Your Story Our Fight by Lupus LA artwork

Your Story Our Fight by Lupus LA

69 episodes - English - Latest episode: 14 days ago - ★★★★★ - 10 ratings

Lupus LA enters the fastest growing media market with the new Your Story Our Fight® podcast which will give a voice to lupus patients while continuing Lupus LA’s mission to raise lupus awareness worldwide. Hosted by the Chairman of Lupus LA and lupus patient himself, Adam Selkowitz, patients from all walks of life will share stories about their unique lupus journeys. With a focus on inspiration and hope, Lupus LA’s podcast will provide support and optimism to a patient community looking for assurance that they are not alone.

Self-Improvement Education lupus lupus la autoimmune autoimmune disease lupus podcast lupus advocacy
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Episodes

Season 3 | Episode #17 with Board member of the Lupus Research Alliance, Lupus Advocate and Lupus Patient, Molly McCabe

June 11, 2024 18:00 - 25 minutes - 17.8 MB

Season THREE Episode SEVENTEEN of the Your Story Our Fight® podcast welcomes Molly McCabe. Molly McCabe began her career at the young age of 16 when she joined the inaugural board for the Kids Making Miracles program at Doernbecher Children’s Hospital. She also was part of the founding family that created Potluck in the Park in 1993 where she served the homeless every Sunday for three years.  Molly worked as a CASA and served on the Family Council of the Scripps family. Molly and her mother,...

Season 3 | Episode #16 with Advocate, Educator, and Founder of Lupus In Color, Racquel Dozier

May 28, 2024 18:00 - 30 minutes - 20.9 MB

Season THREE Episode SIXTEEN of the Your Story Our Fight® podcast welcomes Racquel Dozier. Racquel H. Dozier is a passionate lupus advocate, educator, and the founder of Lupus In Color. Her mission is to educate, inspire, encourage, and empower lupus warriors and their supporters worldwide. Through Lupus In Color, Racquel advocates for lupus warriors one butterfly at a time, striving to make a positive impact in the lives of those affected by lupus. 

Season 3 | Episode #15 with Spoken Word Poet, Singer, Education Consultant, and Lupus Patient, Shanelle Gabriel

May 14, 2024 18:00 - 31 minutes - 21.9 MB

Season THREE Episode FIFTEEN of the Your Story Our Fight® podcast welcomes Shanelle Gabriel. Shanelle Gabriel is a spoken word poet, singer, education consultant, and lupus warrior from Brooklyn, NY. She has shared her fusion of poetry and soulful singing in esteemed venues from The Vatican to Lincoln Center, and has penned and featured in national poetry campaigns with Pandora Music, NFL Draft, and more. With over 18 years as an educator, she uses the arts to facilitate workshops on creatin...

Season 3 | Episode #14 with Founder and Chief Executive Officer of LupusChat, Tiffany Peterson

April 23, 2024 18:00 - 27 minutes - 19.3 MB

Season THREE Episode FOURTEEN of the Your Story Our Fight® podcast welcomes Tiffany Peterson. Tiffany is a New York City-based patient advocate whose inspiration arose from her battles within the healthcare system following her diagnosis of systemic lupus erythematosus in 2010. She is the Founder and Chief Executive Officer of LupusChat, a patient/caregiver-driven online community established in 2012 designed to educate all entities in the healthcare sector sparking innovative discussions an...

Season 3 | Episode #13 with Artist, Mother and Lupus Advocate, Donna Jordan

April 09, 2024 18:00 - 39 minutes - 27.2 MB

Season THREE Episode THIRTEEN of the Your Story Our Fight® podcast welcomes Donna Jordan. Born in the vibrant city of Newark, NJ in 1956, Donna emerged as an artist nurtured by the rich tapestry of culture and creativity surrounding her. From an early age, her parents encouraged her artistic freedom, leading her to immerse herself in every art program Newark had to offer. Donna's journey began with humble yet impactful beginnings, as she adorned church walls with thematic murals and painted ...

