From Disappointment to Discovery

At just 19 years old, Anya was diagnosed with Erdheim-Chester disease (ECD), an extremely rare and incurable blood cancer. After three years of unsuccessful treatments, Anya was quickly running out of options. In this episode of our Your Stories podcast, Anya’s mother, Colleen, and one of Anya's oncologists, Conquer Cancer-funded researcher Dr. Jithma Abeykoon, discuss the complexities of uncovering her diagnosis, the disappointment of failed treatments, and the relief and surprise that came when they discovered a new treatment option that finally worked.