Explicitly Sick

New Episode: Sarah Ramey Author of The Lady's Handbook for Her Mysterious Illness: A Memoir

New Episode: Sarah Ramey The Lady's Handbook for Her Mysterious Illness: A Memoir *Life of an Author *The Wellness Industry *Narrative In Chronic Illness *Creativity and Chronic Illness *Representation *Writing Tools

Tinu and Monica Michelle Catch Up : Raising Teens in Pandemic, Live In care Homes A new Way, Self Worth, and Solving the World's Problems A Disability Chronic Illness Podcast

New Episode: Tinu & Monica Catch up Talking trust and travel Raising teens in quarantine How to support friend’s new businesses Live in care home day dreams Tinu solves world problems

Virtue of Patience In Caregiving: Interview With Composer Tony Manfredonia

* Patience in caregiving * Maria’s experiences with mental health, Lyme's, Hyper thyroid, and chronic intestinal parasites * How to maintain a chronically ills person’s autonomy * Handling stress as a caregiver * Keeping a relationship with joy * Boundaries * Art as Therapy * Managing expectations in a relationship and with those outside the relationship

Autoimmune Abbey : Medical Gaslighting, Religion and Ableism, Keyboard Activist, Chronic migraine, POTS, undifferentiated spondylitis, Mental Health, and IBS

Medical gaslighting What happens when your coping mechanism is removed Religion and Ableism being the good friend, daughter, daughter in law, wife. The exodus of family and friends How medical gaslighting keeps you from medical care and endangers lives (tiktok nurse) Job impact of chronic illness ADA needs Setting boundaries with family and friends when discussing illness The grieving process for chronic illness The importance of online advocacy ie keyboard warriors The cost of hea...

Interview With Podcaster and Writer Ashley Blunt on CFS, Life in Australia, True Crime, and Why No One Will cop to Dying by Ant

Social Handles, Blogs, Websites, and Hashtags www.lauramustard.com https://www.youtube.com/user/lauramustardmusic https://open.spotify.com/artist/0yoEf2gicVybjO38cQJfmL https://www.facebook.com/lauramustardmusic @lauramustardmusic https://www.instagram.com/lauramustard/ @lauramustard https://twitter.com/mustardlaura @mustardlaura Disorder Information What is your disorder? VATER Association and Latex Allergy At what age did your disorder present? Birth, but latex alle...

An interview with Sarah Bigham Author and Educator on Access and Chronic Illness in Schools, College, and Work

DISORDER INFO What is your disorder? * So many! Mast cell activation issue, interstitial cystitis, vulvodynia, fibromyalgia - to name a few At what age did your disorder become a daily issue? * 43 Who were you before your illness became debilitating? * Such a great question. Who was I? I was a full-time college professor. What would you do if you were not dealing with your disorder and/or disability? * This is hard to answer because, on one hand, I wish I could go back to my full-tim...

Interview With Musician Laura Mustard: VATER Association and Latex Allergy, Song Writing, Dating, and US Healthcare System for Creatives

Social Handles, Blogs, Websites, and Hashtags www.lauramustard.com https://www.youtube.com/user/lauramustardmusic https://open.spotify.com/artist/0yoEf2gicVybjO38cQJfmL https://www.facebook.com/lauramustardmusic @lauramustardmusic https://www.instagram.com/lauramustard/ @lauramustard https://twitter.com/mustardlaura @mustardlaura Disorder Information What is your disorder? VATER Association and Latex Allergy At what age did your disorder present? Birth, but latex alle...

Interview With Max Feinstein : What Rhymes With Hemophilia? Tattoos, Music, and Chronic Illness

Have you subscribed to Invisible Not Broken's Podcast Explicitly Sick with founder Monica Michelle? Head over to your favorite podcast site and hit subscribe to Explicitly Sick and share with friends and your online community. Max and I talked about our favorite topic: Creating With Chronic Illness The Vulnerability In Medicine Mischievousness And Explaining Disability Destroying World Views of Healthy People Humor and Disability Hemophilia on Tour Resentment and Rage ...

Interview With Author of I'm Good Olivia Gaynor: Crohn's Disease, hEDS, CRPS, RA, and OCD in the Days of CoVid

Interview with author and disability advocate Olivia Gaynord About Her Book I’m Good Feeling Like you Are Doing Enough When you have Chronic Illness Mental Health and the writing process Book Writing Process Crowd Funding a Book Chronic Illness and Writing Too Far and Never Enough The PT dance of EDS The Great British Bake Off Baking How to Use Mental Health Issues If you enjoy this episode please subscribe to Monica Michelle’s newest podcast Explicitly Sick

Carrie Ann Advice on Therapy, Self Care as a Blogger, and the Importance of No: Explicitly Sick a Chronic Illness Podcast

Website/Blog, Twitter, & Instagram Handle Twitter: @CarrieALightley https://www.carrieannlightley.com/ Name * Carrie-Ann Lightley What is your disorder? * Cerebral Palsy At what age did your disorder become a daily issue? * 0 Who were you before your illness became debilitating? * I've always been disabled What would you do if you were not dealing with your disorder and/or disability? * I wouldn't be me! What would you like people to know about your daily life? * I LOVE my lif...

