Gettin' Down with Down Syndrome
78 episodes - English - Latest episode: about 1 year ago - ★★★★★ - 12 ratingsBeth Parillon is a life coach with Ocean Organics Wellness & Coaching will discuss all things as they relate to down syndrome. I will share my personal stories, insights, my successes and my epic failures of raising my daughter with down syndrome. I will help guide you through this new journey of raising your child with down syndrome . Are you ready to get down?
Homepage Apple Podcasts Google Podcasts Overcast Castro Pocket Casts RSS feed
Episodes
Sleep Apnea
April 02, 2023 04:00 - 32 minutes - 29.5 MBDr. Strang a pediatric lung doctor and sleep apnea specialist from Nemours talks about the signs and symptoms of sleep apnea. While it may be sound or seem cute to hear your child snoring is really the sound of an obstruction in the airway. Dr. Strang discusses the signs, symptoms, and treatments for sleep apnea. Are you ready to get down!
Episode 74 Brittany's baskets of hope
March 05, 2023 05:00 - 25 minutes - 23.1 MBBrittany is a young woman with down syndrome who came up with an amazing idea in 2016 to create baskets of hope for moms with a newborn who has down syndrome. Since then she has given away over 1200 baskets in all 50 states. She receives generous donations both locally and nationally. She was awarded a very prestigious award from L'Oréal cosmetics, who also supports her non-profit business. Listen how her dream to help new mom's feel, cope, and know it's going to be ok, has become a realit...
Episode 73 Ruby's Rainbow
February 26, 2023 05:00 - 19 minutes - 18.2 MBIn this episode I interviewed Liz, the founder of Ruby's rainbow in honor of her daughter Ruby who has down syndrome. Ruby's rainbow is an organization that provides scholarships to those who have down syndrome and who want to go to college. This organization gives away thousands of dollars in scholarship money that is all raised through awareness, donations, and fundraising. Are you ready to get down!
Episode 72 A night to shine
February 19, 2023 17:57 - 19 minutes - 18.2 MBA night to shine is a special prom event for those in the special needs community. The event is sponsored by the Tim Tebow foundation. The event is hosted by five hundred churches all over the world simultaneously. The special guests are treated like royalty with dinner, dancing, karaoke, pictures, makeup, shoe shining, and limo rides. In this episode I spoke with a local event coordinator who talks all about the event and what to expect. Are you ready to get down!
Episode 71 The amazing story of Sofia Sanchez, model and actress
February 05, 2023 05:00 - 22 minutes - 20.4 MBIn this episode I talk with Sofia's mom Jennifer about her amazing journey from adoption to modeling, becoming an actress and having two books be written about her. Hear how this amazing young girl with down syndrome is becoming a boss babe, handling fame, and starring in the upcoming movie The Hunger Games! Are you ready to get down!
Episode 70 Transitioning from high school to adult learning part 2
January 29, 2023 05:00 - 22 minutes - 20.8 MBIn this episode I spoke with a transition coordinator about the process. If your child is about to graduate from high school this is the episode for you! It's not too late or too early to start planning for your child's future. Are you ready to get down!
Episode 69 Transitioning from high school to adult learning
January 23, 2023 00:32 - 29 minutes - 27.2 MBIn this episode I talk with a friend and fellow mom, Christine. She talks about the transition from high school to living as an adult. She talks about how the school has prepared her and her daughter and the services that are available for our children. This may be a scary time for us as parents but have faith in the process. Are you ready to get down!
Episode 68 Coaching-Why you need it
January 15, 2023 14:20 - 23 minutes - 21.8 MBDo you know what life coaching is or how it is different from therapy? Are you afraid to ask for help? With coaching there is no judgement, only guidance to help you to get from where you are to where you want to be. In this episode I talk with a fellow life coach about coaching and the benefits of it. Are you ready to get down!
Episode 67 Infantile Spasms
January 08, 2023 05:00 - 26 minutes - 24.1 MBDo you know what infantile Spasms are, what they look like and why they need to be treated immediately? In this episode I speak with a mom who shares her story and how she was able to get a diagnosis after talking with five different doctors. She listened to her mom instincts and never gave up. Are you ready to get down!
