241 - Feeling Helpless? Here Are 4 Ways To Help

Two Disabled Dudes - Living with Urgency

English - February 19, 2024 08:01 - 29 minutes - 40.7 MB - ★★★★★ - 107 ratings
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Previous Episode: 240 - Adapting to Life's Curveballs

Next Episode: 242 - Dave Lynch: 27 Years, 700+ Patients, and the First Treatment

For Rare Disease Patients, the drug development process can feel huge and overwhelming. It seems like everyone has a role to play; Doctors, researchers, advocacy organizations, pharma industry...we can see how they all fit in the process. What about the patient's role? Listen as The Dudes discuss 4 of the many ways patients can have an impact.

Also in this episode:

Ever received a mysterious text from an unknown number? Kyle talks about receiving a letter regarding his DMV situation and the challenges he faces in navigating bureaucratic systems. Newsworthy from Esquire: Four Years After a Crash Left Him Paralyzed, BMX Star Paul Basagoitia Enjoys Riding More Than Ever Thank you notes: Sean - A curious coworker. Kyle - Mike and Diane Bryant (Dad and Mom)

Links and Resources:

Any One of Us documentary trailer Paul Basagotia Instagram Newsworthy music courtesy of Zapsplat.com