Living With Scanxiety: Cancer Podcast
133 episodes - English - Latest episode: 5 months ago - ★★★★★ - 22 ratingsJoin Rosaria Kozar, the mother of a warrior, as she interviews oncologists, pediatricians, survivors, parents, and other applicable organizations in the pediatric cancer world. If you need support as a caregiver or are just curious about childhood cancer, this is the show for you. Living With Scanxiety: Cancer Podcast discusses more than scans; it covers life during treatment and post-treatment. Subscribe, and I hope you will get some much-needed support from the show. Rosaria's mission is to inform, support, and promote hope.
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Episodes
The Resilient Soul: Flight, Fight, or Freeze, Responses to a Childhood Cancer Diagnosis
January 27, 2020 04:00 - 29 minutes - 20.3 MB017- Join me while I interview Kelly West, a 25-year veteran Registered Nurse (RN) and a board-certified pediatric hematology oncology nurse. But she is currently working on infection control in relationship to childhood cancer at a hospital in Colorado. Despite her current position, she is representing herself not the hospital. Her mission in this episode is to help parents going through or those that have gone through the trauma of childhood cancer. She is very passionate about her work, ...
Make A Wish: The Ins And Outs
January 20, 2020 17:00 - 17 minutes - 12 MB- 016 - Join in for an interview with Julie Abel. She describes the ins and outs of the Make A Wish process. Everything from popular wishes to the history of Make A Wish is covered. Also, have you ever wondered if a wish can be fulfilled in the child or pediatric oncology unit, well she describes that here too? Everything from the referral process from a parent or caregiver and their doctors (oncologists, pediatricians, etc…) are explained. From trips to Florida to meeting famous movie star...
Holding On To What Matters Most Following Diagnosis: With Motivational Speaker Kenny Clutch
January 13, 2020 04:00 - 21 minutes - 14.7 MB-015- Kenny Clutch, a father of four, found his purpose in life following his son’s diagnosis of cancer. He was a dancer and still is but not as active as he once was; instead, today, you can find him reaching out with motivational and inspirational speeches. He is also an advocate for children, like his son, that has Down Syndrome. Let’s just put it out there, this man is amazing. He has been on shows such as Steve Harvey, Good Morning American, BBC, and more. Join me in listening to how hi...
Holding On To What Matters Most Following Diagnosis: Kenny Clutch “The Dancing Dad”
January 13, 2020 04:00 - 21 minutes - 14.7 MB-015- Kenny Clutch, a father of four, found his purpose in life following his son’s diagnosis of cancer. He was a dancer and still is but not as active as he once was; instead, today, you can find him reaching out with motivational and inspirational speeches. He is also an advocate for children, like his son, that has Down Syndrome. Let’s just put it out there, this man is amazing. He has been on shows such as Steve Harvey, Good Morning American, BBC, and more. Join me in listening to how hi...
Holding On To What Matters Most Following A Diagnosis Of Pediatric Cancer: Advocate Kenny Clutch About His Son
January 13, 2020 04:00 - 21 minutes - 14.7 MB-015- Kenny Clutch, a father of four, found his purpose in life following his son’s diagnosis of cancer. He was a dancer and still is but not as active as he once was; instead, today, you can find him reaching out with motivational and inspirational speeches. He is also an advocate for children, like his son, that has Down Syndrome. Let’s just put it out there, this man is amazing. He has been on shows such as Steve Harvey, Good Morning American, BBC, and more. Join me in listening to how hi...
Camp Ronald McDonald: Forever Remembered and Forever Thankful
January 06, 2020 06:00 - 24 minutes - 17 MB-014- By utilizing the community and outside resources your child can be a 'kid' outside of the hospital. Jasmin was diagnosed with cancer, Leukemia, as a child. She was apprehensive about participating in Camp Ronald Mcdonald, but when she attended, she made life long friendships with other pediatric oncology patients. Varying activities and onsite healthcare services with doctors and nurses make this free experience safer than a camp for healthy children. Camp Ronald McDonald has weeks sp...
Camp Ronald McDonald for Children With Cancer: Forever Remembered and Forever Thankful
January 06, 2020 06:00 - 24 minutes - 17 MB-014- By utilizing the community and outside resources your child can be a 'kid' outside of the hospital. Jasmin was diagnosed with cancer, Leukemia, as a child. She was apprehensive about participating in Camp Ronald Mcdonald, but when she attended, she made life long friendships with other pediatric oncology patients. Varying activities and onsite healthcare services with doctors and nurses make this free experience safer than a camp for healthy children. Camp Ronald McDonald has weeks sp...
