Latest Cysticfibrosis Podcast Episodes
What Happens When One Conjoined Twin Dies?
Sickboy - May 01, 2024 04:10 - 39 minutes ★★★★★ - 463 ratingsIn a dance designed for two, what happens when the music stops for one? This week Jer and Tay go OG FGF mode. After introducing the newest member of the team, Haeley, Jer delves into the complex world of conjoined twins, particularly focusing on the rare and heartbreaking scenario where one twin...
Legally Blind or Faking It? - Retinitis Pigmentosa
Sickboy - April 24, 2024 04:10 - 1 hour ★★★★★ - 463 ratingsSometimes, the world we see isn't just defined by light and shadows, but by the stories we tell and the voices we hear. Mara Hutchinson offers the fellas a candid glimpse into her life with Retinitis Pigmentosa (RP), a rare eye disease that affects the retina. She’s lived a journey marked not ju...
The Platinum Rule: Advance Care Planning
Sickboy - April 17, 2024 08:10 - 59 minutes ★★★★★ - 463 ratingsLife is a storyboard, and every chapter counts, especially those we write in advance. Karine Diedrich, the Director of Advance Care Planning at the Canadian Hospice Palliative Care Association (CHPCA) unravels the threads of advance care planning—a blueprint for future healthcare that aligns dee...
Being Thankful on Thanksgiving Has a Whole New meaning with Pamela Sherman
Pre to Post Transplant - April 15, 2024 18:18 - 44 minutes ★★★★★ - 29 ratingsIn this episode, Pamela tells her story of receiving two heart transplants just 11 months apart. She shares what it was really like going through this process, thinking she knew what to expect, only to find out otherwise. With special guest, Meatball! Find more episodes on the website at www....
A Luddite's Guide to Conquering Complex Regional Pain Syndrome
Sickboy - April 10, 2024 04:10 - 1 hour ★★★★★ - 463 ratingsIn the analog corners of Utah, Libby Slem navigates the digital age with a Luddite's charm and a warrior's grit, facing Complex Regional Pain Syndrome (CRPS). This isn't your everyday pain; it's a journey through a rare nerve disease that transforms every facet of life, from motherhood's joys an...
From Chronic Fatigue to Chronic Optimism
Sickboy - April 03, 2024 04:10 - 59 minutes ★★★★★ - 463 ratingsIsobel's journey isn't just about battling Postural Orthostatic Tachycardia Syndrome (POTS) and Chronic Fatigue Syndrome (CFS); it's a deep dive into resilience and self-discovery amidst the challenges of chronic illness. Facing skepticism and navigating a world not built for her, she shares the...
Dump Truck Dysplasia: HPV In Your Butt
Sickboy - March 27, 2024 04:10 - 1 hour ★★★★★ - 463 ratingsForget everything you thought you knew about the birds and the bees because this episode dives deep into the world less spoken of, yet equally vital: anal health. Dr. Gary Bucher, a pioneer in HIV medicine and an advocate for HPV-related disease awareness, illuminates the shadowy misconceptions ...
A New Year Means a New Heart with Jennifer Schilling
Pre to Post Transplant - March 22, 2024 03:28 - 56 minutes ★★★★★ - 29 ratingsIn this episode, Jennifer Schilling shares her experience as a caregiver to her son Connor. From his childhood struggles with Hypoplastic Left Heart Syndrome to a life-changing heart transplant on New Year's Day, their journey is one of resilience and hope. Download the app - My Med Schedule P...
Herniated Discs & Healing Arts
Sickboy - March 20, 2024 04:10 - 1 hour ★★★★★ - 463 ratingsWho knew that a backache could lead you on a journey through the depths of sorrow and the heights of artistic creation? Meet Rhonda, a spirited soul entangled in the web of chronic pain and depression due to a misdiagnosed herniated disc. But Rhonda's story isn't just one of suffering; it's a te...
The Art of Digital Healing: Common Language
Sickboy - March 13, 2024 04:10 - 1 hour ★★★★★ - 463 ratingsIn a world where health meets digital narrative, Dr. Mike Lang and Kristy Wolfe turn the mic to the unsung heroes of healthcare: storytelling. This episode dives deep into the heart of healthcare, illuminated by the guiding lights of digital storytelling. Dr. Lang, a filmmaker and health researc...
