Unheard of
7 episodes - English - Latest episode: over 2 years ago - ★★★★★ - 2 ratingsWhat causes endometriosis? Why can endometriosis be so painful? Will there ever be a cure? This short podcast series seeks answers to some of the biggest questions posed by the endometriosis community.
Danielle and Magda, PhD researchers at the University of Oxford, produce this podcast to raise endometriosis awareness and make the research done in the field accessible to everyone. They are especially keen on elevating the voices that often go unheard – the voices of people with endometriosis and early-career specialists & researchers in the field.
Tune in to learn more about endometriosis; a condition that affects 1 in 10 people born with a uterus.
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Episodes
What research in endometriosis is ongoing?
February 28, 2022 22:09 - 1 hour - 107 MBIn this episode, we are joined by Dr Mira Mousa, Dr Nilüfer Rahmioğlu and Ulrik Bak Kirk. With Mira, we explore studying endometriosis and reproductive health amongst Arab women in the Middle East. With Nilüfer we discuss the genetic risk factors for endometriosis, and learn more about the COHERE project; one which aims to understand endometriosis amongst women in Northern Cyprus. Finally, Ulrik tells us about the FEMaLe project; one that aims to use machine learning to better understand, di...
How is endometriosis treated?
December 09, 2021 21:58 - 1 hour - 33.7 MBSummary In this episode, we are joined by Dr Vimee Bindra, consultant endometriosis excisional surgeon in Hyderabad, India and Dr Emma Evans, clinical psychologist at Oxford University Hospitals NHS Trust, UK. Together we explore how surgery, psychological interventions, and other more holistic and personalised options can help manage endometriosis associated symptoms. We also hear from Margarida Sardo about her experience with managing her endometriosis symptoms and what options worked f...
Access to endometriosis care - where do we go wrong?
September 29, 2021 14:36 - 1 hour - 32.5 MBIn this episode, we are joined by Nikita Aashi Chadha, Writer & Lead Facilitator for Cysters, Dr Cara E. Jones, Assistant Professor of Women's & Gender Studies at California State University at Sacramento, and Beth McCowen, Deputy director of Endo Support United. Together we discuss how various aspects of our identity (i.e. race, gender, sexuality, age) may further contribute to the delay in receiving a diagnosis, and the quality of care one receives along their endometriosis journey. If ...
How is endometriosis diagnosed?
July 29, 2021 14:31 - 1 hour - 48 MBIn this episode, we are joined by Dr Arne Vanhie, Fertility Specialist at the Leuven University Hospital, and Dr Mathew Leonardi, Gynaecologic Surgeon and Sonologist at McMaster University & PhD candidate at the University of Sydney. Together we discuss what factors contribute to the diagnostic delay seen in endometriosis, which in the UK is currently on average 7.5 years, our focus on laparoscopy as the only definitive way to diagnose it, and what options there are for diagnosis, including...
What causes pain in endometriosis?
May 30, 2021 17:46 - 47 minutes - 43.5 MBIn this episode, we are joined by Lydia Coxon, Post-Doctoral Researcher at the University of Oxford's Pain in Women group, and PhD Candidate Natasha Orr, of the University of British Columbia and UBC Endometriosis and Pelvic Pain Laboratory. In conversation, we learn more about what causes pain in endometriosis, how pain is studied, and some of the incredible work being done to the understand the highly stigmatised pains experienced by those with the condition. We are once again joined by Ma...
What causes endometriosis?
April 29, 2021 07:00 - 39 minutes - 36.4 MBIn this episode, we explore what endometriosis means to different people and what we currently know about what causes the disease. From the perspective of someone living with endometriosis, Margarida Sardo shared with us how endometriosis has shaped who she is, and why knowing what causes endometriosis would have been very important to her throughout her journey with endometriosis. We delve deeper into some of the main theories of what we currently think causes endometriosis with Dr Martin H...
What is it like living with endometriosis?
March 26, 2021 19:09 - 10 minutes - 14.7 MBIn this teaser episode, we are joined by Margarida Sardo who shares with us her endometriosis journey, and reveals questions that she's had and continues to have about the condition. If you liked today's episode, please like, share and subscribe! This podcast was generously brought to you by the Nuffield Department of Women's and Reproductive Health, at the University of Oxford. We would like to thank Margarida Sardo, a Science Communication Researcher at UWE Bristol, for sharing both ...