Audio Podcast

Nutrition for Mitochondrial Disease Patients

May 07, 2010 20:37 - 50 minutes - 2.88 MB application/octet-stream

Join us this month to learn more about the challenges facing kids and adults with Mito when it comes to nutrition. What are the goals for Mito patients, and how are they different from nutrition goals for the typical population?

Becoming a great advocate: advice for complex patients and families, with Mark Korson MD and Maggie Orr RN

April 05, 2010 19:11 - 54 minutes - 3.15 MB application/octet-stream

Becoming a great advocate: advice for complex patients and families, with Mark Korson MD and Maggie Orr RN

Question and Answers with compounding pharmacists

March 05, 2010 21:15 - 1 hour - 24.8 MB application/octet-stream

Q&A with compounding pharmacists about vitamins and supplements for Mito patients.

Dr. Marcus Favero speaks on Psychiatric Disorders, Meds and Mito

February 08, 2010 14:26 - 1 hour - 3.71 MB application/octet-stream

Dr. Marcus Favero speaking on Psychiatric Disorders, Medications & Mitochondrial Disease

Overwhelmed No More

December 08, 2009 21:07 - 57 minutes - 23 MB

Tips from special needs coach Joan Celebi.

Update on Mito Treatment Approaches

November 09, 2009 14:24 - 44 minutes - 18 MB

Dr. Anselm is a member of MitoAction's medical advisory committee and practices in Child Neurology at Children's Hospital Boston. Her research is focused on clinical presentation of children with mitochondrial disorders and their response to therapy.

Coping with Mitochondrial Disease

October 05, 2009 14:36 - 1 hour - 26.2 MB

MitoAction welcomes Carole Slipowitz PhD and Maggie Orr RN M.Ed this month to discuss the challenges of dealing with a diagnosis of mitochondrial disease. Any chronic illness can be overwhelming - for a child, a family, or an adult with the condition. However, due to the unpredictability, complexity of symptoms, and uncertain prognosis, a diagnosis of mitochondrial disease is especially stressful...and exhausting.

Munchausens by Proxy accusations in Children with Mitochondrial Disease

September 08, 2009 14:39 - 54 minutes - 21.8 MB

This topic is dramatically important to the parents of children with complex gastrointestinal presentations of mitochondrial disease. MitoAction addresses this topic today in response to the increasing number of accusations of child abuse and Munchausen by proxy that have been placed upon many parents of children struggling from the devastating symptoms of mitochondrial disease.

To Work or Not to Work

August 10, 2009 14:05 - 1 hour - 29.1 MB

MITO Meeting Aug 7, 2009 with Lee Jurman from Personal Disability Consulting on the topic: "To work or not to work: Tough choices for adult Mito patients"

Medical Foods for Mito

July 10, 2009 20:51 - 54 minutes - 24.8 MB application/octet-stream

Solace Nutrition and Medical Foods joins MitoAction July 10th for a toll-free teleconference to discuss medical foods, how they interact with electron transport chains and more.

Home Nutrition Support with guest Deb Pfister from NutriThrive

June 08, 2009 13:49 - 59 minutes - 3.39 MB application/octet-stream

Join us as expert Deb Pfister from NutriThrive discusses g-tubes, j-tubes, TPN and the ins and outs of parenteral and enteral nutrition for adults and children who need alternatives to food for nutrition and hydration.

Drug Toxicity and Mitochondria

May 01, 2009 21:06 - 1 hour - 3.85 MB application/octet-stream

MitoAction is excited to welcome Dr. James Dykens, Director of Investigative Cellular Toxicity at Pfizer Drug Safety Research & Development and author of the 2008 book "Drug Induced Mitochondrial Dysfunction".

Palliative care and hospice

April 03, 2009 19:03 - 47 minutes - 2.74 MB application/octet-stream

Palliative care and hospice: Focus on quality of life with guest speaker Dr. Patricia O'Malley from Massachusetts General Hospital

Special needs planning workshop with Jack Raycroft

March 09, 2009 13:40 - 1 hour - 3.5 MB application/octet-stream

MitoAction welcomes Jack Raycroft for a discussion on special needs planning. MitoAction meeting March 6 2009.

