Latest Tumor Podcast Episodes

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Episode 50 - Life after losing a parent - Growing and Thriving

Let's Talk About Brain Tumours - October 10, 2023 08:00 - 42 minutes
In this episode Will Garrett talks about the death of his dad when he was just 11 and how this has shaped his life.  Will is now a Neuro Oncology Clinical Nurse Specialist, a career that was shaped by his experieces as a child where he now works with other families who are impacted by brain tumo...

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Insulin feedback and PI3K inhibition in GBM

Neuro-Oncology: The Podcast - October 06, 2023 11:43 - 25 minutes ★★★★★ - 9 ratings
Description: Dr. Maya Graham interviews Dr. Evan Noch about his and his team's recent manuscript entitled: "Insulin feedback is a targetable resistance mechanism of PI3K inhibition in glioblastoma", published online in Neuro-Oncology in July 2023. Read Paper

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SOX10 indel mutations in schwannomas

Neuro-Oncology: The Podcast - September 22, 2023 19:22 - 28 minutes ★★★★★ - 9 ratings
Dr. Evan Noch interviews Dr. David Solomon about his and his team's recent manuscript entitled: "Novel SOX10 indel mutations drive schwannomas through impaired transactivation of myelination gene programs", published online in Neuro-Oncology in July 2023.   Read Paper

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Dendritic cell vaccines in gliomas

Neuro-Oncology: The Podcast - September 08, 2023 22:07 - 17 minutes ★★★★★ - 9 ratings
Dr. Iyad Alnahhas interviews Drs. Kelly Hotchkiss and Mustafa Khasraw about their recently published review entitled: "Dendritic cell vaccine trials in gliomas: untangling the lines", published online in Neuro-Oncology in June 2023. Read Paper

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Intrathecal trastuzumab for leptomeningeal metastases

Neuro-Oncology: The Podcast - August 11, 2023 14:08 - 21 minutes ★★★★★ - 9 ratings
Dr. Iyad Alnahhas interviews Drs. Priya Kumthekar and Jeffrey Raizer about their recent manuscript entitled: A phase I/II study of intrathecal trastuzumab in human epidermal growth factor receptor 2-positive (HER2- positive) cancer with leptomeningeal metastases: Safety, efficacy, and cerebrosp...

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Episode 49 - Spotlight on the Children & Families Service

Let's Talk About Brain Tumours - August 08, 2023 06:00 - 14 minutes
In this episode Chandos talk with two of our Children and Families and Young Adults Workers Amy Watts and Jessie Poole  about the support that is available to families who have children under 18.  Some of the things mentioned in this episode include: Family Days Brainy Bags Online support gro...

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Episode 48 - (TW) Coming to terms with change

Let's Talk About Brain Tumours - July 25, 2023 07:00 - 30 minutes
(Trigger Warning)  In this episode - Benj talks about the impact of his daughter Ivy's diagnosis and coming to terms with the changes this has brought to both Ivy and their lives as a family.  He talks about the impact on mental health and the impact of trauma that parents and loved ones experie...

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Short term topiramate for radiation induced cytotoxic edema

Neuro-Oncology: The Podcast - July 21, 2023 13:13 - 14 minutes ★★★★★ - 9 ratings
Dr. Iyad Alnahhas interviews Drs. Maria Jose Contreras-Zarate and Diana Cittelly about their recent manuscript entitled: "Short-term topiramate treatment prevents radiation-induced cytotoxic edema in preclinical models of breast-cancer brain metastasis", published online in Neuro-Oncology in Ap...

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Episode 47 - Spotlight on Young Adults Masquerade Ball

Let's Talk About Brain Tumours - July 11, 2023 12:00 - 16 minutes
In May this year, we hosted not only our first in-person Young Adult event since Covid but our first ever Masquerade Ball.  Anna and Chandos, explain why events like this are so crucial to young people whose lives have been affected by a brain tumour diagnosis.  We also hear from other young adu...

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Episode 47 - Spotlight on Young Adult Masquerade Ball

Let's Talk About Brain Tumours - July 11, 2023 12:00 - 15 minutes
In May this year, we hosted not only our first in-person Young Adult event since Covid but our first ever Masquerade Ball.  Anna and Chandos, explain why events like this are so crucial to young people whose lives have been affected by a brain tumour diagnosis.  We also hear from other young adu...