Season 3 | Episode #12 with Graphic Designer, Influencer and Lupus Patient, Seda Bryant

March 26, 2024 18:00 - 34 minutes - 23.6 MB

Season THREE Episode TWELVE of the Your Story Our Fight® podcast welcomes Seda Bryant.  Seda Bryant is an overcomer, mother, graphic designer, storyteller & influencer. She’s using her gifts to turn pain into purpose. She created the first digital stickers for all social media platforms for stories, video reels, Tik Toks & Snaps for Lupus Awareness Month, World Lupus Day and to spread lupus awareness every day. They have amassed 2 million uses and views in less than a year. On Instagram @Ove...

Season 3 | Episode #11 with Realtor, Salon Owner, Philanthropist and Lupus Patient, Kim Peacock

March 12, 2024 18:00 - 1 hour - 48 MB

Season THREE Episode ELEVEN of the Your Story Our Fight® podcast welcomes Kim Peacock. Realtor, Salon Owner, Philanthropist, wife, and mother of four amazingly beautiful children. Kim was diagnosed with Lupus in 2008, Rheumatoid Arthritis in 2019, just to name a few life altering chronic illnesses. Kim, age 53, was born and raised in Santa Monica CA and currently resides in the Phoenix AZ metro area.

Season 3 | Episode #10 with Certified Holistic Nutritionist, Autoimmune Nutrition Specialist, Fitness Coach, Forager and Lupus Patient, Genny Mack

February 13, 2024 19:00 - 30 minutes - 21.2 MB

Season THREE Episode TEN of the Your Story Our Fight® podcast welcomes Genny Mack. Genny Mack’s mission is to empower women to redefine what ‘eating good’ means and to thrive by prioritizing the whole self. Genny transformed her overall well-being, after being diagnosed with lupus and kidney nephritis, by transitioning to eating whole nourishing foods from mother mature and by practicing mindfulness, and now has more mental clarity, energy and purpose than ever before. This led her to become...

Season 3 | Episode #9 with Student, Lupus Advocate and Lupus Patient, Sam Gehrls

January 23, 2024 19:00 - 29 minutes - 20.4 MB

Season THREE Episode NINE of the Your Story Our Fight® podcast welcomes Samantha Gehrls. Samantha Gehrls is a Lupus fighter and advocate who resides in Phoenix, Arizona. Sam is 27 years old and was diagnosed with Lupus when she was 25, but has been sick since she was 20. Sam is passionate about helping others get through difficult times and diagnosis, as she wants to spread the word to not give up! Through eastern and western medicine, Sam has regained so much of her life back and now is on ...

Season 3 | Episode #8 with Author and Lupus Patient, Amanda Chay with Professional in Sports Management and Lupus Patient, Ahnna Chay

January 09, 2024 19:00 - 31 minutes - 21.5 MB

Season THREE Episode EIGHT of the Your Story Our Fight® podcast welcomes Amanda and Ahnna Chay. Amanda Chay is a lupus warrior and author of “The Girlfriend’s Guide to Lupus”. Her book serves as a beacon of hope for women grappling with lupus, providing practical, health-focused steps that empower them to prioritize their well-being. Amanda's oldest daughter, Ahnna, also navigates life with lupus while working in professional sports management. Together, as this dynamic mother-daughter lupus...

Season 3 | Episode #7 with Student and Lupus Patient, Eve McAusland & CPA and Mother Margi McAusland

December 12, 2023 19:00 - 25 minutes - 17.2 MB

Season THREE Episode SEVEN of the Your Story Our Fight® podcast welcomes Eve and Margi McAusland. Eve is a 15 year old sophomore at Notre Dame Academy who has had lupus sense she was 13. Her mom, Margi, is a CPA and has had Sjogrens since 2019. Eve has been working through her diagnosis by finding ways to take care of herself through her web of support including her family, friends, doctors and lupus LA. While her journey has been hard she looks forward to being able to share it with others ...

Season 3 | Episode #6 with Influencer, Healthcare Worker and Lupus Patient, Sharan Singh

November 21, 2023 19:00 - 27 minutes - 18.8 MB

Season THREE Episode SIX of the Your Story Our Fight® podcast welcomes Sharan Singh. Sharan is a twenty-three year old UC Irvine graduate, a current healthcare worker, Content Creator on TikTok, Lupus Advocate/Warrior and a future Physician Assistant. Sharan is passionate about working in the field of Rheumatology in the future as a healthcare provider. She has implemented holistic healing into her own health journey and is an advocate for holistic healing for Lupus patients as it has helped...

