clinicians, scientists, geneticists – and the world.
Follow on Twitter: @TorieRobinson10 & @EpilepsySparks. Visit www.torierobinson.com & www.epilepsysparks.com.
**NOT FOR CLINICAL OR PATIENT DECISION MAKING**
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Episodes
Cognitive Impairments In Epilepsy - Jon Kleen
July 04, 2024 00:00 - 17 minutes - 23.7 MBLearn all about how people can have memory and other cognitive struggles as part of their epilepsy - in part 1 of 2 with epileptologist Jon Kleen from the UCSF Medical Center, USA! Jon speaks about his career focus, types of cognitive impairments, impacts on quality of life, and more. ------------------------------------------ 🔗 Website & more about Jon: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/jon-kleen-cognitive-impairments-epilepsy-research ---------------------------...
Our Need To Manage Stress - Neil Shah
June 27, 2024 00:00 - 19 minutes - 26.7 MBStress and anxiety levels are incredibly high amongst the population of those with an epilepsy and are commonly seizure triggers. Neil Shah of the Stress Management Society speaks of stress in today's society, the importance of recognising and addressing it, removing the guilt, shame, and stigma associated with it, and the power we have to limit it. ----------------------------------------- 🔗 Website & more about Neil: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/neil-shah-ma...
Neurologists Recognising & Addressing Symptoms Other Than Seizures - Claude Steriade
June 20, 2024 00:16 - 14 minutes - 20.4 MBLearn of when an Autoimmune-Associated Epilepsy can onset, potential causes, and the needs of people affected - other than seizure control! All in part 2 of 2 with epileptologist Claude Steriade from NYU Langone Health Epilepsy Center. ------------------------------------------ 🔗 Website & more about Claude: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/claude-steriade-other-symptoms-of-autoimmune-associated-epilepsy ----------------------------------------- Don’t underst...
Understanding & Treating Autoimmune-Associated Epilepsy - Claude Steriade, NYU Langone Health, USA
June 13, 2024 00:00 - 16 minutes - 23.3 MBHear about Autoimmune-Associated Epilepsy and the intersection between epilepsy and immunology - in part 1 of 2 with epileptologist Claude Steriade from NYU Langone Health Epilepsy Center! Claude explains the causes, mechanisms, and impacts of Autoimmune-Associated Epilepsy upon people's lives, plus, how crucial early diagnoses and intervention are. ------------------------------------------ 🔗 Transcription & more about Claude: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/cla...
Understanding & Treating Autoimmune-Associated Epilepsy - Claude Steriade
June 13, 2024 00:00 - 16 minutes - 23.3 MBHear about Autoimmune-Associated Epilepsy and the intersection between epilepsy and immunology - in part 1 of 2 with epileptologist Claude Steriade from NYU Langone Health Epilepsy Center! Claude explains the causes, mechanisms, and impacts of Autoimmune-Associated Epilepsy upon people's lives, plus, how crucial early diagnoses and intervention are. ------------------------------------------ 🔗 Transcription & more about Claude: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/cla...
Huge Advances In EEG Monitoring & Analysis - Mark Cook, Australia
June 06, 2024 00:00 - 24 minutes - 33.7 MBMark Cook and Torie discuss the significant improvements in epilepsy treatments over the past few decades - thanks to technologies like MRI and genetics. Mark also explores the issue of overreporting and underreporting of seizures by patients and the potential of ambulatory EEG monitoring and big data analysis to provide a more accurate understanding of seizure activity which can lead to both improved treatments and improving peoples’ quality of life. ---------------------------------------...
Huge Advances In EEG Monitoring & Analysis - Mark Cook
June 06, 2024 00:00 - 24 minutes - 33.7 MBMark Cook and Torie discuss the significant improvements in epilepsy treatments over the past few decades - thanks to technologies like MRI and genetics. Mark also explores the issue of overreporting and underreporting of seizures by patients and the potential of ambulatory EEG monitoring and big data analysis to provide a more accurate understanding of seizure activity which can lead to both improved treatments and improving peoples’ quality of life. -----------------------------------------...
Exploring The Links Between Sleep & Epilepsy: CASTLE - Deb Pal & Paul Gringras, UK
May 30, 2024 00:26 - 16 minutes - 23.3 MBDeb Pal and Paul Gringras discuss their research on the links between sleep and seizures in epilepsy; sharing their work on the CASTLE project, which aims to improve sleep and Quality of Life for children, young people, and families affected. They discuss both their app called COSI - which provides evidence-based sleep interventions for parents, and the upcoming CASTLE conference, where they shall disseminate their research findings and discuss the importance of personalised approaches to s...
