Latest Brain tumours Podcast Episodes

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Episode 31 - Spotlight on Community Fundraising - How our community helps fund research

Let's Talk About Brain Tumours - October 18, 2022 10:00 - 11 minutes
In this episode, Chandos talks to Community Fundraiser Firzana Khan about how our community works with the charity to raise money for vital research into better treatments and cures for brain tumours.  They talk about the different ways people can raise money from cycle rides and runs to charity...
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Episode 30 - The importance of an Advance Care Plan

Let's Talk About Brain Tumours - October 04, 2022 06:00 - 47 minutes
In this episode we talk about the importance of having an Advance Care Plan in place, what it is, how you go about doing one an why it is so important. Sacha Langton- Gilks  son DD died when he was 16 from his brain tumour.  Sacha like most people felt ill prepared and ill-informed about how to...
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Episode 29 - Spotlight Revisited - National Eye Health Week

Let's Talk About Brain Tumours - September 20, 2022 06:00 - 14 minutes
This episode was recorded in September 2021 but as this week is National Eye Health week we thought we'd revisit this episode where Chandos talks to Optical Engagement Manager Lorcan Butler about the importance of eye exams as these appointments can tell you much more about your overall health t...
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Episode 28 - What exactly is Gamma Knife?

Let's Talk About Brain Tumours - September 06, 2022 09:00 - 34 minutes
In this episode, myself and Andy talk to Katie about Gamma Knife Radiotherapy also known as Stereotactic Radiotherapy.  Both Andy and Katie had this treatment when they had a recurrence of their brain tumours, they explain what the treatment entails and what it was like to undergo. You can find...
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Episode 27 - Spotlight on the Charity Lottery

Let's Talk About Brain Tumours - August 30, 2022 06:00 - 7 minutes
In this episode Chandos talks to Tamsin Tyson our Individual Giving Officer about the recently launched charity lottery.  Tamsin explains what the lottery is and why we have decided to create a lottery as a way to continue to be able to raise money for vital research into brain tumours at a time...
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Episode 26 - What's it like to have a craniotomy?

Let's Talk About Brain Tumours - August 16, 2022 06:00 - 46 minutes
In this episode, we talk to Rob, diagnosed with a grade 2 glioma, and Carly, with a grade 2 oligodendroglioma, about what it's like to have a craniotomy.  Both  Rob and Carly had an awake craniotomy while Andy who has a grade 2 meningioma had a craniotomy under a general anaesthetic They share ...
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Episode 25 - Spotlight on Signs and Symptoms - How we created a campaign

Let's Talk About Brain Tumours - August 04, 2022 15:00 - 23 minutes
In this episode we talk to Ali Lopez, the charity's Campaigns and Communications Manager about how the charity created the new Signs And Symptoms campaign that the charity recently launched to raise awareness of the signs and symptoms of brain tumours.  Ali talks through the process of creating ...
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Episode 24 - Scanxiety

Let's Talk About Brain Tumours - July 19, 2022 06:00 - 52 minutes
In this episode, we talk to  Betty and Sarah about their experience of having scans and the very real anxiety that often goes with this.  They share some of the things they have found helpful in reducing the level of anxiety they feel in the run-up to their scan and things they do during the sca...
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Episode 23 - Spotlight on Improving Brain Tumour Care

Let's Talk About Brain Tumours - July 05, 2022 12:00 - 16 minutes
In this episode, senior involvement and impact manager Shannon Winslade joins Chandos to talk about how you can help us to improve the treatment and care of people diagnosed with a brain tumour.  Shannon spoke about the importance of getting our community to share their experiences both good and...
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Episode 22 - Sibling Grief

Let's Talk About Brain Tumours - June 21, 2022 09:00 - 42 minutes
In this episode I talk to Kaz and Lauren about what it's like to loose a sibling to a brain tumour.  For those of us that having siblings we know that the relationship we have with our siblings is different from any other relatonship we have. Kaz and Lauren share what it's been like for them whe...
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Episode 21 - Spotlight on Strategy Update - Beyond Brain Tumours