Season 3 | Episode #5 with EVP of Drama Series at NBCUniversal and Lupus Patient, Cara Dellaverson

November 14, 2023 19:00 - 36 minutes - 25.1 MB

Season THREE Episode FIVE of the Your Story Our Fight® podcast welcomes Cara Dellaverson. Cara Dellaverson joined NBC in 2015 as Senior Vice President of Drama Development and was promoted to Executive Vice President for the network in 2018. In 2020 she was elevated to EVP of Drama Series across all platforms including NBC, Peacock, USA and SYFY. In this role she currently oversees development and current programming across all platforms and manages both teams of executives alongside co-depa...

Season 3 | Episode #4 with Model, Actress, Lupus Patient & Advocate, Kay Daniels

October 24, 2023 18:00 - 27 minutes - 18.6 MB

Season THREE Episode FOUR of the Your Story Our Fight® podcast welcomes Kay Daniels. Kay is a 25 year old independent model & actress, Lupus patient and advocate. At the age of 14, Kay was diagnosed with Lupus SLE. It has always been an aspiration of Kay's to have the opportunity of sharing my story with the world, to better relate with other young girls like herself. Kay wants to show them that all things are possible, and that Lupus does not define them, no matter how much it may feel that...

Season 3 | Episode #3 with Yoga Athlete, Instructor, Model, Influencer, Lupus Patient & Advocate, Victoria Gibbs

October 10, 2023 18:00 - 28 minutes - 19.4 MB

Season THREE Episode THREE of the Your Story Our Fight® podcast welcomes Victoria Gibbs. Victoria began practicing yoga ten years ago and from the first time that she stepped onto her mat, her passion was evident; shaping her into the woman she is today. Victoria is a Dartmouth College graduate, a former financier turned health and wellness entrepreneur, she is also a full time yoga athlete, instructor, model, influencer, digital content creator, and lupus warrior. Victoria genuinely believe...

Season 3 | Episode #2 with Founder and CEO of Bare Bodhi & Lupus Patient, Ashley Greene

September 26, 2023 18:00 - 23 minutes - 15.9 MB

Season THREE Episode TWO of the Your Story Our Fight® podcast welcomes Ashley Greene. Ashley Greene is the Founder and CEO of Bare Bodhi.  Growing up in a salon with a hairdresser mother, Ashley developed a passion for beauty early on.  While assisting one of the biggest names in the industry, Ashley was diagnosed with lupus, which prompted her to embark on a mission to promote both internal and external wellness.  Her love for long nails and soft skin led her to create a patented flagship p...

Season 3 | Episode #1 with Cyber Security Program Manager, Board Member of EMT Advisory Board, Lupus Advocate & Lupus Patient, Shamekka Marty

September 12, 2023 18:00 - 29 minutes - 20.1 MB

Season THREE Episode ONE of the Your Story Our Fight® podcast welcomes Shamekka Marty. In 2012, Shamekka was diagnosed with Lupus, Scleroderma, Mixed Connective Tissue Disease, Reynaud’s, and Sjogren’s Syndrome. Shamekka seeks to motivate others who are in the same boat as her. She speaks on various public platforms, has a blog, a vlog , provides career counseling, and more to help Lupus patients in their journey. She currently resides in the Bay Area in California with her husband and three...

Season 2 | Episode #24 with Lupus Advocate and Lupus Patient, Emmitt Henderson III

June 13, 2023 18:00 - 26 minutes - 18.4 MB

Season TWO Episode TWENTY-FOUR of the Your Story Our Fight® podcast welcomes Emmitt Henderson III. Emmitt Henderson III was diagnosed with Systemic Lupus and Lupus Nephritis in 1995 but had symptoms going back to 1980. Through the years, he has endured major complications from heart, liver, kidney and lung failures, avascular necrosis that led to a shoulder and knee replacement. He had a clinical trial, bone marrow stem cell transplant; he was on oxygen due to his lung failure and had a kidn...

Season 2 | Episode #23 with Social Media Influencer and Lupus Patient, Samantha Boothe

May 23, 2023 18:00 - 27 minutes - 18.9 MB

Season TWO Episode TWENTY-THREE of the Your Story Our Fight® podcast welcomes Samantha Boothe. Samantha was diagnosed with lupus at the age of 14, and she has been sharing her journey with lupus online since 2010. Her main goal is to create relatable and informative content to empower anyone navigating life with chronic illness. When Samantha was diagnosed with lupus, she searched the internet for someone to relate to but had trouble finding any resources. This realization pushed Samantha to...

