Tourette's Podcast
151 episodes - English - Latest episode: 7 days ago - ★★★★★ - 91 ratingsAuthentic conversations about Tourette Syndrome, produced by an insider who isn't interested in the ol' one-dimensional take on what it's like to have TS. On each episode, host Ben Brown talks with a fellow Touretter about his or her history, tics, social interactions and daily management of Tourette's -- whether by masking it, owning it, medicating it, or something altogether different. It's engaging, funny, heavy, real. Get ready to meet people who blow away the standard portrayal.
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Episodes
S3 - Episode 13 - Rusties and Ralphies Per Minute
June 21, 2019 05:32 - 50 minutes - 46 MBAn episode you'll love with guest Dylan Frost of the UK, whose story of Tourette Syndrome is fairly different than most. Its led him to question convention while he works as an advocate (a prolific writer on Quora) for the community. He also brings a favorite analogy for what it's like living with the disorder. Plus: listener questions and a truly, solidly great TS art project. Dylan Frost on Twitter https://twitter.com/DylanFrost14 Writing about how Tourettes Action helped him find fun...
S3 - Episode 12 - Imitating a Snake
June 14, 2019 04:18 - 1 hour - 61.1 MBPeter Zhao was born and raised through boyhood in China before he moved to the U.S. and became the affable, freestyle-rapping online presence many of you know as Fabulously_Tourette. Peter, while multitasking (finishing up a bowl of soup, later changing his child's diaper and performing other home activites during the conversation) takes us from his youth and early family dynamics to establishing himself in New York and later incorporating Tourette Syndrome into his persona. He used to strug...
S3 - Episode 11 - Everything Was a Laser Noise
June 07, 2019 04:02 - 1 hour - 66.7 MBAs Tourette Awareness Month continues, we hear Jason from Australia, a guest as warm and comforting as hot chocolate, throw down some seriously quotable stuff here about accepting Tourette Syndrome, laughing about it from time to time, and being a darn good parent. Medication, meditation, gaming, mentoring and more discussed. Plus: a couple special announcements. But we start with a question -- should we rename Tourette Syndrome? Yes, that question is going around. Jason's show, Experi...
S3 - Episode 10 - Exorcism
May 31, 2019 05:09 - 57 minutes - 52.2 MBClay Jones, M.D., on Science-Based Medicine https://sciencebasedmedicine.org/author/clayjones/ On Twitter https://twitter.com/SBMPediatrics New Tourette's Podcast website https://www.tourettespodcast.com/ Support the show https://www.patreon.com/tourettespodcast
S3 - Episode 9 - Not Real Housewives of Tourette or Anything
May 24, 2019 04:30 - 56 minutes - 52.1 MBPacked episode with an amazing guest -- one you might already know. Kristin Moorehead has been on A&E's "Raising Tourette's" and continues strong advocacy for the community with the kind of humor that connects. Great lessons in advocacy, finding resources, and having a laugh. Plus: A non-Touretter question answered and followups to recent haps in TS science. A Patient-Centered Perspective on the Future of Tic Disorder Diagnosis: Response to “Tic disorders revisited: Introduction to the ter...
SPECIAL EDITION: Awesome Announcement for Tourette's Podcast
May 15, 2019 04:01 - 9 minutes - 8.82 MBPerfectly timed with Tourette Awareness Month comes an announcement that's good for the future of Tourette's Podcast. Please listen. Geeks Rising www.geeksrising.com
Quick Announcement! (Incidental Spring Break)
May 11, 2019 15:52 - 1 minute - 1.59 MBBen has to take one week off the podcast, but here's why. All good!
S3 - Episode 8 - Physics Books For Fun
May 10, 2019 05:42 - 50 minutes - 46 MBIn a way, this is a different kind of episode. Liam is only our second non-adult guest, and he brings along his super-supportive mom, Sarah, for an awesome, two-layered perspective on Tourette Syndrome. We hit diagnosis, meds, school, social things, and other intersections with that just-before-high-school age, with solid parental insights. Don't miss their stories. Also, big news in TS treatment. And a new patron thank-you. New AAN Guideline for Treating Tourette Syndrome and Other Chroni...
