Bladder Cancer Matters
84 episodes - English - Latest episode: 25 days ago - ★★★★★ - 28 ratingsBladder Cancer Matters is the podcast for, by and about the bladder cancer community. Host Rick Bangs interviews interesting guests from the bladder cancer community, including patients, survivors, advocates, medical professionals, researchers, caregivers and more. It is brought to you by the Bladder Cancer Advocacy Network.
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Episodes
Being a Bladder Cancer Beacon of Hope with Karen Godfrey
June 29, 2022 14:21 - 26 minutes - 25 MB VideoIn Episode 29 of Bladder Cancer Matters, host Rick Bangs begins a three-part podcast with long time patient advocate and 2022 Beacon of Hope Award winner, Karen Godfrey. Karen is the organizer of the Southwest Florida Bladder Cancer Support Group. Rick and Karen talk about her initial bladder cancer diagnosis in 2003 and how there was little to no information available about having her bladder removed. Karen was faced with some difficult decisions like choosing a urinary diversion, and unf...
Bladder Cancer Can be Painful, Especially Financially with Cindy Lawson DeVore
May 24, 2022 19:22 - 36 minutes - 34 MB VideoIn Episode 28 of Bladder Cancer Matters, host Rick Bangs talks with bladder cancer patient Cindy Lawson DeVore, who gives her unique perspective on her journey with the disease. Cindy has been a patient, her father is a retired urologist, and Cindy's mom was diagnosed with bladder cancer a short two months after she was. She has seen bladder cancer from multiple angles. Cindy also speaks openly about the financial strain that bladder cancer takes, especially for those who require routine...
Tom Faced Bladder Cancer and Pancreatic Cancer at the Same Time
May 10, 2022 15:48 - 24 minutes - 56.8 MBTom had a history of cancer in his family, but never expected what happened to him. After not feeling well for a while, Tom was diagnosed with both pancreatic cancer and bladder cancer. In this episode, he talks with BCAN associate Joslyn Brown about his two cancer journeys and offers an optimistic and uplifting perspective, particularly about his bouts with bladder cancer. Tom is also active with BCAN's Survivor to Survivor program matching newly diagnosed bladder cancer patients with tra...
Part 2 of Quality of Life After Bladder Removal Surgery with Dr. Bernard Bochner
April 20, 2022 14:31 - 32 minutes - 74.8 MBIn Part 2 of two part Episode 24 of Bladder Cancer Matters, host Rick Bangs interviews Dr. Bernard Bochner about the findings from a quality of life survey of bladder cancer patients after they have their bladders removed (radical cystectomy). Rick and Dr. Bochner discuss life after a radical cystectomy and they also talk about: How recovery from bladder removal surgery can be impacted by how healthy patients were leading up to the surgery How the first six weeks after the surgery c...
Karen's Story: Bladder Cancer Nurse, Patient and Caregiver
April 06, 2022 18:10 - 32 minutes - 73.8 MBIn this very special episode of Bladder Cancer Matters, host Rick Bangs talks with Karen Sachse. Karen has a one-in-a-million perspective on bladder cancer because she is an oncology nurse, a nurse navigator, a bladder cancer survivor and was a caregiver to her husband, Roger, who passed away from the disease. She is also a very active patient advocate with the Bladder Cancer Advocacy Network. Rick and Karen talk about: Her bladder cancer diagnosis and treatment Caring for her husband...
Update: What You Need to Know About COVID Vaccines and Bladder Cancer
April 05, 2022 04:01 - 38 minutes - 87 MBOne of Season 1's most popular episodes was What You Need to Know About COVID Vaccines and Bladder Cancer with Dr. Seth Lerner and Dr. Laila Woc-Colburn. Given the changing nature of COVID transmission and the availability of vaccinations, Drs. Lerner and Woc-Colburn have updates about vaccinations for patients in the bladder cancer community. Dr. Seth Lerner of Baylor College of Medicine, a bladder cancer doctor, and Dr. Laila Woc-Colburn, an infectious disease doctor at Emory Healthcar...
Quality of Life After Bladder Removal Surgery with Dr. Bernard Bochner
March 22, 2022 04:01 - 29 minutes - 68.6 MBIn Part 1 of two part Episode 24 of Bladder Cancer Matters, host Rick Bangs interviews Dr. Bernard Bochner. Rick and Dr. Bochner discuss the findings of a quality of life survey conducted with more than 400 patients who underwent a radical cystectomy. Dr. Bochner and his team studied the importance of selecting the best urinary diversion for each patient and measures of his or her urinary and bowel function, sexual function and mental and emotional health. Part 2 of their conversation wi...
