Help 4 HD Live!
521 episodes - English - Latest episode: 1 day ago - ★★★★★ - 9 ratingsWelcome to Help 4 HD Live! We are proud to broadcast credible information and education to the Huntington's disease community on a weekly basis. Help 4 HD Live! broadcasts every week providing vital information and inspiration to our Huntington's community. We have been blessed to interview many of our JHD/HD researchers, medical professionals, care providers and the pharmaceutical industry for six years. Join our Hosts, Katie Jackson each week for incredible programming and don’t forget to share this channel with your colleagues, family and friends. **Help 4 HD Live! is made possible through an education grant from Teva Pharmaceuticals and the Griffin Foundation. Thanks for tuning in! Help 4 HD International Inc.
**Please consult with you own physician for advice about any medical recommendation.
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Episodes
The HD View Ask Dr. Goodman
March 04, 2014 23:30 - 1 hour - 14.7 MBPre-recorded We are talking about body discomfort in Huntington's disease. Like my sweet Jimbo, many of our HD and JHD individuals suffer from body pain. We must study this in order to find treatments and therapies. Listen to Dr. Goodman speak about new studies concerning this horrific conditon in HD.
The HD View with Dr. Ben Deverman CalTech
February 25, 2014 23:30 - 55 minutes - 12.4 MBPre-recorded Dr. Deverman from Cal Tech is offering our listeners a series of educational shows outlining gene therapy and what science is happening right now for Huntington's disease. Tune in for Part 1 of Gene Therapy 101...
The HD View with Dr. Mary Edmondson
February 17, 2014 23:30 - 1 hour - 15.4 MBMONDAY, February 17, 2014 Dr. Mary Edmondson is back! We love her wisdom and care of our Huntington's families in North Carolina. She is working on a model Family Education Program and we will get to hear all about that today. Tune in for some amazing information from our incredible special guest. Find Dr. Edmondson at: http://hdreach.org/
The HD View - PRE-CELL with Dr. Vicki Wheelock
February 11, 2014 23:30 - 1 hour - 13.9 MBTUESDAY, February 11, 2014 Special incredible guests tonight are Dr. Vicki Wheelock and Teresa Tempkin RNC, MSN, ANP from UC Davis HD Clinic. Tonight's topic is PRE-CELL, an observational study and precurser to HD-CELL. For more information about PRE-CELL visit clinicaltrials.gov http://clinicaltrials.gov/ct2/show/NCT01937923?term=Pre-Cell&rank=1
The HD View Ask Dr. Goodman
February 04, 2014 23:30 - 59 minutes - 13.5 MBIt's time for Ask Dr. Goodman! Get your questions ready... Tonight we will be talking about antipsychotic medications for individuals suffering from symptoms of Huntington's disease. Read her latest article: http://hddrugworks.org/index.php?option=com_content&task=view&id=332&Itemid=30
The HD View with FARA
February 03, 2014 21:30 - 49 minutes - 11.1 MBToday’s incredible special guests are Ron Bartek, Co-Founder and President and Jen Farmer Executive Director, coordinator, of FARA /, The Friedreich's Ataxia Research Alliance a national, public, 501(c)(3), non-profit, tax-exempt organization dedicated to curing Friedreich’s ataxia (FA) through research. FARA grants and activities provide support for basic and translational FA research, pharmaceutical/ biotech drug development, clinical trials, and scientific conferences. FARA also serves as ...
The HD View with Gene Veritas at World Stem Cell Summit
January 29, 2014 21:30 - 58 minutes - 13.2 MBWEDNESDAY, January 29, 2014 - 1:30 pm PST/4:30 pm EST Gene Veritas aka Ken Serbin will be here to talk about the World Stem Cell Summit from December 2013.
The HD View with Brenda Vega en Espanol
January 25, 2014 17:00 - 59 minutes - 13.3 MBSATURDAY, January 25, 2014 - 9:00 am PST/11:00 am Mexico City time Brenda Vega from Fundacion Huntington Mexico will be our incredible special guest. Co-Host Daniel Medina will be speaking to our Espanol compadres and translating en Ingles. Stay tuned...
