Ep 181 - Why I became a Chronic Illness Advocate
Team Vasculitis: Thriving through Life with Chronic Illness
English - April 11, 2023 06:00 - 14 minutes - 13.7 MB - ★★★★★ - 8 ratingsParenting Kids & Family Health & Fitness Nutrition invisibleillness autoimmune chronicillness spoonie spooniemom vasculitis wegeners Homepage Download Apple Podcasts Google Podcasts Overcast Castro Pocket Casts RSS feed
I felt so alone. I felt really lost. I felt completely scared. I didn’t know what was happening, or how to totally manage it. I was losing friends and had loved ones even attacking me because I wasn’t getting better, or showing up for them the way I used to be able to. Even the people I told how sick I was, didn’t understand. They interpreted it as - you have a diagnosis and had treatment, why aren’t you better? Google was even worse... that's how I knew I needed to speak up.
Today's episode tells you more about me - and why I'm doing what I'm doing.
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