Latest Cft Podcast Episodes

Living With Cystic Fibrosis artwork

CF in Israel, during a war...

Living With Cystic Fibrosis - October 30, 2023 04:00 - 44 minutes ★★★★★ - 19 ratings
(Please consider subscribing and rating our podcast. It helps us to promote. Thank you.) Israel is at war. The emotional toll on families in Israel and Palestine is unimaginable. Israeli, 43 year old Nirit Maizel is trying to live her life as best she can while her country fights against Hamas...

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Rory Tallon, Dating someone who also has CF.

Living With Cystic Fibrosis - October 23, 2023 04:00 - 30 minutes ★★★★★ - 19 ratings
51 year old Rory Tallon works with Cystic Fibrosis Ireland as a CF Patient Advocate as part of CFI’s member service team.  Rory has CF and was recently featured in our Living with cystic fibrosis podcast volunteering  for CF Ireland. In this podcast he’s talking about dating someone with CF.   ...

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Dr. Jennifer Taylor Cousar - our CF super hero doctor

Living With Cystic Fibrosis - October 16, 2023 04:00 - 36 minutes ★★★★★ - 19 ratings
Please subscribe, comment and rate our podcast on Spotify. (You can listen on any platform). Dr. Jennifer Taylor-Cousar is an amazing woman I can’t wait to meet in person one day.  She is a Board Certified Pediatric and adult pulmonologist at National Jewish Health in Colorado. She’s a rock sta...

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Breaking Down the Last Financial Crisis with Dennis Kelleher

Fraud in America - October 11, 2023 13:00 - 1 hour ★★★★★ - 18 ratings
To learn more about Better Markets, click here. To learn more about Dennis, click here. ------------------ Fraud in America is made possible by the generous donation of Getnick & Getnick LLP, a boutique Manhattan law firm dedicated to fighting fraud and promoting business integrity. --------...

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Entrepreneur Emily Lyons success in the midst of tragedy

Living With Cystic Fibrosis - October 09, 2023 04:00 - 40 minutes ★★★★★ - 19 ratings
Emily Lyons is not yet 40 years old (she's 37 years old) and is a multimillionaire. But her life has not been easy.  Her story is incredible, she's actually writing a book about it.  She dropped out of high school at 16 years old, worked as a nanny for a bit in Australia, modeled and now, well, ...

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Entrepreneur Marten DeVlieger.

Living With Cystic Fibrosis - October 02, 2023 04:00 - 44 minutes ★★★★★ - 19 ratings
Please subscribe, rate our podcast and comment. thank you. Marten De Vlieger do you know what he did or who he is?  I am excited to let you know. He is an adventure and sports athlete. He’s 41 years old with CF. Marin worked with HillRom, which is now Baxter, to make the Monarch Airway Clearanc...

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Rick Mountcastle, The U.S. Attorney Who Took on Purdue Pharma

Fraud in America - September 27, 2023 13:00 - 1 hour ★★★★★ - 18 ratings
------------------ Fraud in America is made possible by the generous donation of Getnick & Getnick LLP, a boutique Manhattan law firm dedicated to fighting fraud and promoting business integrity. ------------------ Fraud in America Social Links 🌐 Website 🐦 Twitter 🎥 YouTube 👔 LinkedIn --------...

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Rory Tallon, CF Ireland

Living With Cystic Fibrosis - September 25, 2023 04:00 - 48 minutes ★★★★★ - 19 ratings
Please consider subscribing, rating and commenting on our podcast (Spotify). But you can hear our podcasts anywhere. We’re traveling 9 hours by plane for this podcast to the lush green grass of Dublin, Ireland. You may want to pour yourself a Guiness for this podcast if you’re listening at home...

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CF Warrior Asia Diaz. Late diagnosis. Delivers baby while suffering pneumonia.

Living With Cystic Fibrosis - September 18, 2023 04:00 - 26 minutes ★★★★★ - 19 ratings
Asia Diaz is 27 years old and has CF. As an African American woman she was one of the many people diagnosis late in her life because some physicians believe incorrectly, that CF is a genetic disease that mainly impacts the white race.  For this reason Asia was diagnosis late in life. She tells ...

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Sitting Down With The Facebook Whistleblower, Frances Haugen

Fraud in America - September 13, 2023 13:00 - 1 hour ★★★★★ - 18 ratings
You can learn more about Frances here and order her book, “The Power of One” here.   ------------------ Fraud in America is made possible by the generous donation of Getnick & Getnick LLP, a boutique Manhattan law firm dedicated to fighting fraud and promoting business integrity. -----------...