The HD View with Dr. Benjamin E. Deverman - Part I
January 21, 2014 23:30 - 54 minutes - 12.4 MBTUESDAY, January 21, 2014 - 3:30 pm PST/6:30 pm EST Join us for a 3-part series on gene therapy for Huntington's disease. Our incredible special presenter is Benjamin E. Deverman, Ph.D. from California Institute of Technology who is going to give us some very interesting insight and education about what exactly is gene therapy. What are the goals of this therapy and what genes can be used for gene therapy in HD. What are inhibitory RNAs, ASOs and other therapeutic strategies like trophic fac...
The HD View with CREST-E
January 16, 2014 23:30 - 50 minutes - 11.3 MBTHURSDAY - January 16, 2014 - 3:30 pm PST/6:30 pm EST It's time for an update from the CREST-E clinical trial with Bonnie Hennig. THE MISSION: To provide patients and families with information about CREST-E. The discussion today will be focused on providing a brief overview of the study allowing for an informal discussion about study participation and providing information about how individuals with HD and their caregivers can participate in clinical trials.
The HD View with Jimmy Pollard
January 14, 2014 23:30 - 1 hour - 14 MBTUESDAY January 14, 2014 - 3:30 pm PST/6:30 pm EST Jimmy Pollard is back with us to share with us his travels and lectures around the country speaking to our amzaing Huntington's families. He has been lecturing in California, South Dakota, and has plans of meeting our H'Dears in Fargo, ND and many other places. Tune in for a Jimmy Pollard update and lots of fun!
The HD View with Veronica Ruiz Moreno
January 11, 2014 17:00 - 1 hour - 18 MBSATURDAY/SABADO, 11 DE ENERO 2014 Help 4 HD International está feliz y orgulloso de estrenar su primer programa de radio en vivo en Español / Inglés que sera transmitido este Sábado, 11 de Enero 2014 a las 9:00 am Tiempo Del Pacifico/11:00 am Tiempo de la Ciudad de México Why is this new program extremely important? Help 4 HD International believes this bilingual program will reach a population of its people in North and South America and globally who will benefit from information and educa...
The HD View Ask Dr. Goodman Show
January 07, 2014 23:30 - 44 minutes - 10 MBJanuary 7, 2014 - We welcome you to another amazing year of the Ask Dr. Goodman Show. Practical and compassionate advice from an incredible physician treating our loved ones suffering with Huntington's disease in Washington and now reaching patients, families and caregivers, through Help 4 HD Radio, on a global scale. You may find Dr. Goodman at www.hddrugworks.org and as one of Help 4 HD International's Medical Advisors.
The HD View with Misdee and Dr. Scott Guess
December 21, 2013 20:00 - 1 hour - 13.6 MBThis month of December 2013 we are celebrating our HD advocates and this Saturday is no exception. Dr. Scott Guess and his better half, Misdee L. Kornder-Guess, RN are my favorite pharmacists in the world and today you are going to find out why. They founded Pain Management Pharmacy, Inc. in Santa Maria and En Soleil Pharmacy, Inc in Atascadero California. We are going to be talking about what is the new trend in pain management pharmacies and physicians. Not all HD patients have pain, but ma...
The HD View with The Wilderness Kids
December 17, 2013 23:30 - 44 minutes - 9.86 MBWelcome to this December 17 show. Help 4 HD Radio has designated the month of December for celebrating our amazing HD advocates. Tonight we are happy to introduce Papa Mike, Raima and The Wilderness Kids as our incredible special guests. Best known as the Wilderness Kids Firewood and Maple Syrup of Saco Maine, the Wilderness Kids are Mike and Raima's grandchildren, Brandon Irving, age 13, and his sisters Elizabeth (11) and Karissa (8) who founded this amazing program in memory of their two un...
Help4HD - The HD View - Celebrating the Advocates : Matt Ward!
December 10, 2013 23:30 - 55 minutes - 12.5 MBHelp4HD - The HD View - Celebrating the Advocates: Matt Ward! Join us as we continue to celebrate our amazing international advocates for Huntington's disease. We are excited to have the amazing "HD Warrior" Matt Ward from Nottingham, United Kingdom joins us tonight! Matt Ward has decided to share his experiences living with HD via a video diary on YouTube. His bravery and willingness to share his story is worth celebrating! We will be honoring Matt tonight for everything he has done to ...
