Stronger Every Day
345 episodes - English - Latest episode: 4 days ago - ★★★★★ - 71 ratingsI quit my law job to be at home with my kids. Turns out our daughter Tess has a rare genetic disorder called Hao-Fountain Syndrome, or USP7. She's different. And now, so is everything else. #USP7 #HaoFountainSyndrome #autism
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Episodes
#245: Back to Global Genes
September 25, 2019 05:43 - 10 minutes - 13 BytesIn 2015, I was just starting out. Fresh out of the long winding painful chute of diagnosis with our T-Bird. What a difference 1460 days make.
#244: The Light Fantastic
September 18, 2019 05:41 - 8 minutes - 11 BytesAustria. The land of the Von Trapps. The composers Schubert and Liszt. And the chef Wolfgang Puck. And also a guy whose work you might have seen, if you've ever gone to a rave in Vienna.
#243: Hiring Bruce Banner
September 11, 2019 05:52 - 12 minutes - 15 BytesThe future is now. We are about to hire Bruce Banner.
#242: Live and Die by the Tides
September 04, 2019 05:49 - 11 minutes - 15 BytesSitting in a boat, in the mud. A long day with Tess.
#241: I Want to Meet Governor Janet Mills
August 28, 2019 05:23 - 17 minutes - 22 BytesJanet Mills. She's the governor of our fine state of Maine. And I want to meet with her ASAP to talk about Tess.
#240: Becoming a Noticer
August 21, 2019 05:45 - 11 minutes - 15 BytesKeep your eyes peeled, my dad used to always say in the car when we were driving around, on the hunt for our destination. And I find these days, I'm still doing that.
#239: The Walnut Is Laughing
August 14, 2019 05:25 - 6 minutes - 9 BytesWorking on a new skill with Tess. One that you and I and almost everyone does several times a day.
#238: Megan
August 07, 2019 05:18 - 9 minutes - 12 BytesThe end of an era. With an awesome person, who's logged THE most hours with Tess.
#237: Sugar Baby
July 31, 2019 05:59 - 12 minutes - 15 BytesWacky music and clips of a possibly over-sugared kid. These just might be the key to getting Tess's attention. Have you left me a review and rating on iTunes yet? Click here. Hey! Please reach out to a friend and share the six essential episodes about Tess. They’re here: http://www.portlandrootsmedia.com/stronger-every-day-blog/2018/11/15/catch-up-with-tess Want to hear more about Tess’s adventures with Gemiini? Listen to episode 221, “Jackpot,” which is available here, for zero dollars:...
#236: Worst Procrastinator Ever
July 24, 2019 05:19 - 9 minutes - 12 BytesAbundant sunshine, a long overdue task, and a chance meeting that makes me feel better about some heavy stuff.
#235: Oh No You Didn't
July 17, 2019 05:00 - 10 minutes - 13 BytesA massive failure, by me, with Tess feeling quite amused about the whole thing.
#234: Island Time
July 10, 2019 05:43 - 7 minutes - 10 BytesHolidays aren't always Tess's favorite. After all, they interrupt something that is her favorite: the routine of going to school. But this year on the 4th, Tess had a blast.
#233: Happy 4th
July 03, 2019 05:46 - 5 minutes - 7 BytesSummertime for Tess. Our girl has been a busy bee, to say the least. Help Nick’s family get answers about Cameron by clicking and sharing. #HelpCameron https://cameronsmystery.com/
#232: After the Award
June 26, 2019 05:15 - 14 BytesTess stood up in front of her class and got an award last week. It was amazing to see, but my favorite part was what happened just after that. Did you know that we recently found our 50th USP7 patient? We did. Hooray! Remember, Tess was the 8th known patient in 2015. One of the ways we find more is through your help, Tess Army. You've been with us on this journey, and we feel it. We feel your love every time you share this podcast with someone. So keep it up. Keep sharing and help us get o...
#231: Breakfast in Bed
June 19, 2019 05:24 - 12 BytesHope Solo. Dennis Eckersley. Dominik Hasek. All of these people have made great saves. But they got nothing on my wife. Hey, if you're new to the podcast, you know what would really help me? Give me a quick review and rating on iTunes. It really helps people find my show and gets the story of Tess out there to more folks. Thanks! Follow me to get the latest on Tess: Facebook | Twitter | Instagram | Spotify
#230: The Sovereign Nation of Tess
June 12, 2019 05:18 - 6 minutes - 9 BytesHow do you explain Tess to someone who doesn't know her but needs to get to know her? What details would you include?
#229: Science to the Rescue
June 05, 2019 05:21 - 6 minutes - 8 BytesQuick one for ya this week. Update on some super-dope studies happening with USP7.
#228: Just the Check Please
May 29, 2019 05:06 - 9 minutes - 12 BytesIt's like a Samuel Beckett play. A tiny room. People waiting. Including Tess. Have they always been in this room? Will they have to wait for all eternity, because they wait for something that will never take place?
#227: Get a Move On
May 22, 2019 05:03 - 8 minutes - 11 BytesTess was nagging me this week. Really. She's like, Daaad! Come onnn!
