Latest Brain tumor Podcast Episodes

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Episode 59 - Spotlight on Women in Neuroscience

Let's Talk About Brain Tumours - June 04, 2024 08:00 - 24 minutes
In this episode Anna talks to Anna Solth and Victoria Wyes about their experiences of being neurosurgeons and women in the field of neuroscience.  They share their passion for neuroscience and the work they are doing now and their plans for the future. Better Safe Than Tumour Money Advice Cli...
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Episode 58 - Hidden disabilities

Let's Talk About Brain Tumours - May 21, 2024 08:00 - 44 minutes
In this episode we meet Gavin Burden and Louise Worthington who have both been diagnosed with brain tumours, Gavin has been living with his brain tumour for 28 years after he was diagnosed at 21. Gavin and Louise have been friends for years so when Louise was diagnosed with a brain tumour in 201...
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Episode 57 - Spolight on Mental Health Support

Let's Talk About Brain Tumours - May 07, 2024 08:00 - 9 minutes
In this episode, Chandos talks to Beth Ryall, about the support available at the charity for people who are experiencing difficulties with their mental health following a brain tumour diagnosis. You can find out more about the support available here  Better Safe Than Tumour Money Advice Clinic
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Episode 56 - Rehabilitation for brain tumours

Let's Talk About Brain Tumours - April 23, 2024 08:00 - 45 minutes
In this episode, we talk to Anya Jones and Kaz Melvin about their experiences of rehabilitation.  Anya was diagnosed with a brain tumour and needed extensive rehabilitation after her diagnosis and treatment whilst Kaz has both personal and professional experience of brain tumours and rehab.  She...
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Episode 55 - Spotlight on Research into Glioblastomas

Let's Talk About Brain Tumours - April 09, 2024 08:00 - 16 minutes
In this episode, Chandos talks to one of our Future Leaders Dr Angel Alvarez-Prado. Angel is a highly accomplished researcher at the University of Lausanne in Switzerland where he is currently working on the innovative perspective of simultaneously targeting both cancer cells and their supportin...
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Episode 54 - Living with a rare brain tumour and Everest in the Alps

Let's Talk About Brain Tumours - December 05, 2023 09:00 - 50 minutes
In this episode, we talk to Alex, Katie and Martin.  At 20 Alex was diagnosed with a rare paediatric brain tumour DLGNT with limited treatment options his mum Katie did her own research into how best to help Alex, finding help and support internationally.  In February 2024 Martin, along with 3 o...
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Episode 53 -Using exercise as a form of therapy

Let's Talk About Brain Tumours - November 21, 2023 09:00 - 56 minutes
In this episode, we talk to Liam Young about his recovery from his brain tumour.  Liam tried the traditional route of counselling but found this wasn't for him but he found his perfect form of therapy through a personal trainer. Liam talks about how at 25 he had never prioritised his health, bu...
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Episode 52 - Ravi's Dream

Let's Talk About Brain Tumours - November 07, 2023 09:00 - 54 minutes
In this episode we talk to Bethan and Gbenga Adelekan who's son Ravi was diagnosed with a brain tumour when he was just 6 years old.  Despite this Ravi, now 8 has not let this stop him from using his experience to help others and also to continue to follow his own dreams! After his diagnosis an...
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Episode 51 - Spotlight on the Ways Ahead Research Project

Let's Talk About Brain Tumours - October 24, 2023 08:00 - 23 minutes
In this episode Anna and Chandos talk to Ben Rimmer, a research assistant at Newcastle University and the work they are doing on the quality of life of people diagnosed with low grade glioma's.  The Ways Ahead research project aims to understand more about the lived experience of people with low...
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Episode 50 - Life after losing a parent - Growing and Thriving

Let's Talk About Brain Tumours - October 10, 2023 08:00 - 42 minutes
In this episode Will Garrett talks about the death of his dad when he was just 11 and how this has shaped his life.  Will is now a Neuro Oncology Clinical Nurse Specialist, a career that was shaped by his experieces as a child where he now works with other families who are impacted by brain tumo...
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Episode 49 - Spotlight on the Children & Families Service