Exploring The Links Between Sleep & Epilepsy: CASTLE - Deb Pal & Paul Gringras
May 30, 2024 00:26 - 16 minutes - 23.3 MBDeb Pal and Paul Gringras discuss their research on the links between sleep and seizures in epilepsy; sharing their work on the CASTLE project, which aims to improve sleep and Quality of Life for children, young people, and families affected. They discuss both their app called COSI - which provides evidence-based sleep interventions for parents, and the upcoming CASTLE conference, where they shall disseminate their research findings and discuss the importance of personalised approaches to sl...
Epilepsy: Managing Your Metabolism To Stabilise Your Brain - Graham Phillips
May 23, 2024 00:35 - 17 minutes - 23.4 MBWhat should someone do if interested in adopting the ketogenic diet or looking further into "metabolic psychiatry"? Hear about sacrifices, benefits, weight loss, constipation, nutrition, and having the right support. All in part 3 of 3 with the “pharmacist who gave up drugs”, Graham Phillips. ------------------------------------------ 🔗 Website & more about Graham: 👇🏻 www.torierobinson.com/epilepsy-sparks-insights/graham-phillips-epilepsy-changing-metabolism-stabilise-brain-ketogenic ---...
Epilepsy, Mood, Metabolism, And The Ketogenic Diet! - Graham Phillips
May 16, 2024 00:16 - 20 minutes - 28 MBLearn of the evolution of the ketogenic diet, metabolic psychiatry, the treatment overlap between different diagnoses (e.g. the epilepsies and mood disorders), recommended reads, and the cognitive dissonance of many regarding the ketogenic diet. This is part 2 of 3 with the Pharmacist Who Gave Up Drugs: Graham Phillips. ------------------------------------------ 🔗 Website & more about Graham: 👇🏻 www.torierobinson.com/epilepsy-sparks-insights/graham-phillips-hunger-mood-epilepsy-metabolism...
The Ketogenic Diet - Graham Phillips
May 09, 2024 00:00 - 21 minutes - 29.7 MBThe Pharmacist Who Gave Up Drugs introduces us to the impacts of the western diet on our health, quality of life, life expectancy - and the potential benefits of the ketogenic diet - in part 1 of 3: Graham Phillips. ------------------------------------------ 🔗 Website & more about Graham: 👇🏻 www.torierobinson.com/epilepsy-sparks-insights/graham-phillips-ketogenic-diet-pharmacist-part1 ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy S...
Pediatric Epilepsy Research Consortium - M. Scott Perry
May 02, 2024 00:00 - 13 minutes - 19.2 MBM. Scott Perry explains how Epilepsy Researchers require intros and support to be the best that they can be and initiate, manage, and see results. It’s possible through the Pediatric Epilepsy Research Consortium (PERC). ------------------------------------------ 🔗 Website & more about Scott: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/m-scott-perry-pediatric-epilepsy-research/consortium ----------------------------------------- Don’t understand all the terms used? Check ou...
Preventing Seizures Using Stem Cells?! - David Spencer
April 25, 2024 00:22 - 14 minutes - 19.4 MBHear about research into a new way of inhibiting temporal lobe seizure activity through GABAergic interneuron cell therapy! With epileptologist and neuroscientist David Spencer. ------------------------------------------ 🔗 Website & more about David: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/david-spencer-preventing-seizures-using-stem-cells ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://...
Mistaking Epilepsy For Menopause?! - Jacqueline French
April 18, 2024 00:02 - 10 minutes - 14.3 MBIt's wild: when clinicians mistake an epilepsy (caused by a brain tumour!) for menopause! Or, when a parent doesn't believe that their daughter could have an epilepsy...! Why aren't organisations and governments promoting epilepsy awareness as well as they do stroke and MS?! Tune in to hear all about it from leading epilepsy specialist: Jacqueline French. ------------------------------------------ 🔗 Website & more about Jacqueline: 👇🏻 jacqueline-french-epilepsy-menopause ----------------...
6th Dianalund International Conference on Epilepsy - Overlapping Clinical Phenotypes in Monogenic Epilepsies; Common Molecular Pathways? - Elena Gardella, Rikke Møller, Guido Rubboli
April 17, 2024 11:30 - 8 minutes - 11.7 MBHear about the one-of-a-kind 6th Dianalund International Conference on Epilepsy in May 2024 - with lead genetic clinicians and researchers Elena Gardella, Rikke Møller, and Guido Rubboli. ------------------------------------------ 🔗 Website & more about Elena, Rikke, and Guido: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/6th-dianalund-international-conference-epilepsy-genetics-denmark-elena-gardella-rikke-moller-guido-rubboli ----------------------------------------- Don’t...