Sunny & Monica Michelle Virtual Reality & Disability, Martyr & Trickster Activism, & NORD

Sunny and I talked about our favorite topic: *Tech and disability, specifically *Virtual Reality and chronic illness. *Oculus 2 *Inktober, NaNoWriMo, and creating during Covid *Lovecraft Country and some issues *Martyr vs. Trickster Political activism (think #proudboys gay takeover and the brilliant George Takei) *Game development and empathy *Concerts, Comic Con at home, and Burning Man access for the disabled with Virtual Reality *NORD *Wheelchair VR game Awake INN *S...

Explicitly Sick: Lisa Weiner Charcot Marie Tooth Disease, Scoliosis, Tech and Disability, Voting While Disabled

Mentions ALinker CMT Awareness Month Website/Blog, Twitter, & Instagram Handle Facebook, @gayleweenie on Instagram Name * Lisa Weiner Disorder Info What is your disorder? * Charcot-Marie-Tooth disease How To Vote By Mail In California: 2020 General Election: August 25, 2020 (full article detailed below). https://patch.com/california/across-ca/how-vote-mail-california-2020-general-election “Once your mailed-in ballot is completed, it can be inserted into the provided envelope and ...

Kathryn Trueblood: Death With Dignity, The Right To Die in the US, and Memory Care

Death With Dignity State Laws Advance Care Planning for Alzheimer’s Disease or Dementia Finalexit.org John Abraham’s when we decide how someone else should die we are playing god. Compassion and Choices Death Cafe Covid end of life and choices

Michelle Irving: AIH, Vertigo, Persephone Queen of the Underworld, Life, Love, and Expectation from Bed Rest

Website/Blog, Twitter, & Instagram Handle web: https://michelleirving.com.au/ FB: https://www.facebook.com/MichelleIrvingOfficial/ Insta: https://www.instagram.com/michelleirvingofficial/ LinkedIN: https://www.linkedin.com/in/michelleirvingofficial/ Pinterest: https://www.pinterest.com.au/michelleirvingofficial/  Twitter: https://twitter.com/michelleirving_ (this has underscore at the end here) https://michelleirving.com.au/survivorship-workshops/ Name * Michelle Irving Disorder In...

Sunshine Ammerman: Why Robots Are Our Friends, Artist with Visual Impairments, Disability Politics, New Spoonie Podcast, Spoonie D & D Theory, and Panhypopituitarism and Optic Nerve Hypoplasia

Website/Blog, Twitter, & Instagram Handle InsomniaDoodles.com, @InsomniaDoodles (on Twitter), @theinsomniadoodles (on instagram) Name * Sunshine "Sunny" Ammerman Disorder Info What is your disorder? * Septo-Optic Dysplasia, which is a larger rare diagnosis that encompasses two other rare diagnoses, Panhypopituitarism and Optic Nerve Hypoplasia. I am also missing a membrane in my brain called the "septum pellucidum". At what age did your disorder become a daily issue? * 0 Who were y...

Explicitly Sick: Monica and Tinu: Mental Health, Relationships, Raising Teens, Covid, and Favorite Shows

Elizabeth Gilbert and Tim Ferris Elizabeth Gilbert TED Talk on Mental Health and Covid Watchmen and Tulsa Massacre Lovecraft Country and Jim Crow A few topics we Tinu and Monica Michelle covered: Black Hair Care and chronic illness Monica’s easily matted jewish haircare and dislocations Rolling blackouts. disability, and Nigeria Black Live Matter Movement First Nations Racism and Socialized Medicine Race and Hollywood’s Responsibility to Educate on History : Lovecraft Country an...

Artist and Author Sarah Bigham: MCAD, Interstitial Cystitis, Fibromyalgia, Chronic Illness, and Creating Art

Website/Blog, Twitter, & Instagram Handle http://www.sgbigham.com/ Topics Covered Activism and Disability A Welcome to All Who Are New To Chronic Illness Due to CoVid Recovery Using Your Covid Time Privilege and Chronic Illness Visibility for Invisible Illness With Art And Writing Selfcare as an Act of Selflove to Future You Vaginal Disorders and the Medical Establishment LGBTQ+ and the Medical Establishment Attached is a sample chart of assignments for one of the community colle...

