Living with Heart Disease
18 episodes - English - Latest episode: about 2 months ago - ★★★★ - 5 ratings~ From Somaneh Bouba, aka Heart of a Giant. ~
Is living a longer quality of life after a heart disease diagnosis possible?
We are the patients who have resolved to become physically and mentally healthier.
From managing symptoms to managing side effects
From managing medication to managing finances
Share the challenges and the triumphs.
Help understand what it means to live with a heart condition.
Discover what it means to survive and thrive with a heart condition.
This is Living with Heart Disease, a Heart of a Giant production.
With host Somaneh Bouba, in conversations with other inspiring voices of the heart health community
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Episodes
Navigating Heart Disease as a Caregiver
March 13, 2024 14:15 - 54 minutes - 49.9 MBTimestamps [00:02:41] Challenges caregivers face. [00:08:25] The role of caregivers. [00:10:56] Supporting caregivers' critical role. [00:15:32] Medication adherence and tips. [00:19:05] Timing of medication administration. [00:24:23] Grounding techniques for self-care. [00:29:20] Becoming an educated caregiver. [00:33:37] Effects of self-silencing on caregivers. [00:37:51] A cancer scare wakes him up. [00:41:22] Caregiver support and resources. [00:46:00] Navigating challenges of accepting ...
Ep 15: Navigating Personal Goals and Health Challenges with Jodie Hall-Holit
September 08, 2023 04:00 - 48 minutes - 44.1 MBJodie Hall's story emphasizes the importance of putting oneself first and seeking support when facing health challenges. Her experience with congestive heart failure at a young age sheds light on the significance of early diagnosis and proper medical care. At 19, Jodie discovered that she had congestive heart failure. Despite this diagnosis, she continued with her daily life, not fully understanding the seriousness of her condition. It wasn't until she was in her thirties that she noticed t...
Ep 14: Review of a Six-Year Heart Transplant Journey with Somaneh Bouba: Diagnosis & Challenges
June 06, 2023 08:00 - 29 minutes - 27.1 MBMeet Somaneh Bouba, a heart transplant recipient who has overcome tremendous challenges in his 6-year long heart transplant journey.As a dedicated husband, father, senior corporate manager and social entrepreneur, Somaneh has navigated his way through the complex world of heart transplantation with grace and resilience. His personal experiences have given him unique insights and perspectives on the challenges those recovering from a heart transplant face. Join us as Somaneh shares his inspi...
Ep 13: Battle of Heart Disease: Overcoming Obstacles with Armin Muzafirovic
May 23, 2023 08:00 - 1 hour - 87.7 MBEp 13: Battle of Heart Disease: Overcoming Obstacles with Armin Muzafirovic Against all odds, Armin refused to let his diagnosis define him. But a ski trip to Colorado brought an unexpected twist, changing everything he thought he knew about his condition. What happened next was an ongoing battle, and Armin's incredible resilience kept him fighting every step of the way. “In life, not everything is perfect, and sometimes we have obstacles that come our way...But being that rebellion that I...
Episode 12: Defying Odds with Olivia Rose: Heart Disease Survivor's Journey
May 09, 2023 08:00 - 1 hour - 57 MBBouba chats with Olivia Rose to talk about her heart disease journey. After suffering two strokes and heart disease, Olivia Rose, an elite athlete, courageously fights for her life and embarks on an inspiring journey of self-discovery and resilience to defy the odds. Olivia Rose is a thriving survivor, heart transplant recipient, and former LVAD patient living with heart disease. In addition, she is a natural bodybuilder and former athlete who has inspired others with her resilience and...
From Professional Basketball to LVAD: George Boakye-Yiadom's Unexpected Journey
April 25, 2023 08:00 - 38 minutes - 35.7 MB"If it wasn't for Ivy, I probably wouldn't be where I am. So I thank God for her. It wasn't easy. " - George Boakye-Yiadom Bouba talks with George about the ups and downs of living with a heart condition. George Boakye-Yiadom is a mental health coach, fashion designer, and technology consultant. He is the founder the Boak Group LLC and works at of Fathers Uplift. He is married with three children and recently underwent a heart transplant. George Boakye-Yiadom was a professional basketball...
Ep 11. From Professional Basketball to LVAD: George Boakye-Yiadom's Unexpected Journey
April 25, 2023 08:00 - 38 minutes - 35.7 MB"If it wasn't for Ivy, I probably wouldn't be where I am. So I thank God for her. It wasn't easy. " - George Boakye-Yiadom Bouba talks with George about the ups and downs of living with a heart condition. George Boakye-Yiadom is a mental health coach, fashion designer, and technology consultant. He is the founder the Boak Group LLC and works at of Fathers Uplift. He is married with three children and recently underwent a heart transplant. George Boakye-Yiadom was a professional basketball...