S3 - Episode 7 - Guinea Pig
May 03, 2019 05:00 - 59 minutes - 54.9 MBAn amazing response to Kimmy's episode last week. A big thanks. Awesome upcoming events. And a super fun guest, Anthony, who in addition to TS has a podcast about nerd culture and gaming, which we dig into before talk on music, confidence, and parenting a TS child. Oh and ... MTS, anyone? Dads Beards Nerds https://anchor.fm/dadsbeardsnerds Tourette Canada (conference info) https://tourette.ca/ Support on Patreon https://www.patreon.com/tourettespodcast Summit ahead (and take the surv...
S3 - Episode 6 - Theater at Night
April 26, 2019 02:30 - 45 minutes - 41.3 MBArtist and stage actor Kimmy. A big summit ahead. Listener suggestions. A mea culpa. And a call to non-Touretters. A packed episode. Oh, and anyone have experience with habit reversal? Treating Tourette Together summit - https://www.treatingtourettetogether.org/ Kimmy's acting website - https://kimmyfiorentino.wixsite.com/kimmyfiorentino Kimmy's Etsy - https://www.etsy.com/shop/scrambledpegs/ Tags: Tourette, OCD, Tourettic OCD, Sleep, Art, Theater, Acting, Tics
S3 - Episode 5 - Ended Up With An Egg
April 19, 2019 07:06 - 1 hour - 65.9 MBFrom the London area, Alex Kozobolis is a gifted artist (photography, music and more) and conversationalist with a command of great TS analogies and really respectable perspectives on what TS means for the core of people -- that is to say, any of a trillion things, but often with great empathy and relatability. Please check out his work at www.alexkozobolis.com. Plus: A listener has a question about tics and age; and a hobby-informed tic? Alex Kozobolis' website http://www.alexkozobolis.co...
S3 - Episode 4 - And Then I Watch the Video
April 12, 2019 03:33 - 51 minutes - 47.5 MBWe hang out with Akiva, a rabbi and teacher who shares a fascinating past with Tourette Syndrome and one of the best dating stories we've ever heard. He's still exploring his TS. Hear how he's coming to terms and opening up. Plus: Answers for Jennifer, a response to last week's commentary about diagnoses, and a nice inclusion that may connect the podcast with new listeners. Tourette Association of America Fiscal 2018 Annual Report (includes personal stories from Ben along with past podcast...
S3 - Episode 3 - You're Doing Something Right
April 05, 2019 05:43 - 1 hour - 67.1 MBFor a while now we've had inquiries about expanding the age range among guests on the show, which until now has been entirely adult. It's a good point, and we could stand to hear the perspective of young people who've been listening to the podcast. Our first is Eliana, 10 years old and well underway with impressive ideas about living with Tourette Syndrome. PLUS: Listener feedback and a new way to support the podcast. Eliana's YouTube channel https://www.youtube.com/channel/UCKO1MEauXe...
S3 - Episode 2 - Barrel Through
March 29, 2019 02:52 - 48 minutes - 44.5 MBRemember our episode with CBS News' David Begnaud? And his mention of fellow journalists who've reached out to him since he opened up about his Tourette Syndrome? Well, we're about to talk to one of them -- TV news reporter John Bedell, who recently informed viewers that he himself has TS. His backstory is great and outlook strong. Lots of talk here about heroes and motivators. John Bedell tells viewers he has TS https://www.whio.com/news/local/tourette-story-news-center-john-bedell-opens...
S3 - Episode 1 - Untaped My Fingers
March 22, 2019 04:44 - 52 minutes - 48.2 MBSeason 3 is a go, and you're gonna love our first guest. She's a scientist, an advocate, and a true motivator to this podcast. It's Sophia! Also known as the Tourette's Podcast Discussion Group admin (and primary force behind the group), Sophia lets us in on her background with Tourette and autism, outreach, and perspective on the support community. Such an awesome way to kick off S3. CBIT info https://tourette.org/research-medical/cbit-overview/
S3 - Episode 0 - Catchup
March 22, 2019 04:42 - 13 minutes - 12.4 MBWe're back with Season 3! This episode comes out the same time as Episode 1 at tourettespodcast.libsyn.com. Here, we catch up on what's been happening, hear from listeners and talk about what's ahead for the show.