Beyond Shelter: The Future of Housing and Health
Sickboy - March 06, 2024 05:10 - 1 hour ★★★★★ - 463 ratingsThey say home is where the heart is, but what if too many hearts are left without a home? In a riveting dialogue with Zach Churchill, Opposition leader and MLA for Yarmouth, the boys dive deep into the complex world of homelessness and the urgent cry for affordable housing. As the fabric of Nova...
Unwittingly Getting Swole: Hereditary Angioedema
Sickboy - February 28, 2024 09:10 - 1 hour ★★★★★ - 463 ratingsMaybe it’s steroids? Maybe she’s born with it? Wait… no, she’s definitely born with it. It’s HAE. How fitting is it that Rare Disease Day falls on a fairly rare day, Feburary 29th! In this episode, the fellas sit down with Jordyn Campbell, who not only shares her eye-opening journey with heredit...
Escaping the List with Natasha England, pt. 2
Pre to Post Transplant - February 28, 2024 05:32 - 42 minutes ★★★★★ - 29 ratingsIn Part 2 of this episode, Natasha continues to share her journey with battling alcoholism and needing a liver transplant. She talks about the work she put into changing her lifestyle and how that led to being unlisted. Visit the website to leave a comment or request to be on the show: ww...
Escaping the List with Natasha England, pt. 1
Pre to Post Transplant - February 22, 2024 13:59 - 37 minutes ★★★★★ - 29 ratingsIn this episode, Natasha shares her journey with battling alcoholism and needing a liver transplant. She talks about the work she put into changing her lifestyle and how that led to being unlisted. Visit the website to leave a comment or request to be on the show: www.PreToPostTX.com
Help Us Find A Kidney For Ellie
Sickboy - February 21, 2024 05:10 - 1 hour ★★★★★ - 463 ratingsIn this heart-tugging episode, the fellas dive into a tale of resilience, love, and the complexities of kidney transplantation with one ultimate goal - finding a Kidney for our dear friend, Ellie. Ellie is a rockstar nurse battling kidney disease. She opens up about her journey through kidney fa...
ANNOUNCEMENT: Sickboy is Evolving - The Future of the Podcast
Sickboy - February 16, 2024 05:10 - 36 minutes ★★★★★ - 463 ratingsThis is it. The end of Sickboy... as you've come to know it that is. This is the final FGF episode but fear not! We're not going anywhere. We're just evolving. It’s been almost ten years and hundreds of episodes since we sat down and recorded our first episode, which is crazy. For those of you w...
Sperm Superfoods: Eating Your Way to a Baby
Sickboy - February 14, 2024 05:10 - 1 hour ★★★★★ - 463 ratingsAre those late-night snacks whispering secrets about your swimmers? In this episode, the fellas dive deep into the world of baby-making, but not in the way you might think. They sit down with Lisa Hendrickson-Jack and Lily Nichols, the brilliant minds behind "Real Food for Fertility," a book on h...
When You're Drowning, Become A Fish: Caring For A Child With Cancer
Sickboy - February 12, 2024 09:10 - 1 hour ★★★★★ - 463 ratingsIn a world where the only thing scarier than a monster under the bed is a diagnosis you can't pronounce, Sam Taylor steps into the Sickboy studio to unravel the tale of her journey as a caregiver for her 12 year old daughter Ellie, who is battling rhabdomyosarcoma, a type of sarcoma. Amid the whi...
Period Pads From The Future?!
Sickboy - February 09, 2024 05:10 - 44 minutes ★★★★★ - 463 ratingsWho knew your period could be your personal health detective? Picture this: A period pad that does more than just catch blood—it catches diseases, too! Enter the Q-pad, a brainchild of biotech innovation that's transforming the way we approach personal health screenings. With over a thousand twea...
Patient to Pioneer: Emmy's Research in Healthcare Transitions
Sickboy - February 07, 2024 05:10 - 51 minutes ★★★★★ - 463 ratingsA new generation of bright minds is storming academia, and Emmy Schuler is leading the charge, armed with innovative ideas to mend the cracks in our fractured healthcare system. This week on Routine Checkup, the boys dive into the world of psychosocial support with Emmy Schuler, a Master's studen...