Attending Daycare: The Ins and Outs
December 30, 2019 03:00 - 13 minutes - 9.42 MB# 013 - Pam Bernard was an Early Childhood Center/Daycare Director when she had a student with cancer. The child was allowed to attend based on the oncologist's approval. However, she and the daycare played a pivotal role, ensuring there were constant communications and a partnership between the pediatric oncology patient, parents, and the teachers. Social workers were welcomed into the daycare to help educate teachers on what to expect. Not every child can attend daycare, but if your child...
Attending Daycare During Cancer Treatment: The Ins and Outs
December 30, 2019 03:00 - 13 minutes - 9.42 MB# 013 - Pam Bernard was an Early Childhood Center/Daycare Director when she had a student with cancer. The child was allowed to attend based on the oncologist's approval. However, she and the daycare played a pivotal role, ensuring there were constant communications and a partnership between the pediatric oncology patient, parents, and the teachers. Social workers were welcomed into the daycare to help educate teachers on what to expect. Not every child can attend daycare, but if your child...
Live Free Warrior: Survive and Thrive
December 23, 2019 05:00 - 29 minutes - 20.1 MB# 012 - Sara Quiriconi, better known as Live Free Warrior, is a survivor of childhood cancer, motivational speaker, and model. After listening to this episode, parents should have a better understanding of what a child might think and feel during treatment, how to communicate with their child, how a child might feel after survival in the oncology world, and a how they feel about the procedures. After extended stays in the pediatric oncology unit and surviving childhood cancer, Sara has come ...
Live Free Warrior: Cancer Surviver and Thriver
December 23, 2019 05:00 - 29 minutes - 20.1 MB# 012 - Sara Quiriconi, better known as Live Free Warrior, is a survivor of childhood cancer, motivational speaker, and model. After listening to this episode, parents should have a better understanding of what a child might think and feel during treatment, how to communicate with their child, how a child might feel after survival in the oncology world, and a how they feel about the procedures. After extended stays in the pediatric oncology unit and surviving childhood cancer, Sara has come ...
Live Free Warrior: Cancer Survivor and Thriver
December 23, 2019 05:00 - 29 minutes - 20.1 MB# 012 - Sara Quiriconi, better known as Live Free Warrior, is a survivor of childhood cancer, motivational speaker, and model. After listening to this episode, parents should have a better understanding of what a child might think and feel during treatment, how to communicate with their child, how a child might feel after survival in the oncology world, and a how they feel about the procedures. After extended stays in the pediatric oncology unit and surviving childhood cancer, Sara has come ...
Your Pediatrician's Role: During and After Treatment: Dr. May Carter
December 16, 2019 06:00 - 22 minutes - 15.6 MB011 - Dr. May Carter, a pediatrician, explains the role of the pediatrician following a pediatric cancer diagnosis and after remission. She discusses the sensitivity pediatricians have during treatment for kids with cancer inside and outside of the doctor's office. Additionally, Dr. May Carter expands on how pediatricians take care of their patients (survivors) following chemotherapy, radiation, or other types of treatment that lead to remission and beyond. Due to the sensitivities and poss...
Your Pediatrician's Role During and After Cancer Treatment: Dr. May Carter
December 16, 2019 06:00 - 22 minutes - 15.6 MB011 - Dr. May Carter, a pediatrician, explains the role of the pediatrician following a pediatric cancer diagnosis and after remission. She discusses the sensitivity pediatricians have during treatment for kids with cancer inside and outside of the doctor's office. Additionally, Dr. May Carter expands on how pediatricians take care of their patients (survivors) following chemotherapy, radiation, or other types of treatment that lead to remission and beyond. Due to the sensitivities and poss...
Survivor Mette de Fine Licht Recounts the Dynamics of Friendships and Parental Support During Treatment
December 09, 2019 03:00 - 37 minutes - 25.5 MB#010 - Mette de Fine Licht, was a teen when diagnosed with cancer. She drew from the strength of the community during treatment. Currently, she is a writer and advocate located in Denmark. Friends and supportive parents surrounded her. Mette realized the real value of friendship and love, even though it could not cure her. She used their support to separate herself, whenever possible, from, as she calls it 'sick Mette.' Mette also discusses the emotional struggles and loss of self when all ...
Pediatric Cancer Survivor Mette de Fine Licht Recounts the Dynamics of Friendships and Parental Support During Treatment
December 09, 2019 03:00 - 37 minutes - 25.5 MB#010 - Mette de Fine Licht, was a teen when diagnosed with cancer. She drew from the strength of the community during treatment. Currently, she is a writer and advocate located in Denmark. Friends and supportive parents surrounded her. Mette realized the real value of friendship and love, even though it could not cure her. She used their support to separate herself, whenever possible, from, as she calls it 'sick Mette.' Mette also discusses the emotional struggles and loss of self when all ...
