Ataxia, Did You Know? artwork

Alan Thomas is a patient engagement advocate for rare diseases in general and Ataxia

Ataxia, Did You Know?

English - April 12, 2018 20:43 - 25 minutes - 22.9 MB - ★★★★★ - 5 ratings
Education ataxia parkinson’s awareness health rare diseases Homepage Download Apple Podcasts Google Podcasts Overcast Castro Pocket Casts RSS feed
Previous Episode: Want to be involved in the Ataxian PROM?
Next Episode: Do you know what Schmahmann’s syndrome is?

Alan Thomas is a patient engagement advocate for rare diseases in general and Ataxia in particular. He is known as the 'rare disease warrior' and, as a patient with a 'life-limiting' rare disease, he can convey the patient engagement message from his point of view in all issues regarding the wellbeing of patients.Alan has established a patient-driven and focused group and campaigns at many levels, including patient forums, local and regional health boards, Welsh/UK government organisations, as well as taking part in many global conferences, in person or via the internet.


iTunes

https://itunes.apple.com/us/podcast/know-ataxia-ataxia/id1312495222?mt


SoundCloud

https://soundcloud.com/user-536040137-843024175


Facebook

https://www.facebook.com/ataxiadidyouknow/


Website

http://www.rideforjohn.org/


Instagram

https://www.instagram.com/ataxian_/


Twitter

https://twitter.com/johnnyjots

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