Reclaiming Femininity: MRKH and Women's Health
Sickboy - February 05, 2024 05:10 - 1 hour ★★★★★ - 463 ratingsImagine a world where your very identity is challenged by your body—this is where Rima Zigaitis reshapes the narrative. In today's episode, the boys sit down with Rima Zigaitis, a beacon of hope and empowerment for women grappling with life-altering diagnoses. Founder of Sumaavi Coaching, Rima's ...
BREAKING NEWS: Sex Dreams, Lupus Genes, and Rabbit Queens
Sickboy - February 02, 2024 05:10 - 55 minutes ★★★★★ - 463 ratings"BREAKING NEWS - You heard it here first! Your laptop is killing your sperm! Strap in (or strap-on in taylors case?) for a wild ride on Feel Good Friday as the boys dive headfirst into a world where science fiction meets reality, sweaty naked dreams blur into revelations, and history takes a hop ...
Chronic - Representation of Disability in Film
Sickboy - January 31, 2024 09:10 - 1 hour ★★★★★ - 463 ratingsLaurel and Brendan are a film making duo and creators of the award winning comedy drama short film CHRONIC! The film follows Frankie, played by Nadine Bhabaha (Letterkenny), who struggles to accept the harsh reality of a recent brain injury. Her denial persists until she reluctantly attends a bi...
Gabor Maté: Healing with Laughter
Sickboy - January 29, 2024 05:10 - 1 hour ★★★★★ - 463 ratingsIn the world of human complexity, laughter and wisdom intertwine unexpectedly. Buckle up! The moment you’ve all been waiting for is finally here. Recorded live from the Biltmore Cabaret in Vancouver, the boys sit down with the legendary Dr. Gabor Maté for a live recording that's nothing short of...
RAGE!!! Health Hazard or Emotional Elixir?
Sickboy - January 26, 2024 09:10 - 58 minutes ★★★★★ - 463 ratingsThey say an apple a day keeps the doctor away, but could a vein busting fit of rage do the same, depending on your time zone? This Feel Good Friday, the fellas are dissecting a mind-bending study that shows how getting angry in the USA could be messing with your health, while in Japan, it might j...
From 'No' to 'Yes' with No Regrets with Nancy Lewis (P. 2)
Pre to Post Transplant - January 25, 2024 14:04 - 56 minutes ★★★★★ - 29 ratingsIn this episode, we continue our conversation with Nancy as she talks about her journey with getting a lung transplant. She discusses the struggles she had making the decision to get the transplant and despite her ups and down, has had no regrets. Visit the Pre to Post Transplant Podcast webs...
BLOOD: Busting Myths On Menstration With Dr. Jen Gunter
Sickboy - January 24, 2024 05:10 - 1 hour ★★★★★ - 463 ratingsEver wondered how a topic as natural as menstruation became a cocktail of myths and misinformation? Buckle up, because today, the fellas dive deep with the fearless Dr. Jen Gunter, a true crusader in demystifying women's health. Best known for her groundbreaking books 'The Vagina Bible' and 'The ...
The Unseen Battles of a Miracle Child and His Mother: CHARGE Syndrome/17p13.1 Microduplication Syndrome
Sickboy - January 22, 2024 05:10 - 59 minutes ★★★★★ - 463 ratingsWhat happens when life throws a curveball straight after the final inning? This Monday, the boys sit down with Alexis Simon, a superhero mom who's been catching life's toughest pitches. After a picture-perfect pregnancy, Alexis's world turned upside down when her son, Theo, was born with a conste...
From Vintage Vomit to Vibrant Piss - Ringing In A New Generation!
Sickboy - January 19, 2024 09:10 - 1 hour ★★★★★ - 463 ratingsRoses are red, violets are blue, the magic school bus is yellow, and thanks to science, now we know why your piss is too. What's in a generation? Turns out, it's not as clear-cut as you might think! This Feel Good Friday, the boys dive headfirst into the chaotic, fascinating world of generational...
From 'No' to 'Yes' with No Regrets with Nancy Lewis (P. 1)
Pre to Post Transplant - January 19, 2024 04:19 - 33 minutes ★★★★★ - 29 ratingsIn this episode, Nancy talks about her journey with getting a lung transplant. She discusses the struggles she had making the decision to get the transplant and despite her ups and down, has had no regrets. Visit the Pre to Post Transplant Podcast website to hear more stories, leave comments,...
Related Cysticfibrosis Topics
- Health 2