Car Accidents Caused By Epilepsy! The Human Epilepsy Project - Jacqueline French
April 11, 2024 00:00 - 14 minutes - 19.9 MB5% of a cohort* had at least 1 car accident (and up to 3) before their epilepsy diagnosis! Hear about the global Human Epilepsy Project by Jacqueline French and learn how seizures can present in so many different ways! *450 people ------------------------------------------ 🔗 Website & more about Jacqueline: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/jacqueline-french-human-epilepsy-project ----------------------------------------- Don’t understand all the terms used? Che...
Do Autism & Intellectual Disability Come With Epilepsy? - Vaishnav Krishnan
April 04, 2024 00:00 - 19 minutes - 27.3 MBDo Autism & Intellectual Disability Come With Epilepsy? Learn of the Epilepsy, Autism and Intellectual Disability “triad” - studied by clinician scientist, epileptologist: Vaishnav Krishnan. ------------------------------------------ 🔗 Website & more about Vaishnav: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/vaishnav-krishnan-epilepsy-autism-intellectual-disability-triad ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy...
Huge Seizure Reduction Through DBS (in LGS) - Linda Dalic
March 28, 2024 01:19 - 14 minutes - 20 MBLearn of the huge reduction in seizures amongst adults with the epilepsy Lennox-Gastaut Syndrome - as the result of DBS! With Linda Dalic. ------------------------------------------ 🔗 Website & more about Linda: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/linda-dalic-stimulating-brain-reduce-seizures-neuromodulation ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossa...
Purple Day Openness! - Cassidy Megan
March 26, 2024 01:00 - 29 minutes - 40.1 MBHear about the origins of Purple Day, its purpose, the positivity and how to make a difference! With founder: Cassidy Megan!! We talk about how Purple Day was founded, Cassidy's personal epilepsy diagnosis, school, stigma, the diversities of the epilepsies, SUDEP, varying cultural experiences, media portrayals, credible sources of information, and brilliant clinicians! ------------------------------------------ 🔗 Website & more about Cassidy: 👇🏻 https://www.torierobinson.com/epilepsy-spa...
Brain, Skull, And Neck Implants For Epilepsy?! - Anna Bochenek
March 21, 2024 01:00 - 15 minutes - 21 MBBrain, Skull, And Neck Implants For Epilepsy?! What's the epilepsy treatment called VNS? Or DBS? Or RNS?! Learn about these cool neuromodulation treatments that can help to prevent and/or control epileptic seizures (!) with star epileptologist Anna Bochenek. ------------------------------------------ 🔗 Website & more about Anna: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/anna-bochenek-neuromodulation-vns-dbs-rns ----------------------------------------- Don’t understand a...
Epilepsy Caused by Brain Tumours - Kate Connor
March 14, 2024 01:55 - 14 minutes - 19.8 MBBrain tumours vary greatly and 30% of them cause an epilepsy to develop - hence the name Brain Tumour Related Epilepsy. Hear more for Brain Tumour Awareness Month from cancer neuroscientist: Kate Connor. ------------------------------------------ 🔗 Website & more about Kate: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/kate-connor-epilepsy-brain-tumours-awareness-month ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Spar...
Increasing Neuronal Excitement To Treat An Epilepsy?! - Jean-François Perrier
March 07, 2024 01:00 - 13 minutes - 18.9 MBSurprising and exciting rare epilepsy (STXBP1) research discoveries that have led to the enhancement of excitatory synapses as a proposed treatment - by Jean-François Perrier of the University of Copenhagen, Denmark. ------------------------------------------ 🔗 Website & more about Jean-François: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/jean-francois-perrier-STXBP1-excitatory-inhibitory-synapses ----------------------------------------- Don’t understand all the terms us...
Seizure Forecasting Using AI - Daniel Goldenholz
February 29, 2024 01:01 - 12 minutes - 17.6 MBCould we accurately predict epileptic seizures using AI? How accurate do predictions need to be? How cool to use do devices need to be?! Could seizure forecasting reduce injuries, decrease mortality, and improve people’s quality of life? Hear all about it from neurologist: Daniel Goldenholz. ------------------------------------------ 🔗 Website & more about Daniel: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/daniel-goldenholz-seizure-forecasting-artificial-intelligence -----...