MitoAction Interview with Stephen

March 02, 2009 15:58 - 14 minutes - 8.42 MB application/octet-stream

MitoAction interview with Stephen.

Mitoaction Interview with Jamie Emory

February 25, 2009 19:11 - 19 minutes - 1.12 MB application/octet-stream

A MitoAction interview with Jamie Emory.

Autism and Mitochondrial Disease

February 06, 2009 22:10 - 2 hours - 7.29 MB application/octet-stream

Autism and Mitochondrial Disease, Feb 6 2009 with guest Dr. David Holtzman

"Ideas from an occupational therapist" with speaker Susan Orloff, OTR/L

January 09, 2009 20:01 - 53 minutes - 3.07 MB application/octet-stream

Join MitoAction with guest speaker Susan Orloff OTR/L to discuss ideas to help with the energy/sensory connection for children and adults with mitochondrial disease.

Genetic inheritance patterns in Mito with guest speaker Katherine Sims

December 05, 2008 21:48 - 1 hour - 5.06 MB application/octet-stream

Genetic inheritance patterns in mitochondrial disease, guest speaker Dr. Katherine Sims of Massachusetts General Hospital An overview of ways that mitochondrial disorders may be inherited, designed to educate patients, families, and community healthcare providers.

Teen interview with Harrison

October 23, 2008 15:39 - 24 minutes - 5.19 MB application/octet-stream

Interview with 19 year old teen Harrison living with mitochondrial disease

Teen interview with Olivia

October 23, 2008 15:26 - 18 minutes - 4.09 MB application/octet-stream

Interview with 14 year old teen Olivia, living with mitochondrial disease

Teen interview with Reed

October 16, 2008 21:07 - 9 minutes - 8.71 MB application/octet-stream

Interview with Reed, 13 year old teen living with mitochondrial disease

Teen interview with Morgan

October 16, 2008 21:05 - 29 minutes - 26.8 MB application/octet-stream

Interview with Morgan, 15 year old teen living with mitochondrial disease

Teen interview with Donovan

October 16, 2008 21:02 - 23 minutes - 21.8 MB application/octet-stream

Interview with Donovan, 17 year old teen living with mitochondrial disease

Teen interview with Kristin

October 16, 2008 20:59 - 14 minutes - 852 KB application/octet-stream

Interview with Kristin, 18 year old teen living with mitochondrial disease

Interview with Annalise

October 16, 2008 20:49 - 18 minutes - 1.05 MB application/octet-stream

Interview with Annalise, 23 year old living with mitochondrial disease

October MITO Meeting: Tummy Troubles

October 03, 2008 21:28 - 1 hour - 72 MB

Dr. Alex Flores speaks about gastrointestinal issues for mitochondrial disease patients.

Mitochondria: The BIG Picture

September 12, 2008 19:50 - 17 minutes - 1.01 MB application/octet-stream

Interview with Dr. Christoph Westphal, Sirtris Pharma

Meeting: CoQ10 and Creatine, August 1 2008

September 08, 2008 17:27 - 1 hour - 4.26 MB

This month MitoAction welcomed Dr. Fran Kendall of Emory University's Department of Human Genetics mitochondrial program to discuss the dosing debate around CoQ10 and creatine.

Drug Trial Begins Targeting Mitochondrial Diseases

July 19, 2008 13:52 - 22 minutes - 1.31 MB application/octet-stream

Exclusive Interview with Dr. Guy Miller, CEO of Edison Pharma. On July 15, 2008 Edison Pharma and partner Penwest Pharmaceuticals announced that A0001, an "improved" variant of Coenzyme Q10 (CoQ10), has entered Phase 1 clinical development with healthy volunteers. Edison predicts trials in patients with inherited mitochondrial disease will begin in 2009.

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