#225: The Pearly Whites of Tess
May 08, 2019 05:00 - 10 minutes - 14 BytesPicture it. You're at the dentist. The dentist says things like open wide. And you open your mouth. Except. If you don't understand simple commands like that. Then, it's a whole different ballgame.
#224: On Your Mark Get Set Throw
May 01, 2019 05:14 - 11 minutes - 15 BytesWe spent a full morning of walking around in the pouring rain with Tess. Something we do annually, each spring.
#223: News from France
April 24, 2019 05:23 - 6 minutes - 9 BytesSuper exciting news from France. And also from our driveway.
#222: Out and About with Miss Tess
April 17, 2019 05:45 - 9 minutes - 12 BytesI was lucky enough to have some uninterrupted time with Tess recently. She showed me one of her favorite places.
#221: Jackpot
April 10, 2019 05:15 - 10 minutes - 13 BytesA lunch table on a lazy Saturday. A plate of food. The occasional clink of a fork as we feed Miss Tess. And then, jackpot.
#220: Madness
April 03, 2019 05:45 - 10 minutes - 13 BytesIn a way, this year’s NCAA tournament surprised me more than ever.
#219: Snack Attack
March 27, 2019 05:03 - 9 minutes - 12 BytesAn ill-advised purchase. A snack. And some unfortunate consequences.
#218: This Is Bedtime
March 20, 2019 05:11 - 11 minutes - 15 BytesWe've had a rough couple of days for our girl. Simply put, Tess is not her usual happy self.
#217: Birds and Mysteries
March 13, 2019 05:10 - 15 minutes - 19 BytesA bird falls from the sky. We try to solve a mystery about Tess. And we use a tool made by a mom, hoping for a day when those mysteries are behind us.
#216: Feb Break Part 2
March 06, 2019 06:11 - 9 minutes - 12 BytesPart 2 of Vacation tess. About our girl's reaction to something that happened to me. And about the future.
#215: Feb Break Part 1
February 27, 2019 06:33 - 6 minutes - 9 BytesTraditionally, we pay a heavy price when Tess is on vacation. She loves school! So we're lucky. But sometimes we're in a world of pain when she can't go to school. Is that how it would go this time? Let me tell ya about February break.
#214: Hanging Out with Us in Our PJs
February 20, 2019 06:16 - 10 minutes - 13 BytesSomeone is able to get Tess to do stuff. Stuff we can't always get her to do.
#212: Mood Ring
February 06, 2019 06:13 - 8 minutes - 11 BytesA key piece of advice, meant for people on a scavenger hunt.
#211: (Do Not) Jump Around
January 30, 2019 06:17 - 14 minutes - 18 BytesA story finally gets published. We've been waiting for what feels like forever. But that isn't even the biggest event in our household this week.
#210: My Music Buddy
January 23, 2019 06:41 - 10 minutes - 13 BytesIn the past two months or so, our girl seems to need more input.
#209: True
January 16, 2019 06:34 - 10 minutes - 13 BytesSitting down with Tess's brother Dana, for some unvarnished truth.
#208: Four Years
January 09, 2019 06:48 - 14 minutes - 18 BytesThis episode makes four years of this podcast. Have you heard them all?
#207: The Late Show with Tess Bigelow
January 02, 2019 06:41 - 9 minutes - 12 BytesTess stays up late and goes to a party.
#206: The Voyagers
December 26, 2018 06:17 - 12 minutes - 15 BytesStories of our voyages all across the land with our Tess.
#205: The Champions
December 19, 2018 06:09 - 9 minutes - 12 BytesStories about great people, the ones who’ve spoken up for Tess.
#204: Oaty McOatface
December 12, 2018 06:34 - 10 minutes - 13 BytesIt takes a spillage. I'm gonna go get a broom.
#203: Ice and Paper Towels
December 05, 2018 06:57 - 13 minutes - 16 BytesSolo parenting, shopping with Tess, and why you can't babysit your own kids.
#202: Surprise
November 28, 2018 06:27 - 10 minutes - 13 BytesStar Wars music and a big surprise from Tess.
#201: Three Times Thankful
November 21, 2018 06:02 - 5 minutes - 8 BytesThe top 3 things I’m thankful for this year.
#200: The Smartest
November 14, 2018 06:47 - 12 minutes - 15 BytesWorking on USP7 is gonna require some super-intelligent solutions. And I went on a trip to find them.
#199: Banzai
November 07, 2018 06:22 - 8 minutes - 11 BytesWe can't be certain whether Tess knows it's her birthday. But she sure can tell when a fuss is being made of her.
#198: Boomerang
October 30, 2018 18:16 - 14 minutes - 18 BytesThe honeydew list explodes beyond belief. And it all goes back to the most realistic scene in The Incredibles.
#197: What Daisy Knows
October 24, 2018 05:17 - 14 minutes - 18 BytesLike Ren in Footloose, someone takes the reins.
#196: More Stories from the Land Where Cures Are Found
October 17, 2018 05:55 - 29 minutes - 35 BytesEven MORE stories from Vegas, all about our USP7 conference, including a big announcement about what comes next.