097 – A life of Ehlers-Danlos Advocacy – Lara Bloom
Two Disabled Dudes - Living with Urgency
English - February 10, 2020 11:38 - 45 minutes - 51.8 MB - ★★★★★ - 107 ratingsSelf-Improvement Education emotionalintelligence ataxia beyondcircumstance disabilityawareness disease dudes friedreichs motivational overcomingchallenges rare Homepage Download Apple Podcasts Google Podcasts Overcast Castro Pocket Casts RSS feed
We are often surprised by the twists and turns of life - especially when confronted with disability or a rare disease like Ehlers-Danlos Syndrome (EDS).
Lara Bloom was surprised when she was diagnosed with Ehlers-Danlos Syndrome - a disease that causes complications with her connective tissue. She was even more surprised to meet a man who helped her find her purpose - launching The Ehlers-Danlos Society.
Lara is president and CEO of The Ehlers Danlos Society and she is a global leader in the rare disease community.
Lara has taken life's twists and surprises and turned them into a beautiful life of service to others.
Join us for laughter, and a conversation about what it means to build and sustain a life of advocacy.
Lara's Documentary about her participation in the London Marathon: Issues With My Tissues.
Connect with Lara: https://www.larabloom.com/
If you liked this episode you might like to hear from another Rare Disease leader - 006 - Nicole Boice.