Latest Hd research Podcast Episodes
Act for ALS (and HD) with Thom Hart
Help 4 HD Live! - May 09, 2024 20:00 - 45 minutes ★★★★★ - 9 ratingsThom Hart is the Director of Outreach with the Critical Path Institute (C-Path), which is a nonprofit created by the FDA to "improve the drug development process. It operates as a neutral third party to enable scientists from the regulated industry and international regulatory agencies to work to...
HDYO Ambassadors: Ashley
Help 4 HD Live! - May 02, 2024 20:00 - 31 minutes ★★★★★ - 9 ratingsFor more information about the HDYO Ambassadors program, please visit www.hdyo.org.
What I learned at the World Orphan Drug Congress
Help 4 HD Live! - April 25, 2024 20:00 - 22 minutes ★★★★★ - 9 ratingsI recently attended the World Orphan Drug Congress in Boston, MA. The audio for this episode is from my YouTube video that you can find here: Dying to Live
HD Uncut with Meredith Patterson
Help 4 HD Live! - April 18, 2024 20:00 - 1 hour ★★★★★ - 9 ratingsMeredith Patterson is a performing artist, author, and producer whose family was impacted by Huntington's Disease. To learn more about her, please visit her website: https://meredithpatterson.com/ She also has a podcast called "Confessions of an Actress". This week on her podcast, she shared abo...
Using Optical Tweezers in HD with Dr. Piere Rodriguez-Aliaga
Help 4 HD Live! - April 11, 2024 20:00 - 31 minutes ★★★★★ - 9 ratingsPiere Rodriguez-Aliaga, PhD, is a young investigator whose current HD research is funded by the Hereditary Disease Foundation. He is using a new Nobel Prize-winning technology called Optical Tweezers to study one huntingtin molecule at a time, which allows access to structural information about p...
Cognitive Symptoms & Patient-Reported Outcomes with Dr. Jennifer Petrillo Billet
Help 4 HD Live! - April 04, 2024 20:00 - 47 minutes ★★★★★ - 9 ratingsJennifer Petrillo Billet PhD is an Executive Director and Program Lead for investigational dalzanemdor, or SAGE-718, at Sage Therapeutics. She is responsible for driving the global development strategy, including delivery of the right evidence for key stakeholders including regulators, payers, an...
HDYO Ambassador Series: Rhiannon
Help 4 HD Live! - March 28, 2024 20:00 - 35 minutes ★★★★★ - 9 ratingsPlease visit www.hdyo.org for more information
HD Gratitude Day
Help 4 HD Live! - March 21, 2024 20:02 - 8 minutes ★★★★★ - 9 ratingsPlease visit the Factor-H website for more information. Please also tune in to the Factor-H YouTube Channel on Saturday 3/23/2024 at 12 pm EST for HD Gratitude Day events in Venezuela.
Samantha Decker
Help 4 HD Live! - March 14, 2024 20:00 - 27 minutes ★★★★★ - 9 ratingsSamantha and I got to participate in a focus group together. Here our thoughts about research and more!!
HDYO Ambassadors Series: Ep 1. with Robyn
Help 4 HD Live! - February 29, 2024 21:00 - 27 minutes ★★★★★ - 9 ratingsHDYO Ambassadors Series: Ep 1. with Robyn
HD Uncut, Ep. 12, with John Howard
Help 4 HD Live! - February 22, 2024 21:00 - 26 minutes ★★★★★ - 9 ratingsHappy 1st anniversary of the #HDUncut Series on #Help4HDLive! This show is exactly why I came up with the series in the first place. John Howard has Huntington's Disease. He's also a very talented poet. On this show, he shares some new poetry with the HD Community.
Layers of Love with Dave, Susie and Erika
Help 4 HD Live! - February 15, 2024 21:00 - 43 minutes ★★★★★ - 9 ratingsHappy Valentine's Day! Join Erika Boulavsky from HD Reach and Lauren Holder from Help 4 HD in their conversations with Dave and Susie Hodgson about their Layers of Love. Dave and Susie's unique story talks about caring for both of their spouses with HD, how they found each other, and how they con...
"We Exist" with Tanita Allen
Help 4 HD Live! - February 08, 2024 21:00 - 27 minutes ★★★★★ - 9 ratingsTo follow Tanita Allen, please visit her website: https://tanitaallen.com/ Here is the link to purchase a copy of Tanita Allen's book: We Exist
DNA Repair in HD with Dr. Joseph Hamilton
Help 4 HD Live! - February 01, 2024 21:00 - 28 minutes ★★★★★ - 9 ratingsPlease visit the Hereditary Disease Foundation website to find out more information.