Let's Talk About Brain Tumours - June 07, 2022 06:00 - 23 minutes
In this episode, Chandos talks to Andy about his involvement with the new strategy the charity is co-creating with the community.  Andy is a volunteer that not only works on the podcast but is also part of the Steering group made up of members of the community, The Brain Tumour Charity and other...
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Episode 20 - Dating and relationships after a diagnosis

Let's Talk About Brain Tumours - May 24, 2022 14:00 - 34 minutes
In this episode, Chandos and our guest Laura talk candidly about the reality of dating after a brain tumour diagnosis and the difficulties of online dating and telling a prospective partner.  They share their personal experiences and how they approach the world of dating and relationships whethe...
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Episode 19 - Spotlight with Alex Lochrane (CEO)

Let's Talk About Brain Tumours - May 10, 2022 15:00 - 37 minutes
In this episode, we meet our newest co-host Anna Blyszko as she and Chandos talk to our new CEO, Alex Lochrane.  Alex joined the charity about 3 months ago and shares with Anna and Chandos some of his background, why he joined the charity and where he sees the charity going under his guidance. ...
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Episode 18 - Life after active treatment

Let's Talk About Brain Tumours - March 08, 2022 07:00 - 28 minutes
In this episode, we talk to Lucy and Lauren who share what it means to be successfully treated following a brain tumour diagnosis.  They share the ongoing impacts caused by both the brain tumour itself and the treatments used to treat their tumours and how this affects all aspects of their lives...
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Episode 17 - Spotlight on 'How I use BRIAN'

Let's Talk About Brain Tumours - February 22, 2022 09:00 - 16 minutes
In this episode Chandos talks to Nicola about how she uses the BRIAN app to help her manage some of the side effects of her diagnosis, including using it to track side effects, to remember when she has a seizure and to keep a record so she can show her husband, family members and also her medica...
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Episode 16 - A Parent's Experience part 2 - Moving forward and looking to the future

Let's Talk About Brain Tumours - February 15, 2022 07:00 - 38 minutes
In the second part of our interview with Kerry, she talks about life after treatment and moving forward to a new future.  Thinking about the services and support that have helped her and how having a brain tumour diagnosis can sometimes mean you are not always signposted to the right support. Y...
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Episode 15 - Part 1 - A Parent's Experience - Surviving Brain Surgery Day

Let's Talk About Brain Tumours - February 08, 2022 07:00 - 35 minutes
In this, the first of two episodes, myself and Sara Challice talk to Kerry, whose son Rowan was diagnosed with a brain tumour shortly after he was born.  Kerry share's what it's like from a parent's perspective seeing your child in distress when other people can't see anything wrong and the jour...
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Episode 14 - Spotlight on Coping At Christmas

Let's Talk About Brain Tumours - December 21, 2021 07:00 - 17 minutes
We know that whilst Christmas can and often is a great time of year, it can also bring with it some challenges if you are living with a brain tumour or caring for someone who has a tumour. In this episode, Cam, Chandos and Sara share some of the things they have found have helped them cope durin...
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Episode 13 - 3am Awake Club

Let's Talk About Brain Tumours - November 30, 2021 07:00 - 45 minutes
In this episode we talk to Andy Tudor about how being diagnosed with a meningioma 5 years ago has impacted his life.  Andy shares some of the creative solutions to some of the side effects of his tumour that he has come up with since his diagnosis, including how copes at night as he is unable to...
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Spotlight - Fundraising Events

Let's Talk About Brain Tumours - November 16, 2021 07:00 - 13 minutes
In this episode find out more about how the charity raises money for research into brain tumours and treatments as Chandos talks to  Sarah Castleman, Events Manager at the charity.  Sarah talks about how we had to change the way we had to do events in the wake of the Coronavirus pandemic, the im...
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Episode 12 - Spotlight On Fundraising Events

