Caring in a Crisis Pt 4 - Unlocking Bryson's Brain: Keith McArthur
Discomfort Zone
English - August 18, 2020 09:00 - 26 minutes - 18.2 MB - ★★★★★ - 4 ratingsPersonal Journals Society & Culture Health & Fitness Mental Health chronic pain chronic illness mental health invisible illness fibromyalgia storytelling disability chronic fatigue syndrome alternative health spoonie Homepage Download Apple Podcasts Google Podcasts Overcast Castro Pocket Casts RSS feed
After an 11-year search, Keith and his family’s lives changed forever when Bryson was diagnosed with GRIN-1 disorder. Since then, they have connected with GRIN families from around the world. Keith also co-leads an organization driving research into cures and therapies for GRIN disorders and hosts the CBC Podcast ‘Unlocking Bryson’s Brain.’
In part 2 of our interview, Keith talks about the motivation behind his podcast, the ethical considerations surrounding curing a disability, and the future of gene-editing technology.
If you haven’t listened to part 1 yet, click here to listen.
Keith McArthur is an author, speaker, kidney transplant survivor, and rare disease dad. He is the host of the CBC Podcast Unlocking Bryson’s Brain, an 8-part documentary-style podcast about his son Bryson, his rare disease, and his family’s search for a cure. Keith is also the CEO and Head of Science for CureGRIN, an organization dedicated to finding cures and therapies for people around the world suffering from GRIN disorders.
A full transcript with photos is available in the show notes.
Links
Listen to Unlocking Bryson’s Brain on CBC Listen, Apple Podcasts, Google Podcasts, or wherever you listen.
To help support research into GRIN disorders, you can donate to: CureGRIN or U of T’s GRIN Disorders Research Fund
Follow Keith on Twitter