S2.5 Interim Episode! A Continued Evolution of Authenticity
January 20, 2019 21:06 - 46 minutes - 42.7 MBYes! A majorly special in-between-seasons episode here with very special guest David Begnaud, a CBS News correspondent many of you know -- either from TV, or the fact that he revealed recently that he has Tourette Syndrome, which got a lot of coverage. We pick up from there and discuss wide-open his background, tics, working as a recognizable journalist and thoughts on where TS ranks within his life and why. Really powerful episode. And stay tuned for a full, new season of Tourette's Podc...
S2- Episode 15B - Take Off Your Gloves (SEASON FINALE)
December 14, 2018 05:01 - 1 hour - 85 MBSEASON 2 FINALE PART B! We end with one of the most deep and interesting conversations yet. Entrepreneur Niko is the founder of PRML Soul Clothing in Las Vegas and has quite a life story driving him, from his family's international search for TS relief to self-acceptance that tours through the deepest elements of human nature. His experiences roll into personal empowerment and life coaching for others, and it makes for a talk that ends on sharply engaging notes. Season 2 fin! DISCLAIMER: T...
S2 - Episode 15A - It's Worth Our Effort
December 14, 2018 04:58 - 58 minutes - 53.2 MBIn the first of a two-part season finale, we've got two special guests -- Tourette Association of America President and CEO Amanda Talty, followed by Matt Capriotti, a scientist whose research is furthering our understanding of TS and its impacts. Talty answers listener questions and talks about changes going at the Tourette Association to better support the TS community of all ages. Capriotti lays out findings from a recent study of life outcomes for people diagnosed with TS. This is massiv...
S2 - Episode 14 - If One More Person Stares At You
December 07, 2018 05:33 - 53 minutes - 49.4 MBA portrait photographer whose work lights up disorders including Tourette Syndrome; a fiction author who's written a Tourettic protagonist; and listener feedback on Justin's question. Photographer AJ Ouellette, "Invisible Illness Project" - https://annajeanouellette.wixsite.com/ajphotography/invisible-illness-project Janet McLaughlin, "Different" https://absolutelovepublishing.com/different/
S2 - Episode 13 - Stuck and I Can't Talk
November 30, 2018 05:11 - 1 hour - 65.6 MBAn astronomically great guest, a challenging listener question, and endless coffee. Here we are with Episode 13 of Season 2 -- hard to believe we're this far already. Podcastage https://www.youtube.com/channel/UCvOU-zTlankT-JjN3ZzvuKA Bandrew Says #145 https://directory.libsyn.com/episode/index/show/bandrewsays/id/7609697
S2 - Episode 12 - Part of My Brain Knows
November 22, 2018 05:00 - 45 minutes - 41.9 MBPer holiday travel obligations here, we kinda didn't expect an episode this week. Surprise. Here we have a GREAT conversation with Adrienne, a Touretter who lives in Manchester, England, where she's pursuing a PhD. We hear about her research, her life with TS, a Tourette connection in the family, and, among many other things, getting tattooed amid the urge the tic. Tourette's Podcast Discussion Group https://www.facebook.com/groups/664680327265761/
S2 - Episode 11 - Jimmy Humbucker
November 16, 2018 02:56 - 55 minutes - 50.4 MBHow is music or creativity so often our commonality? On this episode we hang out with Simon AKA Jimmy Humbucker, who traffics music in his personal life and, in his work life, positive words for Tourette Canada, where he has a communications role. Here we discuss his tics, involvement with the TS community, TV appearance, and his self-recorded rock. BUT FIRST we spend some time on listener feedback, responses to Hilary from the previous episode, and a potential revelation on the ever popular...
S2 - Episode 10 - Hold Your Eyes Open
November 09, 2018 02:18 - 42 minutes - 39.2 MBInto the classroom we go, as a teacher with Tourette Syndrome. This week's guest Tristyn teaches high school world history and sends A LOT of kids into the world each year with a better understanding of TS. We reach into her background, diagnosis, how she explains it to her colleagues and students, and how they regard her. First, though, we give you the best listener-submitted analogies for the urge to tic, and then we field a question you can help answer.