Let's Talk About Brain Tumours - August 08, 2023 06:00 - 14 minutes
In this episode Chandos talk with two of our Children and Families and Young Adults Workers Amy Watts and Jessie Poole  about the support that is available to families who have children under 18.  Some of the things mentioned in this episode include: Family Days Brainy Bags Online support gro...
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Episode 48 - (TW) Coming to terms with change

Let's Talk About Brain Tumours - July 25, 2023 07:00 - 30 minutes
(Trigger Warning)  In this episode - Benj talks about the impact of his daughter Ivy's diagnosis and coming to terms with the changes this has brought to both Ivy and their lives as a family.  He talks about the impact on mental health and the impact of trauma that parents and loved ones experie...
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Episode 47 - Spotlight on Young Adult Masquerade Ball

Let's Talk About Brain Tumours - July 11, 2023 12:00 - 15 minutes
In May this year, we hosted not only our first in-person Young Adult event since Covid but our first ever Masquerade Ball.  Anna and Chandos, explain why events like this are so crucial to young people whose lives have been affected by a brain tumour diagnosis.  We also hear from other young adu...
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Episode 47 - Spotlight on Young Adults Masquerade Ball

Let's Talk About Brain Tumours - July 11, 2023 12:00 - 16 minutes
In May this year, we hosted not only our first in-person Young Adult event since Covid but our first ever Masquerade Ball.  Anna and Chandos, explain why events like this are so crucial to young people whose lives have been affected by a brain tumour diagnosis.  We also hear from other young adu...
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Episode 46 - (TW) 'Your child has a brain tumour'

Let's Talk About Brain Tumours - June 27, 2023 06:00 - 56 minutes
(Trigger Warning)  In this episode - Benj talks us through every parent's worst nightmare, from the moment he and his wife Sarah were told their 4 year old daughter Ivy had a mass in her brain to where they are now as a family 18 months later.  This episode contains conversations that some peo...
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Episode 45 - Mummy has a lump

Let's Talk About Brain Tumours - June 13, 2023 06:00 - 34 minutes
 If you are a parent who has recieved a brain tumour diagnosis, telling your children can be one of the hardest things to do.  In this episidode we talk to Simone Baldwin, the author of the book 'Mummy has a lump' which she wrote after recieving her own brain tumour diagnosis and struggled to fi...
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Episode 44 - Spotlight on Ahead of the Game Foundation

Let's Talk About Brain Tumours - May 31, 2023 08:00 - 19 minutes
In this episode Anna talks to Dave Bolton, founder of Ahead of the Game Foundation which aims to provide much needed rehabilitation services to cancer patients. Dave talks about what led him to creating Ahead of the Game and what services they provide. You can find out more about Ahead of the ...
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Episode 43 - Headaches and Brain Tumours

Let's Talk About Brain Tumours - May 09, 2023 09:00 - 47 minutes
In this episode, we talk to Imelda and Rebecca who both experienced headaches caused by their brain tumours. They share how these were often dismissed by GPs and not taken seriously despite also having a range of other symptoms which were all indications that something wasn't right and needed lo...
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Episode 42 - Spotlight on Family Led Partnerships

Let's Talk About Brain Tumours - April 25, 2023 18:00 - 15 minutes
In this episode we talk to Phoebe Day our Gifts and Partnerships Manager at the charity.  She explains what family led partnerships are, the different types and why they are so important to the charity.  Family led partnerships are so much more than just rasing money for the charity as Phoebe ex...
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Episode 41 - PCV Chemotherapy

Let's Talk About Brain Tumours - March 30, 2023 15:00 - 47 minutes
In this episode, we talk to Sarah and Patrick about their experience taking the chemotherapy drug PCV.  They explain what taking this chemotherapy regime is like, what side effects they experienced, dietary restrictions, hair loss, and more. You can find out more about chemotherapy here and if ...
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Episode 40 - Spotlight on TIME, using art to tell stories of brain tumours