Episode 66 New heart surgery technique
January 01, 2023 05:00 - 24 minutes - 22 MBIn this episode I talk with a mom whose daughter had a new heart surgery technique done to repair a common congenital heart defect with child who have down syndrome. This technique is commonly done in Brazil and now there are three doctors in the USA who are doing this procedure. The procedure is less invasive, requires less blood, and less down time or recovery. Are you ready to get down!
Episode 65 The signs & symptoms of RSV plus more
December 18, 2022 05:00 - 18 minutes - 17.3 MBIt's that time of the year for RSV, whooping cough, colds, the flu, and COVID. Do you know the signs and symptoms of each? In this episode I spoke with pediatrician Dr. Fox about the signs, symptoms, and treatment for all. Are you ready to get down?
Episode 64 Gratitude
December 11, 2022 05:00 - 12 minutes - 11.9 MBWhat are you thankful for? How do you show gratitude? Did you know the more you show gratitude, the more you receive? I talk about some things we should all be grateful for. I'm grateful for you my listeners! Are you ready to get down?
Episode 63 How to pick yourself back up
December 04, 2022 11:24 - 19 minutes - 17.6 MBThis episode is a very personal one for me. This is for anyone going though a difficult time. I talk about worry vs fear, stress vs solutions. Fear can either destroy you or motivate you, which are you going to let it do? Are you ready to get down!
Episode 62 Staying organized and avoiding chaos
November 27, 2022 05:00 - 15 minutes - 13.8 MBAre you feeling stressed out with all the many challenges of life? In this episode I give you 4 ways to get organized and avoid chaos. Are you ready to get down!
Episode 61 Different Eye Movie
November 20, 2022 05:00 - 28 minutes - 26.3 MBIn this episode I talk with dad and movie producer John Luksetich and his daughter, the star of the movie, Maria. He talks about his latest movie Different Eye and the roller coaster ride of making this movie happen. You can watch the movie on Tubi or Amazon prime.
Episode 60 Cast Kreations
November 13, 2022 05:00 - 20 minutes - 19.1 MBAre you looking for a gift idea? Look no more! Cast Kreations designs and t-shirts has what you are looking for! In this interview I talk with the founder of Cast Kreations Courtney and she talks about her new small business and her inspiration! Are you ready to get down!
Episode #59 Setting up a special needs trust
November 06, 2022 04:00 - 26 minutes - 24.1 MBDo you know what a special needs trust is or why it is so important to have one? In this episode I talk with Josh from Hope Trust. He gives us all the answers to why you need this, when to set this up, and how Hope Trust can help you! Are you ready to get down!
Episode 58 Improving Speech from Home
October 30, 2022 04:00 - 27 minutes - 24.8 MBAre you having a hard time finding a speech therapist? Are you tired of driving to yet another appointment? In this episode hear how Lenora Edwards from Better Speech can make speech therapy easier all from the comfort of your own home! Are you ready to get down!
Episode 57 The history and types of down syndrome
October 23, 2022 10:25 - 16 minutes - 15.5 MBIt's down syndrome awareness month, so let's talk about the history, the name , and the types of down syndrome. Are you ready to get down!
Episode 56 Tribe Inclusive
October 16, 2022 04:00 - 17 minutes - 16.3 MBAre you looking for some fun LIVE on-line classes and meet new friends. Check out this episode where Mariana Shank talks all about tribe inclusive and the programs they offer. For more information check them out at tribe inclusive.com
Episode 55 The NYC Buddy Walk & Times Square Video
October 09, 2022 11:59 - 21 minutes - 20.1 MBHave you heard of the NYC Buddy walk or their amazing video that is played on times square? In this episode we talk with the directors of this amazing event from the NDSS. Listen to how you can have your child featured in the video! Are you ready to get down!
Episode 54 iCan Bike program
October 02, 2022 14:40 - 32 minutes - 29.3 MBCan your child ride a bike? In this episode I talk with the lead bike tech, Kent from the ican bike/ican shine program. This amazing program will give your child all of the experience to get them on their way to riding a two wheel bike! For more information you can check out their website: www. icanshine.org. Are you ready to get down!
Episode 53 DSACT
September 25, 2022 04:00 - 27 minutes - 25.2 MBDo you have a local down syndrome chapter? If not then the Down Syndrome Association of Central Texas can help whether you live in Texas or not. This chapter can help you find the resources and information you need. Are you ready to get down!