What's the Connection Between Bladder Cancer and Environmental Exposure?
March 08, 2022 15:25 - 44 minutes - 35.3 MBIn Episode 23 of Bladder Cancer Matters, host Rick Bangs talks with Stella Koutros and Molly Jacobs about how environmental exposure to chemicals is linked to bladder cancer. Stella Koutros, Ph.D., M.P.H. is an Investigator in the Occupational and Environmental Epidemiology Branch of the National Cancer Institute and Molly Jacobs, M.P.H. is a Senior Research Associate and Project Manager at the Lowell Center for Sustainable Production and UMass Lowell. Rick, Stella and Molly discuss how ev...
What Are Biomarkers and Why Do They Matter to Bladder Cancer Patients?
February 22, 2022 15:36 - 45 minutes - 40.4 MBIn Episode 22 of Bladder Cancer Matters, host Rick Bangs talks with Drs. Phil Abbosh and Max Kates about bladder cancer biomarkers. Dr. Abbosh is a urologic oncologist at the Fox Chase Cancer Center in Philadelphia. Dr. Kates is an assistant professor of urology and oncology with the Brady Urological Institute at Johns Hopkins in Baltimore. Rick and Drs. Abbosh and Kates talk about what biomarkers are and how they are relevant to bladder cancer. A biomarker is a biological molecule found ...
What the Cancer Experience Registry Means to Bladder Cancer Patients with Dr. Kimberly Papay Rogers
February 09, 2022 05:01 - 21 minutes - 19.9 MBIn Episode 21 of Bladder Cancer Matters, host Rick Bangs talks with Kimberly Papay Rogers, PhD, the Director of Research at the Cancer Support Community. Rick and Dr. Rogers discuss her work on the Cancer Experience Registry, an online research survey that helps enhance cancer care, improve health care policies, and ensure support services better reflect the needs of people affected by cancer. They also discuss: What a cancer registry is Why bladder cancer was added to the registry...
What World Cancer Day Means to the Bladder Cancer Community with Alex Filicevas
February 04, 2022 05:01 - 11 minutes - 8.94 MBIn this special 2022 World Cancer Day episode of Bladder Cancer Matters, BCAN's Director of Communications and Marketing talks with Alex Filicevas, the executive director of the World Bladder Cancer Patient Coalition (WBCPC). Mark and Alex talk about how bladder cancer is a global health issue and the role that the WBCPC takes in helping to build infrastructure to help countries support patients and caregivers.
How Patients Can Navigate the BCG Shortage with Dr. Robert Svatek
January 03, 2022 05:30 - 46 minutes - 36.1 MBIn this episode of Bladder Cancer Matters, host Rick Bangs talks with Dr. Robert Svatek about how bladder cancer patients can navigate the ongoing BCG shortage. Rick and Dr. Svatek discuss: What BCG is and how it is used What the different strains are Why there is a BCG shortage What to do if your urologist doesn't have BCG Alternatives to BCG The trial Dr. Svatek is doing about the Japanese strain The future of BCG treatments Never miss an episode of Bladder Cancer Matters by...
“I Think I am Probably the Happiest Ileal Conduit Person in the World” with Vicki S.
December 14, 2021 15:59 - 27 minutes - 23.2 MBIn this special episode of Bladder Cancer Matters, BCAN associate Joslyn Brown has a frank and uplifting conversation with Vicki S., who declares herself to be the “luckiest ileal conduit person in the world.” Joslyn and Vicki talk about: The symptoms that Vicki had well before her bladder removal surgery How relieved she was to have her bladder taken out What her recovery was like How happy she is to be alive and doing well after her surgery We also encourage you to visit our web ...
What You Need to Know About Smoking and Bladder Cancer with Dr. Richard Matulewicz
November 19, 2021 05:00 - 50 minutes - 50.5 MBIn this special episode released on November 19, 2021 - the day of the Great American Smokeout - host Rick Bangs and Dr. Richard Matulewicz, a urologic oncologist and an assistant professor at Memorial Sloan Kettering Cancer Center, talk about smoking and bladder cancer. They discuss: Who is smoking in 2021 The fact that more than half of all bladder cancer cases can be directly tied to the effects of smoking - second only to lung cancer The types of bladder cancer that smokers tend to...