Explicitly Sick Monica and Tinu Set On Random Mental Health, Relationships, Raising Teens, Covid, and Favorite Shows

Tinu's Info & Links Tinu Abayomi-Paul-Author, creator of #EverywhereAccessible Founder of @EveryAcess, Activist, Survivor, cancer Chronic Pain, and black woman. HASHTAGS TO LOOK FOR PEOPLE TO FOLLOW #DISABLEDBLACKTALK #DISABLEDPEOPLEFORBLACKLIVES RESOURCES HISTORY OF THE POLICE OFFICERS LINKS HOW THE U.S. GOT ITS POLICE FORCE NATIONAL LAW ENFORCEMENT MUSEUM: SLAVE PATROLS: AN EARLY FORM OF AMERICAN POLICING PEOPLE TO FOLLOW @OSOPEPATRISSE @OPALAYO @ALICIAGARZA @KAILEESCALES @THEK...

Explicitly Sick: Jordan Ray: Chronic Illness App, School, and Staying Motivated and Focused During Covid With Disability

Jordan Ray: Limitless Medical Blogs, Staying motivated during Covid New Chronic Illness Symptom Tracking App Business owner and disability Managing expectations when disabled Chronic illness and college Emotional Vulnerability and Writing Medical App

Explicitly Sick: Marcia Darbouze: Disabled Weightlifting, Race and Covid, Ableism and Activism, and Small Fiber Neuropathy

Website/Blog, Twitter, & Instagram Handle doctormarcia.com Disorder Info What is your disorder? * undiagnosed autoimmune, small fiber neuropathy At what age did your disorder become a daily issue? * 26 Who were you before your illness became debilitating? * someone that didn't plan out spoons or activities, someone that didn't need constant methods to manage pain & energy. What would you do if you were not dealing with your disorder and/or disability? * spend more time freely out...

Interview With Carri Ann: Disabled Travel Blogger, Life Post Covid, and Accessible Travel Advice

Website/Blog, Twitter, & Instagram Handle Twitter: @CarrieALightley https://www.carrieannlightley.com/ Name * Carrie-Ann Lightley What is your disorder? * Cerebral Palsy At what age did your disorder become a daily issue? * 0 Who were you before your illness became debilitating? * I've always been disabled What would you do if you were not dealing with your disorder and/or disability? * I wouldn't be me! What would you like people to know about your daily life? * I LOVE my lif...

(Explicitly Sick) The Magicians My Favorite SyFy Show Disability, Chronic Illness, and Addiction: With Lisa Sniderman: Spoilers

How to Thrive Summit Get into touch with Lisa Suicide Hotline 1-800-273-8255 Sexual Assault Hotline 1-800-656-4673 The Magicians (Explicitly Sick) How to Thrive With Chronic Illness and Limited Energy Summit: Lisa Sniderman *Please DO NOT listen if you have not watched through season 5 of The Magicians! We jump right into the biggest gag of the entire show in the first 5 minutes. GO WATCH the show 1-4 is on Netflix. I have watched the show all the way through 5 times. The Magicians ...

Sexual Assault, Mental Health and Chronic Illness: Musician, Jackie Paladino

Autoimmune Abbey : BLM, Medical Gaslighting, Religion and Ableism, Keyboard Activist, Chronic migraine, POTS, undifferentiated spondylitis, Mental Health, and IBS

Medical Racism *Pass the Mic to Tinu Abayomi-Paul*

Host of The Discomfort Zone Podcast On IBS, Fibromyalgia, POTS, Meditation and Starting a Chronic Illness Podcast: Jason Herterich

How To Advocate When You Are Disabled, Medical Racism, and A Call To Action *Pass the Mic to Tinu Abayomi-Paul*

(Part 2) ME, POTS, Mayo Clinic, and What Persephone Has To Do With It: Sarah Ramey: A Chronic Illness Podcast With Monica Michelle

(Part 1) Sarah Ramey On The Medical Journey, ME, POTS, Mayo Clinic, and What Persephone Has To Do With It: A Chronic Illness Podcast With Monica Michelle

Part 1 Interview With Memoir writer Sarah Ramey about her book launch: The Lady's Handbook for Her Mysterious Illness. A discussion with Invisible Not Broken's Monica Michelle about chronic fatigue, POTS, a trip to the MAYO clinic, and a dash of Greek mythology Persephone.

How to Write About Characters With Disabilities, IBS, and the Importance of New Ways to Talk to Each Other: Allison Alexander