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Life without Trikafta, Will Corcoran (and Mom, "Bean")

Living With Cystic Fibrosis - September 11, 2023 04:00 - 34 minutes ★★★★★ - 19 ratings
Bean Corcoran, and Will Corcoran.  Mother and son. I met Bean Corcoran when we were doing a science and innovation campaign, and we became friends!  I learned a little bit about her son Will, who has CF.  Bean is very involved in the CF community.  She is the President of the CFF Connecticut Ch...

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Night of Hope Keynote speaker, Jerry Cahill

Living With Cystic Fibrosis - September 05, 2023 04:00 - 32 minutes ★★★★★ - 19 ratings
If you want to meet Jerry in person, I encourage you to attend our Night of Hope Gala on September 9th.  You’ll be able to talk with Jerry about anything that is on your heart.  You’ll be so inspired, like I am every single time I see him or talk with him.  If you’re not able to attend, you’ll s...

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Durhane Wong-Reiger, expert on access in low income Countries

Living With Cystic Fibrosis - August 28, 2023 04:00 - 50 minutes ★★★★★ - 19 ratings
Dr. Durhane Wong-Rieger is the President and CEO for the Canadian Organization for Rare Disorders. She is involved and Chair to many committees and organizations. She is also an author, lecturer and trainer. She is the perfect person to talk with about making healthcare a level playing field for...

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The Key to an Amazing Life with Julie Ryan

Parenting in Uniform - August 27, 2023 21:00 - 46 minutes
Julie Ryan is a businesswoman, an inventor, author, podcaster, and a serial entrepreneur. Her surgical device inventions are sold globally and she has founded nine companies in five different industries. Julie’s 'Angel Messages®' books are picture books that have angels answering kids’ tough que...

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Diving Into the World Crypto Fraud and the Need for Whistleblowers

Fraud in America - August 23, 2023 13:00 - 42 minutes ★★★★★ - 18 ratings
You can learn more about Daren here. ------------------ Fraud in America is made possible by the generous donation of Getnick & Getnick LLP, a boutique Manhattan law firm dedicated to fighting fraud and promoting business integrity. ------------------ Fraud in America Social Links 🌐 Website 🐦...

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Rare Disease Advisory Council (RDAC) with Rep. Jason Morgan and Dr. Stephen Rapundalo

Living With Cystic Fibrosis - August 21, 2023 04:00 - 30 minutes ★★★★★ - 19 ratings
The Rare Disease Advisory Council, (RDAC) has passed in at least 25 states so far.  This is a bi-partisan effort to give voice to people and their families who are living with a rare disease.  We're talking about 7 thousand plus rare diseases, which include cystic fibrosis. The RDAC would be hou...

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HealthWell Foundation - going out of the CF business?

Living With Cystic Fibrosis - August 14, 2023 04:00 - 27 minutes ★★★★★ - 19 ratings
Healthwell is a foundation that helps people pay bills that impact 90 different disease groups. They cover what insurance does not.  The Bonnell Foundation will refer people to Healthwell when the financial need is greater than we can give, or if we don’t cover a certain request for funds.   Ap...

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Discussing Dialysis and Whistleblowing with "How to Make a Killing" Author Tom Mueller

Fraud in America - August 09, 2023 13:00 - 1 hour ★★★★★ - 18 ratings
More about Tom's books here:  How to Make a Killing: Blood, Death, and Dollars in American Medicine. Crisis of Conscience: Whistleblowing in an Age of Fraud Extra Virginity: The Sublime and Scandalous World of Olive Oil Watch our interview with Whistleblower Elin Kunz here. ----------------...

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Deliverer of CF Hope, Bob Emmelkamp

Living With Cystic Fibrosis - August 07, 2023 04:00 - 49 minutes ★★★★★ - 19 ratings
You will want to learn more about Bob Emmelkamp after this podcast, I promise! I feel like Bob is everywhere and supportive of everyone. Without a DNA connection to cystic fibrosis, Bob Emmelkamp became a lifelong CF fund-raising volunteer in 1976, when he helped put on a high school dance mar...

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Author, Melodie Ramone

Living With Cystic Fibrosis - July 31, 2023 04:00 - 35 minutes ★★★★★ - 19 ratings
Melodie Ramone and I met on Twitter, before the pandemic. Melodie was supporting all my posts and I wondered why, did she have a CF connection?  She was, as it turns out, supportive of the CF community, but had no direct connection. The people with CF and their caregivers always had a place in h...