The HD View with Elizabeth Valenzuela
December 03, 2013 23:30 - 1 hour - 16 MBTuesday, December 3, 2013 I am so excited about the month of December shows. This is the time of year for giving. We give to our family; to our friends and to others without expecting much in return. Tonight we are going to talk about the spirit of giving with a woman who puts this to practice all year-round. We begin with a story about an extraordinary woman and a remarkable homeless man. Elizabeth kept seeing Dale in the same place at certain times and had recognized him from prior years....
The HD View with Dr. Kenneth P. Serbin
November 20, 2013 21:30 - 1 hour - 14.4 MBOur incredible special gues this afternoon is Kenneth P. Serbin, Ph.D., professor and chair in the USD College of Arts and Sciences,Department of History, served as vice president, president, and immediate past president of the Brazilian Studies Association (2004-2010). He also was the co-chair of the Brazil Section of the Latin American Studies Association from 2003-2006. Kenneth Serbin’s mother died of Huntington’s disease in 2006 after a 20-year battle against the disease. Serbin tested ...
The HD View with Dr. Karen Anderson
November 19, 2013 23:30 - 1 hour - 17.2 MBTonight our incredible special guest is Karen E. Anderson, MD. She is an Associate Professor of Psychiatry & Neurology and the newly appointed Director of the Huntington Disease Care, Education and Research Center (HDCERC), a joint endeavor of Georgetown University Medical Center (GUMC) and MedStar Georgetown University Hospital. As Director, she leads a multidisciplinary team devoted to HD care, the first in the DC Metro area. She previously founded the University of Maryland Huntington's D...
The HD View with First HD Crew
November 12, 2013 23:30 - 41 minutes - 9.17 MBTuesday, November 12, 2013 Join us for an update on the HSG First-HD clinical trial with incredible special guests Jody Goldstein from Rochester and Greg Suter from the HNDC. First-HD is a Phase III clinical research trial of an investigational drug called SD-809 Extended Release (ER) in persons who have a diagnosis of Huntington disease (HD). First-HD will look at how safe, tolerable and effective SD-809 ER is compared to placebo (inactive drug) in reducing chorea. First-HD will be enr...
The HD View with Dr. Mary Edmondson
October 29, 2013 22:30 - 1 hour - 17.3 MBPre-Recorded 9-17-13 Our incredible special guest is Dr. Mary Edmondson, Psychiatry from Duke University HD Clinic and HD Reach. Hear about the HSG Symposium set for November 7-8-9 in North Carolina.
"Help4HD - The HD View: Celebrating the Advocates" Kris King
October 22, 2013 22:30 - 41 minutes - 9.35 MB"Help4HD - The HD View: Celebrating the Advocates" Tuesday, October 22, 2013 is the premier of our new component of Help4HD Programming - "Help4HD - The HD View: Celebrating the Advocates." It is so important that we take the time to acknowledge and celebrate individuals within our community who advocate for Huntington's disease! We are proud to have Kris Coasthunter King from Sheffield, England with us! Kris is an amazing advocate for Huntington's disease and is here tonight to share his s...
The HD View Ask Dr. Goodman Show
October 15, 2013 22:30 - 50 minutes - 11.4 MBTuesday, September 15, 2013 It's time for The HD View Ask Dr. Goodman Show! Tonight we are going to be talking about substance abuse in Huntington's disease. Dr Goodman writes articles each month for Help 4 HD - The HD View to discuss on the Ask Dr. Goodman Show. Find Dr. Goomans new article: http://bit.ly/1hR4zTp
Help 4 HD News Update with First HD
October 08, 2013 22:30 - 51 minutes - 11.5 MBPRE-RECORDED - First-HD is a Phase III clinical research trial of an investigational drug called SD-809 Extended Release (ER) in persons who have a diagnosis of Huntington disease (HD). First-HD will be enrolling participants across North America (United States and Canada) who have been diagnosed with HD and who have never taken tetrabenazine (Xenazine ®, Nitoman ®). Participants will be involved in this trial for approximately 4 months. Tonight listen to our special guests Dr. Samuel F...
The JHD View with Dr. Peg Nopoulos
October 01, 2013 19:00 - 1 hour - 18.5 MBTuesday, October 1, 2013 Dr. Peg Nopoulos, professor in Psychiatry, Pediatrics and Neurology at the University of Iowa Hospitals and Clinics will be our incredible special guest tonight. She will be talking about Kids HD and Kids JHD and why the two studies are different. She will have returned from World Congress for HD with some very interesting information for us. Tune in for a very special update from our amazing, incredible Dr. Peg Nopoulos. Visit: www.kids-hd.psychiatry.uiowa.edu F...