AI & Epilepsy: Ethics & Biases - Daniel Goldenholz
February 22, 2024 01:58 - 17 minutes - 24.8 MBHow useful is and can AI be in helping people with an epilepsy? How safe it it? What are the biases to be challenged and the ethics to be followed? Hear answers from Daniel Goldenholz of Harvard Beth Israel Deaconess Medical Center. ------------------------------------------ 🔗 Website & more about Daniel: 👇🏻 www.torierobinson.com/epilepsy-sparks-insights/daniel-goldenholz-ai-safety-ethics-biases ----------------------------------------- Chapters 📖 00:00 Clip & intro 00:59 Meet Daniel ...
Epilepsy Is A Symptom! - Reetta Kälviäinen
February 15, 2024 01:54 - 14 minutes - 20.2 MB“Epilepsy is not only a disease, epilepsy is a symptom of a brain disease. And brain health is everything, belongs to everybody!” Learn more of from and hear of the exciting, upcoming Kuopio Epilepsy Symposium in March 2024 - with exciting lead neurologist, researcher, and world-changer: Reeta Kälviäinen. ------------------------------------------ 🔗 Website & more about Reetta: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/reetta-kalviainen-genetic-rare-epilepsy-symptom-sympos...
International Epilepsy Day!! - Helen Cross
February 12, 2024 01:00 - 10 minutes - 14.3 MBHear all about International Epilepsy Day, the needs of those affected by the epilepsies, eradicating stigma, treating and preventing epilepsy, and hope for the future; all with global lead Helen Cross. ------------------------------------------ 🔗 Website & more about Helen: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/helen-cross-international-epilepsy-day ----------------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glo...
The Real Needs of Children With Epilepsy - Kirsten McHale
February 08, 2024 01:00 - 19 minutes - 26.9 MBFor Children's Mental Health Week meet Kirsten McHale who shares the complex needs of many children with an epilepsy, how their needs are not being met (in the UK), and how services must be improved. ------------------------------------------ 🔗 Website & more about Kirsten: 👇🏻 www.torierobinson.com/epilepsy-sparks-insights/kirsten-mchale-real-needs-children-with-epilepsy ----------------------------------------- Children's Mental Health Week: www.childrensmentalhealthweek.org.uk -----...
Why Aren’t More People Having Epilepsy Surgery? - Luke Tomycz
February 01, 2024 01:00 - 16 minutes - 23.2 MBWhy are only a small percentage who’d benefit from epilepsy surgery getting it? Hear from neurosurgeon Luke Tomycz of the Epilepsy Institute of New Jersey. ------------------------------------------ 🔗 Website, transcription, and more about Luke: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/luke-tomycz-why-arent-more-people-having-epilepsy-surgery ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://...
How Do You Measure Epilepsy Surgery Success? Engel Class? - Luke Tomycz
January 25, 2024 01:00 - 14 minutes - 20.1 MBHear about ways of measuring epilepsy surgery success, risks, and managing expectations. With neurosurgeon Luke Tomycz. ----------------------------------------- 🔗 Website, transcript, and more about Luke: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/luke-tomycz-epilepsy-surgery-success-measurement-engel-class ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ---...
The Safety & Efficacy Of Epilepsy Surgery - Luke Tomycz
January 18, 2024 01:00 - 12 minutes - 18.2 MBLearn about epilepsy surgery and potential benefits and risks - from epilepsy neurosurgeon of the Epilepsy Institute of New Jersey: Luke Tomycz. ------------------------------------------ 🔗 Website, transcription, and more about Luke: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/luke-tomycz-safety-efficacy-epilepsy-surgery ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/...
Brain Tumour-Related Epilepsy - Mark Cunningham
January 11, 2024 01:00 - 15 minutes - 22.1 MBBrain tumours commonly cause epilepsy. Learn more about research into this and Brain Tumour-Related Epilepsy, today with Mark Cunningham of Trinity College Dublin. ------------------------------------------ 🔗 Website & more about Mark: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/mark-cunningham-brain-tumours-tumors-epilepsy ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.co...
SUDEP Caused By Lack Of Air Hunger? - Brian Dlouhy
January 04, 2024 01:00 - 14 minutes - 20.4 MBCould the amygdala be responsible for lack of air hunger and SUDEP? Learn about the research from neurosurgeon and researcher Brian Dlouhy. ------------------------------------------ 🔗 Website & more about Brian: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/brian-dloughy-lack-air-hunger-sleep-apnea-amygdala-sudep ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ...