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Romance and CF

Living With Cystic Fibrosis - July 17, 2023 04:00 - 30 minutes ★★★★★ - 19 ratings
Who will want to take on a person with CF?  That is the question many women born with the disease think about after high school. Megan Bauer thought about it a lot. Until she met Alec.  At 26 years old  the University of Michigan graduate is happily in love. But until she found her prince, she ...

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Why Whistleblowers Are Needed to Combat Financial Frauds

Fraud in America - July 12, 2023 13:00 - 46 minutes ★★★★★ - 18 ratings
To learn more about Prof. Daniel Taylor, click here. ------------------ Fraud in America is made possible by the generous donation of Getnick & Getnick LLP, a boutique Manhattan law firm dedicated to fighting fraud and promoting business integrity. ------------------ Fraud in America Social L...

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The Crossing for CF: On Location (West Palm Beach, Fla.)

Living With Cystic Fibrosis - July 10, 2023 04:00 - 49 minutes ★★★★★ - 19 ratings
The CF community is a small one. It’s made up of 40,000 people with the disease in the U.S.  When you add two parents to the mix that’s 80,000 parents, then there are grandparents, siblings, Aunt and Uncles, friends and you get the picture. We have a small, tight knit community. Laura Bonnell t...

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Clement and Travis - a love story about caregiving

Living With Cystic Fibrosis - July 05, 2023 04:00 - 34 minutes ★★★★★ - 19 ratings
This is a love story about two people passionate about entertainment, writing and each other. In 2016 Clement ‘Clem’ Souyri, moved from Versaille, France to the United States. Clem is a lawyer who specializes in entertainment law. His career path landed him in the orbit of Travis Flores. Travis...

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Sitting Down with Tom Greene, a Pioneering Whistleblower Attorney

Fraud in America - June 28, 2023 13:00 - 1 hour ★★★★★ - 18 ratings
To learn more about Tom Greene, click here. To learn about the TAF Coalition 2022 Lawyers of the Year Award, click here. ------------------ Fraud in America is made possible by the generous donation of Getnick & Getnick LLP, a boutique Manhattan law firm dedicated to fighting fraud and promot...

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Lisa Bentley - A Canadian powerhouse athlete

Living With Cystic Fibrosis - June 26, 2023 04:00 - 40 minutes ★★★★★ - 19 ratings
54 years ago when Canadian, Lisa Bentley was born, enzymes weren't even in pill form. Diagnosed at age 20, Lisa was already in the midst of figuring out her life as a teacher and later, a world famous triathlete. She had 11 IRONMAN victories on several continents with at least one IRONMAN victor...

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Piper's Angels - A Dad and daughter love story

Living With Cystic Fibrosis - June 19, 2023 04:00 - 49 minutes ★★★★★ - 19 ratings
CF in the family. ​Making it your life's purpose. Then The Crossing for cystic fibrosis, from the Bahamas to Florida was born.  ​Travis' parents didn't know they had three children with CF.  When Travis's daughter Piper was always sick, CF didn't occur to him.    Then his sister LeeAnn was di...

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Dr. Hector Gutierrez

Living With Cystic Fibrosis - June 12, 2023 04:00 - 41 minutes ★★★★★ - 19 ratings
In January, The American Thoracic Society (ATS) held a webinar about the challenges facing CF families in low-income countries.  Drs. Samya Nasr and Grace Paul were key participants in the webinar. Two doctors who have been featured on this podcast. This is where I first saw I Dr. Hector Gutierr...

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Let’s Break Down the Supervalu Decision

Fraud in America - June 07, 2023 13:00 - 1 hour ★★★★★ - 18 ratings
To learn more about the Tejinder, click here. To read more about the Supervalu decision, click here. ------------------ Fraud in America is made possible by the generous donation of Getnick & Getnick LLP, a boutique Manhattan law firm dedicated to fighting fraud and promoting business integri...

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Surfer Jacob Venditti Lives Fearlessly with CF

Living With Cystic Fibrosis - June 05, 2023 04:00 - 21 minutes ★★★★★ - 19 ratings
The Live Fearlessly Foundation? It’s the creation of Jacob Venditti.  Jacob is a surfer and lover of life.  He's also a social impact entrepreneur, community builder, multimedia producer, keynote speaker, and passionate advocate for the cystic fibrosis community. He also has CF. Jacob was on the...

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