Sarcoma Sisters
20 episodes - English - Latest episode: 9 months ago -Information on sarcoma for people with sarcoma and their loved ones
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Episodes
Leiomyosarcoma with Dr. Suzanne George
July 27, 2023 13:38 - 49 minutes - 67.4 MBDr. George is a medical oncologist and Associate Professor at Harvard Medical School. She is the Clinical Director at the Center for Sarcoma and Bone Oncology at Dana-Farber Cancer Institute with over 20 years experience of treating patients throughout the world with sarcoma. She is actively involved in the clinical research and works to develop new clinical trials focusing on therapy for metastatic soft tissue sarcoma. In this episode we discuss: What led her into medicine, and what led ...
Nutrition and Cancer with Kate Ueland
September 27, 2022 00:06 - 1 hour - 88.7 MBKate Ueland, MS ,RD, CSO is an Assistant Professor at Bayster University where she teaches and mentors students and she practices as a dietitian at Seattle Cancer Care Alliance in Seattle, WA. Kate also works at Fred Hutchinson Research Center in Seattle, WA as the nutrition advisor and editor for the Cook for Your Life website providing science-based guidelines, recipes, and tips to those who have been touched by cancer. The Fred Hutch Cook For Your Life website is such an amazing resou...
Physical Therapy and Pediatric Sarcoma with PT Dan
July 05, 2022 19:47 - 1 hour - 87.9 MBDr. Dan Steventon is a Doctor of Physical Therapy and practices at The Sanford Children’s Castle of Care Hospital in Sioux Falls, South Dakota. He specializes in pediatric cancer physical therapy. However, outside of the amazing care he gives his patients, he has a robust social media educational platform and is known as PT Dan The Kids Cancer PT! We encourage you to check him out on twitter And his You Tube Channel including his special series on rotationplasty for Sarcoma Awareness Mo...
Sarcoma Orthopedic Surgery with Dr. R. Lor Randall
June 18, 2022 21:08 - 55 minutes - 75.7 MBDr. R. Lor Randall is an Orthopedic Oncologic surgeon who is a world renowned expert in sarcoma orthopedic surgery. He is the David Linn Endowed Chair for Orthopaedic Surgery; Chair, Department of Orthopaedic Surgery and Professor, Department of Orthopaedic Surgery at the University of California, Davis in Sacramento. Dr. Randall’s clinical practice and research focus on musculoskeletal surgical oncology and on building-leading edge trans-disciplinary teams to combat rare cancers of connec...
Osteosarcoma with Dr. Katherine Janeway
March 24, 2022 19:42 - 46 minutes - 64.2 MBDr. Janeway is a pediatric oncologist and senior physician at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center. She is the Director of Clinical Genomics at Dana-Farber Cancer Institute and her research is focused on genomics, precision oncology and bone sarcomas. She leads clinical trials in osteosarcoma and Ewing sarcoma both as an independent investigator and as the Chair of the Children’s Oncology Group (COG) Bone Tumor Committee. In this episode we discuss: What led her...
Desmoid Tumors with Dr. Aaron Weiss
February 21, 2022 04:14 - 50 minutes - 69.2 MBDr. Aaron Weiss is a board certified pediatric hematologist/oncologist practicing in Maine. He is an associate professor and the Division Director of Pediatric Hematology-Oncology at Tufts University School of Medicine and he holds the Sam L Cohen Medical Director Endowed Chair at Maine Children’s Cancer Program. As part of Children's Oncology Group he is the Vice-Chair of the Soft Tissue Sarcoma Committee, and the Associate Vice-Chair of the Clinical Trials, AYA Oncology Discipline Committe...
Ewing Sarcoma Phase 3 Clinical Trial - Discussing The Results
January 31, 2022 00:47 - 46 minutes - 63.2 MBDr. Allen-Rhoades and Dr. Kopp discuss the results of the recently published Ewing Sarcoma clinical trial - Phase III Trial Adding Vincristine-Topotecan-Cyclophosphamide to the Initial Treatment of Patients With Nonmetastatic Ewing Sarcoma: A Children's Oncology Group Report. We mention in the episode that the full article is accessible, however, it is only if you purchase individually - bummer. However, the link Is here for the article abstract and if you would like to purchase. We disc...
Palliative Care with Dr. Ishwaria Subbiah
May 08, 2021 23:25 - 43 minutes - 59.2 MBDr. Ishwaria Subbiah is a palliative care physician and medical oncologist in the Division of Cancer Medicine at MD Anderson Cancer Center in Houston, TX. She is uniquely qualified for this role, having completed training at MD Anderson, not only in medical oncology but also in Phase 1 drug development and Palliative Medicine. With all this training she sees patients in the palliative care clinic and also conducts clinical research that focuses on symptom management and patient centered supp...
Sarcoma Clinical Trials with Dr. Breelyn Wilky
March 08, 2021 23:57 - 57 minutes - 79.4 MBDr. Wilky is the Director of Sarcoma Medical Oncology at the University of Colorado. She cares for patients over the age of 18 with every type of sarcoma and is an expert not only in traditional chemotherapy treatments for sarcomas, but also at using modern technology such as gene sequencing and molecular profiling to identify out-of-the-box treatments particularly in targeted therapy. Dr. Wilky is also a translational researcher who conducts and designs clinical trials for sarcoma patient...