Season 2 | Episode #22 with Attorney, Author, Patient Advocate and Lupus Patient, Olga Luca Torres

May 09, 2023 18:00 - 39 minutes - 27.3 MB

Season TWO Episode TWENTY-TWO of the Your Story Our Fight® podcast welcomes Olga Lucia Torres. A few years after law school, Olga was diagnosed with lupus and eventually the doctors found she had 4 other autoimmune diseases. Olga's health has never stopped her from following her dreams and attending Cornell University and Georgetown University Law School on scholarships. In August of 2000, Olga went to the hospital for routine medical care. She was supposed to be discharged in 2 to 3 days. I...

Season 2 | Episode #21 with Medical Writer and Lupus Patient, Melissa Walker

April 25, 2023 18:00 - 33 minutes - 23.1 MB

Season TWO Episode TWENTY-ONE of the Your Story Our Fight® podcast welcomes Melissa Walker. Melissa is a Medical Writer, with a biomedical research background focusing on traumatic spinal cord injury and traumatic brain injury. She earned her Ph.D. in Medical Neuroscience from Indiana University School of Medicine before returning to UCLA department of Neurosurgery, for postdoctoral research. She was diagnosed with Graves’ thyroid disease in 2002, and has had Hashimoto’s since 2003, after ra...

Season 2 | Episode #20 with Lupus LA Board Member, Lupus Advocate and Lupus Patient, Stacey Uberstine

April 11, 2023 18:00 - 30 minutes - 20.8 MB

Season TWO Episode TWENTY of the Your Story Our Fight® podcast welcomes Stacey Uberstine. Stacey graduated from California State University Northridge in 1990 with a bachelor of science degree in Health Administration with a computer science minor.  One of her most notable jobs was helping to establish the Industrial Care Center which is operational at San Pedro Hospital.  In 1993 Stacey transitioned into the insurance industry where she owned and operated her own State farm Agency for over ...

Season 2 | Episode #19 with Actress, National Spokesperson for the Autoimmune Association, Author and Lupus LA Ambassador, Kellie Martin

February 28, 2023 19:00 - 34 minutes - 23.6 MB

Season TWO Episode NINETEEN of the Your Story Our Fight® podcast welcomes Kellie Martin. Kellie began acting at the age of seven. She is most fondly remembered for playing Becca Thacher on the groundbreaking ABC family drama Life Goes On, for which she received an Emmy nomination. And, her portrayal of Lucy Knight, a precocious med student who met an untimely demise after two seasons on NBC’s ER, haunts viewers to this day. Kellie has been a been a regular on numerous series including, The G...

Season 2 | Episode #18 with Lupus Patient and Policy, Advocacy and Mobilization Manager for SisterLove, Inc., J. Christopher Reed

February 14, 2023 19:00 - 43 minutes - 29.7 MB

Season TWO Episode EIGHTEEN of the Your Story Our Fight® podcast welcomes J. Christopher Reed. Christopher Reed was diagnosed with lupus in 1990 at the age of 16. Despite several serious attacks to his organ system, he earned a bachelor’s degree with honors from the Georgia State University and a law degree from Tulane University. He managed his first job out of law school juggling lupus nephritis and horrible chemotherapy treatments.  After an 18 year career in litigation, Christopher has d...

Season 2 | Episode #17 with Special Education Teacher, Mother and Lupus Patient, Alma Torres

January 24, 2023 19:00 - 44 minutes - 30.4 MB

Season TWO Episode SEVENTEEN of the Your Story Our Fight® podcast welcomes Alma Torres. Alma is in her twelfth year working in education. Alma was diagnosed with lupus in the summer of 2009. In 2014, her younger sister was diagnosed with lupus. She went from lupus patient to lupus patient/care giver. In 2020, Alma's sister lost her battle with lupus. Since her passing, Alma has struggled with staying healthy, but no matter how she physically feels, she is thankful she gets to experience anot...

