191 - A Mother Who Never Stops
Two Disabled Dudes - Living with Urgency
English - September 04, 2022 21:45 - 51 minutes - 41.7 MB - ★★★★★ - 107 ratingsSelf-Improvement Education emotionalintelligence ataxia beyondcircumstance disabilityawareness disease dudes friedreichs motivational overcomingchallenges rare Homepage Download Apple Podcasts Google Podcasts Overcast Castro Pocket Casts RSS feed
Tracy Dixon Salazar is a mother, scientist, and Executive Director of the Lennox-Gasteau Syndrome Foundation.
"I don't think we should be writing off Rare disease Patients and assigning them death sentences anymore. I think we should be rolling up our sleeves and doing a covid like movement to actually start saving some people's brains"
Tracy Dixon-Salazar
Lennox-Gastaut Syndrome (LGS) is a severe epilepsy syndrome that develops in young children and often leads to lifelong disability.
The LGS Foundation is a nonprofit organization dedicated to improving the lives of individuals impacted by LGS through advancing research, awarenesss, and family support.
This Episode is brought to you in part by Horizon Therapeutics.
In 2017, Horizon Therapeutics launched the #RAREis program designed to elevate the voices, faces and experiences of people living with rare diseases, as well as highlight programs and resources tailored to the rare disease community. Visit rareiscommunity.com for more info.