Help 4 HD News Update with Dr. Ira Shoulson
September 24, 2013 22:30 - 1 hour - 16.5 MBPre-recorded Tonight our incredible special guest is Dr. Ira Shoulson founder of the Parkinson Study Group and the Huntington Study Group. Dr. Shoulson is Professor of Neurology, Pharmacology and Human Science and Director of the Program for Regulatory Science and Medicine (PRSM) at Georgetown University.
The HD View with Dr. Mary Edmondson
September 17, 2013 22:30 - 1 hour - 17.3 MBDr. Mary Edmondson, MD, Psychiatry from Duke University HD Clinic and HD Reach is back with us tonight. HD Reach is a non-profit organization dedicated to providing access to care, education, and social assistance to patients and families affected by Huntington’s disease in North Carolina. She will be hosting a symposium in November titled: “Neurodegenerative Disorders: The example of Huntington’s disease”. We will be speaking with her about some very important insights to care and clinica...
The HD Veiw Ask Dr. Goodman Show
September 03, 2013 22:30 - 1 hour - 15.4 MBTuesday, September 3, 2013 Tonight we will be discussing obsessive compulsive behaviors in Huntington's disease. Read the article: Obsessive Compulsive Behaviors and Huntington's Disease http://hddrugworks.org/index.php?option=com_content&task=view&id=325&Itemid=30 Obsessive compulsive behaviors (OCBs) occur frequently in Huntington's disease (HD) and can cause great distress. These behavior symptoms are often hard for patients and families to describe, and doctors often do not routinely...
The HD View with First HD
August 20, 2013 22:30 - 51 minutes - 11.5 MBTonight our special guests are Dr. Samuel Frank - Associate Professor of Neurology and co-Director of Neurology Resident Education at Boston University and is involved with many HSG studies and trials, and Dr. David Stamler - Chief Medical Officer at Auspex Pharmaceuticals. Tonight we will be discussing First-HD, which is is a Phase III clinical research trial of an investigational drug called SD-809 Extended Release (ER) in persons who have a diagnosis of Huntington disease (HD). First-HD...
The HD View Ask Dr. Goodman Show
August 13, 2013 22:30 - 1 hour - 14.7 MBTuesday, August 13, 2013 Ask Dr. Goodman about pain in Huntington's disease tonight. Read her new article, "Body Discomfort and Pain in Huntington's Disease" According to two recent studies from the United Kingdom, bodily discomfort (which refers to total body physical suffering) and pain (which refers to localized physical suffering) are problems in Huntington's disease (HD) that significantly affect quality of life. Both studies, which included a total of 140 home-dwelling individuals in ...
"Help 4 HD - News Channel" with Terry Tempkin of UC Davis!
August 06, 2013 22:30 - 1 hour - 15.3 MBPRE-CELL! Help 4 HD International is excited to announce that UC Davis will begin recruitment for PRE-CELL which is the lead-in observational study for their future planned stem cell trial for Huntington's disease. Per Terry Tempkin (Clinical Project Manager): "UC Davis has received approval from the Institutional Review Board (IRB), to begin the observational PRE-CELL study." Terry Tempkin went on to say: "We are excited to begin the project and appreciate everything the Huntington's dise...
Help 4 HD News Channel Review with Dr. Jan Nolta
July 30, 2013 22:30 - 46 minutes - 10.5 MBPre-Recorded Show... Today's episode is a prelude to next weeks LIVE update with Teresa Tempkin RNC, MSN, ANP from the HDSA Center of Excellence, University of California, Davis Medical Center, Department of Neurology. Hello everyone! It was one year ago Help 4 HD News Channel invited Dr. Jan Nolta, Director of the UC Davis Stem Cell Program on the show to tell us about their CIRM (California Institute for Regenerative Medicine) grant award for the first human stem cell clinical trial for...
