Novelette Munroe: Living with Chronic Illness

Novelette is 38 year old woman, living with a life limiting illness, called Epidermolysis Bullosa. I have the Recessive Dystrophic form of Epidermolysis Bullosa, RDEB. I live in Canada. I have a specialist in philosophy from the University of Toronto. Since 2018, I have been a trained hospice and peer bereavement Volunteer. I co-facilitate a lot of peer bereavement groups. I do a lot of mindfulness for grieving loss groups. I also help with training new hospice and peer bereavement volunteers. I’ve also volunteered as a hospice care companion to others, living with a life limiting illness.  I enjoy writing poetry and painting. Talking walks in nature. And I enjoy spending time with my nieces and nephew and caring for my cat.