Let's Talk About Brain Tumours - November 16, 2021 07:00 - 14 minutes
In this episode find out more about how the charity raises money for research into brain tumours and treatments as Chandos talks to  Sarah Castleman, Events Manager at the charity.  Sarah talks about how we had to change the way we had to do events in the wake of the Coronavirus pandemic, the im...
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Episode 11 - Caring for a parent - a young persons perspective

Let's Talk About Brain Tumours - November 02, 2021 07:00 - 58 minutes
In this episode we talk to Kaj Mistry who was just 22 when her dad was diagnosed with a brain tumour.  Kaj had moved away from the family home and was just starting her life in a new city when she found out about her dads diagnosis. Kaj decided to move back home to help look after him.  Kaj shar...
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Episode 10 -Spotlight on Volunteering for the Charity

Let's Talk About Brain Tumours - October 19, 2021 06:00 - 11 minutes
In this episode Amie Frayne talks about her role as the Volunteer Development Manager and what a vital role volunteers play in just about every aspect of the charity.  Amie talks about the types of things volunteers can do at the charity from supporting at events to supporting on our social medi...
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Episode 9 - What's it like to get diagnosed as a child?

Let's Talk About Brain Tumours - October 05, 2021 06:00 - 41 minutes
In this episode we hear from Rosie who was diagnosed with a brain tumour when she was just 8 years old.  She shares what it was like to be a child going through treatment, how it affected her friendships, going to school and the long term impacts both mentally and physically of having a brain tu...
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Episode 8 - Spotlight on National Eye Health Week

Let's Talk About Brain Tumours - September 21, 2021 06:00 - 14 minutes
In this episode Chandos talks to Optical Engagement Manager Lorcan Butler about the importance of eye exams as these appointments can tell you much more about your overall health than just if you need to wear glasses.  Lorcan talks you through what happens at a typical appointment, what your o...
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Episode 8 - Spotlight on National Eye Health Week

Let's Talk About Brain Tumours - September 21, 2021 06:00 - 12 minutes
In this episode Chandos talks to Optical Engagement Manager Lorcan Butler about the importance of eye exams as these appointments can tell you much more about your overall health than just if you need to wear glasses.  Lorcan talks you through what happens at a typical appointment, what your o...
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Episode 7 - Finding your new 'normal' after a loved ones diagnosis

Let's Talk About Brain Tumours - September 07, 2021 06:00 - 52 minutes
In this episode, we talk to Diane Thomas about how a loved one's diagnosis changes life for everyone not just the person with the diagnosis and why creating a new 'normal' is so important. Diane talks about problem-solving and finding creative solutions to keep creating a new 'normal' as things ...
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Episode 6 - Spotlight on The Brain Tumour Charity app BRIAN

Let's Talk About Brain Tumours - August 24, 2021 07:00 - 16 minutes
In this Spotlight episode Chandos talks to Fiachra Woodman about BRIAN. BRIAN (the Brain tumouR Information and Analysis Network) is an online app which has been developed by The Brain Tumour Charity to help people cope with a brain tumour diagnosis. BRIAN can help you - and those supporting yo...
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Episode 6 - Spotlight on The Brain Tumour Charity app BRIAN

Let's Talk About Brain Tumours - August 24, 2021 07:00 - 17 minutes
In this Spotlight episode Chandos talks to Fiachra Woodman about BRIAN. BRIAN (the Brain tumouR Information and Analysis Network) is an online app which has been developed by The Brain Tumour Charity to help people cope with a brain tumour diagnosis. BRIAN can help you - and those supporting yo...
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Episode 5 - Memory with Sunil Reddy

Let's Talk About Brain Tumours - August 10, 2021 08:00 - 40 minutes
In this episode, we talk to Sunil Reddy about his diagnosis and the impact this has had on his life.  Sunil talks about how his memory has been affected due to his treatment and what this has been like for him both coming to terms with the long term effects of having a brain tumour but also how ...
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