Episode 52 Driving Development
September 04, 2022 05:00 - 24 minutes - 22.1 MBIn this episode I talk with Jena Schultz a pediatric physical therapist and founder of driving development. She talks about fun play, adaptive tools and toys to help with physical therapy. She can be found on Instagram and she has tons of recommendations and on-line learning.
Sign Language with Rachel Coleman
July 26, 2022 11:46 - 27 minutes - 25.1 MBIt's Rachel Coleman talking with us about sign language and her amazing "Signing Time" learning tools to help your child to communicate when they can't speak. This was such an honor and an amazing interview! Listen to find out how you can help your child and where you can find the tools that Rachel has.
Episode 50- Howdy Homemade Icecream
July 03, 2022 04:00 - 17 minutes - 16.2 MBLet's hear it for our 50th episode! It's summer time which means ice cream and all things cooling and refreshing! In this episode I talk with a franchise owner and VP of sales about this ice cream shop and what makes them so unique and special is their employees! They hire those with intellectual disabilities! Are you ready to get down!
Episode 49 Orthodontic care with Dr. Johnson
June 26, 2022 01:52 - 18 minutes - 16.8 MBWhen and why should you see an orthodontist. Dr. Johnson tells us all about orthodontist care and what works best. Are you ready to get down!
Episode 48 Dental Care with Dr. Dicerbo
June 19, 2022 13:12In this episode Gabby's dentist talks about dental care, when you should first see a dentist, preventative care, and flossing. So much valuable information for special needs children and their typical peers.
Episode 48 Dental Care with Dr. Dicerbo
June 19, 2022 13:12In this episode Gabby's dentist talks about dental care, when you should first see a dentist, preventative care, and flossing. So much valuable information for special needs children and their typical peers.
Episode 47 Caleb-the youngest person with down syndrome to compete in a triathlon
June 05, 2022 04:00 - 24 minutes - 22.5 MBIn this weeks episode I spoke with Caleb's mom. He is the youngest person with down syndrome to compete in a triathlon and YES finish! Caleb has won numerous awards and he is still going! His mom gives tips on staying healthy and what he has done to get to be able to compete. Are you ready to get down?
Episode 46 Transitioning from elementary to middle school
May 15, 2022 13:00 - 15 minutes - 14.2 MBIn this episode I talk with Beth Liesenfeld from Parent Friendly OT. She has a podcast called Elevate your advocacy through the IEP. She also has a signature course for parents at www.parentfriendlyot.com. She is an excellent resource for parents in the disability community.
Episode 45 Happy Mother's Day
May 08, 2022 15:55 - 14 minutes - 13.2 MBThis episode is dedicated to all the moms especially my fellow moms in the disability community. For some inspiration I read chapter 1 of "Don't sweat the small stuff for Moms" by Kristine Carlson.
Episode 44 Having a sibling with down syndrome
May 02, 2022 00:22 - 37 minutes - 34.6 MBIn this episode I talk with two young ladies about growing up and having a sibling with down syndrome. Hear their stories and similarities and it's no secret how much their sibling is adored and loved!
Episode 43 KSI what is it and what do they do?
April 17, 2022 13:00 - 32 minutes - 30.1 MBIn this episode I talk with Alicia Hollis the director of community relations. We talk about what KSI is, what they do, what services do they provide and their long history of serving the disability community in Kent and Sussex counties. Are you ready to get down?
Episode 42 Run_Saniayh_Run
April 10, 2022 13:00 - 23 minutes - 21.3 MBIn this week's episode I interviewed Gia Holden Ruffin, the founder of Run Saniyah Run. This organization is in memory of her daughter Saniayh who had multiple disabilities and suddenly passed away. She is striving to help families in the disability community to provide them with support, care, friendship, understanding, and services not supported by local agencies and government. If you live in DE and would like more information please call her at 302-827-3380 or go to www.runsaniyahrun.o...
Episode 41 Best Buddies International
April 03, 2022 13:21 - 27 minutes - 25.2 MBIn this episode I talk with Andrew Harbaugh, Program manager for Best Buddies in DE and Lisa Thorp, Co-Advisor at Cape Henlopen Best Buddies. If you live in DE, please join us for the Best Buddies Friendship Walk in-person May 21st at 10 am at Glasgow Park in Newark. For more information on Best Buddies go to www.bestbuddies.org
Episode 40 Best Buddies
March 27, 2022 13:00 - 11 minutes - 10.6 MBHave you heard about the best buddies program? In this episode I interview the school's advisors for this wonderful program that promotes inclusion. Are you ready to get down!