Second Opinions
January 31, 2021 00:33 - 34 minutes - 48 MBDr. Allen-Rhoades and Dr. Kopp discuss the topic of second opinions for your sarcoma. Discussing common questions and concerns of second opinions: Tips on deciding if you need/want one Types Issues with too many Unnecessary concerns - you're not cheating on your oncologist why it is important to discuss with your oncologist Tips to getting the most out of it How the pandemic has made them more accessible music: Rospigg photo: Markus Winkler
Radiation and Sarcoma with Dr. Safia Ahmed
November 22, 2020 00:46 - 55 minutes - 76.1 MBWe talk with Dr. Safia Ahmed a radiation oncologist who specializes in caring for adults and children with sarcoma - she works with our sister Wendy at the Mayo Clinic! Dr. Ahmed is a Senior Associate Consultant in the Department of Radiation Oncology at the Mayo Clinic in Rochester, Minnesota. And she is an Assistant Professor of Radiation Oncology - Mayo Clinic College of Medicine and Science. She has giving numerous lectures and research presentations on a variety of radiation and s...
Sarcoma Pathology with Dr. Valerie Fitzhugh
October 12, 2020 16:26 - 57 minutes - 78.4 MBDr. Fitzhugh is an associate professor and interim chair of the Department of Pathology, Immunology and Laboratory Medicine at Rutgers New Jersey Medical School and the Department of Pathology and Laboratory Medicine at Rutgers Robert Wood Johnson Medical School. She is an expert in the pathology of sarcomas. Dr. Fitzhugh also has interests in the recruitment, retention, and promotion of Black and other underrepresented groups in medicine to pathology as well as racial disparities in treat...
Sarcoma Genomics with Dr. Brian Crompton
September 26, 2020 23:28 - 50 minutes - 69.1 MBWe talk with our sarcoma brother and world-renowned sarcoma genomics scientist and pediatric oncologist Dr. Brian Crompton. Dr. Crompton is an Assistant Professor at Harvard Medical School and an Attending Physician of Pediatric Hematology/Oncology at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center. He is the Principle Investigator of the Crompton Lab where he and his team are harnessing novel genomic and proteomic approaches to improve patient outcomes in pediatric solid t...
Sarcoma Surgery with Dr. Andrea Hayes-Jordan
August 20, 2020 23:17 - 58 minutes - 80 MBWe talk with Dr. Andrea Hayes-Jordan a world renowned pediatric sarcoma surgeon and a professor of pediatric surgery and surgical oncology at the University of North Carolina Children’s Hospital. Dr. Hayes-Jordan is the Surgeon-in-Chief of the UNC Children’s hospital and the division chief of pediatric surgery at UNC. If you want to know how a world class surgeon thinks this is the episode - take this episode in - Dr. Hayes-Jordan is amazing! Learn: 9:20 - How she prepares when she...
Building the Yellow Brick Road - Count Me In!
August 04, 2020 07:00 - 1 hour - 82.6 MBWe talk to the amazing Dr. Corrie Painter Dr. Painter is the Associate Director of Operations and Scientific Outreach for the Broad Cancer Program and the Associate Director of Count Me In. Corrie shares with us her own Angiosarcoma story and how her diagnosis ultimately led her to her current position at the Broad Institute where she is leading the charge on the Count Me In patient driven projects that are pioneering how cancer research is done and making impacts on finding cures in ra...
Fertility 101
July 05, 2020 23:46 - 49 minutes - 67.8 MBLisa is joined by Donna Bell in episode 5: Fertility 101. Donna Bell is a Nurse Practitioner at MD Anderson Cancer Center and an expert in onco-fertility. She cares for pediatric, adolescent and young adult patients in the pediatric leukemia/lymphoma division and she helped to start and leads the onco-fertility consultation service. We dive deeper into the meaning of the fertility terminology used and: Why the initial conversation matters Burden parents of patients with sarcoma carr...
Sarcoma and Fertility
July 05, 2020 23:35 - 48 minutes - 66.3 MBWe are joined by Dr. Abha Gupta in episode 4: Sarcoma and Fertility. Dr. Gupta is a sarcoma and onco-fertility expert. We discuss female and male fertility and: Do you even want to be a parent? And if yes – is it important if your future baby is related to you? What’s the rush – why fertility question needs to be asked when someone is first diagnosed with cancer and is there a rush? Balloons/marbles = ovaries/eggs Push and pull of AYAs (adolescents and young adults) and their pare...
Hanneke and Jim Part 2
June 15, 2020 07:00 - 16 minutes - 22.6 MBIn this short episode we continue the conversation with Hanneke and Jim. They share with us their experience in survivorship land with their daughter who completed therapy for Osteosarcoma 4 years ago. Music: Rospigg Artwork: Jonathan Borba
Hanneke and Jim Part 1
June 15, 2020 07:00 - 51 minutes - 70.6 MBHanneke and Jim share with us their families' sarcoma story beginning when their daughter was diagnosed with Osteosarcoma at 7 years old. This episode is relatable to all people and families with sarcoma, including advice for what to tell well intentioned people who give unsolicited advice: "Just stand in my puddle with me. That's all I need right now. It's raining everywhere. Don't try to give me an umbrella, don't try to give me rain boots, just stand with me where I am" Music: Rospi...
Sarcoma Sisters Podcast - Our Why
May 24, 2020 23:26 - 11 minutes - 15.8 MBOur first episode letting you know our why for starting a podcast about sarcoma.