The HD View with Dr. Alicia Semaka
July 23, 2013 22:30 - 41 minutes - 9.28 MBTuesday, July 23, 2013 - 3:30 pm PST/6:30 pm EST Our incredible special guest tonight is Dr. Alicia Semaka, a Postdoctoral Fellow at the University of British Columbia. She received her MSc in Genetic Counseling in 2005 and her PhD in Medical Genetics under the supervision of Dr. Michael Hayden at the Centre for Molecular Medicine & Therapeutics in 2012. Her doctoral research focused on intermediate alleles for Huntington disease. Using a unique, multidisciplinary methodology that combined ...
The HD View PREQUEL Update
July 16, 2013 22:30 - 58 minutes - 13.2 MBTuesday, July 16, 2013 - 3:30 pm PST/6:30 pm EST Our incredible special guest tonight is Dr. Christopher Ross who is Professor of Psychiatry, Neurology, Pharmacology and Neuroscience at Johns Hopkins University School of Medicine, Director of the Division of Neurobiology, Director of the NINDS-funded Baltimore Huntington’s Disease Center, and Director of the Huntington’s Disease Society of America Center of Excellence at Johns Hopkins. Tonight PI Dr. Ross will give us an update on the HSG ...
The HD View with Emily Fisher
July 09, 2013 22:30 - 52 minutes - 11.7 MBTUESDAY, July 9, 2013 Tonight our incredible special guest is Emily Fisher, MSc Medical Genetics, Centre for Molecular Medicine and Therapeutics at the University of British Columbia. In 2012, Emily Fisher completed her Master's degree in science specializing in Medical Genetics at the University of British Columbia. Emily's thesis project focused on the epidemiology of HD. This is very important work and we are going to find out what that means to us. Her study was conducted in British C...
Help 4 HD with Dan Brennan at Lundbeck
June 04, 2013 22:30 - 39 minutes - 8.91 MBPre-Recorded in 2011... Introducing Dan Brennan from Lundbeck and talk about RNAi.
Help 4 HD with Dr. Robert Pacifici, CHDI Foundation
May 28, 2013 22:30 - 31 minutes - 7.07 MBPRE-RECORDED... December 2010, hosted by BJ Viau Robert Pacifici was the Site Director and Chief Scientific Officer at the Research Triangle Park Laboratories of Eli Lilly and Company. There he oversaw the company's global screening and quantitative-biology efforts. Prior to joining Lilly, Robert was Vice President of Discovery Technologies at Xencor, a privately held biotechnology company that applied rational design principles to the development of protein therapeutics. At Amgen for near...
The HD View with Jimmy Pollard
May 21, 2013 22:30 - 1 hour - 19.3 MBTuesday, May 21 PRE-RECORDED... Celebrating Woodie Guthrie through the eyes of Jimmy Pollard. May is Huntington's Disease awareness month. Tune in to a fabulous interview with the one and only Jimmy Pollard.
The HD View ~ Ask Dr. Goodman Show
May 07, 2013 22:30 - 58 minutes - 13.2 MBTuesday... new show time! Dr. Goodman will be with us tonight to talk about CHDI foundation and their role as the "collaborative enabler" with financial clout in drug development for Huntington's disease. Tune in for a very informative show.
Help 4 HD with Dr. Diana Rosas - CREST-E III
April 29, 2013 22:30 - 46 minutes - 10.4 MBOur incredible special guest tonight is Dr. Diana Rosas, MD, Director, Center for Neuro-Imaging of Aging and Neurodegenerative Disease. Dr. Rosas and her team have focused primarily on the development of biomarkers for use in the study of neurodegenerative diseases, to better characterize progression, to better understand genotype/phenotype correlations and to apply novel neuroimaging approaches in clinical trials with the overall aim of making them more efficient. Dr. Rosas’ lab has begu...
Help 4 HD with Dr. Ira Shoulson
April 22, 2013 22:30 - 1 hour - 16.5 MBPre-recorded... Tonight our incredible special guest is Dr. Ira Shoulson founder of the Parkinson Study Group and the Huntington Study Group. Be sure to listen to our first interview with Dr. Shoulson on May 9, 2011. Dr. Shoulson is Professor of Neurology, Pharmacology and Human Science and Director of the Program for Regulatory Science and Medicine (PRSM) at Georgetown University. www.huntington-study-group.org
The HD View with Dr. Mary Edmondson
April 15, 2013 22:30 - 1 hour - 21.1 MBPRE-RECORDED January 30, 2012 Today's episode is with Dr. Mary Edmondson, a medical physician and a psychiatrist from Duke University, North Carolina; and a founder of the North Carolina Center for the Care of Huntington's Disease NC-CCHD), which is a wonderful organization that provides education, medical and social service care for Huntington's (HD) families in North Carolina. She too belongs to an HD family and brings a personal perspective to care. In her "Recognizing Trigger Behaviors...