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Venous thromboembolism in gliomas

Neuro-Oncology: The Podcast - July 08, 2023 00:23 - 28 minutes ★★★★★ - 9 ratings
Description: Dr. Maya Graham interviews Drs. Jasmin Jo, Craig Horbinski and David Schiff about their recent manuscript entitled: "Epidemiology, biology and management of venous thromboembolism in gliomas: an interdisciplinary review", published online in Neuro-Oncology in April 2023. Read Pa...

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Episode 46 - (TW) 'Your child has a brain tumour'

Let's Talk About Brain Tumours - June 27, 2023 06:00 - 56 minutes
(Trigger Warning)  In this episode - Benj talks us through every parent's worst nightmare, from the moment he and his wife Sarah were told their 4 year old daughter Ivy had a mass in her brain to where they are now as a family 18 months later.  This episode contains conversations that some peo...

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RANO resect

Neuro-Oncology: The Podcast - June 23, 2023 22:15 - 20 minutes ★★★★★ - 9 ratings
Dr. Iyad Alnahhas interviews Dr. Philipp Karschnia about his and his team's recent manuscript entitled "Prognostic validation of a new classification system for extent of resection in glioblastoma: A report of the RANO resect group", published online in Neuro-Oncology in May 2023. 

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Episode 45 - Mummy has a lump

Let's Talk About Brain Tumours - June 13, 2023 06:00 - 34 minutes
 If you are a parent who has recieved a brain tumour diagnosis, telling your children can be one of the hardest things to do.  In this episidode we talk to Simone Baldwin, the author of the book 'Mummy has a lump' which she wrote after recieving her own brain tumour diagnosis and struggled to fi...

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Methylation profiling of adult ependymoma

Neuro-Oncology: The Podcast - June 09, 2023 11:17 - 18 minutes ★★★★★ - 9 ratings
Dr. Evan Noch interviews Dr. David Kaul about his and his team's recent manuscript entitled: "Adult intracranial ependymoma—relevance of DNA methylation profiling for diagnosis, prognosis, and treatment", published online in Neuro-Oncology in February 2023. Read Paper

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Episode 44 - Spotlight on Ahead of the Game Foundation

Let's Talk About Brain Tumours - May 31, 2023 08:00 - 19 minutes
In this episode Anna talks to Dave Bolton, founder of Ahead of the Game Foundation which aims to provide much needed rehabilitation services to cancer patients. Dave talks about what led him to creating Ahead of the Game and what services they provide. You can find out more about Ahead of the ...

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Parotid Patient Q&A

Parotid Tumor Podcast - May 26, 2023 00:00 - 1 hour ★★★★★ - 12 ratings
It is parotid patient question and answer day at Parotid Tumor Podcast! Patients often share the same worries, concerns, and experiences as they navigate this diagnosis and treatment process. A great way to educate yourself and to become your own best advocate is by learning through questions th...

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Pseudoprogression in IDH-mutant high-grade gliomas

Neuro-Oncology: The Podcast - May 12, 2023 12:57 - 25 minutes ★★★★★ - 9 ratings
Dr. Ankush Bhatia interviews Dr.François Ducray about his and his team's recent manuscript entitled:"Incidence and characteristics of pseudoprogression in IDH-mutant high-grade gliomas: A POLA network study", published online in Neuro-Oncology in March 2023.  

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Episode 43 - Headaches and Brain Tumours

Let's Talk About Brain Tumours - May 09, 2023 09:00 - 47 minutes
In this episode, we talk to Imelda and Rebecca who both experienced headaches caused by their brain tumours. They share how these were often dismissed by GPs and not taken seriously despite also having a range of other symptoms which were all indications that something wasn't right and needed lo...

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Episode 42 - Spotlight on Family Led Partnerships

Let's Talk About Brain Tumours - April 25, 2023 18:00 - 15 minutes
In this episode we talk to Phoebe Day our Gifts and Partnerships Manager at the charity.  She explains what family led partnerships are, the different types and why they are so important to the charity.  Family led partnerships are so much more than just rasing money for the charity as Phoebe ex...

