First Nations data sovereignty

Dr. Jonathan Dewar is the Chief Executive Officer of the First Nations Information Governance Centre. Carmen Jones is Director of Research and Data Management, for the Chiefs of Ontario.

The First Nations Information Governance Centre and its work [3:25]OCAP (ownership, control, access, and possession) and what the principles mean for data collection and information governance [5:20]The history of the OCAP principles and how they were developed [8:14]Truth and Reconciliation Commission findings related to data sovereignty [11:38]Understanding and enforcement of the OCAP principles [14:15]Privacy and OCAP [17:30]The tension between privacy rights as a collective concept and current Canadian privacy laws [18:30]Research and data governance agreements at the regional level [20:30]Integrating OCAP principles into research agreements to further community-based research [22:14]OCAP principles as an enabler of sound research, ethical data collection, and partnerships between researchers and First Nations communities [24:00]Empowering communities with the data they need to make positive change [26:50]Building trust and respectfully engaging with First Nations communities on research projects [28:59]

Resources:

Report of the Royal Commission on Aboriginal PeoplesFundamentals of OCAP (First Nations Information Governance Centre, online training course) First Nations Data Governance Strategy (First Nations Information Governance Centre)First Nations surveys (First Nations Information Governance Centre) Institute for Clinical Evaluative Sciences (IC/ES)Truth and Reconciliation Commission reports and calls to action

Info Matters is a podcast about people, privacy, and access to information hosted by Patricia Kosseim, Information and Privacy Commissioner of Ontario. We dive into conversations with people from all walks of life and hear stories about the access and privacy issues that matter most to them. 

If you enjoyed the podcast, leave us a rating or a review. 

Have an access to information or privacy topic you want to learn more about? Interested in being a guest on the show? Send us a tweet @IPCinfoprivacy or email us at [email protected]. 

The information, opinions, and recommendations presented in this podcast are for general information only. It should not be relied upon as a substitute for legal advice. Unless specifically stated otherwise, the IPC does not endorse, approve, recommend, or certify any information, product, process, service, or organization presented or mentioned in this podcast, and information from this podcast should not be used or reproduced in any way to imply such approval or endorsement. None of the information, opinions and recommendations presented in this podcast bind the IPC’s Tribunal that may be called upon to independently investigate and decide upon an individual complaint or appeal based on the specific facts and unique circumstances of a given case.