Season 2 | Episode #16 with Lupus Patient, Valerie Gilkey with Dancer & Daughter, Marcella Lewis

January 10, 2023 19:00 - 34 minutes - 23.7 MB

Season TWO Episode SIXTEEN of the Your Story Our Fight® podcast welcomes Valerie Gilkey and Marcella Lewis. Valerie Gilkey is a 55 year old woman suffering with SLE. She was diagnosed at the early age of 19. Despite doctors advising her of the dangers to her life as well as her child’s, with faith she gave birth to one daughter,  Marcella Lewis.  Even though it was a challenge, Marcella was trained from the early age of 4 in all disciplines of dance, and is now  a world renowned dancer.  Tod...

Season 2 | Episode #15 with Lupus Coach, Executive Director of Gibson Lupus ARC and Lupus Patient, Zuriel Gibson

December 13, 2022 19:00 - 28 minutes - 19.4 MB

Season TWO Episode FIFTEEN of the Your Story Our Fight® podcast welcomes Zuriel Gibson.  Zuriel received her Lupus diagnosis and was told that she wouldn’t live past the age of twenty-four. After many bouts with depression, pain, addictions and hospital stays, she became discontent and decided to use her pain to propel her into purpose. As a lupus survivor and advocate, she has become a much sought after speaker. Her message, “There is purpose in your pain”, has been shared on numerous media...

Season 2 | Episode #14 with Model, Influencer, Activist and Lupus Patient, Cambria Francesca

November 22, 2022 19:00 - 27 minutes - 18.8 MB

Season TWO Episode FOURTEEN of the Your Story Our Fight® podcast welcomes Cambria Francesca. Life plans were sidelined when she woke up one night to an excruciating pain. A constant pain that she has now grown so accustom to that she no longer remembers what it felt like to be painless. Having a sister with SLE and a father with Discoid, Cambria's mother knew that there’s 11 criteria for a Lupus diagnosis and that a low white blood cell count falls under one of them. They ran tests and confi...

Season 2 | Episode #13 with Biomedical Scientist, TEDx Speaker, Adjunct Professor and Lupus Patient, Judith Mills

November 08, 2022 19:00 - 32 minutes - 22.2 MB

Season TWO Episode THIRTEEN of the Your Story Our Fight® podcast welcomes Judith Mills. Judith Mills is a Biomedical scientist, a TEDx speaker, an adjunct professor, lupus & disability advocate. October 1999, Judith's Lupus diagnosis was a relief after 3 years of constant doctors visit with symptoms of fatigue, loss of appetite, body aches, and hair loss. It shattered her dreams of being a beauty pageant queen, a modern dancer, and the next Flo-Jo.  Judith has been featured on online platfor...

Season 2 | Episode #12 with High School Student and Lupus Patient, Lexi Hamburger

October 25, 2022 18:00 - 31 minutes - 21.4 MB

Season TWO Episode TWELVE of the Your Story Our Fight® podcast welcomes Lexi Hamburger. Lexi Hamburger is a high school student and lupus patient. Lexi was diagnosed with lupus two years ago. For the past year, she has been sharing her experiences navigating high school with a chronic illness. In her free time, she enjoys spending time with her family and friends, skiing, and golfing.

Season 2 | Episode #11 with Abstract Artist, Visual Communicator and Lupus Patient, Fatema Siddiki

October 11, 2022 18:00 - 29 minutes - 20 MB

Fatema Siddiki is an Abstract Artist and a visual communicator. After being diagnosed with Lupus and Scleroderma in 2007, her life took a miraculous turn.  Art was there for Fatema when no one was, it helped her overcome her worst days when she was fighting against Lupus. Art soon became her therapy and purpose to fight. 

Season 2 | Episode #10 with Property Manager and Lupus Patient, Raven Lexime

September 27, 2022 18:00 - 29 minutes - 20.1 MB

Season TWO Episode TEN of the Your Story Our Fight® podcast welcomes Raven Lexime.  Raven Lexime currently live and works in the Inland Empire.  Raven has worked retail most her life and transition into property management in late 2003. When Raven is not working, she enjoys traveling and spending time with close family and friends.  Raven is Lupus Patient. She hopes to continue helping support organizations that focus on treatment research and support groups within the Lupus Community.