S2 - Episode 9 - B-Movie That No One Knows About Yet
November 02, 2018 03:08 - 52 minutes - 42.3 MBWe're back, and with a lot of goodwill in our guest this week, Alexi from Ottawa, who works in the craft beer industry. His handling of his own TS is pretty commendable -- though public shame certainly isn't a concern of his. Feeling like there's a lot to learn from this one. Plus: welcoming lots of new listeners, one of whom brings Ben a question to answer about his youth.
IN THE WORKSHOP!
October 24, 2018 22:40 - 1 minute - 2.66 MBYo! So, when Windows activated an automatic update on my computer on Tuesday, it was a disaster that started a chain of events that ultimately led me to lose all my audio production software -- which I now have to rebuild. No interview files lost, I had all of them backed up, thankfully. Anyhoo, listen to a brief audio message here and we'll be BACK SOON with all new episodes. Thank you so much for your patience. -Ben
S2 - Episode 8 - I'm Not Present Where I Am
October 19, 2018 03:23 - 54 minutes - 43.9 MBHere's an episode that really stands apart at times, with Marie of the Toronto area tracing a past with Tourette moments that surprise and sometimes startle -- though ultimately we'll all agree Marie is a total delight to hear from and represents a season highlight. Before we get to Marie, we hear listener feedback (and Carson gets an answer). After Marie, at the end of the episode, a little podcast policy update. The research Angie mentioned: https://www.ncbi.nlm.nih.gov/pubmed/16046664 ...
S2 - Episode 7 - The Ecks-Men
October 12, 2018 04:12 - 1 hour - 63.3 MBBen is home after a string of airline flights and keeps in theme by talking with Zach, a flight attendant who has Tourette Syndrome. Zach ALSO has been a counselor at Camp Twitch and Shout, a place where kids with TS can do their thing pressure-free. Zach discusses all this and more. Loads of moments and tic connections. Camp Twitch and Shout: https://camptwitchandshout.org/ And if anyone out there can help Christine or connect her with employment opportunities, here's her resume: http...
S2- Episode 6 - Kilimanjaro
October 05, 2018 04:00 - 44 minutes - 35.3 MBDimi from Australia is preparing to climb Mount Kilimanjaro for Tourette Awareness -- so, yeah, we absolutely had to get him on the show. On this episode, Dimi tells us what led up to this and what he hopes to accomplish for the Tourette community, and we of course rap about his tics and TS experience. Teachers were his biggest bullies? An amazing episode not to miss. Dimi's social media pages: https://twitter.com/DimiKarkaliev https://www.instagram.com/dimikarkaliev/
S2 - Episode 5 - Don't Beat Yourself Up
September 28, 2018 04:00 - 53 minutes - 42.8 MBOn this episode we've got Yvette from Alaska. She's got an infectious laugh and drops sharp points about Tourette in the workplace and school as we carve through her history with TS and how people mistake her eye tics for communicative winks. Super enjoyable convo. Solid advice for parents ahead, too. Weigh in with the Tourette's Podcast Facebook Group (join!) https://t.co/z1ig46ZQxs
S2 - Episode 4 - Before That Red Light Comes On
September 21, 2018 04:00 - 1 hour - 53.7 MBJust before Hurricane Florence made landfall, Ben made sure to speak with a meteorologist. Not for predictions or reassurance; Ed Buckner is a TV weather man with Tourette Syndrome. He's an admitted introvert -- so how in the world did he end up in front of a live camera? Ed Buckner, THV11 - https://www.thv11.com/article/about-us/team-bios/ed-buckner/91-44672704 Ed on Twitter - https://twitter.com/ed_buckner?ref_src=twsrc%5Egoogle%7Ctwcamp%5Eserp%7Ctwgr%5Eauthor "T-Man & Hyperstrike...
S2- Episode 3 - The Server Room
September 07, 2018 03:26 - 1 hour - 55.1 MBOn this episode we've got Jayde, who, same as Ben, didn't live an open life with TS until the fairly recent past. She has an amazing story of how she got up the courage to open up and own it. Plus: Listener mailbag and ... is there a Facebook group now? Show notes Is procedural memory enhanced in Tourette syndrome? Evidence from a sequence learning task https://www.sciencedirect.com/science/article/pii/S0010945217302940?via%3Dihub Tweet from Christine Conelea https://twitter.com/cconel...