Let's Talk About Brain Tumours - March 23, 2023 15:00 - 16 minutes
In this episode, we talk to Hannah Waldron about the TIME Art Exhibition . The exhibition will feature photographs, illustrations, paintings, scans and sculptures submitted by the community to help tell the stories of those affected by a brain tumour, as well as artwork from upcoming and renown...
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Episode 39 - Caring beyond a brain tumour

Let's Talk About Brain Tumours - March 07, 2023 12:00 - 46 minutes
In this episode we talk to Elizabeth and Julia the hosts of the podcast 'On a good day'  about their experiences of caring for their partners who both live with the impacts of brain injury.  Elizabeth's husband Paull had a stroke when he was just 38 and Julia's husband Hector had a subarachnoid ...
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Episode 38 - Spotlight on getting benefits and money advice (UK)

Let's Talk About Brain Tumours - February 21, 2023 07:00 - 10 minutes
In this episode, Chandos talks to Denise one of our benefits advisers.  Through talking to our community we know the financial impact of a brain tumour diagnosis can be huge and cause a great deal of stress and anxiety so we partnered with Citizens Advice to provide support and information aroun...
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Episode 37 - Brain Tumours and Seizures

Let's Talk About Brain Tumours - February 07, 2023 10:00 - 37 minutes
In this episode we talk to e people, Jess, Reece and Kate about the impact seizures have on their lives, from being the first sign there was something wrong to the day to day challenges of managing their seizures.   We talk about the different types of seizures and how medication can help to ge...
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Episode 36 - Spotlight on Involvement Champions

Let's Talk About Brain Tumours - January 17, 2023 07:00 - 25 minutes
In this episode, Neil Munn and Donald Innes talk about their time as Involvement Champions for the charity.  They share what being an Involvement Champion means, not just in terms of their role and what they have done as Involvement Champions but also what it has meant to them personally and the...
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Episode 35 - Christmas - Caring for or coping with the loss of a loved one

Let's Talk About Brain Tumours - December 20, 2022 07:00 - 22 minutes
We know that Christmas can be a difficult time for people who are caring for a loved one with a diagnosis, whether this is your first Christmas since the diagnosis or you are worried this may be your last. We also know that for some of you this may be a time of remembering a loved one you have l...
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Episode 35 - Christmas - Caring for or coping with the loss of a loved one

Let's Talk About Brain Tumours - December 20, 2022 07:00 - 23 minutes
We know that Christmas can be a difficult time for people who are caring for a loved one with a diagnosis, whether this is your first Christmas since the diagnosis or you are worried this may be your last. We also know that for some of you this may be a time of remembering a loved one you have l...
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Episode 34 - Living with a Brain Tumour At Christmas

Let's Talk About Brain Tumours - December 08, 2022 16:00 - 27 minutes
In this episode, we talk about some of the challenges of having a brain tumour over the festive season.  For some of you, this might be your first Christmas since receiving your diagnosis and have mixed feelings about the impending festivities.  The team share some personal experiences of how ha...
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Episode 33 - Spotlight On Our Young Ambassadors - Making Positive Changes

Let's Talk About Brain Tumours - November 22, 2022 15:00 - 27 minutes
In this episode, Anna talks to fellow young ambassadors Rhudi and Victoria about the Young Ambassador Program which is a 2-year program tum by the charity for young people aged 18 - 25.  They talk about what made them want to become ambassadors for the charity and some of the great things they h...
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Episode 32 - How to prepare for the death of a loved one

Let's Talk About Brain Tumours - November 01, 2022 09:00 - 46 minutes
In this episode, we're joined again by Sacha Langton-Gilks to talk about how to prepare for the death of a loved one and explore what it means to give someone a good death and help them die well. Trigger warning:  In this episode, we do talk about the final stages of death and some of the physi...
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