Season 2 | Episode #9 with Correctional Officer and Photographer, Teri Scott with Author and Magazine Owner, Demetria Buie

September 13, 2022 18:00 - 28 minutes - 19.4 MB

Season TWO Episode NINE of the Your Story Our Fight® podcast welcomes Teri Scott and Demetria Buie. Teri T. McIntyre-Scott is a 43 year a mother of two who lives in Clewiston, Florida. She is a certified correctional officer and has been on the job for almost 20 years. She also has her own photography business, T'Shots Photos. She has been battling lupus for 25 years but refuses to let it slow her down.  Demetria Buie is a Businesswoman, Author, Mentor, & Magazine Owner who lives in the Loui...

Season 2 | Episode #8 with Legendary Producer, Lauren Shuler Donner

August 30, 2022 18:00 - 33 minutes - 23.1 MB

Season TWO Episode EIGHT of the Your Story Our Fight® podcast welcomes Lauren Shuler Donner. Lauren Shuler Donner has produced many films, including Pretty in Pink, Free Willy, St Elmo’s Fire, Dave, You’ve Got Mail,  Secret Life of Bees, and nine X-men movies.  She was also an Executive Producer on another seven films and five tv shows including “Legion." Lauren has been honored with a star on Hollywood Blvd. and has received her honorary Doctorate from Boston University.

Season 2 | Episode #7 with Writer, Producer, Director and Lupus Patient, Nzingha Stewart

August 09, 2022 18:00 - 31 minutes - 21.8 MB

Season TWO Episode SEVEN of the Your Story Our Fight® podcast welcomes Nzingha Stewart. Nzingha Stewart attended NYU’s Gallatin School and upon graduation went on to shoot over a hundred music videos for artists like Common, Eve, Jay-Z, and 50 Cent breaking down barriers for women of color in the music video world along the way. An equally in-demand commercial director, Nzingha has also filmed clips for ESPN, McDonald’s, and Coors Light among others. Having recently directed episodes of Litt...

Season 2 | Episode #6 with Chronic Illness and Lupus Patient, Mother, Wannabe Gardener Krissy Stephenson

July 26, 2022 18:00 - 35 minutes - 24.5 MB

Season TWO Episode SIX of the Your Story Our Fight® podcast welcomes Krissy Stephenson. Krissy has been living with chronic illnesses for over 12 years. Her full time job is managing her health and household with a  supportive husband, two boys and 2 dogs.

Season 2 | Episode #5 with Patient Advocate and Lupus Patient, Lauren Fenty

July 12, 2022 18:00 - 25 minutes - 17.4 MB

Season TWO Episode FIVE of the Your Story Our Fight® podcast welcomes Lauren Fenty. Lauren's Lupus journey began in 2013. She has experience in Healthcare primarily focused on Patient Advocacy and Clinical informatics. Her passion is to promote awareness for Lupus. 

Season 2 | Episode #4 with Founder and CEO of Gemini Beauty Products, Joann Zehenni and Director of TeachPlayLern & Lupus Patient, Jennifer Zehenni

June 28, 2022 18:00 - 40 minutes - 27.6 MB

Season TWO Episode FOUR of the Your Story Our Fight® podcast welcomes sisters Joann and Jennifer Zehenni. Joann Zehenni is a 17-year-old entrepreneur and the founder and CEO of Gemini Beauty. Having family members with lupus, and having borderline lupus herself, Joann was inspired to develop Gemini Beauty to accommodate those in need of clean, natural skincare products. A native Angeleno, Joann will be attending Loyola Marymount University in August 2022 while running her business and advoca...

Season 2 | Episode #3 with Model and Actress, Abby Mooring and her Mother, Tina Allen, a Lupus Patient

June 14, 2022 18:00 - 25 minutes - 17.6 MB

Season TWO Episode THREE of the Your Story Our Fight® podcast welcomes Abby Mooring and Tina Allen.  Abby and Tina are from North Carolina. Abby moved across the country to Los Angeles last August to continue her modeling and acting careers. Abby has worked on editorials for New York Fashion Week, London Fashion Week, and multiple commercial, TV, film and voice acting roles. Tina Allen has been a Lupus Patient for seven years. Abby is working to advocate for her mother and bring more awarene...

