PCORI Research Funding: #13 Emerging Adults w Mental Illness

PCORI’s Dr. Chue brings to light the complexities & challenges of conducting research, engaging stakeholders, and implementing findings in real-world settings.

About the Show
Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this.

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Contents
Executive Summary. 1

Proem.. 2

Introducing Dr. Amanda Chue 01:37. 2

Podcast intro 02:22. 2

Health is fragile 03:14. 2

Path to young adult mental health research 03:48. 3

Evidence gaps 05:22. 3

Do comparators exist? 08:17. 4

Efficacy versus efficiency 11:29. 4

Dynamic tension - Parent engagement in research 12:52. 4

A word from our sponsor, Abridge 13:38. 5

 Call to action 14:41. 5

Dissemination to those with lived experience 15:51. 5

Research results impacting clinical work or decisions 19:07. 6

Dynamic tension – CER and innovation 20:04. 6

Dissemination – sharing results 21:36. 6

Community implementation 22:51. 7

Stakeholder Advisory Panels 27:06. 7

Dynamic tensions in public engagement, dissemination, and implementation 30:09. 8

PCORI and public engagement 30:53. 8

Policy making 34:17. 9

Reflection 37:18. 10

Podcast Outro 39:26. 10
Episode
Executive Summary
PCORI’s Dr. Chue brings to light the complexities and challenges involved in conducting research, engaging stakeholders, and implementing findings in real-world settings. It emphasizes the need for long-term partnerships with community organizations and the importance of addressing disparities in research representation. The dynamic tensions in various research and implementation aspects underscore the need for thoughtful and creative approaches to address complex healthcare issues effectively.
Proem
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I treasure the dynamic tensions in life—for example, privacy and community, pathological optimism and catastrophizing, early adopter and skeptic. While not a researcher, I am personally and professionally neck-deep in research. Yet, despite my commitment to research, I’m a skeptic. Who’s it for? How can it aid decision-making? Who’s included in the research question, process, analysis, and dissemination? Where are the vested interests? Do we already have evidence yet have little will to implement, or does the bureaucracy or culture impede action? I will step in and highlight some dynamic tensions as the conversation flows.

What about research funding sources? What’s their perspective? What are the dynamic tensions? I asked my cronies at PCORI (Patient-Centered Outcomes Research Institute) to introduce me to a staff scientist specializing in comparative effectiveness research funding for emerging adults with mental illness. Dr. Amanda Chue kindly agreed to speak with us.

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Introducing Dr. Amanda Chue
Dr. Amanda Chue received a BS in human development from Cornell University and a Ph.D. in clinical psychology from American University. She is a Program Officer for the Clinical Effectiveness and Decision Science program at the Patient-Centered Outcomes Research Institute (PCORI). In this role, she manages a portfolio of comparative clinical effectiveness research awards focused on meaningful outcomes for patients. Her portfolio includes several studies on clinical strategies for managing and reducing lo...