Latest Support groups Podcast Episodes
Making Friends from Behind the Window with Claire McMurray
Brave Together - May 08, 2024 07:00 - 37 minutesHello Brave Friends! This is story episode #178. And it features one of the many powerful stories we showcase in our first ever Brave Together book! It’s an anthology of stories shared courageously by our community of moms and it’s called Becoming Brave Together: heroic, extraordinary caregiving...
A Down Syndrome Diagnosis in South Africa 30 Years Ago with Jessica Baer
Brave Together - May 01, 2024 07:00 - 26 minutesHello Brave Friends! This is story episode #177. And it features one of the many powerful stories we feature in our first ever Brave Together book! It’s an anthology of stories shared courageously by our community of moms and it’s called Becoming Brave Together: heroic, extraordinary caregiving ...
We All Deserve a Dignified Place to Toilet with Jayme Betts
Brave Together - April 24, 2024 07:00 - 31 minutesHello Brave Friends! Welcome to today's practical episode, #176. Our guest today is Jayme Betts, and she founded the Changing Spaces Advocacy Campaign in Massachusetts after experiencing, along with her daughter, Sophia, the challenges that traditional public restrooms present for disabled indiv...
Diagnosis Isn't a Choice, My Martyrdom Is with Margaret Webb
Brave Together - April 17, 2024 07:00 - 33 minutesHello Brave Friends! This is story episode #175. When our child gets diagnosed it can feel like the snow globe of our life gets shaken really hard, and that everything is suddenly up in the air. But as the flakes slowly settle, we get the chance to reevaluate our relationships with everything, i...
How to Support my Neuro-Divergent Kid as They Blossom into a Teen
Brave Together - April 10, 2024 07:00 - 39 minutesHello Brave Friends! This is an Ask Us Anything episode in which YOU, the listener, get to write or call in and, you guessed it, ASK US ANYTHING! In this episode, #174, we are responding to the question, How do I Support my Neuro-Divergent Kid as They Blossom into a Teen? It’s a bittersweet tr...
How a Caregiving Parent Became an Entrepreneur with Marna Pacheco
Brave Together - April 03, 2024 07:00 - 32 minutesHello Brave Friends! Welcome to practical episode #173. Our guest is a fellow caregiving mama and creator of CapeAble Weighted Products, Marna Pacheco. Marna created CapeAble, originally for her daughter Millie, who needed help regulating her nervous system. CapeAble is unique from all other w...
Left Alone Rhapsody: Behind the Lens With Filmmaker Stewart Schulman
Wisdom Shared with Carole Blueweiss - April 03, 2024 01:00 - 36 minutesEpisode Summary In this conversation with filmmaker and self-described Renaissance Man Stewart Schulman, we discuss his multifaceted career and his collaborations with John Bayless, highlighting projects like One Hand One Heart and the award-winning feature documentary Left Alone Rhapsody: The ...
Walking on Eggshells with Epilepsy with Erin Rusling
Brave Together - March 27, 2024 07:00 - 29 minutesHello Brave Friends! In this story episode, #172, we enter the world of a parent living on unstable ground. An emotional state riddled with fault lines, shifting plates and the possibility that even a fun outing could cause an earthquake of a seizure in her child’s body. Erin Rusling’s daughter...
Keys to Resilience: John Bayless
Wisdom Shared with Carole Blueweiss - March 25, 2024 00:00 - 37 minutesEpisode Summary My special guest for this episode is pianist John Bayless, whose story is featured in the incredible documentary Left Alone Rhapsody: The Musical Memoir of Pianist John Bayless. In our conversation, John reflects on life before and after his stroke. Post-stroke, John's resilien...
What Do I Do When My Kid is Being Bullied?
Brave Together - March 20, 2024 07:00 - 23 minutesHello Brave Friends! This is an Ask Us Anything episode in which YOU, the listener, get to write or call in and, you guessed it, ASK US ANYTHING! In this episode, #171, we are responding to the question, what do I do when my kid is being bullied? It’s so heart wrenching to imagine our vulnerab...