Being An Epilepsy Nurse - Neil Williamson
December 28, 2023 01:00 - 13 minutes - 19.3 MBEpilepsy Specialist Nurses provide a key part of the care package for people with an epilepsy. Hear of the value of flexibility and going above and beyond required, by Neil Williamson. ------------------------------------------ 🔗 Website & more about Neil: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/neil-williamson-being-an-epilepsy-nurse ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.ep...
A Cancer Drug That Prevents Seizures - Pablo Casillas-Espinosa
December 21, 2023 01:00 - 15 minutes - 21.7 MBA compound designed to treat prostate cancer appears to be effective in treating temporal lobe epilepsy in rodents - including the cognitive and psychiatric aspects so commonly accompanying seizures! Hear more from Pablo Casillas-Espinosa! ------------------------------------------ 🔗 Website & more about Pablo: 👇🏻 www.torierobinson.com/epilepsy-sparks-insights/pablo-casillas-espinosa-sodium-selenate-temporal-lobe-epilepsy ----------------------------------------- Don’t understand all th...
Seizure Forecasting Using Machine Learning & AI - Ben Brinkmann
December 14, 2023 01:44 - 9 minutes - 13.7 MBHear about developments in seizure forecasting (using AI & machine learning), the benefits to people with epilepsy, trust, and managing expectations. With Clinical Support Scientist at the Mayo Clinic: Ben Brinkmann. ------------------------------------------ 🔗 Transcription & more about Ben: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/ben-brinkmann-machine-learning-ai-forecast-prevent-seizures ----------------------------------------- Don’t understand all the terms used?...
The Latest Ways To Scan Your Brain! - Ben Brinkmann
December 07, 2023 01:00 - 11 minutes - 16.8 MBExciting neuroimaging techniques are getting out there to help more and more people become seizure-free. Hear more about the latest from clinical support scientist Ben Brinkmann. ------------------------------------------ 🔗 Website & more about Ben: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/ben-brinkmann-latest-ways-scan-brain-mri-eeg-mag-magnetoencephalography-7tesla-mri ----------------------------------------- Don’t understand all the terms used? Check out the Epilep...
What Are MEG Brain Scans? - Stefan Rampp
November 30, 2023 01:00 - 15 minutes - 21.4 MBMagnetoencephalographies - or MEGs - are brain scans with a very high sensitivity and are a distinct complement to EEG and MRI scans in preparation for epilepsy surgery. Hear all about them now from the expert in biosignal analysis: Stefan Rampp. ------------------------------------------ 🔗 Website & more about Stefan: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/stefan-rampp-MRI-magnetoencephalography-benefits-epilepsy-neurosurgery ------------------------------------------...
Epilepsy Via Somatic Gene Mutations - Karl Martin Klein
November 23, 2023 01:39 - 15 minutes - 21.3 MBHear how somatic gene mutations can lead to an epilepsy and how this is being researched by lead clinician scientist of the University of Calgary: Karl Martin Klein. ----------------------------------------- 🔗 Website & more about Karl Martin: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/karl-martin-klein-epilepsy-via-somatic-gene-mutations ---------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.ep...
Epilepsy: The Israel-Palestine Crisis - Omar Danoun
November 20, 2023 12:07 - 12 minutes - 17.2 MBHear how the conflict in Palestine is impacting the thousands people with epilepsy in Palestine - but how support from around the world is making a difference - with our return-guest, epileptologist Omar Danoun د. عمر دنون.. ------------------------------------------ 🔗 Website & more about Omar: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/omar-danoun-epilepsy-israel-palestine-gaza-crisis ----------------------------------------- Don’t understand all the terms used? Check o...
Epilepsy Specialist Pharmacists: The Value - Trudy Thomas
November 16, 2023 01:20 - 13 minutes - 18.7 MBEpilepsy Specialist Pharmacist Trudy Thomas explains the incredible value of an Epilepsy Specialist Pharmacist, managing “A wonky stool”, and how and why other non-specialist pharmacists should learn more about the epilepsies. ----------------------------------------- 🔗 Website & more about Trudy: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/trudy-thomas-epilepsy-specialist-pharmacists-value ----------------------------------------- Don’t understand all the terms used? Chec...