Part 2: My Experiences as a Bladder Cancer Caregiver with Beáta Baker
November 10, 2021 21:19 - 32 minutes - 29.8 MBEpisode 16, Part 2 of the Bladder Cancer Matters podcast is about the unsung heroes of a bladder cancer patient’s journey: his or her caregivers. Rick’s special guest in this episode is Beáta Baker, who cared for her husband, Steven, as he battled his unexpected diagnosis and subsequent bladder removal surgery (radical cystectomy). In the second of a two-part podcast and an engaging and personal conversation, Beáta describes her journey and experiences as a caregiver. Rick and she discus...
Part 1: My Experiences as a Bladder Cancer Caregiver with Beáta Baker
October 28, 2021 17:40 - 26 minutes - 23.6 MBEpisode 16, Part 1 of the Bladder Cancer Matters podcast is about the unsung heroes of a bladder cancer patient’s journey: his or her caregivers. Rick’s special guest in this episode is Beáta Baker, who cared for her husband, Steven, as he battled his unexpected diagnosis and subsequent bladder removal surgery (radical cystectomy). In an engaging and personal conversation, Beáta describes her journey and growth as a caregiver. Rick and she discuss: What was it like to be Steven’s caregiv...
I Can't Get Chemotherapy to Treat My Bladder Cancer - Now What? with Dr. Guru Sonpavde
October 26, 2021 04:01 - 41 minutes - 39.7 MBEpisode 15 of the Bladder Cancer Matters podcast is about a challenge facing many bladder cancer survivors: knowing that chemotherapy is the recommended treatment but finding out that it is not an option available to them. Its special guest is Dr. Guru Sonpavde, the Bladder Cancer Director at the Dana-Farber Cancer Institute in Boston. In this podcast, Rick and Dr. Sonpavde discuss: What are the different types of chemotherapy for bladder cancer? Why are some more effective than oth...
Getting Ready for Chemotherapy and Bladder Cancer Surgery: Prehab and Nutrition with Dr. Sarah Psutka
October 12, 2021 15:53 - 19 minutes - 14.7 MBEpisode 14 is a reprise of a very popular webinar BCAN did in 2019 about how bladder cancer patients can prepare themselves for chemotherapy and surgery. Its guest is Dr. Sarah Psutka of the University of Washington. Dr. Psutka is a urologic oncologist specializing in bladder, renal, testicular and prostate cancer at the Seattle Cancer Care Alliance and also Assistant Professor of Urology at the University of Washington School of Medicine. In this podcast, you’ll hear Dr. Psutka discuss wh...
Battling Aggressive Bladder Cancer in the Era of COVID - Margo's Story
September 09, 2021 16:08 - 39 minutes - 33.1 MBIn this special Episode 13 of Bladder Cancer Matters, patient Margo W. describes her unusual journey with bladder cancer. She was diagnosed with an aggressive form of the disease at the time when COVID began to severely impact patients throughout the U.S. Her type of bladder cancer was discovered only after seeking a second opinion, and the second set of doctors learned that her cancer was fast growing and dangerous. In a personal and moving story, Margo recants her battle with bladder c...
The Importance of a Second Opinion for Bladder Cancer Patients with Dr. Samuel Washington
August 24, 2021 04:01 - 18 minutes - 14.8 MBIn Episode 12 of Bladder Cancer Matters, Rick Bangs's special guest is Samuel L. Washington III, MD, MAS, of the University of California San Francisco Department of Urology. Dr. Washington is Assistant Professor of Urology, Goldberg-Benioff Endowed Professorship in Cancer Biology, and a recipient of BCAN's Young Investigator Award. Rick and Dr. Washington discuss: Why should patients get a second opinion? Are there ever good reasons to NOT get a second opinion? Will my doctor suppor...
What is the Best “Light” to Detect Bladder Cancer When Getting a Cystoscopy? with Dr. Yair Lotan
August 10, 2021 16:27 - 41 minutes - 38.3 MBIn Episode 11 of Bladder Cancer Matters, Rick Bangs's special guest is Yair Lotan, M.D., a Professor of Urology and the Chief of Urologic Oncology, at UT Southwestern Medical Center. He is also the Medical Director of the Urology Clinic at UT Southwestern and Parkland Health and Hospital System. Dr. Lotan also serves on BCAN's Scientific Advisory Board. Rick and Dr. Lotan discuss: When do urologists use a cystoscopy and why? What are the different types of light used in a cystoscop...
The Pluses and Minuses of Cystoscopies, TURBT and Other Bladder Cancer Diagnostic Tools with Dr. Alexander Kutikov
July 28, 2021 15:19 - 46 minutes - 43.9 MBIn Episode 10 of Bladder Cancer Matters, Rick Bangs's special guest is Dr. Alexander Kutikov, MD, FACS of Fox Chase Cancer Center in Philadelphia. Dr. Kutikov is the Chief of the Division of Urology and Urologic Oncology. Rick and Dr. Kutikov discuss: What can a cystoscopy tell you about the bladder cancer stage? Is a blue light cystoscopy better than a white light? What about x-rays and CT scans? Can they give you different information than a cystoscopy? Never miss an episode by su...
Part 3 of Why Nutrition is So Important for Bladder Cancer Patients with Dr. Jill Hamilton-Reeves
July 14, 2021 15:10 - 31 minutes - 27.2 MBIn this Part 3 of 3 of Episode 9 of Bladder Cancer Matters, host Rick Bangs chats with Jill Hamilton-Reeves, PhD, RD, CSO. Dr. Reeves's research is focused on nutrition and cancer prevention, management, and survivorship, with specific attention on genitourinary cancers. Rick and Dr. Reeves discuss: The importance of nutritional guidance right after bladder cancer surgery Why accredited cancer centers are required to have a nutritionist on staff What patients who have had a radical c...
Part 2: Why Nutrition is So Important for Bladder Cancer Patients with Dr. Jill Hamilton-Reeves
July 07, 2021 16:51 - 13 minutes - 12.2 MBIn this Part 2 of 3 of Episode 9 of Bladder Cancer Matters, host Rick Bangs chats with Jill Hamilton-Reeves, PhD, RD, CSO. Dr. Reeves's research is focused on nutrition and cancer prevention, management, and survivorship, with specific attention on genitourinary cancers. Rick and Dr. Reeves discuss: How good nutrition may help patients receiving immunotherapy, either by increasing the effectiveness of their immunotherapy or making the side effects more tolerable How fitness and nutriti...
Part 1: Why Nutrition is So Important for Bladder Cancer Patients with Dr. Jill Hamilton-Reeves
June 28, 2021 16:15 - 21 minutes - 18.5 MBIn this Part 1 of 3 of Episode 9 of Bladder Cancer Matters, host Rick Bangs chats with Jill Hamilton-Reeves, PhD, RD, CSO. Dr. Reeves is a registered and licensed dietitian with doctoral training in translational and clinical nutrition science. Dr. Reeves's research is focused on nutrition and cancer prevention, management, and survivorship, with specific attention on genitourinary cancers. Rick and Dr. Reeves discuss: The relationship between nutrition and bladder cancer, and how that e...
Personalized Medicine and Bladder Cancer Patients with Dr. Matthew Milowsky
June 17, 2021 17:49 - 35 minutes - 33 MBIn Episode 8 of "Bladder Cancer Matters," host Rick Bangs interviews Dr. Matthew Milowsky about genetics, genomics and personalized medicine for bladder cancer treatment. Dr. Milowsky is the Section Chief, Genitourinary Oncology; Co-Director, Urologic Oncology Program University of North Carolina School of Medicine. Dr. Milowsky is also the chair of BCAN's Bladder Cancer Genomics Consortium. In this episode, Rick and Dr. Milowsky discuss: What the Bladder Cancer Genomics Consortium ...
The Future of Bladder Cancer Research with Rick Bangs and Diane Zipursky Quale
May 20, 2021 15:31 - 34 minutes - 32.3 MBIn this episode, Bladder Cancer Matters host Rick Bangs and guest and BCAN c-founder Diane Zipursky Quale discuss the fact that, despite significant advancements in the past 10 years in the understanding of the biology of bladder cancer and the development and approval of many new therapies, bladder cancer in 2021 remains a deadly disease with low public awareness, inequitable and inadequate funding, and a limited number of effective treatment options. Rick and Diane also discuss the issue...
Being a Bladder Cancer Patient with Carlos Glender
April 28, 2021 16:56 - 29 minutes - 26.3 MBIn this episode of "Bladder Cancer Matters," host (and bladder cancer survivor) Rick Bangs interviews Carlos Glender, a non-muscle invasive bladder cancer survivor. Carlos had a Stage 1 high-grade bladder cancer. Rick and Carlos talk about the symptoms that Carlos experienced that led him to go to his doctor, what it was like to receive a bladder cancer diagnosis, being treated with BCG in a time when the drug is in short supply, what it was like to attend a BCAN Bladder Cancer Summit for ...
The Bladder Cancer Room Where It Happens with Dr. Elizabeth Plimack
March 31, 2021 17:22 - 28 minutes - 28.6 MBHost Rick Bangs interviews Dr. Elizabeth Plimack of Fox Chase Cancer Center, where she is the Chief, Division of Genitourinary Medical Oncology. Dr. Plimack is also the Chair of the Bladder Cancer Advocacy Network's (BCAN's) Scientific Advisory Board. Rick and Dr. Plimack talk about: The importance of supporting bladder cancer research The role of BCAN's Scientific Advisory Board What the Bladder Cancer Think Tank is Resources that BCAN has for bladder cancer patients, caregivers, ...
The Slippery Slope of Bladder Cancer and Radical Cystectomies with Dr. Ashish Kamat
March 09, 2021 15:14 - 29 minutes - 27.6 MBIn the latest "Bladder Cancer Matters" podcast, host Rick Bangs interviews Dr. Ashish Kamat about the the "slippery slope" of treating high grade bladder cancer tumors that sometimes leads to bladder removal surgery otherwise known as a radical cystectomy. Dr. Kamat is a Professor (Tenure) of Urology and Director of Urologic Oncology Fellowship at MD Anderson Cancer Center, and a graduate of the AUA Leadership Program. Dr. Kamat also serves on BCAN's Scientific Advisory Board. What doe...
What You Need to Know About COVID Vaccines and Bladder Cancer with Dr. Seth Lerner and Dr. Laila Woc-Colburn
February 24, 2021 14:00 - 34 minutes - 37.1 MBThe COVID-19 pandemic has made a difficult disease even more complicated for bladder cancer patients. Should those undergoing treatment for the disease get vaccinated before having a procedure or surgery? What about getting a vaccine either before, during or after chemotherapy? Dr. Seth Lerner of Baylor University, a bladder cancer doctor, and Dr. Laila Woc-Colburn, an infectious disease doctor at Emory Healthcare, tackle these questions and more. The two doctors also discuss: Does t...
Part 2: Why Bladder Cancer Patients May Need an Oncology Social Worker with Dr. Heather Goltz
February 16, 2021 15:23 - 31 minutes - 30.5 MBIn Episode 2 of the "Bladder Cancer Matters" podcast, host Rick Bangs interviews Dr. Heather Honoré Goltz in Part 2 of a two-part episode. Rick and Dr. Goltz discuss what oncology social work is and how it might be helpful to bladder cancer patients. Topics covered in the podcast include: How to find an oncology social worker to work with Benefits for bladder cancer patients of working with an oncology social worker When in your cancer journey to start working with this person This e...
Is Working with an Oncology Social Worker Right for Bladder Cancer Patients with Dr. Heather Goltz
February 10, 2021 16:36 - 23 minutes - 22.6 MBIn Episode 2 of the "Bladder Cancer Matters" podcast, host Rick Bangs interviews Dr. Heather Honoré Goltz in Part 1 of a two-part episode. Rick and Dr. Goltz discuss what oncology social work is and how it might be helpful to bladder cancer patients. Topics covered in the podcast also include: What oncology social work is and how it is different than other types of social work How an oncology social worker helpful in bladder cancer This episode is sponsored by FerGene, a new gene ther...
What's Up with Bladder Cancer and BCG with Dr. Ashish Kamat
January 21, 2021 22:26 - 29 minutes - 29.3 MB Read the podcast transcript here. In the inaugural "Bladder Cancer Matters" podcast, host Rick Bangs interviews Dr. Ashish Kamat about the state of BCG in bladder cancer treatment. Dr. Kamat is a Professor (Tenure) of Urology and Director of Urologic Oncology Fellowship at MD Anderson Cancer Center, and a graduate of the AUA Leadership Program. Dr. Kamat also serves on BCAN's Scientific Advisory Board. In this episode, Rick and Dr. Kamat discuss what BCG is, how it is used, why th...