S2: E16: The Power of Communication

S2: EP16:  ‘The Power of Communication’

On today’s show, I have the pleasure of talking with an extraordinary young lady, 22 year old, Alex Guillot.

Alex is an invisible disability activist and patient with a passion for education and social entrepreneurship. A born leader with a driving devotion to help others, she shines when given the opportunity to make a difference, especially in the lives of young people.

She’s dealt with a condition called Amplified Musculoskeletal Pain Syndrome (also known as AMPS) since she was about 6 years old. A nerve condition which causes intense pain and functional disability without evidence of tissue damage.

Alex has had her fair share of struggles and challenges. She grew up with severe pain, general anxiety disorder and depression. Struggled to make friends, was bullied for not being like others, and was accused of lying by doctors who doubted her symptoms and was unable to make a diagnosis. She was diagnosed with AMPS at 15.

Alex joined a Physical Therapy treatment program when she was 16 so her condition is largely under control, but she is still dealing with new symptoms or reoccurring old ones.

She talks candidly about her life. The high’s and low’s. Offering great advice throughout. Communication is her number one mantra. Reaching out and having an outlet is key to building a strong support system, especially for those who have an invisible disability.

Writing her book Invisible Conversations: How to Use Communication to Support Those with Invisible Disabilities was her first step into disability activism, born from her desire to provide youth with these conditions, the resources she did not have.

She is now on a mission to raise awareness. Her aim is to reach those who are at the start of their diagnosis and treatment journeys, but may not have found their communities online or in-person. Her primary target audience is people with invisible disabilities ages 13-30.

We talk about....

✤ Life before diagnosis

✤ Anxiety and Stress. How to overcome it.

✤ Effective Communication

✤ Her Activism journey

✤ Useful resources

✤ How society can do their bit

✤ Finding inner strength and love

Plus much much more!

Tune in NOW. An episode not to be missed!

Alex’s contact details:

Instagram and Facebook @ alexandraguillot_author

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Thank you for listening x