Episode 10: Inspiring Journey From Heart Failure to Transplant: A Chat With John Sanson
April 11, 2023 08:00 - 47 minutes - 43.5 MBJohn Sanson was diagnosed with dilated cardiomyopathy in 2016. After undergoing an LVAD and a transplant, he lives in Houston, Texas, with his wife, two dogs, and a cat. John works in the coffee industry, does photography, and is currently working on a documentary series about coffee. He is now facing $50,000 worth of medical debt due to the high cost of doctor visits but is thankful to have a job understanding his medical needs. In this episode, you will learn the following: 1. John Sanso...
Episode 9 - The Better Half of Heart of a Giant Speaks on LWHD
September 03, 2022 07:00 - 1 hour - 89.1 MBAnyone facing a heart journey knows how much a support system makes life easier. The core of our support system is often our spouses and life partners. Our talk today is about the better half of Heart of a Giant. Welcome to Living with Heart Disease. Listen to the patients, support systems, and care providers who have resolved to become healthier. Join host Somaneh Bouba as we share challenges and triumphs. Discover what it means to survive and thrive with heart conditions. Today’s main gu...
Episode 8 - Leading Heart Health Advocacy
August 16, 2022 07:00 - 1 hour - 62.1 MBPeople feel inspired when you talk about the topics you care about with passion. More so, people feel moved to take action when they see your dedication. Advocacy can show the tangible changes that your efforts make, and start a ripple effect of positive action. Our talk today is about leading heart health advocacy. Welcome to Living with Heart Disease. Listen to the patients, support systems, and care providers who have resolved to become healthier. Join host Somaneh Bouba as we share chal...
Episode 7 - The 757 Renaissance Man on his journey with the LVAD
August 03, 2022 07:00 - 1 hour - 94.3 MBWe are more than just heart failure. We have heart failure, but it is not a limit on who we are as people. We are multitalented and dimensional. Without a doubt, we should enjoy our lives. Our talk today is about living with humor and giving life your all. Welcome to Living with Heart Disease. Listen to the patients, support systems, and care providers who have resolved to become healthier. Join host Somaneh Bouba as we share challenges and triumphs. Discover what it means to survive and th...
Episode 6 - Finding the courage and passion to live with heart failure
July 16, 2022 07:00 - 1 hour - 91.2 MBSharing your story and building a community along the way is impactful. Your journey can be filled with excitement, empathy, resilience, and joy. Every time you make a new connection, you’ll realize that you never know who your story will resonate with. Our talk today is about finding the courage and passion to live with heart failure. Welcome to Living with Heart Disease. Listen to the patients, support systems, and care providers who have resolved to become healthier. Join host Somaneh Bo...
Episode 5 - Life with an LVAD while waiting for a heart transplant
July 03, 2022 07:00 - 1 hour - 95.4 MBHeart disease can change our physical health, but how often do we address the impact heart disease has on our identity? Part of our heart health journey is about rebuilding. We change our view of our identity and the role we play in the lives of our loved ones. Our talk today features stories about managing the physical and mental challenges of heart disease. Welcome to Living with Heart Disease, a Heart of a Giant production. Is it possible to live a longer quality of life after a heart di...
Episode 4 - Caring with a Big Loving Heart
June 16, 2022 07:00 - 1 hour - 107 MBSome people light up an entire room with their presence. They are the ones who bring love and laughter wherever they go. One interaction with them is unforgettable. People who make the most of life inspire everyone else to do the same. Our talk today celebrates the contagiously energetic life of Evelyn Charrisse McRae. Welcome to Living with Heart Disease, a Heart of a Giant production. Is it possible to live a longer quality of life after a heart disease diagnosis? Listen to the patients, ...
Episode 3 - Patient Education and Research
June 03, 2022 07:00 - 1 hour - 82.8 MBDoesn’t it feel great to speak with someone who understands you? It’s common for people to connect with someone who has a similar lived experience. Through advocacy, people can connect; and educate each other. Most importantly, they can empathize with one another. Our talk today creates an open dialogue for patient education and research in the heart condition community. Welcome to Living with Heart Disease, a Heart of a Giant production. Is it possible to live a longer quality of life afte...
Episode 2 - Pretty Lady vs. Heart Failure
May 16, 2022 07:00 - 1 hour - 78.1 MBInstinct is often the best guidance we can have. For an invisible disease, the patient has the most significant insight into what’s going on with their body. Learning to trust those hints can be lifesaving in times where professional counsel and the patient’s instinct don’t match up. Our talk today focuses on not being afraid to trust your voice in leading your heart failure journey. Welcome to Living with Heart Disease, a Heart of a Giant production. Is it possible to live a longer quality...
Episode 1 - Heart Failure or Heart Disco?
May 03, 2022 07:00 - 1 hour - 78.9 MBReceiving a heart disease diagnosis throws you into a winding journey of information. Suddenly there’s a lot to catch up on, and while this can seem daunting at first, you start to find a rhythm as you learn. Our talk today focuses on what is helpful to know earlier in the journey so you can ease into a rhythm of your own more quickly. Welcome to Living with Heart Disease, a Heart of a Giant production. Is it possible to live a longer quality of life after a heart disease diagnosis? Listen ...