Epilepsy Awareness Month - Be Involved! - Meriem Bensalem-Owen
November 09, 2023 01:33 - 13 minutes - 18.5 MBRaising awareness of epilepsy amongst everyone for Epilepsy Awareness Month - through events and just chatting! With epileptologist Meriem Bensalem-Owen. ------------------------------------------ 🔗 Website & more about Meriem: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/meriem-bensalem-owen-epilepsy-awareness-month-being-involved ----------------------------------------- Chapters 📖 00:00 Meet Meriem 02:27 Why focus on the epilepsies? 03:54 Promoting epilepsy awareness ...
Epilepsy - Fundraising for Care - Romania - Eugenia Roza
November 02, 2023 01:28 - 11 minutes - 16.4 MBLearn how funds are generated for the care of children with an epilepsy, fun times, and how it’s crucial to work with the whole family - with peadiatric neurologist and secretary of ILAE YES, Eugenia Roza, Romania. ------------------------------------------ 🔗 Website & more about Eugenia: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/eugenia-roza-epilepsy-fundraising-for-care-romania ----------------------------------------- Don’t understand all the terms used? Check out the...
Biochemistry In Epilepsy Research - Lafora Disease - Matt Gentry
October 26, 2023 00:00 - 13 minutes - 18.8 MBBiochemist Matt Gentry shares with us his extensive research into the ultra-rare epilepsy Lafora Disease, his motivation from working with families, the brilliant work of the Lafora Disease charity Chelsea’s Hope, and support from both the NIH and the Chan Zuckerberg Initiative. ------------------------------------------ 🔗 Website & more about Matthew Gentry: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/matthew-gentry-biochemistry-epilepsy-research-lafora-disease ----------...
Saving Lives: SUDEP Action Day - Sammy Ashby
October 19, 2023 00:00 - 19 minutes - 27.5 MBLearn about SUDEP (Sudden Unexpected Death in Epilepsy), SUDEP Action Day (18th Oct 2023), minimising risks, and saving lives! With Sammy Ashby of SUDEP Action. ------------------------------------------ 🔗 Website & more about Sammy Ashby: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/sammy-ashby-saving-lives-sudep-action-day ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.co...
Nature: A “Treatment” For Epilepsy? - Elisabeth Doran
October 12, 2023 00:00 - 14 minutes - 19.9 MBExposure to nature: plants, water noises, and more, are proven to be of distinct benefit to human health. Epileptologist, Elisabeth Doran from St. James’s Hospital in Ireland explains the benefits of exposure to nature for those with an epilepsy. ------------------------------------------ 🔗 Website & more about Elisabeth Doran: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/elisabeth-doran-nature-treatment-for-epilepsy ----------------------------------------- Don’t understan...
Genetic Epilepsy - Lafora Disease - Challenges & Hopes - Berge Minassian
October 05, 2023 00:20 - 12 minutes - 16.9 MBHear of the ultra-rare, devastating, terminal epilepsy Lafora Disease and the research taking place to hopefully improve and save the lives of the children affected, with Berge Minassian. ------------------------------------------ 🔗 Website & more about Berge: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/berge-minassian-lafora-disease ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilep...
Exciting Research Into The Ultra-Rare Epilepsy: Lafora Disease - Jordi Duran
October 03, 2023 00:07 - 13 minutes - 19.4 MBHear of the ultra-rare, devastating, terminal epilepsy Lafora Disease and the exciting research taking place to try and improve and save the lives of the children affected. With global lead researcher Jordi Duran. ------------------------------------------ 🔗 Website & more about Jordi: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/jordi-duran-lafora-disease ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary!...
Ultra-Rare Epilepsy: Lafora Disease - José Serratosa
October 01, 2023 00:00 - 10 minutes - 15.2 MBHear of the ultra-rare, devastating, terminal epilepsy Lafora Disease and the research taking place to hopefully improve and save the lives of the children affected. With lead epileptologist and researcher José Serratosa of the Hospital Universitario Fundación Jiménez Díaz, Madrid, Spain. This is the first of 3 of our episodes re the ultra-rare genetic epilepsy: Lafora Disease. ------------------------------------------ 🔗 Website & more about José: 👇🏻 https://www.torierobinson.com/epileps...
Status Epilepticus: Complexities & Outcomes - Christoph Beier
September 28, 2023 00:00 - 17 minutes - 24.7 MBHear of research into complex refractory & super refractory status epilepticus; treatments, outcomes, & how to improve each - with Christoph Beier. ------------------------------------------ 🔗 Website & more about Christoph Beier: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/christoph-beier-status-epilepticus-complexities-outcomes ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsyspa...