BloodStream
230 episodes - English - Latest episode: 21 days ago - ★★★★★ - 38 ratingsBloodStream is an entertaining and informational podcast for the bleeding disorders community. Each week, hemophilia patient Patrick James Lynch and former non-profit director Amy Board are joined by advocacy leaders, medical experts, and other guests to discuss the latest news, scientific advancements, policy initiatives, and so much more. Subscribe wherever you listen, or search BloodStream Podcast on YouTube to catch every episode there. Produced by Believe Limited. Presenting sponsor: Takeda.
Homepage Apple Podcasts Google Podcasts Overcast Castro Pocket Casts RSS feed
Episodes
Ep. 24: May 21, 2018 - w/ Jonathan James
May 21, 2018 00:38 - 1 hour - 120 MBThis month on The BloodStream Podcast, Nabila Husseni from Gujarat, India shares her story of living with Factor V deficiency and championing women’s equality, Natalie presents a recent NBC story on the rise of depression, we discuss Takeda’s acquisition of Shire, and Hope For Hemophilia founder Jonathan James joins us for the Interview Segment. All that and more on Episode 24 of The BloodStream Podcast! Exclusive Sponsor: Shire Latest Ask The Expert Podcast: Episode 14 - Physical Therap...
WFH World Congress - Day 1 Recap
May 20, 2018 23:08 - 16 minutes - 30.1 MBDuring this week long special edition of The BloodStream Podcast, host Patrick James Lynch posts daily recaps of the World Federation of Hemophilia's World Congress, held in Glasgow, Scotland from May 20th to May 24th, 2018. #WFH2018 Connect with BloodStream: Email [email protected] Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream Facebook Page BloodStream Twitter Account Subscribe to BloodStream: iTunes: http://bit.ly/bloodstreamitunes...
Ep. 23: April 16, 2018 - w/ Bill Patsakos
April 16, 2018 10:07 - 1 hour - 126 MBThis month on The BloodStream Podcast, Dr. Steven Pipe joins us to discuss Hemlibra, the recently reported patient deaths, and what this means for our community. FDNY Lieutenant, CVS pharmacist, and FEMA volunteer Bill Patsakos joins us to discuss accounting for the bleeding disorders community during disaster relief, and advocate Maryann May shares her #ibleedtoo story. All that and more on Episode 23 of The BloodStream Podcast! Exclusive Sponsor: Shire Like Segment: What Is Floating? ...
Ep. 22: March 19, 2018 - w/ Molly Reeser
March 19, 2018 05:46 - 1 hour - 111 MBThis month on The BloodStream Podcast, community member Kevin Krivosik shares his journey toward independence, Camp Casey Founder Molly Reeser joins us to share the camp’s mission and her inspiration for starting it, and we take a look a recent Forbes Magazine piece highlighting one of the many challenges in mental health treatment. And using a combination of written statements, audio recordings, and his own original writing, we say goodbye to community leader Barry Haarde. All that and more...
Ep. 21: February 19, 2018 - w/ Michael Hargett
February 19, 2018 07:40 - 1 hour - 67 MBThis month on The BloodStream Podcast, we discuss how one executive director in China has creatively given hope, dignity and income to her patients, we take you through how to stay fit and healthy while travelling, and we introduce a brand new game here on the BSpod. Plus, Hannah Lutz shares her story of life with Type 3 Von Willebrand Disease and Michael Hargett- the hemophiliac who lost 280 pounds and became the first person with hemophilia to undergo a heart transplant- joins us as today’...
Ep. 20: January 15, 2018 - w/ Susan Lynch
January 15, 2018 07:35 - 1 hour - 96.1 MBThis month on The BloodStream Podcast, Shire and Roche are locked up in a legal dispute related to Hemlibra, what does this mean and will it impact patients’ ability to receive Hemlibra? We discuss in today’s Comment Segment. A New York Times article examines why the United States spends so much more money on healthcare than any other country in a story presented by Natalie in our Like Segment, and entrepreneur and hemo dad Mark Kenny shares his compelling story and perspective during our Sh...
Ep. 19: December 18, 2017 - w/ Val Bias
December 18, 2017 10:44 - 1 hour - 120 MBThis month on The BloodStream Podcast, Hemlibra is FDA approved and the first non-factor replacement therapy to treat people with hemophilia A (and inhibitors) is now on the market, we’ll discuss that along with other major product development takeaways from the American Society of Hematology’s Annual Meeting held earlier this month during our Comment Segment. Natalie will present a story on how new HIV guidelines are revolutionizing patients lives in the Like Segment, and Community Member A...
Ep. 18: November 20, 2017 - w/ Alex Borstein
November 20, 2017 03:38 - 1 hour - 107 MBThis month on The BloodStream Podcast, we interview actress Alex Borstein who’s best known as the voice of Lois on “Family Guy.” Alex talks about her life as an entertainer, a symptomatic carrier and a hemo mom. In our Like Segment, Natalie introduces us to the Feldenkrais Method and how it’s being used to manage chronic pain. In our Share Segment, New York City Hemophilia Chapter member Nicole Angeles shares her story of living with von Willebrand Disease, and some of the very challenging ...
BloodStream Stories Presents - The Factor Revolution: The Last 60 Years of Hemophilia Treatment - Episode 3: Safety, Vigilance and New Frontiers
October 23, 2017 09:50 - 31 minutes - 42.9 MBBloodStream Media is proud to present The Factor Revolution: The Last 60 Years in Hemophilia Treatment, a three-episode special series with over forty interviews from community members, doctors, experts and advocates. We take a deep look at the history of factor treatment from the 1950's to today. The Factor Revolution pulls together source material, news reports, white papers, and original audio content from the film Bad Blood and the "HIV Story Project." Exclusive Sponsor for The Factor...
Ep. 17: October 16, 2017 - w/ Dan Levy
October 16, 2017 07:52 - 1 hour - 75.2 MBThis month on The BloodStream Podcast, we spotlight “Factor Revolution”, BloodStream Media’s new three-part series covering the history of treatment in hemophilia; Natalie takes us through the five things all new moms need in our Like Segment; “Factor Revolution” Producers Ryan Gielen and Seth Kirschner introduce themselves and provide a window into their work in our Share Segment; Patrick highlights recent news related to medical marijuana/cannabis use for pain management; and finally sport...
BloodStream Stories Presents - The Factor Revolution: The Last 60 Years of Hemophilia Treatment - Episode 2: The Contamination Crisis
October 09, 2017 06:36 - 49 minutes - 68.2 MBBloodStream Media is proud to present The Factor Revolution: The Last 60 Years in Hemophilia Treatment, a three-episode special series with over forty interviews from community members, doctors, experts and advocates. We take a deep look at the history of factor treatment from the 1950's to today. The Factor Revolution pulls together source material, news reports, white papers, and original audio content from the film Bad Blood and the "HIV Story Project." Episode 2: The Contamination Cri...
BloodStream Stories Presents - The Factor Revolution: The Last 60 Years of Hemophilia Treatment - Episode 1: The Revolution Begins
October 02, 2017 19:49 - 28 minutes - 38.8 MBBloodStream Media is proud to present The Factor Revolution. The last sixty years in hemophilia treatment, with over forty interviews from community members, doctors, and advocates. We take a deep look at the history of factor treatment in the 1950's to today. The Factor Revolution pulls together source material, news reports, white papers, and original audio content from the film Bad Blood and the "HIV Story Project". Exclusive Sponsor for The Factor Revolution: Shire ISHIM.NET - “Who ...
Ep. 16: September 18, 2017 - w/ Andy Slavitt
September 18, 2017 07:20 - 50 minutes - 68.8 MBAndy Slavitt, the former head of Medicare, Medicaid, and the Affordable Care Act (ACA) under President Obama, joins us for a very special interview segment on the importance of the ACA for people with hemophilia. UK-based community advocate Laurence Woollard provides insight into the UK bleeding disorders community and his personal journey in hemophilia advocacy. Natalie leads a New York Times story on the debate surrounding how to price gene therapy treatments, and Patrick provides an overv...
Ep. 15: August 21, 2017 - w/ Special Guests from NHF
August 21, 2017 09:19 - 51 minutes - 70.3 MBWe preview National Hemophilia Foundation’s (NHF) 2017 Annual Meeting! Interviews include NHF CEO Val Bias, NHF staff and volunteers. During our Like, Share, Comment segment, Natalie and I discuss a recent article profiling companies with notably strong employee health benefits, a World Federation of Hemophilia (WFH) article highlighting recent success in their Twinning Program, and community member Tai-yan Chou-Kudu presents Hemophilia - Not Just Physical, a spoken-word piece on severe hem...
Ep. 14: July 17, 2017 - w/ Special Guest Dr. Steven Pipe
July 17, 2017 07:12 - 1 hour - 91 MBOn this episode, Dr. Steven Pipe- pediatric hematologist and Chair of the National Hemophilia Foundation’s (NHF) Medical and Scientific Advisory Council- provides an update on new and developing treatment products immediately following his attending the International Society on Thrombosis and Hemostasis (ISTH) Congress. Natalie leads a discussion on a recent CDC study that indicates opioid prescriptions are on the decline, Patrick initiates a game based on a new bleeding disorders online pla...
Ep. 13: June 19, 2017 - w/ Special Guest Rob Bradford
June 19, 2017 03:11 - 1 hour - 108 MBDescription: In this episode, Patrick & Natalie discuss a recent study highlighting the issue of patient aging, a story about a young Iowan with hemophilia whose healthcare costs recently made national waves, and the latest on the American Health Care Act. Plus, our hosts sit down for an in-person interview of Believe Limited’s own Rob Bradford, recently back from spending 47 days at Mount Everest base camp filming and managing footage for Bombardier Blood, the documentary on Chris Bombard...
Ep. 12: May 15, 2017 - Year In Review
May 15, 2017 01:29 - 1 hour - 93.2 MBIn this episode, Patrick and the BloodStream team celebrate the first year of the BloodStream podcast! Patrick leads us through this "Year In Review" episode by bringing us your favorite sequences from the past year of episodes. Listen to fan-favorite and milestone moments of the first year and remind yourself of all the things you learned. All this and more on Episode 12 of BloodStream! Click "Episodes" above to stream or download. Sponsors for Episode 12: Supporting Sponsor: S...
Ep. 11: April 17, 2017 - World Hemophilia Day Special Episode
April 17, 2017 01:18 - 1 hour - 87.4 MBThe BloodStream Podcast - Episode 11 - Program Notes Listen to Episode 11 by clicking the play button on the audio player above, or follow any of these links to listen and subscribe on your podcast player of choice (recommended): iTunes: http://bit.ly/bloodstreamitunes Stitcher: http://bit.ly/bloodstreamstitcher LibSyn: http://bit.ly/bloodstreamlibsyn SoundCloud: http://bit.ly/bloodstreamSC TuneIn: http://bit.ly/bloodstreamtunein Google Play: http://bit.ly/bloodstrea...
Ep. 10: March 20, 2017 - w/ Special Guest Justin Levesque
March 20, 2017 05:40 - 1 hour - 109 MBDescription: In this episode- it's Bleeding Disorders Awareness Month! Patrick and Natalie discuss that, Washington Days, the landmark opening of the My Life, Our Future research repository, and more! Also, Australian community member Jenna Lovell gives her take on life w/ vWD, and Mainer Justin Levesque discusses photography, hemophilia, Iceland, and much more during a wide-ranging Sit-Down conversation with Patrick. All this and more on Episode 10 of The BloodStream Podcast! Sponso...
Ep. 9: February 20th, 2017 - w/ Special Guest Jorge de la Riva
February 20, 2017 08:41 - 1 hour - 95.8 MBDescription: In this episode, Patrick and Natalie review some advocacy best practices, take a look at the increasingly popular cryotherapy, share one mom's (anonymous) story of addiction, hemophilia and family, and during the Sit-Down segment, Patrick speaks with NHF board member Jorge de la Riva about how NHF's board works, his views on health and social advocacy, and his family's personal story of being introduced to hemophilia. All this and more on Episode 9 of BloodStream! Click "E...
Announcing two new podcasts from BloodStream Media!
February 12, 2017 20:35 - 6 minutes - 14.6 MBBelieve Limited is excited to announce the launch of not one but TWO new podcasts! Ask the Expert and The Powering Through Podcast join our flagship podcast BloodStream™ to round out the growing BloodStream Media Network. Read a bit more about both podcasts below and make sure to subscribe on your favorite platform! Check out BloodStreamMedia.com! Ask The Expert features a HTC hematologist or other healthcare expert answering listener-submitted questions about all things bleeding disorders...
Ep. 8: January 16th, 2017 - w/ NFL Super Bowl Champion Josh Gordy
January 16, 2017 16:27 - 58 minutes - 134 MBIn this episode, Patrick & Natalie review recent headlines of interest, introduce a patient perspective on life with sickle cell disease, discuss Believe Limited's upcoming documentary about hemophiliac mountaineer Chris Bombardier's summiting of Mount Everest, and discuss football, finance, and five tips toward improving money management during the Sit-Down segment with special guest Josh Gordy, NFL Super Bowl champion turned financial coach. All this and more on Episode 8 of BloodStream! ...
Ep. 7: December 19th, 2016 - w/ special guests Jeremy Griffin, Rich Pezzillo, Michelle Kim & Bob Robinson
December 19, 2016 16:36 - 53 minutes - 123 MBIn this episode, Patrick reviews some recent headlines in our Trending Topics segment, shares some takeaways from the American Society of Hematology’s 2016 Annual Meeting during our Like, Share, Comment segment, and during a special Sit-Down segment, we hear from with Executive Directors of patient organizations and chapters from around the country on what 2016 was, and what 2017 could be. The good, bad and otherwise. All this and more on Episode 7 of BloodStream. Sponsors for Episode 7: ...
Ep. 6: November 21st, 2016 w/ Ali Stroker
November 21, 2016 15:28 - 1 hour - 148 MBIn Episode 6, Patrick introduces a new BloodStream co-host, touches on some headlines of interest in our Trending Topics segment, dives into what the recent election may mean for the bleeding disorders community in our Like, Share, Comment segment, and discusses disabilities, entertainment, and the importance of partnership with Ali Stroker, the first Broadway performer who uses a wheelchair. All this and more on Episode 6 of BloodStream! Sponsors for Episode 6: Presenting Sponsor: Stop T...
Ep. 5: October 17th, 2016 - w/ Jeanne White-Ginder
October 17, 2016 15:26 - 1 hour - 45.1 MBIn Episode 5, we take a look at recent community news during our Trending Topics Segment- including a new virtual reality game designed to help reduce kids’ anxiety during infusions and a new needle that won’t cause bleeding after it’s removed, and we take a deeper dive into three stories during our Like, Share, Comment Segment. This month we also feature my Sit Down with the iconic HIV/AIDS and hemophilia advocate Jeanne White-Ginder. All that and more, on episode 5 of BloodStream! Sponso...
Ep. 4: September 19th, 2016 - w/ Great Moments from PoweringThrough
September 19, 2016 14:06 - 1 hour - 142 MBDescription In Episode 4, we take a look at recent community news during our Headlines Segment- including updates regarding the Zika virus, community advocacy efforts, and data collection, and we take a deeper dive into three stories- including one on zombies!- during our Like, Share, & Comment Segment. This month we also feature a Special Interview Segment! Made possible by our Presenting Sponsor NCHS, our Special Interview Segment features great moments from Powering Through, a nationwi...
Ep. 3: August 22nd, 2016 - w/ WFH Congress Soundbites
August 22, 2016 19:43 - 48 minutes - 113 MBIn this episode, we take a look back at a historic summer that saw the National Hemophilia Foundation's (NHF) Annual Meeting and the World Federation of America's (WFH) World Congress convene in Orlando for the largest gathering ever of people with bleeding disorders. In addition to featuring some conference related content, our Like Share Comment segment highlight a story on Elijah Warren, a high school swimming star with hemophilia as well as a recent article from John Hopkins University o...
Ep. 2: July 18th, 2016 - w/ Chris Bombardier
July 18, 2016 15:36 - 52 minutes - 120 MBPatrick talks with guest Chris Bombardier about his quest to climb the seven summits- the highest peak on each of the seven continents- while living with severe hemophilia B. This, plus news headlines & our "Like, Share, Comment" segment for July! Official Website: BloodStreamPod.com. Links & References: Adventures of a Hemophiliac Baby Boomers w/ Hemophilia Story Barry Haarde Rides Again Barry Haarde's Wheels for the World Facebook Page Better You Know Care Model...
Ep. 1: Bonus Content - Extended Interview w/ Glenn Pierce.
June 20, 2016 23:49 - 1 hour - 180 MB VideoListen to the full conversation w/ Dr. Glenn pierce in this piece of bonus content from Episode 1 of BloodStream.
Episode 1: June 20th, 2016 - w/ Glenn Pierce
June 20, 2016 18:13 - 44 minutes - 101 MB VideoIn Episode 1, Patrick talks with guest Dr. Glenn Pierce about inhibitors, the new SIPPET study and the state of bleeding disorders around the world. This, plus our June "Likes, Comments, and Shares" featuring stories about notable upcoming conferences and one young man's ambitious goal to raise money and awareness for hemophilia. All this and more, on this episode of Bloodstream!