S2- Episode 2 - The Little Funny Things of It
August 31, 2018 04:13 - 55 minutes - 44.1 MBThis week, we're in Scotland (via phone line, anyway) with Michael, who just came off a tic attack before this interview. It's gotta be exhausting. But he soldiers through, and delivers on a solid story of life with Tourette Syndrome (and the fight for the right diagnosis).
S2 - Episode 1 - 99 Percent of the People
August 24, 2018 04:33 - 51 minutes - 41 MBOn this episode, we've got Jaleesa, who deals with complex vocal tics, movements and other comorbidities that get pretty much zeroed out by her astounding approach and command. Let's just say she can set a gawker straight -- kindly. Lot of philosophy here. Take notes. First though, we start with a little Dungeons and Dragons.
S2 - Episode 0 - Start Here (Updates and Listener Q and A)
August 24, 2018 04:30 - 21 minutes - 17.3 MBThe return! An amazing season ahead. Here we update you on what's happened since the end of Season 1, and we dig in to the listener mailbag.
S1 - Episode 14 - A Metal Drawer, Almost (SEASON FINALE)
May 18, 2018 05:03 - 54 minutes - 43.5 MBIt's the finale of Season 1, and we have a highlight guest in Tim Bissell. His past work in the TV industry and current work writing articles for publication all seem to have some thread with Tourette Syndrome, and how could they not? It's such a shaper. Favorite thing about this talk with Tim: he's the first person Ben spoke with who, like Ben, has "visualizations" along with his tics, which really opened a door -- or a drawer, as you'll hear. So many high points in this episode, and it's a...
S1 - Episode 13 - Humanize It
May 11, 2018 05:31 - 39 minutes - 31.7 MBAfter some (important) talk about Tourette Awareness Month and the easy ways you can back it, we talk with Rosetta, a rising Linux star from the Pacific Northwest who, herself, wants to do more with Tourette awareness and community interaction. Her story is pretty compelling on its own. You'll have no problem welcoming and supporting her. Tourette Awareness Month - 5 Ways to Raise Awareness http://www.tourette.org/about-us/5-ways-raise-awareness/
S1 - Episode 12 - My Eyes Got Really Big
May 04, 2018 04:40 - 38 minutes - 30.8 MBWe've got Jake, a college football player whose path through Tourette Syndrome has found at least one funny coincidence in his earlier school years, a curious "trigger word," and empowerment to help other Touretters around him. Tourette Awareness Month is ahead - http://www.tourette.org/about-us/5-ways-raise-awareness/ Ben's recent appearance on the Podcast Engineering Show - https://podcastengineeringschool.com/ben-brown-pes-091/
S1 - Episode 11 - Twitching at Various Geometric Shapes
April 27, 2018 04:01 - 52 minutes - 73.7 MBHuge, major, priceless insights here with our guest Dave Ross, a computer-and-web engineering guy from Massachusetts whose perspectives on Tourette Syndrome are a great pump-up and, we'll predict, will be valuable to recently diagnosed Touretters (and their parents) who see the future like a void. Dave melts down the conversation for reshaping. Dave on Twitter https://twitter.com/csixty4
S1- Episode 10 - It's Symbiosis, I Guess
April 20, 2018 03:37 - 57 minutes - 45.9 MBJason Grant is on the show, who you won't be able to stop listening to once he gets rolling. There's so much in his experience and perspective, and he's got a gifted ability for telling it. He also runs an excellent website called My Tourette World, where he, among other things, writes a series about kids with TS that everyone will find empowering. Don't miss this episode -- it's funny, heavy and real. My Tourette World - http://www.tourettesnewsworld.com/
S1 - Episode 9 - We All Have Something
April 13, 2018 04:25 - 35 minutes - 28.1 MBChris Fox is a standup comedian who works his Tourette Syndrome into his material as well as motivational speaking. He was also the first person to reach out to this podcast with support. On this episode we hear his story, his tics and his positive force -- after we hear from listeners and talk a little more about "visualisation" with tics. Thoughts? Chris Fox http://enhancedweb.wixsite.com/tics/comedy Chris performing at Caroline's on Broadway https://www.youtube.com/watch?v=jzLfYNey9qA...