Explaining Cancer to Young Children with Author Angus Olsen
November 28, 2019 07:00 - 15 minutes - 10.6 MB# 009 - Author Angus Olsen found himself lost in the world of pediatric cancer. Thrust into the caretaker position due to unusual circumstances; he had to adapt quickly. In his new job as a caretaker, Angus used doodles and art to help his young daughter and himself understand the world around them. Today, he uses his talents as an artist to help others that are in his shoes. He has authored several children's books used throughout many hospitals. I hope you will learn from his story and und...
Explaining Cancer to Young Children with Author Angus Olsen
November 28, 2019 07:00 - 15 minutes - 10.6 MB# 009 - Author Angus Olsen found himself lost in the world of pediatric cancer. Thrust into the caretaker position due to unusual circumstances; he had to adapt quickly. In his new job as a caretaker, Angus used doodles and art to help his young daughter and himself understand the world around them. Today, he uses his talents as an artist to help others that are in his shoes. He has authored several children's books used throughout many hospitals. I hope you will learn from his story and und...
Surviving During the Chaos of Cancer: A Discussion with Author Tara Geraghty
November 25, 2019 02:00 - 30 minutes - 20.9 MB#008 - Talented Author Tara Geraghty and public speaker/figure explains the insights within her book, Making Cancer Fun: A Parent's Guide. Tara provides us with her story, her daughter's battle with neuroblastoma, and how she 'dealt' with it. She turned her coping technique into a prevalent book amongst the pediatric caregiving oncology community. I hope you can learn that while not everyone copes the same way, you need to choose your path. Celebrating milestones is one of many means to make...
Surviving During the Chaos of Cancer: A Discussion with Author Tara Garaghty
November 25, 2019 02:00 - 30 minutes - 20.9 MB#008 - Talented Author Tara Geraghty and public speaker/figure explains the insights within her book, Making Cancer Fun: A Parent's Guide. Tara provides us with her story, her daughter's battle with neuroblastoma, and how she 'dealt' with it. She turned her coping technique into a prevalent book amongst the pediatric caregiving oncology community. I hope you can learn that while not everyone copes the same way, you need to choose your path. Celebrating milestones is one of many means to make...
Against All Odds: Choosing Hope
November 18, 2019 06:00 - 19 minutes - 13.7 MB#007 - Your son has just been diagnosed with a rare form of childhood cancer, and you feel lost and defeated. Well, that's what John, an English professor in New Hampshire, discusses in this episode. With the help of his 'tribe' and family, he chooses hope. Because of his choice, his son is now in remission, and John has learned not to pay attention to statistics. He also offers some advice and support for parents of newly diagnosed children as they enter the world of pediatric oncology. ...
Against All Odds: Choosing Hope When Your Child Has Cancer
November 18, 2019 06:00 - 19 minutes - 13.7 MB#007 - Your son has just been diagnosed with a rare form of childhood cancer, and you feel lost and defeated. Well, that's what John, an English professor in New Hampshire, discusses in this episode. With the help of his 'tribe' and family, he chooses hope. Because of his choice, his son is now in remission, and John has learned not to pay attention to statistics. He also offers some advice and support for parents of newly diagnosed children as they enter the world of pediatric oncology. ...
Coping through Poetry: Scanxiety, A Poem By Dr. Diane Portman of the Moffitt Cancer Center in Tampa, FL
November 11, 2019 06:00 - 20 minutes - 13.8 MB#006 - Poetry and medicine unite. Dr. Portman of the Moffitt Cancer Center in Tampa, Florida, explains how she ties poetry into her services as the head of the Department of Supportive Care Medicine. She reads her poem, Scanxiety, and also gives listeners a real treat by reading her favorite poem intended to stir up conversation in the medical community. As a professional in Supportive Care medicine, she ends the episode by explaining the differences between hospice and palliative care medic...
Pediatric Oncology & Nutrition: What to Eat and How to Eat with Nichole Giller
November 04, 2019 05:00 - 15 minutes - 10.8 MB#005 - What can a child oncology patient eat? How should they eat? Do they have particular foods they might enjoy? Well, in this episode, Nichole Giller will explain the ins and outs of nutrition during treatment. Remember to follow the doctor's orders, but this episode will definitely stir up some conversation for listeners. I hope you enjoy this episode with Nichole Giller and form a new understanding of nutrition during treatment. She is passionate about healthy foods and oncology. I wi...
Pediatric Oncology & Nutrition: What to Eat and How to Eat with Nicole Giller
November 04, 2019 05:00 - 15 minutes - 10.8 MB#005 - What can a child oncology patient eat? How should they eat? Do they have particular foods they might enjoy? Well, in this episode, Nicole Giller will explain the ins and outs of nutrition during treatment. Remember to follow the doctor's orders, but this episode will definitely stir up some conversation for listeners. I hope you enjoy this episode with Nicole Giller and form a new understanding of nutrition during treatment. She is passionate about healthy foods and oncology. I wish...
