Latest Voices of mpn Podcast Episodes
Patient and Caregiver Perspectives: Managing MPNs Together
MPN Voices Out Loud - September 23, 2022 15:00 - 19 minutesHear how caregivers can help patients affected by myeloproliferative neoplasms (MPNs) get the care they need by communicating the impact of MPN symptoms to Healthcare Professionals. Special guest actor, director, and health advocate LeVar Burton shares insights from Jeff and Summer as they work ...
Why FINE Is Not Enough When Speaking About the Impact of Your MPN Symptoms
MPN Voices Out Loud - May 17, 2022 19:00 - 27 minutesListen to patients impacted by myeloproliferative neoplasms (MPNs) discuss the importance of speaking up and spelling out how their MPNs affect them. Understand why saying they were “fine” was not enough for their MPN journeys. Tune in to discover patient stories, real life experiences, and usef...
LeVar Burton: MPN Self-Advocacy and Prioritizing Your Health
MPN Voices Out Loud - December 23, 2021 17:00 - 33 minutesTune in as actor, director, and health advocate LeVar Burton explores the importance of prioritizing your own health when living with the rare, chronic blood cancers called myeloproliferative neoplasms (MPNs). Burton is joined by Kathryn and Andrea, two MPN patients, as they reveal that the best...
The Importance of Communication for People with MPNs
MPN Voices Out Loud - September 22, 2021 13:00 - 31 minutesListen to a Healthcare Professional, Incyte Oncology Clinical Nurse Educators, and patients discuss the rare, chronic blood cancers called myeloproliferative neoplasms (MPNs) and why informed conversations are important for proper patient care. Learn that when patients tell their MPN healthcare ...
Matt & Josh: An MPN peer-to-peer discussion
MPN Voices Out Loud - January 12, 2021 17:00 - 24 minutesFor people living with a myeloproliferative neoplasm (MPN), such as polycythemia vera (PV), essential thrombocythemia (ET), or myelofibrosis (MF), it is not uncommon to sometimes feel alone on the MPN journey. That’s because MPNs are considered rare diseases. Connecting with an MPN peer to share...
Matt & Josh: An MPN peer-to-peer discussion
MPN Voices Out Loud - January 12, 2021 17:00 - 24 minutesFor people living with a myeloproliferative neoplasm (MPN), such as polycythemia vera (PV), essential thrombocythemia (ET), or myelofibrosis (MF), it is not uncommon to sometimes feel alone on the MPN journey. That’s because MPNs are considered rare diseases. Connecting with an MPN peer to share...
Dr. Krisstina Gowin on Living with MPNs
MPN Voices Out Loud - August 14, 2020 15:00 - 26 minutesListen to MPN expert Dr. Krisstina Gowin, Assistant professor of medicine in the division of Hematology/Oncology at the university of Arizona Cancer Center, and renowned comic book artist J.G. Jones discuss important topics for those living with an MPN, like the value of education and ways to wo...
Comic Artist J.G. Jones: My MPN Story
MPN Voices Out Loud - July 09, 2020 16:00 - 22 minutesListen to renowned comic book artist, J.G. Jones talk about his myeloproliferative neoplasm (MPN) journey and his new portrait series, Rare Reflections: MPNs Unmasked, specifically created to reveal the powerful and personal stories of individuals who are also impacted by an MPN. J.G. is joined ...
Diagnosis, Symptoms, and Living with an MPN
MPN Voices Out Loud - May 11, 2020 16:00 - 24 minutesHear from an MPN expert—plus a group of real MPN patients! Learn about polycythemia vera, myelofibrosis, and essential thrombocythemia—the rare, chronic blood cancers known as myeloproliferative neoplasms, or MPNs. Listen to Andrea Larson from Incyte Corporation talk with Incyte oncology clini...
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