Two Disabled Dudes - Living with Urgency artwork

090 – LIVE at the 2019 Global Genes RARE Patient Advocacy Summit

Two Disabled Dudes - Living with Urgency

English - October 21, 2019 12:04 - 54 minutes - 62.3 MB - ★★★★★ - 107 ratings
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Previous Episode: 090 - LIVE at the 2019 Global Genes RARE Patient Advocacy Summit
Next Episode: 091 - Chasing Our Cure with Dr. David Fajgenbaum

We presented the 2DD LIVE forum at the 2019 Global Genes RARE Patient Advocacy Summit. We laughed and cried and had an incredible time connecting with the Rare Disease Community about the patient perspective. Listen to this episode for genuine insight and hearty hilarity from our three panelists:

Onno Faber, founder of RDMDTwitter: twitter.com/onnofaberInstagram: instagram.com/onnofaber

Neena Nizar, founder of The Jansen's FoundationTwitter: twitter.com/neenanizarInstagram: instagram.com/thejansensfoundation

Katie Stevens, Executive Director of Team TelomereTwitter: twitter.com/sixnwsteviesInstagram: instagram.com/sixstevies

If you enjoyed this episode, check out: Be Yourself LIVE at Amicus

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