Ataxia, Did You Know? artwork

Want to be involved in the Ataxian PROM?

Ataxia, Did You Know?

English - April 11, 2018 00:22 - 9 minutes - 8.65 MB
Self-Improvement Education Health & Fitness Medicine ataxia parkinson’s awareness health rare diseases Homepage Download Apple Podcasts Google Podcasts Overcast Castro Pocket Casts RSS feed
Previous Episode: Cindy DeMint support Group leader making a different
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Want to be involved in the Ataxian PROM? Dr Schmahmann and Mary Donovan need your help and explain how to get involved.


Thank you for your interest in participating in our Ataxia-Patient Reported Outcome Measure(PROM)!


If you have any questions, please do not hesitate to email us at [email protected]. You can also reach out to our Research Coordinator, Samantha Pierce, at 617-726-4961. Below is the link to the surveys. One is for participants diagnosed with Ataxia, and one is for relatives of these participants. Make sure you are taking the correct survey:


PATIENTS Survey-https://docs.google.com/forms/d/e/1FAIpQLSf9SuSckJarrddQPjQtybUKiPFLbJKPh1df1yurxOtiCTDArA/viewform?usp=sf_link


RELATIVES/CAREGIVERS Survey- https://docs.google.com/forms/d/e/1FAIpQLSeZdmra_yZydiVusRCWD_IT28flXRCjY013AUnD6sj3qSF7QA/viewform?usp=sf_link


Please feel free to forward this to other people associated with ataxia (either a patient, relative, or caregiver) who would be interested in completing this survey. This survey will be closed to responses on May, 15th.


Thank you again for your participation.

Dr Schmahmann


iTunes

https://itunes.apple.com/us/podcast/know-ataxia-ataxia/id1312495222?mt


SoundCloud

https://soundcloud.com/user-536040137-843024175


Facebook

https://www.facebook.com/ataxiadidyouknow/


Website

http://www.rideforjohn.org/


Instagram

https://www.instagram.com/ataxian_/


Twitter

https://twitter.com/johnnyjots

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