Managing Pain in Pediatric Rare Diseases
Pedia Pain Focus
English - March 03, 2021 07:01 - 32 minutes - 36.3 MB - ★★★★★ - 41 ratingsMedicine Health & Fitness Education chronicpain health healthcareproviders pain pediapainfocus pediatricpain pediatricpaineducation pediatricpainmedicine pediatricpaintreatment pediatricwellness Homepage Download Apple Podcasts Google Podcasts Overcast Castro Pocket Casts RSS feed
Previous Episode: #51. Digital Interventions for Self Management of Pediatric Pain
Rare diseases are...well rare, but pain and suffering associated with them is not! It requires early recognition or even preempting the pain inoder to prevent development of chronic an drefractory pain.
In commemoration of the International Rare Diseases Day, I bring you an episode focused on promptly identifying and managing the pain associated with pediatric rare diseases and the challenges associated with that.
Takeaways in This Episode
Why we should talk about rare diseases. What makes a disease rare and what is an orphan disease Which rare diseases are commonly encountered amongst children How big an issue is pain management for these children Common causes leading to pain experiences in a rare disease Common challenges to managing pain in a rare disease What should a healthcare professional know and do about managing pain for these childrenLinks
Pedia Pain Focus #51. Digital Interventions for Self Management of Pediatric Pain
National Organization for Rare Disorders
American Syringomyelia and Chiari Alliance Project
Society for Pediatric Pain Medicine