S1 - Episode 8 - A Little Less Weird
April 06, 2018 04:00 - 49 minutes - 39.5 MBBen returns from a bad cold, and flashes back a few months when he talked with Britney Wolf, who's gained a following on YouTube for Tourette awareness videos and has vivid memories of her earliest tic. On this episode we also get to hear about the first time she brought up TS to her now husband, and what happened at work when she told her boss about it. She's great at building community and fairness across the spectrum. She also has thoughts about how outsiders perceive mild cases of Touret...
S1 - Episode 7 - Not Thinking About Judas All the Time
March 30, 2018 04:28 - 46 minutes - 37.4 MBA video game developer might make a cool interview, yes? Meet Pat, a Touretter who's worked on some popular titles. On the one hand, it's a fun episode to be able to talk to someone who develops video games for a living and works inside a recognizable company. On the other hand, it's a charged-up conversation at times, getting really frank at certain moments, because having a cool job is not to say he hasn't seen his share of on-the-job challenges directly related to Tourette's. Join Tic T...
S1- Episode 6 - It Sounds Supernatural
March 23, 2018 05:19 - 57 minutes - 46 MBDo you "visualize"? If that's a vague question, it'll make sense after you hear this episode, in which we head to Australia (virtually) to talk with Vaya, a quiz-show question writer and podcaster, and discuss Tourette Syndrome at school growing up, at work in adulthood, the empowerment of the diagnosis, and the totally (?) overlooked quirks of having it. The Neighbuzz Podcast http://neighbuzzpod.com/
S1 - Episode 5 - The Full Picture
March 16, 2018 05:43 - 56 minutes - 45.6 MBOn this episode: Jonah, a newspaper reporter whose previous voice-to-voice conversations with fellow Touretters have been few to none. But, via his profession and talents, Jonah knows what it is to sort out complexities for mass understanding and, as such, gives a beautiful and incisive conversation about his life with Tourette Syndrome.
S1 - Episode 4 - Your Full Tourettic Self
March 09, 2018 06:10 - 54 minutes - 43.8 MBChristine, known to fans as "Ticking Out Loud," is an amazingly solid voice for Tourette positivity and self-acceptance. She also knows how to call out misguided work or problematic portrayals of what it's actually like to live with tics -- or really anything perceived as either lesser-than or too-much. On this episode, we talk a lot about the TV show that portrayed her Tourette Syndrome across Canada. And we get real when it comes to acceptance standards in the workplace. A massively quotab...
S1 - Episode 3 - Never Able to Be Invisible
March 02, 2018 03:39 - 40 minutes - 32.2 MBThis week we've got Melissa C. Water, who we'll go ahead and say is an important figure in Tourette awareness today. Statistically, you're way more likely to have heard of her than this podcast -- but if you're new to her, by all means look her up on YouTube and see the work she's doing for the community. It's a really engaging and personal approach, and honestly that's how it needs to be. Melissa tells Ben about her early experiences with tics, her diagnosis and awareness work -- and she ad...
S1- Episode 2- Tourette's is a World
February 23, 2018 06:30 - 50 minutes - 70.4 MBFirst: Thanks. Majorly. This podcast got an unexpectedly amazing response following episodes 0 and 1. So much great interaction for which your host, Ben, is eternally grateful, truly, as he is for this episode's guest, Chris, a talented musician from Salt Lake City with an interesting history of tics -- including "musical tics" -- that led to a late-period diagnosis that he said came as a huge relief in terms of context and social-professional handling. But Tourette's isn't the only part of ...
S1- Episode 1 - Oh, I Had No Idea
February 16, 2018 06:32 - 56 minutes - 78.5 MBOn this episode we've got 21-year-old Maddie, who owns her Tourette's even in hard-ticking times. Funny enough, though, people in her life seem surprised when she lets them in on the fact that she has Tourette Syndrome, like, "I would never have guessed!" Which just goes to show. Tics aren't always so conspicuous, even as they consume people who have even mild cases of Tourette's. In fact, Maddie and Ben end up discovering they have the same bizarre tic that no one ever sees. Maddie's story ...
S1 - Episode 0 - The Secret
February 16, 2018 06:14 - 39 minutes - 55.6 MBYour host has a secret, and it's about to spill. Meet Ben, hear his background with Tourette Syndrome, learn what happened in his youth, why he's hidden his disorder from the public in his adult life, and why he's now doing a wide-open weekly podcast about it with fellow Touretters.