TSC Talks!
159 episodes - English - Latest episode: 4 months ago -TSC TALKS 2.0. Inspired by the condition Tuberous Sclerosis Complex. Providing digital audio & video content and products designed to educate, illuminate, support and advocate "off the grid" alternative and holistic options for marginalized populations. Providing a forum for communication, collaboration, resources and opportunity. Drawing from lived and learned experience All with the goal of coming together to affect change, bridge gaps and empower as we come together to better understand each other's predicament and validate the need for access, affordability that often keep those with chronic, life threatening conditions from exploring options. Options that CAN open the doors of perception to understanding our exceptional variability as human beings and the “one size fits all” aspects of traditional medicine that are not conducive to bio-psycho-social health, stability and longevity. Come join us as we dig deep into issues and concepts that need to be given some thought and discussion in order to truly “walk a mile” in another’s shoes!
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.
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Episodes
TSC TALKS Episode 10 TSC Mom Renée -A Canadian Perspective w/non verbal son.
September 26, 2018 13:08 - 1 hour - 65.8 MBRenée and I go in depth into her journey with her son Aaden who is non-verbal with TSC, diagnosis to current day. Renée gives perspective from Canada on managing TSC, from diagnosis, brain surgery to current day. Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.
TSC TALKS: Episode 8: TSC Mom Marlo, The Journey Continues
September 18, 2018 20:00 - 43 minutes - 39.9 MBMarlo discusses the weight of a TSC diagnosis and all it's implications. From diagnosis during pregnancy to behaviors and school related issues, seizure frustrations, med management, healthcare professionals and more. She narrates the difficulty of living with the uncertainty that can be a part of TSC management and how the family works together to cope. Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.
TSC TALKS: Episode 9: Dorina Leslie, finding True North; TSC & Mental Health
September 18, 2018 18:32 - 31 minutes - 28.4 MBIn this episode, I interview Dorina Leslie, mother of Justin Leslie regarding her experiences with TSC diagnosis as well as mental health issues, and finding one's "True North". Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.
TSC TALKS, Episode 7: Justin Leslie, Hard work and Acceptance, dedicated to the memory of Keith Hall
September 11, 2018 17:05 - 30 minutes - 27.9 MBJustin, 20, URI student. young adult living with TSC. Spoke of his diagnosis, the impact, manifestations, inspiration, influencers, Keith Hall and others. Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.
Podcast One - #TeamTSC Introduction, Information and Etc!
June 29, 2018 01:25 - 6 minutes - 6.29 MBCo-Team Ambassador Jill talks about Team TSC, what we're doing, who we are, etc.
TSC TALKS, Episode 6, MaryEllen, 22 Year Old, Talks About Shared Living
April 08, 2018 19:46 - 10 minutes - 9.49 MB22 year old with tuberous sclerosis complex discusses move to shared living Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.
TSC TALKS, Episode 5, Interview with Jack Lacy
March 21, 2016 18:48 - 6 minutesJill Woodworth chats with her son Jack, age 14, about what it's like to have TSC. Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.
TSC Talks, Episode 4, Part 2. The Interview With Mary Ellen Lacy
March 09, 2016 18:59 - 12 minutesMary Ellen Lacy talks about the end of high school and beyond with Mom. Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.