Season 2 | Episode #2 with Advisory Council Char at ReelAbilities, Owner of Snugs & Sweets and Lupus Patient, Jordana Sandler Manzano

May 24, 2022 18:00 - 30 minutes - 21.1 MB

Season TWO Episode TWO of the Your Story Our Fight® podcast welcomes Jordana Sandler Manzano. Jordana Sandler Manzano, a trained chef, has worked in restaurants and event planning, volunteers for other organizations, and is raising three children with her husband, David. She enjoys putting her culinary degree to work baking challah and other sweet treats for family and friends, and recently began her own business, Snugs & Sweets. Jordana has been involved in many areas of the Marlene Meyerso...

Season 2 | Episode #1 with Lupus Advocate, Elizabeth SantaCruz and Lupus Patient, Mia SantaCruz

May 10, 2022 18:00 - 24 minutes - 16.9 MB

Season TWO Episode ONE of the Your Story Our Fight® podcast welcomes Elizabeth and Mia SantaCruz. Elizabeth became a passionate advocate for raising Lupus Awareness after her daughter was diagnosed with lupus at the young age of 8. As a parent and caregiver, she was invited by to participate as a Lupus Advocate at the Annual Advocacy Meeting and Hill Day in Washington D.C. to meet with Congressional members and their staff to discuss the support for Lupus research.

Episode #26 with Director, Actress, and Writer, Nell Teare

February 22, 2022 19:00 - 31 minutes - 21.8 MB

Episode TWENTY-SIX of the Your Story Our Fight® podcast welcomes Nell Teare. Nell Teare is a Lupus patient, award winning writer, producer, actress and director of over 120 projects including more than a dozen foreign language dubs for Netflix. 

Episode #25 with Artist, Author and Lupus Advocate, Emily Suñez

February 08, 2022 19:00 - 33 minutes - 22.9 MB

Episode TWENTY-FIVE of the Your Story Our Fight® podcast welcomes Emily Suñez. Emily Suñez is a Lupus patient, artist and author of her new book, The Healing Journal.

Episode #24 with Founder of Lupus Kids and Lupus Patient, Lola Kark

January 25, 2022 19:00 - 24 minutes - 16.8 MB

Episode TWENTY-FOUR of the Your Story Our Fight® podcast welcomes Lola Kark. Lola Kark is a Lupus patient, Founder of Lupus Kids and High School student. 

Episode #23 with Photographer, Student and Lupus Patient, Jacqueline Stewart

January 11, 2022 19:00 - 27 minutes - 18.7 MB

Episode TWENTY-THREE of the Your Story Our Fight® podcast welcomes Jacqueline Stewart. Jacqueline Stewart is a Lupus patient, photographer and student. 

Episode #22 with Holistic Health Coach and Lupus Advocate, Cristy Powers

December 21, 2021 19:00 - 28 minutes - 19.7 MB

Episode TWENTY-TWO of the Your Story Our Fight® podcast welcomes Cristy Powers. Cristy Powers is a Lupus patient, Lupus advocate, Holistic Health Coach and Author.

Episode #21 with Yoga Instructor and Lupus Advocate, Vee Desai Gomez

November 23, 2021 19:00 - 30 minutes - 20.7 MB

Episode TWENTY-ONE of the Your Story Our Fight® podcast welcomes Vee Desai Gomez. Vee Desai Gomez is a Lupus patient, Lupus advocate, Owner and Lead Instructor at Beach Yoga SoCal. 

Episode #20 with Teacher and Lupus Advocate, Vania Dzib

November 09, 2021 19:00 - 30 minutes - 20.7 MB

Episode TWENTY of the Your Story Our Fight® podcast welcomes Vania Dzib. Vania Dzib is a Lupus patient, Lupus advocate and teacher. 

Episode #19 with Author and Registered Nurse, Sagree Naiker

October 19, 2021 18:00 - 30 minutes - 21.2 MB

Episode NINETEEN of the Your Story Our Fight® podcast welcomes Sagree Naiker. Sagree Naiker is a Lupus patient, registered nurse and author of her autobiographical book The Show Must Go On.

Episode #18 with National Television Producer and Publicist, Tricia McCrone

October 05, 2021 18:00 - 32 minutes - 22 MB

Episode EIGHTEEN of the Your Story Our Fight® podcast welcomes Tricia McCrone. Tricia McCrone is a Lupus patient, television producer and publicist for entertainer Wayne Newton.