Lived Experience and Traumatic Brain Injury

The Coalition for Recovery and Innovation in Traumatic Brain Injury Care Across the Lifespan (CRITICAL) was developed in 2017 to advance patient-centered outcomes for adults living with moderate to severe TBI. The coalition consists of survivors of TBI and their caregivers as well as TBI professionals (clinicians, researchers, and advocates). Funded through a Patient Centered Outcomes Research Institute (PCORI) Eugene Washington PCORI Engagement Award, the CRITICAL aimed to 1) develop resources for empowering individuals with cognitive impairments to collaborate on research and 2) develop a national research agenda for improving the lives of those living with moderate to severe TBI. Adam spoke with Principal Investigator of the CRITICAL project, Dr. Nate Mohatt; Professor at Ohio State University and Director of the Ohio Valley Center for Brain Injury Prevention and Rehabilitation, Dr. John Corrigan; and 14-year traumatic brain injury survivor, Julia Terlinchamp. Dr. Mohatt, Dr. Corrigan, and Julia discuss their experiences with the project and give advice for those wishing to participate in patient-centered outcomes research.