Episode 135 - Janice Janus
I'm Aware That I'm Rare: the phaware® podcast
English - March 08, 2018 13:00 - 6 minutes - 5.92 MB - ★★★★★ - 14 ratingsHealth & Fitness Government awareness cteph pah research advocacy asthma breathlessness caregiver clinicaltrials earlydiagnosis Homepage Download Apple Podcasts Google Podcasts Overcast Castro Pocket Casts RSS feed
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Janice Janus is a pulmonary hypertension patient from New Kensington, Pennsylvania. Janice co-created the facebook PH support group: Pulmonary Hypertension Awareness and Support, because she felt the need to have a better connection to those dealing and adjusting to their “New Normal.” In this episode, she discusses her experience in participating in clinical trials and why raising awareness is so important for this rare disease.
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