The Importance and Responsibility of Adopting Children Who Have Experienced Trauma with Jenell Jones
Brave Together - March 13, 2024 07:00 - 25 minutesHello Brave Friends! Welcome to practical episode #170, in which we are discussing the importance and responsibility of adopting older children who have experienced trauma. We cover what you need to think about before adopting, ways to prepare for adopting, the systemic problems that need changi...
When Severe Allergies Join the Family with Susanna Peace Lovell
Brave Together - March 06, 2024 08:00 - 41 minutesHello Brave Friends! This is story episode, #169, in which we talk about the underrated difficulty level of being a parent to a child with extreme allergies. When we bring home a newborn, all we want to do is feed them, nourish them and help them to grow. But what if everything we’re feeding the...
One More Day: A Father's Gratitude
Wisdom Shared with Carole Blueweiss - March 03, 2024 05:05 - 42 minutesEpisode Summary In this poignant episode, Jacob Moench shares the challenges and joys of parenting his son Samuel, who has epilepsy and autism. The episode explores how Jacob and his wife support each other and prioritize time for their other children. Jacob also talks about his company, which ...
When Your Spouse is Not Very Involved in Disability Caregiving
Brave Together - February 28, 2024 08:00 - 33 minutesHello Brave Friends! This is an Ask Us Anything episode in which YOU, the listener, get to write or call in and, you guessed it, ASK US ANYTHING! In this episode, #168, we are tackling the HIGHLY relatable question, what do we do when our spouse is not very involved in our disability caregivin...
Accessing Mental Health Benefits with Natalie Elliott Handy (Part 2)
Brave Together - February 21, 2024 08:00 - 25 minutesHello Brave Friends! Welcome to practical episode #167, a TWO PARTER, in which we are diving into the nitty gritty around accessing mental health benefits and services. In Part 1 we focus on what services are available and how to find them and ways to approach starting the process. In Part 2 we ...
Accessing Mental Health Benefits with Natalie Elliott Handy (Part 1)
Brave Together - February 21, 2024 08:00 - 36 minutesHello Brave Friends! Welcome to practical episode #167, a TWO PARTER, in which we are diving into the nitty gritty around accessing mental health benefits and services. In Part 1 we focus on what services are available and how to find them and ways to approach starting the process. In Part 2 we ...
Crying on the Steps of the Regional Center with Kelley Coleman
Brave Together - February 14, 2024 08:00 - 38 minutesHello Brave Friends! On this story episode, #166, we are stepping into the shoes of a brand new care-giving parent, who, like so many of us, left the hospital and was immediately faced with piles of paperwork, prescriptions to administer, insurance issues, medical supplies to order and the endle...
Will A Caregiver Support Group Make Me More Depressed?
Brave Together - February 07, 2024 08:00 - 29 minutesHello Brave Friends! This is an Ask Us Anything episode in which YOU, the listener, get to write or call in and, you guessed it, ASK US ANYTHING! In this episode, #165, we are discussing how to get the most out of connection circles and in general, support groups, without taking on other atten...
From Childhood Accident to Fierce Advocate with Kevin McGuire
Brave Together - January 31, 2024 08:00 - 37 minutesHello Brave Friends! Welcome to our first Practical Episode of Season 6. This is episode 164 and we could not be more thrilled and honored and in awe of our guest today, Kevin McGuire. Talk about the triumph of the human spirit, Kevin, personifies this. He was hit by a drunk driver at the age of...
Community is Everything with Megan Loden
Brave Together - January 24, 2024 08:00 - 31 minutesHello Brave Friends! On this story episode, #163, we are exploring one mom’s experience, when not one but TWO of her seemingly thriving, healthy children were diagnosed, right in the middle of high school, with a rare genetic disorder. Megan Loden was blindsided, not only by her twin daughter’...