@thehdhun with Charlotte
Help 4 HD Live! - January 25, 2024 21:00 - 24 minutes ★★★★★ - 9 ratingsIf you'd like to follow Charlotte on social media, please visit her website: https://linktr.ee/thehdhun Instagram handle - @thehdhun TikTok - Click Here
HD Uncut, Ep. 11, with Dina De Sousa
Help 4 HD Live! - January 18, 2024 21:00 - 34 minutes ★★★★★ - 9 ratingsHD Uncut, Ep. 11, with Dina De Sousa
HD Charge with Dr. Jamie Hamilton
Help 4 HD Live! - January 11, 2024 21:00 - 39 minutes ★★★★★ - 9 ratingsJamie L. Hamilton, PhD, is the Director of Clinical Outcome Assessments at CHDI. She led the HD Charge study, which focused on the indirect costs associated with being affected by Huntington's Disease.
Greater than HD in 2024
Help 4 HD Live! - January 04, 2024 21:00 - 27 minutes ★★★★★ - 9 ratingsGreater than HD in 2024
HD Uncut, Ep. 10 with Leah
Help 4 HD Live! - December 28, 2023 21:00 - 50 minutes ★★★★★ - 9 ratingsHD Uncut, Ep. 10 with Leah
Livable Lives with Christy Dearien
Help 4 HD Live! - December 21, 2023 21:00 - 21 minutes ★★★★★ - 9 ratingsIf you'd like to follow Christy on social media, you can find her here: Facebook - www.facebook.com/ChristyDearien Instagram - @christydearien
Welcome to Help 4 HD, Anna Lunsford!
Help 4 HD Live! - December 14, 2023 21:00 - 19 minutes ★★★★★ - 9 ratingsIf you would like to send your resources and tips and tricks to Anna for our new database, please go to the Help 4 HD website - www.help4hd.org - go to Contact Us and submit. Anna is regularly checking submissions through the website. You can also send it directly to her email at [email protected]
Help 4 HD 2023 with Katie and Katrina
Help 4 HD Live! - December 07, 2023 21:00 - 26 minutes ★★★★★ - 9 ratingsFor more information about all that Help 4 HD is doing, please visit the website - www.help4hd.org
Coping During the Holidays with Melissa W.
Help 4 HD Live! - November 30, 2023 21:00 - 55 minutes ★★★★★ - 9 ratingsCoping During the Holidays with Melissa W.
HD Uncut Series, Ep. 9
Help 4 HD Live! - November 16, 2023 20:50 - 34 minutes ★★★★★ - 9 ratingsLauren shares her feelings about the holidays and her recent birthday.
Vico Therapeutics
Help 4 HD Live! - November 09, 2023 21:00 - 23 minutes ★★★★★ - 9 ratingsDr. Katja Obieglo joins Lauren to talk about the research Vico Therapeutics is doing. To learn more, please visit their website here.
HDF Young Investigators: MRI Technology in HD Research
Help 4 HD Live! - November 02, 2023 20:00 - 26 minutes ★★★★★ - 9 ratingsDr. Hett's research uses non-invasive MRI technology to investigate HD-related changes in the circulation of the fluid that bathes the nervous system, known as cerebrospinal fluid (CSF). By measuring the flow of CSF in people, Dr. Hett will attempt to understand better how it changes with HD, and...
HD Community Advisory Board with Jenna Heilman
Help 4 HD Live! - October 26, 2023 20:00 - 40 minutes ★★★★★ - 9 ratingsIf you'd like to learn more about HD-CAB, including how to become a member, please visit the website here. You can also contact Jenna Heilman at [email protected].
HD Mythbusters: Generation HD2
Help 4 HD Live! - October 12, 2023 20:00 - 43 minutes ★★★★★ - 9 ratingsRita Gandhy is a movement disorders neurologist and comes with over 4 years of experience at Roche/Genentech. Prior to her current work in USMA, Rita led the Study Review Team for a planned tominersen study in late onset Huntington's Disease, being responsible for developing the protocol and stud...
At the Age of Onset with Chris Brown
Help 4 HD Live! - October 05, 2023 20:00 - 53 minutes ★★★★★ - 9 ratingsChris Brown joins me to talk about the age of onset in HD
RARE Fair & YARR with Sarina Smith
Help 4 HD Live! - September 28, 2023 23:00 - 15 minutes ★★★★★ - 9 ratingsSarina Smith
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