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Changes in survival outcomes in melanoma patients with brain metastases

Neuro-Oncology: The Podcast - April 21, 2023 13:14 - 19 minutes ★★★★★ - 9 ratings
Dr. Iyad Alnahhas interviews Drs. Sherise Ferguson and Michael Davies about their recent manuscript entitled: "Changes in Outcomes and Factors Associated with Survival in Melanoma Patients with Brain Metastases", published online in Neuro-Oncology in December 2022.   Read Paper

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Radiation therapy and structural brain changes

Neuro-Oncology: The Podcast - April 07, 2023 11:34 - 23 minutes ★★★★★ - 9 ratings
Dr. Evan Noch interviews Drs. Nikhil Rammohan and Kathleen Bandt about their recent manuscript entitled "Whole-brain radiotherapy associated with structural changes resembling aging as determined by anatomic surface-based deep learning", published online in Neuro-Oncology in February 2023. R...

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Episode 41 - PCV Chemotherapy

Let's Talk About Brain Tumours - March 30, 2023 15:00 - 47 minutes
In this episode, we talk to Sarah and Patrick about their experience taking the chemotherapy drug PCV.  They explain what taking this chemotherapy regime is like, what side effects they experienced, dietary restrictions, hair loss, and more. You can find out more about chemotherapy here and if ...

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Episode 40 - Spotlight on TIME, using art to tell stories of brain tumours

Let's Talk About Brain Tumours - March 23, 2023 15:00 - 16 minutes
In this episode, we talk to Hannah Waldron about the TIME Art Exhibition . The exhibition will feature photographs, illustrations, paintings, scans and sculptures submitted by the community to help tell the stories of those affected by a brain tumour, as well as artwork from upcoming and renown...

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Objective response rate targets for recurrent glioblastoma clinical trials

Neuro-Oncology: The Podcast - March 17, 2023 13:35 - 31 minutes ★★★★★ - 9 ratings
Dr. Maya Graham interviews Drs. Benjamin Ellingston and Timothy Cloughesy about their recently published manuscript entitled: "Objective response rate (ORR) targets for recurrent glioblastoma clinical trials based on the historic association between ORR and median overall survival", published on...

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Episode 39 - Caring beyond a brain tumour

Let's Talk About Brain Tumours - March 07, 2023 12:00 - 46 minutes
In this episode we talk to Elizabeth and Julia the hosts of the podcast 'On a good day'  about their experiences of caring for their partners who both live with the impacts of brain injury.  Elizabeth's husband Paull had a stroke when he was just 38 and Julia's husband Hector had a subarachnoid ...

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Mitotic count prognostic significance in IDH-mutant astrocytoma in the molecular era

Neuro-Oncology: The Podcast - March 03, 2023 18:35 - 12 minutes ★★★★★ - 9 ratings
Dr. Iyad Alnahhas interviews Dr. Max Kros about his and his team's recent manuscript entitled: "Mitotic count is prognostic in IDH-mutant astrocytoma without homozygous deletion of CDKN2A/B. Results of consensus panel review of EORTC trials 26053 and EORTC 22033-26033", published online in Neur...

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Patient-Centered Parotid Tumor Research Project

Parotid Tumor Podcast - February 27, 2023 00:00 - 48 minutes ★★★★★ - 12 ratings
The day we have all been waiting for has finally arrived! A patient-centered research project at the Mayo Clinic that was funded by Parotid Patient Project is being released. As patients, we often wonder why we don’t have more answers about parotid tumors, why our medical teams often don’t under...

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Episode 38 - Spotlight on getting benefits and money advice (UK)

Let's Talk About Brain Tumours - February 21, 2023 07:00 - 10 minutes
In this episode, Chandos talks to Denise one of our benefits advisers.  Through talking to our community we know the financial impact of a brain tumour diagnosis can be huge and cause a great deal of stress and anxiety so we partnered with Citizens Advice to provide support and information aroun...

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Palliative care in neuro-oncology

Neuro-Oncology: The Podcast - February 10, 2023 17:00 - 30 minutes ★★★★★ - 9 ratings
Dr. Iyad Alnahhas interviews Drs. Tobias Walbert and Johan Koekkoek about their recent manuscript entitled "Palliative care and end-of-life care in adults with malignant brain tumors", published online in Neuro-Oncology in October 2022 Read Paper

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