Episode 39 World Down Syndrome Day 3.21
March 20, 2022 13:00 - 24 minutes - 22.8 MBIt's World Down Syndrome day! In this episode I talk with Colleen Hatcher the Senior manager of community relations for the National Down Syndrome Society (NDSS) and David DeSanctis the Public outreach associate for NDSS and actor who appeared in the film "Where hope grows." Listen to how they are celebrating this beautiful day. David also gives some wonder advice to new and expecting parents.
Episode 38 Spread the word...Inclusion
March 05, 2022 13:02 - 17 minutes - 15.6 MBIn this episode my daughter and I interviewed two officers from Best Buddies. Every second Wednesday in March Best Buddies hosts a campaign to spread the word inclusion and to stop using the word retard or retarded. They do this by having high school students sign a banner pledging to include those with intellectual and developmental disabilities.
Episode 37 Adopting a Child with Down Syndrome
February 26, 2022 17:12 - 34 minutes - 31.8 MBIf you are looking to adopt a child then this is the episode for you. I interviewed a mom in the down syndrome community. She tells her story, her motivation and why she chose to adopt internationally versus domestically. Are you ready to get down?
Episode 36 Bubba's Blankets
February 13, 2022 14:00 - 13 minutes - 12.1 MBIn loving memory of Jimmy Myrick, I dedicate this episode to you. His mom Sharon talks about the history of this wonderful organization and how she is keeping her son's legacy alive!
Episode 35 Polar Bear Plunge
February 06, 2022 05:43 - 27 minutes - 24.9 MBWhat is the Polar Bear Plunge? In this episode I interviewed Jon Buzby the director of Unified Champion Schools. He supports schools to participate in the Special Olympics to include typical peers and those with special needs. Jon talks about the history of the Lewes Polar Bear Plunge, how it got started, where the proceeds go, and so much more! Are you ready to get down!
Episode 34 New Year New You!
January 30, 2022 19:10 - 15 minutes - 13.8 MBSetting goals and making healthy lifestyle changes. Gabby and I share our goals for the new year and give some great ideas and suggestions. Are you ready to get down!
Episode 33 Christmas in the Caribbean
January 02, 2022 15:16 - 34 minutes - 32 MBIn this episode we talk with our family from the Caribbean. We visited them in Antigua and we talk about their Christmas traditions in Antigua and in Dominica. So enjoy the Caribbean accent and may it bring you you warmth!
Episode 32 Moya Moya Disease
December 12, 2021 14:00 - 20 minutes - 19 MBIn this very touching interview with Maria Dellapina, she talks about this disease, how her daughter passed from complications of this disease, the signs and symptoms, and treatment.
Episode 31 Christmas and we have some gift suggestions for you!
November 27, 2021 04:23 - 21 minutes - 20.1 MBIn this episode Gabby and I talk about several entrepreneurs with down syndrome. We check out their website and tell you about their products and their specials they are offering. So this year support someone from the down syndrome community!
Episode 30 Thanksgiving...what are you thankful for?
November 21, 2021 14:30 - 7 minutes - 6.43 MBMy co-host Gabby and I talk about the history of Thanksgiving, what it means to us, and what we are thankful for. We also share our secret to gratitude by writing in a journal. What are you grateful for?
Episode 29 Life Insurance and why is it so important
November 14, 2021 14:00 - 34 minutes - 31.4 MBLife insurance... why do you need it, how much do you need, and what kind. All of this plus more is what we are talking about. Join me as I talk with my friend Jess Dubois from New York Life Insurance as she answers all these questions and more.
Episode 28 Vision care and learning with Dr. Maria Dellapina founder of Specs4us
November 07, 2021 14:00 - 26 minutes - 23.9 MBThis episode I had the pleasure of talking with Dr. Maria Dellapina founder and creator of Specs4us. She talks about vision care and how it can affect our child's learning. She also tells us how she created Specs4us. You can listen here and check out her website at www.Specs4us.com
Episode 27 Vision Care
October 31, 2021 13:00 - 20 minutes - 19.1 MBIn this interview we talk about vision care and the importance of early screening with Dr. Kristen Vincent.