Momcology, Cancer, and Coping During The Worst Time In Your Life
October 28, 2019 04:00 - 19 minutes - 13.5 MB#004 - What is momcology? So many terms will surface as you progress through treatment, and one is momcology. While it can apply to dads, in this case, we interview a momcologist, Liz Cirillo. In this episode, we learn about her journey and also how she came across the term momcology. Being the mother or father of a cancer patient is not easy, but Liz Cirillo shares her story of how she adapted to the worst time in her child's life. I hope you enjoy this episode with Liz Cirillo. I hope th...
Momcology and Coping During The Worst Time In Your Life
October 28, 2019 04:00 - 19 minutes - 13.5 MB#004 - What is momcology? So many terms will surface as you progress through treatment, and one is momcology. While it can apply to dads, in this case, we interview a momcologist, Liz Cirillo. In this episode, we learn about her journey and also how she came across the term momcology. Being the mother or father of a cancer patient is not easy, but Liz Cirillo shares her story of how she adapted to the worst time in her child's life. I hope you enjoy this episode with Liz Cirillo. I hope th...
Initial Diagnosis of Cancer and Support Systems: A Father's Perspective
October 22, 2019 17:00 - 18 minutes - 12.4 MB#003 Join Rosaria Kozar as she interviews David Hagan, the Executive Director of Why Me in Worcester, MA. He will discuss the ups and downs upon initial diagnosis and how connecting with other families helped him overcome so many of the obstacles that deal with pediatric cancer. Your host, Rosaria Kozar, hopes you will identify with some of the aspects David shares and also learn the importance of connecting with other 'cancer' families. If you would like show notes about this episode he...
Pediatric Cancer Scans and Scanxiety with Dana Farber's Pediatric Oncologist Dr. Alison O'Neill
October 21, 2019 19:00 - 18 minutes - 13 MB-002- Join Rosaria Kozar as she interviews Dr. O'Neill, a researcher, and practitioner from the Jimmy Fund's Dana Farber Cancer Institute located in Boston, MA. Dr. O'Neill gives a summary of the four most common types of scans. She also helps us to understand scanxiety; what it means and ways to help alleviate it. I hope you enjoy this highly informative podcast regarding scans and scanxiety. It brings a mix of the medical aspects of scans as well as the human aspects of scanxiety. Join m...
Scans and Scanxiety with Dana Farber's Pediatric Oncologist Dr. Alison O'Neill
October 21, 2019 19:00 - 18 minutes - 13 MB-002- Join Rosaria Kozar as she interviews Dr. O'Neill, a researcher, and practitioner from the Jimmy Fund's Dana Farber Cancer Institute located in Boston, MA. Dr. O'Neill gives a summary of the four most common types of scans. She also helps us to understand scanxiety; what it means and ways to help alleviate it. I hope you enjoy this highly informative podcast regarding scans and scanxiety. It brings a mix of the medical aspects of scans as well as the human aspects of scanxiety. Join m...
Living With Scanxiety: Intro
October 20, 2019 18:00 - 1 minute - 969 KB# 001 - Why should you listen to Living With Scanxiety is the first thing you will find out in this introductory episode. If you are a parent or caregiver of a newly diagnosed child with cancer, a child going through treatment (chemotherapy, immunotherapy, radiation, etc...), or wrapping up treatment this show is for you. Additionally, family members, friends, and those who are just curious are encouraged to listen. The ultimate goal is to expose you, the listeners, to things you might exp...
Living With Scanxiety: An Introduction
October 20, 2019 18:00 - 10 minutes - 7.31 MB# 001 - Why should you listen to me is the first thing you will find out in this introductory episode. If you are a parent or caregiver of a newly diagnosed child with cancer, a child going through treatment (chemotherapy, immunotherapy, radiation, etc...), or wrapping up treatment this show is for you. Additionally, family members, friends, and those who are just curious are encouraged to listen. The ultimate goal is to expose you, the listeners, to things you might experience or question...
Trailer: Living With Scanxiety
October 01, 2019 18:00 - 1 minute - 943 KBJoin Rosaria Kozar, the mother of a warrior, as she interviews oncologists, pediatricians, survivors, parents, and other applicable organizations in the pediatric cancer world. If you need support as a caregiver or are just curious about childhood cancer, this is the show for you. Living With Scanxiety: Cancer Podcast discusses more than scans; it covers life during treatment and post-treatment. Subscribe, and I hope you will get some much-needed support from the show. Rosaria's mission is t...