How to Handle January Expectations When You are an Exhausted Caregiver
Brave Together - January 17, 2024 08:00 - 25 minutesHello Brave Friends! This is another Ask Us Anything episode in which YOU, the listener, get to write or call in and, you guessed it, ASK US ANYTHING! In this episode, #162, we’re discussing how to handle the PRESSURE we feel after the holidays (while caregiving) to make resolutions and change...
Welcome to Season 6 and All That I Am NOT Doing in 2024
Brave Together - January 16, 2024 08:00 - 9 minutesHello Brave Friends! Welcome to Season 6! We are so excited to roll out another vibrant season of Story episodes, Practical episodes and Ask Us Anything episodes for YOU the caregiving mom. In this trailer your host, Jessica Patay, reminds you what we offer as a podcast and non-profit organiza...
A Taxi With Dyslexia?
Wisdom Shared with Carole Blueweiss - January 14, 2024 05:05 - 36 minutesEpisode Summary In this episode, Lynn Greenberg and her son Jonathan, co-authors of Robby the Dyslexic Taxi and the Airport Adventure, share insights into Jon's journey with dyslexia. Emphasizing the transformative impact of education post-diagnosis, they discuss the power of creativity and the...
ADHD & Honoring Your Kid's Experience with Debbie Reber
Brave Together - December 13, 2023 08:00 - 24 minutesHello Brave Friends! On this, our final episode of Season 5, we have such a great guest for you. Debbie Reber, who you guys probably know already, is a parenting activist, bestselling author, speaker and the CEO and founder of Tilt Parenting, a resource, top performing podcast, consultancy, and ...
Traveling with My Sister with Kendall Albrecht
Brave Together - December 06, 2023 08:00 - 20 minutesHello Brave Friends! On this story episode we are exploring the sibling experience. As caregiving parents, it’s hard to give each child the same amount of attention. The neurotypical child’s experiences growing up are often overshadowed by their sibling’s complex needs. So it’s cathartic when we...
The Covid That Wasn't: Surviving Toxic Shock Syndrome
Wisdom Shared with Carole Blueweiss - December 03, 2023 05:10 - 19 minutesEpisode Summary Join me as I welcome back Amy and her daughter, Lizzie, for an insightful discussion. In this episode, we delve into Lizzie's harrowing encounter with toxic shock syndrome (TSS), exploring the severe implications and her journey to recovery. Amy shares the critical moments that ...
Comparison within the Disability Community
Brave Together - November 29, 2023 08:00 - 37 minutesHello Brave Friends! This is another Ask Us Anything episode in which YOU, the listener, get to write or call in and, you guessed it, ASK US ANYTHING! Today we’re discussing the topic of comparing. Whether it’s our stories, our parenting styles or our child’s outcomes, comparing, it seems, is ...
Strength-Based IEPs with April Rehrig
Brave Together - November 22, 2023 08:00 - 26 minutesHello Brave Friends! Welcome to today's practical episode with April Rehrig. She's going to talk about strengths-based IEPs. Have you even heard of that? I don't think I'd ever heard of it until recently. It's an IEP that looks at abilities as well as weaknesses. It looks at what students CAN do...
A Break is Necessary for Breakthroughs with Krysten Leighty
Brave Together - November 15, 2023 08:00 - 25 minutesHello Brave Friends! On this story episode we are exploring the vital yet (especially in our community) illusive act of taking a break. Our storyteller is Krysten Leighty whose daughter Lana, was diagnosed with Prader-Willi syndrome, and found early on that the “go go go” mentality of the medi...
The Dye-lemma: Autism, Behavior, and Food
Wisdom Shared with Carole Blueweiss - November 12, 2023 05:05 - 29 minutesEpisode Summary Join us in a touching conversation with Amy and her daughter Lizzie as they share their experiences with 18-year-old Mathew, who was diagnosed with autism. Amy discusses the challenges of raising Mathew, including how eliminating certain food dyes helped reduce his aggressive be...
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