The HD View with Danny Cahill
April 08, 2013 22:30 - 1 hour - 14 MBMonday, April 8, 2013 3:30 pm PT/6:30 pm ET - Super special incredible guest tonight will be Danny Cahill, winner of the hit TV series, season 8 of The Biggest Loser. Danny lost 239 pounds in 7 months! Amazing story about how his life was literally turned around by his wife Darci and a prayer. Of course, The Biggest Loser is really the biggest winner. His life has been changed forever. Tune in for an uplifting and inspirational show!
The HD View Ask Dr. Goodman Show
April 01, 2013 22:30 - 1 hour - 13.5 MBMONDAY, April 1, 2013 3:30 pm PT/6:30 pm ET It's time to ask Dr. Goodman "your" questions about the care and treatment of Huntington's disease... Tonight the topic is "What's empathy got to do with it?" Read her article, ask Dr. Goodman "your" questions and listen to the show. Please tell all your colleagues, friends and family about Help 4 HD Radio and click follow on our show page to get email reminders of upcoming episodes. Dr. Goodman's listeners have grown to more than 10,000 stro...
The HD View with Dr. Neal Hermanowicz
March 25, 2013 22:30 - 1 hour - 15.9 MBMONDAY, March 25, 2013 Our incredible special guest tonight is Dr. Neal Hermanowicz, Director of the Movement Disorders Program at the University of California at Irvine. Dr. Hermanowicz is engaged foremost in patient care. He is a member of the Parkinson’s Study Group, The Huntington’s Study Group, the Dystonia Study Group, and the Multiple Systems Atrophy Study Group. Dr. Hermanowicz has been involved in numerous clinical trials and research in the area of movement disorders. UC Irvine ...
The HD View with Prana Biotechnology, Ltd.
March 18, 2013 22:30 - 1 hour - 14.3 MBMONDAY, March 18, 2013 Topics that will be focused on are: Our therapeutic strategy ‘MPAC’ technology, what are these compounds like PBT2? Brief historical background as to where our HD program came from. A bit of science (although without AV this will be brief indeed) Why we are hopeful that the mechanism of action may provide patient benefit. In particular our previous work with PBT2 in AD. Outline of Reach2HD, status.
The HD View with Dr. Mary Edmondson
March 11, 2013 22:30 - 1 hour - 19.2 MBMONDAY, MARCH 11, 2013, 3:30 PM PT/6:30 PM ET Our incredible special guest tonight is Dr. Mary Edmondson. She is a physician/psychiatrist from Duke University, North Carolina and a founder of the North Carolina Center for the Care of Huntington's Disease NC-CCHD). She will be here to talk about strategies on how to communicate with people who are experiencing anosognosia [medical term for lack of awareness] and strategies to keep them engaged...with family and medical care. Dr. Edmondson also...
The HD Veiw Ask Dr. Goodman Show
March 04, 2013 23:30 - 1 hour - 14 MBMONDAY, MARCH 4, 2013 3:30 PM PT/6:30 PM ETDr. Goodman will be talking about:Anosognosia is the medical term for lack of self awareness of one's own disability or disease symptom. This condition, which is different from denial, occurs in many brain diseases including Huntington's disease (HD). Anosognosia is caused by nerve circuit damage to brain structures that interpret and organize information. Lack of awareness in HD creates problems that can range from refusal of therapy: "I don't nee...
Help 4 HD News Channel Update with Dr. Goodman
February 18, 2013 23:30 - 48 minutes - 10.8 MBMONDAY FEBRUARY 18, 2013Happy Monday everyone and thank you for tuning in to Help 4 HD News Channel! This is your host, Melissa Biliardi. Please tell all your colleagues, friends and family about Help 4 HD Radio and click “Follow” on our Show Page to get email reminders of upcoming episodes. I want to thank our 50,350 listeners for tuning in!Help 4 HD News Channel Update is proud to bring the latest news to the community. We aim to address your questions and comments about current topics and ...