What Am I Thankful For
9 episodes - English - Latest episode: almost 2 years ago - ★★★★★ - 6 ratingsWe are the Remillet family – Joe, Desiree and Maddux.
Our story is filled with some setbacks but we would like to focus on the triumphs. We are sharing our journey in hopes that we can help families that may be struggling with something we have faced and overcome.
Our son, Maddux, has a dual diagnosis of Spina Bifida and Achondroplasia Dwarfism (and others we will discuss here). He is truly a one-of-one, who continues to teach us all how to laugh, love and learn. His positive energy continues to guide our family and we hope to help others as well.
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Episodes
Live Episode: Maddux will need brain surgery (#14) this week
July 18, 2022 13:00 - 55 minutes - 51.6 MBUpdate on how our 2022 has been going Why we haven't been recording Update on Maddux's school year Professional Updates Brain Surgery #14 Diagnosis from routine MRI Typical signs of shunt failure Famous sports figures who wore #14 (https://www.ranker.com/list/best-athletes-who-wore-14/ranker-sports) Our brain surgery playbook Quarantine leading up to surgery Have to shave his head bald Bowel management Stay at a nearby hotel Spring Break - Hawaii Trip Trouble with COVID...
Episode 5- Fetal Surgery for Spina Bifida (Part 2/2)
March 08, 2022 13:00 - 34 minutes - 32.3 MBAs we continue to tell our story of Fetal Surgery at UCSF we get into post-surgical and recovery topics such as: -The 1st ultrasound after fetal surgery -How to help your loved ones in the hospital -Life on bedrest -A surprise request to sign a DNR order at the worst possible time -A THANK YOU to nurses -The outpouring of support for Maddux (including his namesake) -My baby is no longer moving/kicking -Our car gets towed in SF, insult to injury -The Fetal Surgery PLAYBOOK
Episode 5- Fetal Surgery for Spina Bifida (Part 1/2)
December 08, 2021 13:00 - 30 minutes - 28.3 MBIn Episode 5, we discuss the amazing experience that is Fetal Surgery to repair Spina Bifida (Myelomeningocele). This process includes a surgical repair to a fetus at roughly the half-way point of a pregnancy. The baby is operated on in-utero and then placed back into the uterus to continue the pregnancy for as long as possible until a "second-birth" is needed. This procedure comes with some major benefits but also several risks to an otherwise healthy mother and her baby. We share the e...
Episode 4- Spina Bifida Diagnosis 2/2
December 01, 2021 13:00 - 39 minutes - 36.8 MBIn Episode 4, we continue to unpack the moments and reactions to receiving Maddux's diagnosis of Spina Bifida. In this episode, we take a deeper dive into how we dealt with our feelings and depression. How we each managed to pick ourselves up from depression and mourning and see the light that would lead to an important decision. How would we proceed with this pregnancy? Other subtopics: -We believe that families should have the right to choose how they proceed post-diagnosis -The 2nd...
Live Episode: Maddux Returns to School + Special Needs Parenting means _____?
November 22, 2021 17:09 - 41 minutes - 19.3 MBTopics: Creating the Podcast We discuss the challenges in writing, creating, recording, editing and publishing new episodes. We also discuss feedback from our listeners Special Needs Parenting Means______? We discuss what Special Needs Parenting means to us based on our experiences Listener engagement from Social Media Feedback from Part 1 of the Spina Bifida diagnosis episode from listeners affected by Spina Bifida Update on Maddux’s Return to School The challenges, setbacks and re...
Episode 3- Spina Bifida Diagnosis Part 1/2
November 16, 2021 13:00 - 31 minutes - 29.2 MBIn Episode 3, we discuss the events surrounding Maddux's diagnosis of Spina Bifida. This diagnosis happened in the first trimester of the pregnancy and forced us to deal with the so many emotions. Any parent that has faced the diagnosis of a disability or abnormality can relate to our account of the story. Other subtopics include: -Infertility struggles recap -Nutrition Response Testing (For Fertility) -What causes Spina Bifida? -Folic Acid/Folate Supplements -Don't blam...
Epsiode 2- Unexplained Infertility
November 08, 2021 04:11 - 37 minutes - 34.9 MBIn Episode 2, we begin to tell our story. The first chapter of which is about Unexplained Infertility. We wanted to jump right in and discuss a topic that many have experienced but almost nobody talks about. Other subtopics include: -The Stigma of Infertility -Struggles of "trying" unsuccessfully -When sex isn't fun anymore -The sales tactics of modern fertility clinics -Why doesn't health insurance cover fertility treatments in America? -Clomid Treatments -A woman's biologica...
Live Episode: Spina Bifida and Dwarfism Awareness Month + An Adaptive Wheelchair Costume Retrospective
October 30, 2021 18:39 - 44 minutes - 41.5 MBWe discuss the following: -Additional Goals for the Podcast Create awareness towards Local, State and Federal programs that help families with children that have disabilities How we manage to balance Maddux's schedule and needs with our marriage and professional goals -Current Events that have happened since deciding to release the pod Every special needs parent's nightmare! Maddux's horrific accident at school (9/7/21) that landed him the Emergency Room The struggles of trying to get him ba...
Episode 1- Introduction
October 26, 2021 22:28 - 17 minutes - 15.9 MBWe discuss the excitement and the vulnerability around starting the podcast. Introductions Goals for the Pod: Create awareness Help families that are experiencing one or several of these topics Advocate for those with disabilities Tell our story honestly and truthfully We want to share our amazing journey and celebrate the good times along the way!