Patients as Partners in Ultragenyx LC-FAOD Research

Energy in Action by MitoAction

English - May 12, 2021 13:47 - 40 minutes - 55.7 MB - ★★★★★ - 4 ratings
Health & Fitness Education Homepage Download Apple Podcasts Google Podcasts Overcast Castro Pocket Casts RSS feed

Previous Episode: One Step Closer

Next Episode: Having a Voice That Deserves To Be Heard

Join Energy in Action host, Stephanie Tomlinson as she interviews Emil Kakkis and Jessica Riviere from Ultragenyx Pharmaceutical.

On this podcast, Ultragenyx will share how the company entered into LC-FAOD research, its research efforts, and how LC-FAOD patient voices and community engagement are central to the planning, implementation, and advancement of Ultragenyx research and programs. Ultragenyx is proud to partner with MitoAction to provide the LC-FAOD community with information and updates through a series of discussions on MitoAction’s Energy in Action podcast and Monthly Expert Webinar Series.

*This podcast episode is intended for U.S. members of the MitoAction community.*